mickey mouse
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Everything’s not lost, but really it is
Ronan. You were everywhere today. I had to stop and catch my breath a few times just so I wouldn’t throw up. I am reminded of you in everything and everywhere. In the whole avocado that Quinn had for lunch. In the Mickey Mouse beach bag that Stacy carried her kids’ beach stuff in. In…
angels, anger, arizona, AZ, beach, best friends, Boogie Board, bullshit, California, Conditions and Diseases, Coronado, cousins, Dido, Family, fuck you cancer, Health, Home, hurting, I love you to the moon and back, life, love, maya thompson, mickey mouse, Neuroblastoma, new york city, pain, Pandora, Parenting, phoenix children’s hospital, Ro baby, running, sloan kettering, Sports Center, Star Wars, strength, sweet dreams, The Killers, The Stranger, twins, woody thompson -
The Twilight Zone
Ronan. Can you give me a reason to get out of bed today? Because I cannot find one. I’m still waiting for you to come and wake me up and tell me to make your extra cheesy eggies. I’m still waiting for you to ask me to put on “Mickey Mouse,” for you and sit…
angels, anger, arizona, AZ, Baseball games, best friends, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, death, doctors, Don’t stop believing, dreams, Energy, faith, Family, Fo Yo, friends, friendship, Fucking Hot Lava, High School Besties, love, maya thompson, mickey mouse, New York Miss Macy, out of body experience, raw, Rock Band, Rockstar Ronan, sadness, San Francisco, sleep, Spirit Hoods, The Ronan Thompson Foundation, truth, Twilight Zone, woody thompson -
Burn baby, burn
Home. That’s where we are heading. No more hospitals, no more clinics, no more. As I sit here holding Ro on our flight home, all I can think about is, “Will this be his last airplane ride?” It can’t be possible. He was supposed to be coming with us, to Ireland soon. He was supposed…
4th Birthday, angels, anger, arizona, AZ, baseball game, best friends, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, doctors, Dr. Maze, Energy, Family, Fernanda Borletti, friends, FUCK, god, Health, Home, honesty, Hospice, hospitals, Jet, judgement, love, Luke, marathon, maya thompson, mickey mouse, morphine, Mother’s Day, Neuroblastoma, new york city, reality, Rockstar Ronan, San Juan Islands, skydiving, Star Wars, tears, The Ronan Thompson Foundation, truth, Twin, twins -
The silence scares me because it screams the truth
A week. It’s been a week of sharing a room. Hospital beds. Hospital clothes. Hospital T.V. Hospital seconds/minutes/days/nights. Hospital tears. Hospital depression. Being home last night for the entire night with my twins felt so good that it hurt. I took them to breakfast this morning and we looked just like the perfect little family.…
3-year-old, America’s Taco Shop, anger, arizona, AZ, blogging, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Coconut Water, Facilities, faith, Health, Home, Hospital, Hospital life, iMac, insomnia, iPad, love, maya thompson, Medicine, mickey mouse, Music, pearl jam, prayers, Rockstar Ronan, sadness, sloan kettering, tears, thankfulness, The most beautiful boy in the world, true love, United States, woody thompson -
There’s no place like home
The morning started off early and Stacy offered to bring me coffee; which I really needed. She then ever so sweetly offered to stay with Ro so I could run home and shower. So thankful for her because just being able to go home and shower makes such a difference in my day. Ronan was…
angels, arizona, Arts, AZ, baseball, basketball, best friends, brothers, Cancer, Chemotherapy, Childhood Disease, Conditions and Diseases, Energy, Family, happiness, iPad, maya thompson, mickey mouse, mom’s, Neuroblastoma, Parenting, ricky bobby, Rockstar Ronan, sloan kettering, Star Wars, strength, twins, woody thompson -
The little monkey made it through the night
We ended up staying out of the hospital last night. Ronan slept and slept hard. His fever was off and on through the night, but did not ever go above 100.1. So thankful. I had the most awful dreams last night. UGH. I can’t shake them this morning. I had a dream that Ronan could…
Rockstar Ronan, Neuroblastoma, Childhood Disease, Phoenix, love, honesty, Chemotherapy, best friends, arizona, new york city, maya thompson, football, Coconut Water, ASU, mickey mouse, Hava Java, Little Big Planet, Camelback Mountain, Sundevils, Greenbay Packers, Birthday parties, Stacy Frakes, little monkey -
The show must go on
My skinny little chicken leg boy is finally getting his appetite back. Finally. It’s been about 2 weeks since he’s really wanted to eat. Now, I can’t keep him full. He is back to eating every hour on the hour. Oatmeal, eggs, Peanut Butter and Jelly, Fruit, Pizza, Carrots, Hummus, Cottage Cheese, Peas, Cheese Crisps……
All Her Favorite Fruit, angels, arizona, ASU, babies, basketball, best friends, bullshit, Camper Van Beethoven, Cancer, Chemotherapy, childhood cancer, Dr. Eshun, Family, friends, friendship, guitar, happiness, Harry Brown, Health, honesty, jake gyllenhaal, love, mickey mouse, Music, Neuroblastoma, new york city, Ochiocinco, Parenting, raw, reality, Ro baby, Rockstar Ronan, running, sloan kettering, soul mates, US Weekly, woody thompson, Zach Miller
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