Dr. Modak
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A winking kind of weekend
After a whirlwind of a weekend… it’s now just Ronan and myself snug in our bed. I don’t even know what went on this weekend except it was lovely. And a blur. We had a weekend full of non stop fun, laughing, eating, walking, crying, and fighting (3 boys, it happens). In other words, it…
arizona, bullshit, Central Park, Chemotherapy, Childhood Disease, Conditions and Diseases, crazy, Dr. Brian Kushner, Dr. Modak, faith, Family, Flirting, friends, Health, Hospital, maya thompson, Music, Neuroblastoma, New York Miss Macy, Pacific Northwest, Phoenix, rain, Ro baby, Rockstar Ronan, ronan thompson, sadness, Scans, sloan kettering, Star Wars, strength, target, tears, twins, United States, winking, woody thompson -
24 crazy hospital nights! Somebody bust us out of here!
I feel like I’ve been on a roller coaster of happy and sad today. Happiness came in the form of our dear friend and Tricia’s sister, Sarah, getting a nursing job at Mayo. Soooo proud of you Sar! It also came in the form of my beautiful cousin, Shannon, getting a full ride to…
“The Team”, anger, arizona, AZ, baby blues, best friends, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, College, Conditions and Diseases, Dr. Brian Kushner, Dr. Modak, dreams, Energy, Family, Health, homesick, honesty, hospitals, kids, love, maya thompson, Mayo Scottsdale, Memorial Sloan–Kettering Cancer Center, mom’s, Music, Neuroblastoma, new york city, Night Nurse Alex, phoenix children’s hospital, pizza, Rockstar Ronan, sadness, Shannon Bade, Superheros, The most beautiful boy in the world, twins, United States, USD, woody thompson -
Just another hospital night, yo! I don’t miss my bed at all!
Tonight, my heart is peaceful and content. My mind is quiet; which doesn’t happen often anymore. Tonight, I am once again filled with a peacefulness that everything is going to turn out o.k. I’m not sure why. I haven’t felt this way in a long time. I’ve been so caught up with my worrying…
arizona, asspole, baseball, Bloomingdales, boys, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Coconut Water, Conditions and Diseases, doctors, Dr. Brian Kushner, Dr. Modak, dreams, Energy, faith, Family, friends, friendship, fuck you cancer, happiness, honesty, Hospital, iPad, life, love, lynn stephens, maya thompson, mom’s, Neuroblastoma, new york city, New York Mystery Person, Parenting, Paul Frank, peacefullness, radiation, Ro baby, Rockstar Ronan, sloan kettering, Star Wars, The Ronan Thompson Foundation, true love, twins, woody thompson, YouTube -
The worst of times are the best of times
Last night my very sweet friend, Ed, hooked our family up with 5 tickets to the New York Knicks game and floor passes. It was our intention to take Ronan, but with him inpatient at Sloan, there was no chance of that happening. Mimi and Papa offered to come and sit with Ronan so Liam,…
angels, arizona, AZ, basketball, best friends, best husband ever, boys, Brian Kushner, Broadway show, Chemotherapy, doctors, Donate Blood!, Donate Platelets!, Dr. Modak, dreams, Family, friendship, Go Knicks!, happiness, home sweet home, hospitals, I love woody, Jet Blue, life, love, Memorial Sloan–Kettering Cancer Center, miracles, Natural killer cell, NBA, Neuroblastoma, new york city, New York Knicks, Phoenix, promises, reality, Rockstar Ronan, sloan kettering, Star Wars, The Ronan Thompson Foundation, tricia tinney, twins, woody thompson -
Sometimes it takes a really good fall to know where you stand
Where have I been the past 24 hours? Dead. Or the closest I’ve ever felt like dying. Yesterday, Dr. Kushner came to see us and we got the news that Ronan’s bone marrow is now longer clear of Neuroblastoma. All 4 sights from his scans a couple of weeks ago here are positive which explains…
Advil, Ambien, anger, bone marrow, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Coconut Water, Conditions and Diseases, Dr. Kushner, Dr. Modak, Ed Lynch, Energy, faith, Family, friendship, FUCK YOU FUCKING CANCER, happiness, Health, honesty, Jet Blue, kids, life, love, maya thompson, Motherfucker, Mr. Sparkly Eyes, New York, new york city, New York Knicks, Phoenix, raw, reality, Rockstar Ronan, sadness, Starbucks, this too shall pass, twins, woody thompson -
In a New York minute
As Ronan slept last night, I found myself cuddled up on the single little bed that we have in the room with Woody. It is so tiny but I fit absolutely perfect in it snuggled up to Wood. At one point, he was rubbing my back while I was sitting up, looking at the floor.…
angels, anger, arizona, AZ, best friends, bullshit, Cancer, Central Park, Chemotherapy, Childhood Disease, Conditions and Diseases, doctors, Doucebag Doctor, Dr. Modak, Europe, faith, Family, happiness, honesty, hospitals, India, London, love, maya thompson, new york city, New York Miss Macy, NYC Marathon, Perfection, radiation, raw, Rockstar Ronan, Shaushan Purim, sleep, Star Wars, strength, Wild Wild West, woody thompson -
I’m sorry my baby boy
Not a lot to report today. The day was spent with Ronan waking up bright and early in pain; therefore, he was pissed at the world. We spent the majority of the day playing in his bed and testing out what the correct dosage of morphine for him is as they decreased it last…
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Hello New York. We’ve missed you….
I don’t have days where I don’t feel like writing very often. If I miss a few days here and there, it’s usually because I am too busy, too tired, or just taking a little break. Today is honestly the first day where I don’t feel like writing; yet as I sit on this airplane…
angels, anger, arizona, AZ, best friends, boys, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, doctors, Dr. Adams, Dr. Kushner, Dr. Maze, Dr. Modak, Energy, Family, maya thompson, Neuroblastoma, New York, new york city, Phoenix, Rockstar Ronan, sloan kettering, Spring Break, strength, tears, true friends, twins -
The knot
The knot in the pit of my stomach is back and stronger than ever. So bad, that I am convinced I have an ulcer. I spent most of the day trying to get things done, while begin doubled up in pain. I also had to hang up the phone with my mom because I couldn’t…
angels, anger, arizona, AZ, best friends, blue eyes, bone marrow, boys, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, Dr. Eshun, Dr. Kushner, Dr. Modak, Energy, fear, friends, fuck you cancer, Home, honesty, I hate cancer, marriage, maya thompson, MIBG, Music, Natural killer cell, Neuroblastoma, New York, new york city, New York Miss Macy, pain, Parenting, raw, soul mates, strength, tears, the most beautiful boy, The Ronan Thompson Foundation, tricia tinney, twins, United States, woody thompson
ROCKSTAR RONAN 
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