Late night rants and I can’t put Poppy down.

tumblr_mpyn20O0XQ1qgj29xo1_500

Ronan. Fucking, fuck, fuck, fuck. I’m venting on here tonight and I don’t even care. I have been spending all of my nights, writing about this nightmare for this book and going back to re read my blog, which I’ve NEVER done, to reference some things.

This is beyond torture. I knew this was going to be hard, but SHITBALLS! This is beyond sick. I would give anything to be tucking you into bed instead.

So, the little time at night that I sleep, I have been having horrific nightmares. Last night, Poppy had cancer and went from being my healthy, chubby baby girl, to wilting away in my arms as I watched her die. Are you FUCKING KIDDING ME?! Can’t I catch a break around here?! I mean, I wake up to a nightmare everyday, which is not having you here, and I can’t even go to sleep without being tortured as well. Where are my puppies, unicorns and rainbows when I need them? Oh, I remember. I stopped subscribing to those a long time ago. Lucky me. Whatever. It is impossible for me to have gone through something like this and just stick my head in the sand and pretend like nothing happened. I’m so sick of hearing from the idiots of the world that now that I have Poppy, I should just move on and leave all of this behind. Well, nobody has ever told this to my face, but as always, I hear the whispers and they are whispers of BULLSHIT from sad souls who are obviously so self absorbed that they think that going through something like this, then having a baby makes everything disappear. That is so very untrue and so very ignorant.

Leave all of this behind?! Are you kidding me? Never. I will never sell my soul to the devil that way. I will never sell out and “move on” from Ronan. Yesterday, I woke up to 7 kids dying of cancer. 7!!!!  And that is only in the United States! Where are the riots on the street for that?!? Unbelievable.

I am not going anywhere, ever. I will stay here and continue to fight for you, Ronan and for all of these other kids until the day I die. I am not going “back” to my life of happy. I am a tortured soul and I can live with that. If anybody that is close to me has a problem with that, then please feel free to exit. The whispers are getting beyond fucking annoying.

Ronan. I started that rant a while ago. I think I was in the middle of being consumed by my writing at night and obviously I needed a break. My break came at the perfect timing as my childhood best friend, invited us down to stay with her over the weekend in Hood River, Oregon. It’s taken me a while to be able to say yes to something like this. I know Amy has been wanting to see me for a while now, but it’s honestly taken me this long to get back to that place where I feel I can see people again. Coming to your Nana and Papa’s is wonderful in so many ways, but I do tend to turn into a little of a hermit here. Meaning I don’t go out and do a lot of things. I prefer to stay home and only venture out for little adventures, here and there. Thankfully, they have enough acres and space to make us feel like we are in a different world, off doing a million adventures, without having to leave or drive anywhere to do so. When Amy asked to see us, I hesitated a little bit but ended up telling her we would come to her. We needed a change of scenery and I very much needed a break from my writing. Plus, I really have missed my dear friend.

We headed out on Friday for a weekend full of all thing amazing and beautiful that the Pacific Northwest has to offer this time of year. Mountain biking up some wicked trails, running through sprinklers, blueberry picking, ice cream, watching the boys play and splash on the beach, an amazing hike, all in a 48 hour period. Your brothers had such fun with her boys that they didn’t want to leave. I handled the weekend pretty well and tried not to let the wind get knocked out of me every time Amy’s very spicy 3-year-old, did something naughty. Oh, how he reminded me of you. He even has that same color of copper hair. Seeing your brothers with him and watching them giggle whenever he did something he was not supposed to do, broke my heart over and over again. But I survived the weekend much like the way I survive this life, by being surrounded by really amazing people and letting myself get lost in the smiles from your brothers and cuddles from your sister.

At one point Amy said to me, “You know you can put Poppy down, right?” Apparently I had been walking around pretty much the entire weekend, without setting her down except for when I had to change her diaper, but I hadn’t noticed this. I just looked at Amy and said, “Put her down? I never put her down. I can’t.” Errrrrr… I might be turning into an obsessive psycho maniac over your sister, but we all know there is a good reason behind this. Besides the fact that she is just too adorable to ever stop staring at.

Our weekend was wonderful and I’m back to the grind of trying to juggle 50 things at once. Yesterday, I felt so beat down that I almost cracked. It’s times like these that your Nana can sense it all and looks at me and says, “Give me Poppy and go for a run to blow off some steam.” That’s precisely what I did. It’s going to be hard to leave this place to go back to the realities of Arizona. It is still really hard for me to be there, but I will stick it out until something comes along to take us elsewhere. A change is in the air I think but I’m just not sure what that looks like as of now.

I have some other not so fun things to vent about, but I’m not going to do that now as I have to get back to the hours I need to put in with your book. All will come in due time. I also have some really amazing things to share as well as the sad/beautiful seem to live hand in hand.

I miss you so much, Ronan. I miss you. I love you. I hope you are safe. Sweet dreams, baby doll.

xoxo

This slideshow requires JavaScript.

