Ronan baby takes NYC

Today, has been non-stop. We got up at 7 NYC time, got all ready and headed over to Sloan Kettering. Ronan was not happy and is still not happy about being here. He keeps asking for Sharon, our nurse back home, and said he doesn’t want to make any new friends here. He was so upset over having the blood taken out of his tubes (which is something he’s had done 100 times) that he kicked and screamed the entire time. We have met a lot of new nurses and doctors, all who have been beyond nice. I was a little overwhelmed walking in here. It felt a little like we were starting all over and just being told that Ronan had cancer. I quickly snapped out of it after seeing how much the doctors really do care here. Dr. Modak, who is part of the Neuroblastoma team, has an entire wall in his office full of pictures of Neuroblastoma survivors. Woody and I both got teary eyed over it. It was the most beautiful thing I have ever seen; a wall full of kids, young and old, who have survived this horrific disease. It meant the world to us, as parents. Everything here is very positive, inspiring and everyone wears a smile. We miss our few close friends at PCH but I think we will be o.k. here. It’s not quite as scary as I thought it would be:)

After Ronan’s blood work came back and was super high, they decided on the spot to harvest his stem cells. This is great news! It means everything will move a little more quickly. The Doctor even got his sugary date bumped up to January 3rd, instead of the 7th. We are so happy about that. The sooner we get the job done, the better. Everything here is really fast paced and precise. I like that; cancer is like a job to me now.  I know what we are here to do, and we are going to do the best job at getting it done.

Ronan is mad that he has been at the hospital all day. He is finally asleep while they are collecting his stem cells. We asked Dr. M about any restrictions as far as taking Ronan out in the city. He gave us the green light to take him wherever since his ANC is so high. I love a green light:) We are going to make the best of our time in the most fabulous city in the world. Ronan is so going to take it by storm and I know this is something we will look back on in a very positive way.

That was yesterday, I finally got the Wifi set up so now I can hopefully keep you all updated. The stem cell harvest went great yesterday but they did not get the amount they needed so we will have to go back on Monday to let them harvest again. Not a big deal… we are going to enjoy today and Sunday out of the hospital and have some fun in the city. Hope you all have a beautiful weekend!!

xoxo

7 thoughts on “Ronan baby takes NYC”

  1. So great to hear! I can only imagine how emotional it was seeing that wall of beautiful kiddos…be sure to eye a spot where Ronan’s will go. Enjoy beatiful New York City. What a blessing you guys can go out and enjoy! That city is so full of life and energy and especially the week before Christmas. Thinking of you in AZ. xomichelle

  2. I am sure you feel some relief and a great deal of hope just being there and to see that wall of survivors had to be fantastic! You are in the right hands. I am so happy that you were able to begin the process earlier. You are on your way.
    Lots of love and prayers!

  3. You need to hook up with Barbara Zobian, with the Candlelighters. If you could email me a email for you, I will forward it to her. She is the most amazing woman and cares for each family like they were her own. Please send me your email and I will be sure she gets it. carolyn_wing@yahoo.com

  4. You look GREAT Maya! This is an awesome pic of you two! This experience will make you all stronger. Glad to hear good news! XOXO

  5. You are amazing Maya! I am sorry it’s been so long since I have written, but you are in our prayers often!! Charlie prays for you guys on our way to school at least 3 times a week and before bed. Ronan is such a trooper. What a terrific kid. I pray you guys had a good day in NYC. We send our love, hugs, and God’s strength, grace and peace to surround you in ways that only He can provide. How neat to hear about the doctors wall. I love it!! We’d love to see Liam and Quinn sometime soon. Charlie includes them when writing stories about his friends at school. 🙂 🙂 We love you guys! XOXOXO Janna

  6. Maya, I’m reading back because I just heard about Ronan. Your blog entries are so, so, sad. Ronan will be in my prayers. Just remember, he is happy up there. I’m so, so, sorry for you, and I’m sorry I’m babbling. It’s just so sad and I feel so selfish. We are all lucky. I love you Ronan. <3

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