hospitals
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Burn baby, burn
Home. That’s where we are heading. No more hospitals, no more clinics, no more. As I sit here holding Ro on our flight home, all I can think about is, “Will this be his last airplane ride?” It can’t be possible. He was supposed to be coming with us, to Ireland soon. He was supposed…
4th Birthday, angels, anger, arizona, AZ, baseball game, best friends, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, doctors, Dr. Maze, Energy, Family, Fernanda Borletti, friends, FUCK, god, Health, Home, honesty, Hospice, hospitals, Jet, judgement, love, Luke, marathon, maya thompson, mickey mouse, morphine, Mother’s Day, Neuroblastoma, new york city, reality, Rockstar Ronan, San Juan Islands, skydiving, Star Wars, tears, The Ronan Thompson Foundation, truth, Twin, twins -
You must have been a beautiful baby
Ronan’s counts are still rising. He had a great day. I came to the hospital this afternoon with Liam and Quinn. The 9th floor blocked off the playroom for us so Ronan could play with his brothers. We stayed in there for about 3 hours and the boys played their little hearts out. The twins…
angels, anger, arizona, asspole, AZ, baby blue eyes, bath time, beautiful boy, best friends, birthdays, bone marrow, Chemotherapy, Childhood Disease, Crayola, CSI, CT, Dr. Kushner, Dr. La Quaglia, Energy, facebook, Family, Health, Hospital, hospitals, iMac, iPhoto, love, maya thompson, MIBG scan, MRI, New York, new york city, New York Miss Macy, Phoenix, Ro baby, Rockstar Ronan, Scan day, sloan kettering, Star Wars, strength, tears, The Ronan Thompson Foundation, true friends, true love, Twinkle Twinkle Little Star, Twitter, woody thompson -
24 crazy hospital nights! Somebody bust us out of here!
I feel like I’ve been on a roller coaster of happy and sad today. Happiness came in the form of our dear friend and Tricia’s sister, Sarah, getting a nursing job at Mayo. Soooo proud of you Sar! It also came in the form of my beautiful cousin, Shannon, getting a full ride to…
“The Team”, anger, arizona, AZ, baby blues, best friends, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, College, Conditions and Diseases, Dr. Brian Kushner, Dr. Modak, dreams, Energy, Family, Health, homesick, honesty, hospitals, kids, love, maya thompson, Mayo Scottsdale, Memorial Sloan–Kettering Cancer Center, mom’s, Music, Neuroblastoma, new york city, Night Nurse Alex, phoenix children’s hospital, pizza, Rockstar Ronan, sadness, Shannon Bade, Superheros, The most beautiful boy in the world, twins, United States, USD, woody thompson -
Empire State of Mind
I just spent the last 48 hours with Quinn and it was blissful. We woke up yesterday and I asked him what he wanted to do, as we had the whole day to spend together. He chose to go to The Empire State Building so we got ready for our adventure of the day.…
angels, arizona, Austraila, AZ, best friends, boys, Cancer, Charisma Carpenter, Chemotherapy, childhood cancer, Childhood Disease, Delizia’s, Empire State Building, Family, Hospital, hospitals, Jet Blue, maya thompson, new york city, New York Knicks, Parenting, Paul Frank, pizza, raw, red-eye, Rockstar Ronan, soho, Star Wars, taxis, tears, The Ronald McDonald House, true love, twins, woody thompson -
The worst of times are the best of times
Last night my very sweet friend, Ed, hooked our family up with 5 tickets to the New York Knicks game and floor passes. It was our intention to take Ronan, but with him inpatient at Sloan, there was no chance of that happening. Mimi and Papa offered to come and sit with Ronan so Liam,…
angels, arizona, AZ, basketball, best friends, best husband ever, boys, Brian Kushner, Broadway show, Chemotherapy, doctors, Donate Blood!, Donate Platelets!, Dr. Modak, dreams, Family, friendship, Go Knicks!, happiness, home sweet home, hospitals, I love woody, Jet Blue, life, love, Memorial Sloan–Kettering Cancer Center, miracles, Natural killer cell, NBA, Neuroblastoma, new york city, New York Knicks, Phoenix, promises, reality, Rockstar Ronan, sloan kettering, Star Wars, The Ronan Thompson Foundation, tricia tinney, twins, woody thompson -
In a New York minute
As Ronan slept last night, I found myself cuddled up on the single little bed that we have in the room with Woody. It is so tiny but I fit absolutely perfect in it snuggled up to Wood. At one point, he was rubbing my back while I was sitting up, looking at the floor.…
angels, anger, arizona, AZ, best friends, bullshit, Cancer, Central Park, Chemotherapy, Childhood Disease, Conditions and Diseases, doctors, Doucebag Doctor, Dr. Modak, Europe, faith, Family, happiness, honesty, hospitals, India, London, love, maya thompson, new york city, New York Miss Macy, NYC Marathon, Perfection, radiation, raw, Rockstar Ronan, Shaushan Purim, sleep, Star Wars, strength, Wild Wild West, woody thompson -
MRI, CT, and Pet scan results…. kind of
After what seemed like the longest day ever; we returned home around 7:30 tonight. Ronan insisted we stop at CPK for pizza so we met Woody for dinner. I ate my one meal of the day, Ronan didn’t eat a thing and ended up just making me hold him while I ate. As  soon as…
angels, anger, AZ, best friends, blogging, bullshit, Cali, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, CT, doctors, Dr. Maze, Dr. Wood, friends, honesty, hospitals, isolation, Magnetic resonance imaging, MRI, Music, Neuroblastoma, New York, new york city, New York Miss Macy, Nuclear medicine, nurses, Parenting, Pet Scan, raw, reality, Rockstar Ronan, sadness, sloan kettering, sociopaths not allowed, Star Wars, Stem cell, strength, true love, truth, woody thompson -
“I soooo happy, mama”
Last night, we were able to leave the hospital. Ronan was fast asleep in his hospital bed and about 10:30 p.m. the nurse came into the room and said we could leave. I gathered up our things, managed to carry our bag, Ronan’s blankets, and pick up my baby boy and carry him to the…
angels, anger, arizona, AZ, best friends, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, Dr. Adams, Dr. Kushner, Family, Home, hospitals, life, love, maya thompson, new york city, Niki Tarbell, Parenting, relationships, Rockstar Ronan, Stem cell, Susie Schriver, thankfulness, tricia tinney
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