A sweet little visit

 

Ronan. You know how I know that I am right about what it is, I need to do? Because last night or actually at 5 a.m. in the morning, after I had written to you, I fell asleep thinking of you and these little plans of mine. Guess who appeared in my dream. You. You came to see me. You never do this. We were on an airplane together. You were sitting across from me. You had all of your hair and looked so healthy and perfect. I knew you were sick, but you couldn’t tell by looking at you. You squeaked at me in your little voice about wanting to see Nana and wanting guacamole. I woke up because your voice sounded so real, I thought you were in the room. You were not. I think this was your way of telling me that I am on the right path of what it is, that I am supposed to do.

This may be my shortest post ever, Ro. I am too tired to write much else. I had dinner with your Dr. JoRo tonight and a very special guest. We all ate the guacamole you asked for at your favorite restaurant, Chelsea’s Kitchen. I missed you so much and wished that you were there to eat it with us. I’m so sorry you cannot. You deserved so much better. I love you. Sweet dreams. I hope you are safe. G’night baby doll.

xoxo

A pretty perfect playday with our new friends and a hummingbird.

Ronan. Monday. Presidents Day. Or in other words….. your brothers get to stay home from school day so you’d better act like a normal mama, and make a fun plan for them like you would have back in the day. A fun plan was made for me a few days ago.

Incoming text message from Margarita: Do you want to take the boys roller skating on Monday? On the west side?

Me: Total awesomeness. Roller skating? On the west side? That is so dangerous. Yes, please.

A plan was in place. One less thing I had to think about.

The morning came and I woke up feeling extremely hung over for some reason. It was not due to the imaginary shots/wine/beer I drank. I think I was hung over from the amount of restless sleep that had consumed me once again, during the night. I hopped in the shower, got your brothers up, showered and we were out the door and shoved into this bright, bright world. I took them to Taylor’s for breakfast. “Table for 3?” the waitress cooed. My brain automatically went to, no… table for 4. Where’s Ro? I looked behind me. “Oh, yeah. Table for 3, please.” Fuck. That will never sound right. I sat with your brothers and watched as they inhaled their food. Pancakes, eggs, fruit, 4 sides of bacon, toast. Geez. I cannot keep those brothers of yours, full enough. They eat twice as much as I do. You would have given them a run for the money though. Oh, how you LOVED to eat. You were always my best little eater. We finished our breakfast and drove over to Rita’s house so we could follow her to the roller skating rink. Or as I was soon to discover, my heaven.

Your brothers were excited as they had never been roller skating before. We entered the facility which was packed full of every different kind of person you could imagine. Tiny kids, young kids, tweens, teenagers, adults, grandparents…. you name it. The roller skating rink was dark and disco colored balls lit up the ceilings. I was instantly transferred back to 1989, where problems did not exist. Ummmm…. excuse me. How did I not know that this place existed? A dark place you could go, in the middle of the day, where the best/worst top 40’s music is so loud that you could hardly think straight…. all while on roller-skates! It does not get any better, than that. Your brothers were less than thrilled. I don’t think they will be trading their basketball shoes in, anytime soon for a pair of roller-skates. I got the two of them out on the rink a couple of times, but they were so uncoördinated all they did was skate, fall, skate, fall…. over and over again. They were not the least bit impressed with my mad roller skating, look at me, I can twirl around skills. I held their hands as we tried to skate together. I did not hold back my laughter as they continued to fall. They both reminded me of that scene in the movie, “Bambi,” where he is a baby and he is just learning how to walk. Legs flying everywhere so long that little Bambi just cannot get them to cooperate. They were both good sports and by the end of our hour there, I had Liam skating around the rink hardly falling at all. Quinn was over it pretty fast and could not wait to get out of there. I could have stayed there all day. In fact, the next time I go missing in the middle of the day…. you’ll know where to find me. Great Skate hanging out with my new mid 40’s man friend with the most epic mullet and Van Halen shirt I have ever seen. Next time I go I am totally rocking my Van F-ing Halen tee so we will match. Great Skate rules.

We continued on with our little playdate and Rita and Dragon, came over. It was a spur of the moment, let’s salvage the day and play plan. It was our first play date with them and the boys were excited to have their new little friend over. Their little friend was just wanting to play with some trucks. “I’ve got some trucks,” I said to Rita. “Come over.” So they did. Little Dragon had trucks on the brain so I led him into your room. Rita gave me a look and said, “Are you sure???” I told her I was without a doubt sure. I practically begged her to let her little Dragon, into your room to play with the baskets of toys that are just sitting there. We grabbed about 6 trucks and headed out into your backyard. Rita looked at me again, “You’re really sure.” I gave her my best I’m strong but really sad smile and said I was absolutely sure. That it would make me sad, if your toys were not played with. And play that little Dragon did. Alone for a while, while Liam built pirate ship legos in your room and Quinn tossed the football around with me. I heard Rita yell, “Where in the world did you learn to throw a football like that?!” I yelled back at her, that I wasn’t sure, but apparently it meant I was meant to have all boys. Quinn and I were tossing the ball around for about 15 minutes when it happened. I was feeling good about being a good mom, and playing with Quinn. I never feel that way anymore, mainly due to the fact that I feel like I am freaking crying/hiding all the time. I was standing in our yard and I kid you not, a purple headed humming-bird flew right up to my face and stayed there for a good 30 seconds. I thought it was going to kiss my face. What in the world? Am I dreaming this? I froze. Hummingbirds don’t come this close to people and just stay there, do they? It’s head is purple…. I thought to myself. I must be dreaming. Or dead. Then I heard Quinn, “MOM! The hummingbird! It’s head is purple!” Just as he said those words, it flew off. Whoa. That was weird. I’m not dreaming. Quinn saw it too. I didn’t know what to think or do, so I continued to throw the football back and forth with Quinn. I couldn’t stop thinking about the hummingbird. Was that a sign? A Ro sign? I don’t know but you always hear about how after you lose someone you love, signs appear. Was that it? Or was it just a freaking hummingbird? I told myself not to over think it. Just to go with it. It was a little Ro sign indeed. It’s been a while since I’ve had one of those and it felt nice. Thanks baby.

