Conditions and Diseases
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He is my sun, my stars, my moon above
A bloody nose led us to the clinic for platelets earlier today. As soon as we were ready to head home, Sharon came over to flush out Ronan’s tubes and the saline started squirting out the side. Not a good thing. He had a tiny hole in the line that leads to his broviac which…
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Heart of a mother, soul of a fighter
Anxiety is the word of the night. Not sure why… but tonight I am more anxious than I have been in a while. We had a great day; a beautiful day. We started off up bright and early and Ronan knew that we had a clinic day ahead of us. He was actually really excited…
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A picture is worth a thousand words… and a thousand tears
Last night, I took a picture of Ronan, and it took my breath away. He doesn’t even look like the same baby anymore. Cancer has taken over and completely changed his appearance. He is skinny, pale, his eyebrows and eyelashes are gone, his bald head and sunken in eyes are heart wrenching. After I looked…
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Magic Medicine… Round 4, Day 3
I slept in my own bed last night. Woke up around 3 a.m. though…. couldn’t sleep. Saw that my dear CC was up on Twitter, so, we text messaged for a while back and forth. She couldn’t sleep either. Just shows how connected we are. I finally fell back asleep around 4 a.m. and slept…
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Magic Medicine…. Round 5, Day 2
Ronan’s day went pretty well. He slept a lot today and I spent the day cuddled up beside him. We were both tired from last night. Because he is hooked up to so many fluids to keep him hydrated, he wakes up about every half an hour to pee. He is too proud to wear…
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Treasure each day, because you don’t know how many you’re going to be given
There was a reason we didn’t start chemo this week. It was because we needed to be together this Thanksgiving as a family. It truly was one of the best Thanksgivings I’ve had in my life. Woody and I started off the day by making a big breakfast for the boys’ and Uncle Ron came…
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We live in a beautiful world
What a beautiful day. Today was filled with such beauty I almost don’t even know where to start. First, I just want to say that our prayers of finding a private plane to get us to and from New York City have been answered. I can’t believe all of the responses I got today from…
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Have you ever looked fear in the face and said I just don’t care?
Ro is still in the hospital due to a low ANC count. His numbers jumped up today, which tells us he is on the up and up, but they still need to get up higher before we can come home. He is in a lot of pain due to developing Mucositis which is a side…
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Clinic Day
Ronan and I went off to the clinic this morning to do his usual Monday checks of his blood and platelet levels. Poor little guy is having bad tummy aches from the chemo last week. A lot of diarrhea and him saying his tummy hurts. I talked to “A” about this and she said it…
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