Empire State of Mind

 

I just spent the last 48 hours with Quinn and it was blissful. We woke up yesterday and I asked him what he wanted to do, as we had the whole day to spend together. He chose to go to The Empire State Building so we got ready for our adventure of the day. We stopped by Sloan before  as we went to say hello to my childhood friend, Jennifer, who came by to donate her platelets to Ronan. It was so nice to see her and introduce her to Quinn. We stayed for a little over an hour until she was ready to get started. We then headed out and grabbed a Taxi. It was a super busy Saturday there, as expected, but Quinn did so well and waited patiently to get to the top of the building. Once we were at the top, he was a little scared to go outside. It is so high up…. even made me a little nervous. I coaxed him into going outside and it was absolutely breathtaking. We stayed for a good hour and enjoyed the sights. Once we were safely back on the ground we hailed a cab and went and walked about SoHo and had dinner together. It was a perfect day with a perfect little boy. I bought him a journal at the Paul Frank store and he was so excited. He sat at dinner and wrote all about our day. It was adorable. After we finished dinner, we headed back to the RMH and then to the hospital to see Woody and Ronan. They opened up the playroom for us again so we could all hang out together. We stayed for about an hour and then Quinn and I returned home while Woody stayed at the hospital another night. I am so thankful that he spent so much time with Ronan while I had some one on one time with Quinn. The break from the hospital was nice as well.

This afternoon Quinn and I went to Delizia’s for his pizza (surprise, surprise) We ordered some to go for Woody and Ronan so we could bring it to them and let Quinn see Ronan before he and Woody got on their plane to go back to Phoenix. We spent some time in the playroom together and soon it was time for Wood and Quinn to leave. I tried to not cry but it was impossible with seeing how sad Ronan was. His little lip quivered and he buried his head in his knees. We said our goodbyes and I walked back with Ronan to his room. I sat and held him and quietly explained how Quinn and Dad would be back soon. My words didn’t matter or stop his little tears from falling. I let him cry and told him it was o.k. to be sad but it was my job to make him feel better. After he settled down, I talked him into taking a sponge bath. I filled up a tub of water and he ended up putting all of his Star Wars guys in it to bathe them before he took his bath. This occupied him for a good hour. We spent all the afternoon doing silly things like that and he finally laid down to take a little rest. He seems to be feeling better but his ANC is still at 0. Boo.

While Ronan was napping, my phone rang with a number I did not know, but I picked it up anyway. So happy I did. It was my sweet Charisma calling all the way from Australia where she is working. I was so surprised to hear her voice and so happy she called. She hasn’t been able to read my blog in a few days and just wanted an update and to see how we were doing. I updated her on some things and vise versa. She asked what our plan was and I told her that as of now, it was impossible to have one. We will have more of a plan once the results of Ronan’s scans on the 13 and 14th of April, come back. We will then decide what direction to move forward with all of this. Until then, we will just sit and wait and take things day by day. We will make the best out of each day that we have and take all the positives that we can get. It was good to talk to my friend and I told her to try to get some work in NYC so she could come and visit us. I miss her dearly.

My mom is taking the Red-Eye out tonight and arrives at 6 a.m. EST. I told her to just go to the RMH, get some rest, and we would call her when we got up so she can head over to the hospital. We can’t wait to see her and it will be so nice to have her here and her help. Now, if we could just get out of this hospital. I think we’ve been here for almost 2 weeks now…. without counting our 24 hours of freedom we had. Praying for his ANC to come up, very, very, soon. This hospital life is getting old for everybody… especially my little man.

For everyone who has been asking where you can mail things to I will give you the address to the RMH. It is

405 East 73rd Street, New York, NY 10021

Just address it to Woody, Maya or Ronan Thompson. You all are the sweetest friends/little rockstar fans/family. Thank you for all the well wishes, cards, and surprises you have sent us. Brings many smiles to our faces. I hope you had a lovely weekend. I’m going to cuddle up with my little bug now and try to get some sleep with him. Love to you all!!

xoxo

8 responses to “Empire State of Mind”

  1. Hi Maya; I was in Phx this weekend and had breakfast at El Choro with Liam, Mimi and Papa. He is adorable! So well behaved. He made me laugh a few times as I told him about his school project, Flat Stanley, that my daughters and neices are helping him with. He ate well, played and answered my questions about his brothers. He is too precious. We even let him order the lava cake but he didn’t like it. I thought you’d like to know how cute and well behaved he is. I know you must worry about your twins. Glad you had time with Quinn. Love and prayers, Sister Mary

  2. what a sweet pic of the 2 boys so joyfully playing together. Have a great time w your mom. I am sure Ronan will be so happy to see her. Wishing the 3 of you a wonderful time together. hugs and prayers for your family
    hugs

  3. i would love to send you something. is there anything you need or something you think ronan would like?

  4. That little smile on Ronan is priceless! You can just tell how much he loves his big brother!

  5. Hi Maya,
    I am Kay’s good friend Susan Dellwo and I now live in Spokane. Kay and I were college roommates. Have the boys send Flat Stanley to me and I will have some first graders at the school I teach at take pictures and write notes with Stanley…I teach at Hamblen Elem in spoakne…www.spokaneschools.org pull down Hamblen.
    Sorry about your troubles. I light an candle each week for Ronan and all of you whne I am at Mass. I am praying for St Therese of the Little Flower to intercede.

  6. Thinking of you and sending prayers for those counts to rise. I know this is such a hard time-hang in there-you are doing great-Ronan is lucky to have such a strong, dedicated and loving mother and family.
    Thinking of you always
    Love
    Chrisie, Eli and Ava

  7. May God bless that beautiful, smiley baby boy of yours. Will continue to pray for him and your entire family.

  8. Praying that Ronan’s count take off and rise…rise…rise.

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