We played outside for the next couple of hours. I watched Quinn play with little Dragon, just like the way he used to play with you. It hurt/felt good all at the same time. I felt my heart fall in love with this little Dragon that I hardly know, instantly. I watched the way he played in the dirt, destroyed part of Liam’s army Alamo that’s set up by our rocks, played trucks, laughed with Quinn, they took the hose and washed your truck together. Everything that they did were all the things Quinn used to do with you. It was almost too much, but it wasn’t. It’s just the way it’s going to have to be from now on. All that mattered was that two little boys’, had the best play date ever and they were both happy. That in turn, made me feel alright. That little humming-bird appeared again and did the exact same thing to me, just as our day was coming to an end. I think it was your way of telling me good job for being such a good mom for the day. I think it was also your way of telling me that our new friends are extra, extra special. I kind of already knew that though. After our friends left, I fell apart in the garage and let myself cry for everything that used to be, but will never be again. I mainly just fell apart because I miss you so much and I have no control over how much it hurts sometimes. Uncontrollable tears are part of this process. I’m sure they will be, for the rest of my life. I’m o.k. with that. I’m o.k. with the tears. You are worth each one of them.

Today was pretty awesome. Not really, because all I did was get caught up on everyday things that I now hate. And I went to the freaking grocery store, which you know I hate. It’s one of the places, that I miss you most. “Come on Maya! Be a good mom! Get your kids some healthy food and try to cook at least 2 meals this week! You can do it!” That was myself, giving myself a pep talk today as I almost aborted grocery store shopping mission. I pushed my little cart, though out the store and missed you so badly, that I found myself magically transported to the toy aisle where I could not move. Frozen in front of the Star Wars toys on aisle 9. I wonder if Ronan would like this guy…. Oh! A guy he didn’t have! Should I buy it? The conversations in my head go on and on all day long like this. The anger came next. -Maya get out of the fucking toy aisle. Ronan is dead, you do not need to buy him any Star Wars toys today. I went and took my anger out on the Kosher food aisle instead. I’ve never made Potato Latkes before. I’m going to make some fucking Potato Latkes today. I’m going to peel, a fuckton of potatoes and make the best Potato Latkes that have ever existed. I drove home after the grocery store and took the rest of my anger out on cleaning out our refrigerator and getting all the laundry done. I find myself, washing the blankets and sheets in your room, just to do so. Sometimes I secretly think if I wash them enough times, you will come back. Or sometimes I don’t want you to feel left out, so I wash your clothes too. Your little socks are still in my purse. I take them everywhere.

I went on a run tonight to clear my head. I wore my new favorite running shirt which simply says, “Fuck Cancer.” It makes me run faster. I guess I’m still sick because 5 minutes into my run, I started coughing and my chest was burning so badly that it felt like it was on fire. I told myself to suck it up even though all I wanted to do was turn back home and crawl into bed. I didn’t though. I ran so hard/fast for 5 miles that I ended up throwing up on the side of the road. I heard the little voice in my head telling me not to stop, because how was I going to Fuck Cancer if I gave in so easily to the pain of my run, due to being sick. Being sick is for the weak. You were never weak which means I have no right to be either, baby. I sucked it up today for you. I finished my run, came home and took Liam on a date. We went to dinner, where another little thing happened. There was this girl there, playing acoustic guitar and singing. She’s really good, I said to that Liam brother of yours. He agreed. I heard her say, “The next few songs are going to be covers of Taylor Swift.” No freaking way, I thought. Who is this little child prodigy who just made my Ronight? Liam and I listened to her. I held his hand. We both smiled. It was if you were there with us, on our little date. I need this girl, to play at one of our events. She’s awesome. After we paid the bill, I gave Liam some money, a bunch of RoCards, and about 6 bracelets. I told them to put them all in her tip jar. He was so excited to do so. I hope she looks at your little face, looks up this website and something Romazing comes out of this. I think she was worthy of you tonight. Her voice, guitar playing and choice of songs told me this. Liam agreed. After our dinner date, I took your smarty pants brother to the bookstore. My other heaven in life. The book store. I could spend hours in them and so could he. His love for reading has taken off like wildfire! I am so excited about this as I was always such a bookworm. Reading used to be one of my favorite things to do in life. I miss it. Maybe it’s time I start taking it up again. I kind of feel like I could be ready. We shall see. It’s the lack of concentration that seems to be killing me. That and my non-existent memory… the one that I can’t find. Has anybody seen it? I would really like it back…. it’s starting to become a problem. You know it’s a problem when your daddy comes home from work, looks at me and says, “What did you do today?” My reply is always, ” I can’t remember.” And I literally never can. Then I get frustrated, start to cry, and wonder if my brain will ever be the same again. At this point, I’m thinking no.

Much more to write about little monkey man but your brother, Quinny, is looking extra snuggly. I’m going to curl up with him for the night. I’m sorry I can’t curl up to you. It breaks my heart every night. I love you so much. I miss you so much. I hope you are safe. Please, please be safe. Sweet dreams little man. ILOVEYOUILOVEYOUILOVEYOUILOVEYOUILOVEYOUSOOOOOOMUCH.

xoxo

Please help Rally around these kids!

My friend, Cindy, left this on my comment page tonight. I am so sad, outraged, and sick about this. How can this happen in this day and age??

I know you are all wanting to help and you have been so supportive in every way. If you can please take the time, to read below and help out with this it would be much appreciated. I know what I will be doing tomorrow. These kids deserve better. These parents deserve better. Things have to start to change.

My husband said it best tonight…. “That leukemia drug shortage is bullshit. Bet they never run out of Botox or Viagra.” Tru dat, Wooddawg. Tru dat.

Thanks lovies,

xoxo

Maya,
The Rally Foundation sent out a great email about this today giving the links to the proper people to contact including the manufacturers and what exactly to ask for. I hope you will find this helpful and pass it on so that the word gets out and we bombard them to step up production. These kids suffer enough from lack of funding and research and to not have a medication that does work is just plain wrong. Thanks!
Cindy
IMMEDIATE ACTION NEEDED

Dear Rally Families and Rally Supporters,

The past few days Rally has been receiving calls and emails from concerned parents and supporters asking if it is true that there is a critical shortage of preservative-free methotrexate, a vital drug for children with the most common form of childhood cancer, Acute Lymphoblastic Leukemia (ALL). Unfortunately, this is true. As you know, Rally’s mission is to find better treatments and cures for childhood cancer. Unless production of preservative-free methotrexate increases, hospitals will run out of the medication completely in the days and weeks ahead. Some institutions have already begun rationing preservative-free methotrexate.

Chief of Oncology at Children’s Hospital of Philadelphia and member of Rally’s Medical Board of Advisors, Dr. John Maris, M.D, was recently featured on CBS news discussing the issue. This news story will give you a good overview of the problem.

The childhood cancer community has come together as a whole and is asking all supporters to help. PLEASE ACT NOW! This is how you can help:

Contact the US manufacturers of Methotrexate and ask them to:

1. Prioritize the production of the preservative-free form of methotrexate.

2. Consider working with the FDA to import preservative-free methotrexate if sources are available.

Hospira, Inc.
1-877-946-7747
http://www.hospira.com/GlobalPages/contactus.aspx

Mylan Inc.
1-888-258-4199
http://www.mylan.com/contact_us.aspx

Sandoz, Inc.
1-609-627-8500
http://www.us.sandoz.com/contact_us/general_contact.shtml

APP Pharmaceuticals, LLC (currently does not make preservative-free methotrexate but is working to get FDA approval to do so)
1-888-386-1300
appmedicalinfo@APPpharma.com

Second, contact your Members of Congress and ask them to immediately send a letter to these same pharmaceutical companies requesting that they:

1. Prioritize the production of the preservative-free form of methotrexate.

2. Consider working with the FDA to import preservative-free methotrexate if sources are available.

Contact your Representatives here , and your members of Senate here.

To read more about this issue, please see People Against Childhood Cancer.

Thank you for your concern and your action.

Rally On!

Dai H. Chung, M.D. Dean Crowe
Chair, Rally Foundation for Childhood Cancer Research Rally Foundation for
Medical Advisory Board Childhood Cancer Research
Professor and Chairman, Department of Pediatric Surgery CEO and Founder
Professor, Department of Cancer Biology
Monroe Carell Jr. Children’s Hospital at Vanderbilt

Meet Rally Kid Mia, ALL Fighter

Mia was diagnosed with High Risk Acute Lymphocytic Leukemia (ALL) on 3/13/3009 at age 2. She was sent immediately to Seattle Children’s Hospital, where they began treatment. This was only the beginning for Mia and her family. Mia and her family spent most of 2009 living in Seattle away from home and away from Mia’s best friend and biggest supporter, Noah, the best twin brother a girl could ask for.

Mia is now 4 1/2 years old and has been fighting cancer for over half of her life. She was in remission until Christmas 2010, when she went in for a routine chemotherapy appointment to find out the unthinkable. After almost 2 years of chemotherapy, and only 6 months out from finishing treatment, Mia had relapsed. She was again hospitalized, and endured chemotherapy, radiation, and a stem cell transplant. Her twin brother Noah was a perfect match and was her stem cell donor.

Mia was preparing to go home after her stem cell transplant when her family received the news that Mia had relapsed yet again. Mia is truly in the fight of her life.

Mia’s parents are so proud of her for being brave and strong throughout her treatment, and so proud of Noah for being a loving and supportive twin brother. They say “It’s absolutely amazing the strength of a child and the beautiful connection these kids share. Mia loves dancing, listening to music, art and is an incredible athlete. Mia is a hero and reminds us that everyday is a gift – enjoy life!”

8 Months so a Skydiving we will go, Ro.

Ro baby. I didn’t die today. I really thought I was going to. I woke up this morning, knowing what the day had in store. I didn’t dare tell your brothers what I had planned. Your daddy chose to ignore my danger day and left the house the way he always does; by kissing me goodbye and telling me to have a good day. We had talked on Thursday night about the skydiving I had planned for Monday. Well, we didn’t actually talk about it…. I more just told him I was doing it. He said to me, “Don’t you think we should sit down and have a discussion about this?” I said, “We’re having a discussion now. I’m going skydiving on Monday.” He said he didn’t want me to go. That I could die. I told him that I could die crossing the street. He didn’t think that was a very good argument. He made his feelings known that he didn’t like the idea and we left it at that. We didn’t talk about it again until after I made it safely to the ground today. Your daddy knows how I am, once I get an idea in my head. There is no stopping me. Especially not now. Your daddy knew I was a handful before losing you, Ro. Now the word handful has taken on a whole new meaning. Yowzer. At least I keep things spicy, right baby doll;) Extra spicy just for you.

I woke up  this morning like it was just another normal day, without you. I got your brothers ready and Mandy Bee came over to help me as she was my danger crusade sidekick for the day. She packed your brothers lunches while I ran around the house, trying to get ready. I knew I wanted to take you with me, but there was no way I was going to bring your heavy locket, skydiving. I went and got a small ziplock bag and opened up your Urn. I put my hands inside and went to grab some of your ashes. I grabbed something hard instead. It looked like one of your little bones. I dropped it back into your Urn. I looked down at it, didn’t want to touch it, but then thought to myself there is a reason I was supposed to touch that today. I scooped it up and put it in my little baggie and zipped it up in the pocket of my coat. I didn’t throw up, but paced back and forth, crying instead. I quickly pulled it together so I could get your brothers off to school. I didn’t want them to see me so upset as they would have worried. We hopped in Mandy’s car so we could drop off Liam and Quinn. I hugged and kissed them both and told them how much I loved them and to have a wonderful day.

As we drove off, I got really quiet which is always the first clue that I’m a mess in my head. My silence screams my pain. Mandy asked what was wrong, besides the obvious. I didn’t answer at first but stared out the window instead. After a minute or two, I pulled out your ashes told her the story and starting bawling that I couldn’t believe you, my baby, were in a plastic fucking baggie. She just held my hand, listened, cried, and we talked about how fucking fucked up all of this is. What else could she have said? Nothing and she knows that. That’s the thing I love most about that Mandy Bee. She never tries to make things better with bullshit words. She knows she can’t so she just lets me be. We drove to Eloy and it was mostly a quiet drive. We both started to freak out as we got closer, talking about how we couldn’t believe we were going to jump out of a plane. I told her I fully expected to die. She told me I was not dying on her watch so to shut the fuck up. I just laughed and told her that I thought I was going to and I was o.k. with that. As soon as we started to get closer, we looked up and saw about 10 parachutes falling from the sky. The excitement started to kick in. We checked in, watched a short video and signed a ton of paperwork in regards to our life. Or our death. We sat and signed our lives away without thinking twice. We went and got suited up, met our partners in crime and listened as they gave us very little, but informative instructions in regards to tandem jumping with them. I guess knowing less is better so that way you don’t over think it. I chose to not over think anything at all today. I only thought about you the entire time.

The guy I jumped with was named Jason. I liked him instantly. He was young, tattooed, a great smile, and the icing on the cake was his beautiful blue eyes. I instantly felt like you were there, holding my hand, once I met Jason. As you yourself, had hand picked him out for me today to jump with because you knew he would keep me safe. I know this was one of the reasons why I didn’t ever feel scared or panicked. I felt a peacefulness and a calmness that I have not felt in so long. We waited our turn and climbed on board of the plane which held about 20 people. Up and up we went. It was SO HIGH, Ronan. I had one moment as I was looking out the window of the plane that I thought, “What the FUCK am I doing?” But then I remembered that today, was your 8 months. Today, I remembered that it has been 8 months since I last kissed your lips. Today, I remembered that because I have faced my worst fear in life, that I have have nothing to fear anymore. 13,000 feet up in the air we went and I could have not felt more content or calm. My head has not been this quiet since before losing you. There were no screaming voices today in my head. Only pure silence. Jason was preparing me to jump. He was strapping me to his body and as he was putting me in-between his legs, he said something that was so inappropriately wrong, that it made my entire day and night because it was that raunchy, perverted and hilarious. It made me forget the fact that I was about to plummet to my death. I told you I knew you had picked just the right guy for me today, Ro. You know my sense of humor so well. I looked at Mandy as I was getting ready to jump out of the plane, first. She screamed,  “I LOVE YOU!!!!!!!!!!!” I looked back at her, flashed her a smile and said, “I LOVE YOU MOOOOORRRRREEEEE!!!!!!!!!!!!” Jason stood me up at the open door of the plane and told me to look up. ONE, TWO, THREE!!!!!! We jumped. We fell. We flew. We became one.  I screamed, laughed, flipped off the camera man who was taking a video of the entire thing. I screamed “FUCK YOU CANCER!!!” I yelled, “I LOVE YOU, RONAN!” We fell, in the sky without our parachute being open for at least a minute. It was the most amazing feeling I’ve ever had, besides being your mama. I wasn’t ever scared. I wanted to free fall, forever. It  didn’t feel like I was falling from the sky. I felt like I was floating. I felt closer to you today, then I have since you’ve been gone. Jason pulled the parachute after a minute or so. After that, we were able to talk while we floated all around in the sky. He pointed out the mountains in the horizon. I asked him how I did and he said amazing. I told him all about you and how I was doing this, for you, because of you. Because you’ll never have the chance so now I have to do things like this, for you. If you were still here I would have NEVER done this. But now I wonder why not? It was the most freeing feeling that I’ve ever experienced in my life. I’m only sorry it took you dying, for me to do something like this. The landing was easy, and Mandy Bee was waiting for me. She came running over, jumped in my lap and kissed me smack on the lips. It was one of the top 5 BEST days, of my life.

Today, I didn’t feel like I was buried alive. I didn’t have a hard time breathing. I felt happy. I felt fearless. I felt free. I said to myself, If I can jump out of a plane for Ronan, I can do ANYTHING. I meant that today. All I wanted to do today was to get back into that plane, and jump again. I jumped up and down with Mandy on the ground, instead. My Mandy Bee who is afraid of heights, Ronan. Afraid of heights, but didn’t think twice about going with me when I put this out there about a month ago. My Mandy Bee that you never got to know, but it is because of you that I have found my fearless soul mate in life. The friend who holds on to me the tightest when all I want is for her and everyone around me to let go. The friend that is not scared of my dark side that often exists. The friend who doesn’t judge. The friend that trusts me, embraces my crazy ideas, and thinks I am capable of anything and everything. Thank you for her. Thank you so very much. You have no idea, how many times she has saved me. I don’t know how I would be doing any of this without her. I am so glad I don’t have to.

After our jump of death. Or jump of life…. whichever you prefer… we went and grabbed lunch at your favorite place, Chelsea’s Kitchen. Mandy Bee also went grocery shopping with me, which you know I don’t do well with. I would rather jump out of a plane any day then tackle the grocery store. It helped having her there so much. I’m learning that I do indeed need help with things and for now, grocery shopping is one of them. I’m learning that it is still o.k. to ask for help, especially now that you are gone. It’s too hard to go there alone and without you. So Mandy shopped with me. We rode on the carts like I would have done with you. Remember how you would sit in the cart and I would push you so fast and crazy? You would giggle with fits of laughter. I pushed my cart fast and crazy for you today, only I was the one riding on it. I’m sorry for that. I’m sorry for everything. I’m sorry you got cancer and I couldn’t make you better. I’m sorry I have to live without you. But thank you for letting me live today and making me feel like it might be o.k. That it won’t hurt so badly, everyday without you. I know I can’t jump out of a plane everyday to have good days like this. I hope you can give me some ideas on how else to ease the pain. I’ll be here waiting to hear from you.

I went for a 6 mile late run tonight too. The moon was so full and beautiful. I yelled up at it that I loved you. I know you heard me. I know you hear me all the time. I love you baby doll. Sweet dreams. I hope you are safe.

xoxo

This slideshow requires JavaScript.

Like a Little Million Stars Spelling out your Name

Ronan. Just when I think I have a handle on something…. like my sleep, turns out I’ve spoken too soon. This sleep thing, for the past week has been awful again. I can’t unwind, when I do, I toss and turn, or just can’t fall asleep. Tonight was awful. My body is so tired that literally, everything hurts. I swear even the strands of my hair. Your Daddy was trying to get me to unwind, but I was hurting so badly, I couldn’t lay still. I sat in bed with him and just cried while he did his best to comfort me. What did I do? I pulled away and said things like he promised me he wouldn’t let you die, that everything hurts too much, that Romeo died with Juliet so why couldn’t I die with you? I am pretty sure my pain, of losing you, is way worse than their’s was. I got up, rambling something about needing to break a window. Your Daddy followed me and grabbed me to because I think he really thought I was going to. It started to storm out really hard. Quinn ended up in our bed with us, sobbing like a little puppy dog because he said he misses you. I just held him and cried too. It was all I could do. Your daddy was the one doing the talking. He told Quinn things like he bets the storm was your way of telling us, not to be so sad. I think it was your way of telling us, that you are so sad too, because you miss us so much. My head is spinning thinking of the ways we all miss each other now. Of how we were never supposed to be apart.

My body is now so tired that it just won’t sleep. I’m past the point of tired. Can somebody just shoot me in the head? Oye….. started that last night, Ro. Guess I was not in such a good place. But when am I? That’s why nights like tonight, are necessary. For as much as I want to hide and avoid people, it’s nights like tonight that show me that I cannot. Because I am capable of having a slightly good time. Good time may be pushing it, but Ro, it felt better than my nights have felt in a long time. I’ve been really good at not doing anything with ANY of my girlfriends. No more movie dates, dinners out, etc.. Nothing. Not a thing. Well, I threw a little something together, last-minute to try to break up this rut I’m in. I saw that there was a Roller Derby tournament going on tonight. You know me and my big mouth. I have blabbed about this Roller Derby thing since before you were sick. I have had your Papa Jim all psyched up about it, saying he’d fly all the way here, to watch etc, for two years now. I acted all tough and badass and told him I was going to try out. I had your Nana all worried, because she thought I was serious. I had a plan, and I was mostly kidding, but I continued on talking about it because I just couldn’t let it go. And your Papa Jim and I loved seeing your Nana all riled up; upset that her little girl, could possibly get hurt doing something so crazy like Roller Derby. Then you got sick. And all the jokes stopped. And all the teasing stopped. Nothing was funny anymore. Life became……so serious. So much more serious than I ever though was possible.

When I started looking into the Roller Derby thing again, I thought to myself, this could actually be really good for me. I really think this is something I could check out. What a great way to get some of this aggression out. So, I decided to grab a couple of girlfriends, to go and watch. A night out? Yes. It’s time. A night out with just a couple of girls, is way overdue. So, I asked my new friend, Mandy Bee to go with me. She’s from Canada, Eh, and we seem to have some sort of connection. Oh yes… this little Mandy Bee. The one who drops bags full of candy off for me as well as kick ass leg warmers. The one who stalked me and I liked her from the second I laid eyes on her. The one who cusses like a sailor and has a dark side which sings to my soul. This new little Mandy Bee of mine feels like someone who I have known in a past life or something. I like this girl. A lot. I asked her to come with me. She was game, right away. I also asked my dear friend, Melissa to come as well. My dear Melissa whom I never get to spend time with, but she is someone I always want to be around. She makes me feel safe. And sad. And happy. And it feels good to be safely sadly happy, around her. Because she knows. She sat with us so many days at the clinic. You used to laugh when her cell phone would ring and chirp like a bird. She loves you. She misses you. She’s never gone away. She hadn’t met Mandy yet. I thought the 3 of us, together, would make a good team. I was right. Melissa picked us up at our house. We hung out for a few minutes and then we headed out to the West Side of the Valley. The chatter was easy in the car. Honest and true. Just the way I like it. A little dark too. We got to the Roller Derby Rink. Lots of tough looking girls skating around everywhere. We found some seats and got up to talk to some of the Roller Derby girls in the booth behind us. We threw lots of questions their way. Turns out, every Wednesday, you can come and get familiar with what exactly goes into this Roller Derby thing. Turns out, every Wednesday, they have try-outs. Radness. Mandy and I locked eyes. Sign us up, please. Melissa laughed and said she would come and watch. I told Mandy, after this Fashion Show awesomeness, you will find me on the rink. We shall see. What have I got to lose, Ro? NOTHING. What have I got to lose, if I don’t try this out? Regret. Regret is an awful thing to be chained down to in life. I won’t do it. I want to try this, so I think I will. Go Big or Go Fucking Home.

After we watched the match, which is totally confusing by the way. They really have a strategy down, those girls. It’s not just girls in badass outfits, skating around, pushing and tripping each other. There is a reason behind the madness. I wonder if those girls, have a reason behind their madness, like me. I’ll bet not. I’ll bet nobody’s reason behind their madness is because their almost 4-year-old, died of cancer. I have a feeling, I’ll be solo on this mission. It’s o.k. I like being the lone wolf. I always have. I work best this way. So, Ro. After the match we headed out and decided to grab some dinner. We stopped at St. Francis to grab some food. I was wearing my purple F U Cancer sweatshirt and as we made our way through the restaurant to sit outside, so we didn’t have to wait an hour and a half to be seated….. a lady at a table yelled at me that she liked my sweatshirt. I told her thanks and she asked where I got it. I told her my friend had made it for me. She then told me that her sister had just been diagnosed with Breast Cancer and that she would love my sweatshirt. I told her then she had to have my bracelet and I took my Fuck You Cancer bracelet off of my arm for her. She read it and looked up at me, smiling. I knew I was going to have to tell her, about you. So I pulled out one of my little cards, with your picture on it. I started to explain your story. Then man next to her, interrupted me. “What was your son’s name?” He asked. I simply said, “Ronan.” His eyes welled up with tears and he stood up. “Oh my goodness. I am (crap I cannot remember his name) the Chaplin over at The Ryan House. I have prayed for your family, since I heard about Ronan. I’ve read your blog. FUCK YOU CANCER!” He grabbed me for a big hug. “I’m so sorry about Ronan.” My heart sank. But my heart, also fluttered too. The Chaplin of the Ryan House, just said, “Fuck You Cancer!” It totally made me laugh. We stood and talked for a few more minutes. The girls and I then went to sit outside to enjoy some beers and food. YUM. Beer, Food (I ate!) and new and old friends. It felt good just to be sitting outside, on a crisp night, with this new friend of mine and this old friend of mine. And to watch the way the 2 of them, got along. LOVE. LOVE. LOVE, Ro. You know how I love to watch relationships form. It’s like a science experiment to me. The 3 of us, mesh well together. The night ended around 10:30. Your little stalker brother, Quinny, was getting worried. That’s the new nickname, I’ve given him. I was supposed to be home (or I told him I’d be home around 9:30) When the clock turned 9:31, I looked down at my phone and had 8 missed calls from him.(or so we figured out after about 15 minutes of us girls freaking out that 8 missed calls had come from some creepy unknown phone number( our house phone which I don’t even know the number to because we don’t use it) Turns out, it was Quinny, wanting to know where I was. I told him I would be home soon. I then gave him the nickname, Little Stalker. I thought that was pretty PG rated of me. It could have been Little Fucker. The girls and I laughed about the phone thing, forever. It felt nice.

Ro baby. Started all of this a couple of days ago. It’s Sunday Funday now. Or Sunday I Fucking Hate you day. Except today, wasn’t a bad day. I was gone all day, helping out with Fashion Show things. It’s this week! Can you believe that, little man? All because of you. Bittersweet to say the least. But we are doing everything, just the way you would have liked it. Just the way, you would have rocked it. If only you were here, to enjoy it. I so thought you would still be here. Remember how I thought we would still be going back and forth between New York and here? How I was so ready, to pack up my life, to live with you in New York? How I wasn’t scared because I knew the two of us would be together so that was all that mattered. How New York, quickly felt like our second home. As if we had lived there together, in a former life. Remember how we used to spend the days, roaming the streets, not caring that you had cancer because we knew New York was going to heal you? It was going to save you. How the fuck were we so wrong?? How did that not happen, baby? I’m so sorry, Ro. You know I would give anything to change this. I miss you so much. My whole heart feel like it is missing, without you. But I’m still here, fighting for you. Because as I told Michael Dee, Sarah Love and Heather while they sat in my kitchen last week…. what choice do I have? You, Ronan Sean Thompson came into this world, kicking, screaming and crying. I had to watch you leave this world, silently. Not being able to do any of those things because cancer robbed you of that. So now I am fucking left here; and it is my job to kick, scream and cry for you until the world starts to listen. Until this little army of mine, turns into a REALLY FUCKING BIG ARMY and Childhood Cancer starts to get the attention it deserves. Because I refuse to just sit back and watch as these poor innocent children are fucking MURDERED before our very eyes but nobody cares. Because it’s not their child, right Ro? It may not be their child but what if it is someday?? Or what if it ends up being their grandchild or cousin or niece or nephew or Godchild? What assholes, will all these people who have chosen to IGNORE Childhood Cancer, feel like? Fucking Douchebag Assholes, I’m sure. Guess what Ro? I know a whole bunch of people who did not even know you, who DO NOT want to be Douchebag Assholes. They want to help. They want to be a part of something because they know this is something REAL. In a world full of SO many FAKE PLASTIC TREES. The Fake Plastic Trees in life will only get you so far, right Ro. The Fake Plastic Trees will leave you with an icky taste in your mouth that will never go away. No matter how often you CHOOSE to look away. Because guess what Douchebag Asshole People???? Now that you’ve read these words….. It’s a CHOICE now. You CHOOSE. I hope you can sleep well at night. With his big, blue eyes, piercing into your soul. Because they are that life changing. And trust me. I now know a lot more about life, than I ever hoped to. And I had to learn the hardest way possible. As of now, you DO not. So fucking do something. Or do not take his gift. Go on. Carry about your days until you Louis Vuitton luggage, becomes too heavy and your Xanex becomes to weak to numb your pain. Are you still going to look the other way????? That makes me sad. I’m so, so very sorry. Ronan deserved to be here. Do you?????????? If so, make it worthwhile. Because to be any other way, is just not enough. And I know deep down, we all want to be more than enough.

Um, Hi, Ro. Are you still there?? I’m sorry baby. I think my post got hijacked by Inca tonight. Apparently, I had a lot to say. I’m not even sure what just went on up there. Oh well. Fuck it. Most of the time when I write to you, I feel like I’m having an out-of-body experience. I feel like I get so lost in my writing that I am watching from above, while I’m really off somewhere else, playing with you. I love this time, so much. I’m sorry it has to be this way for now. I am trying so very hard to do this. To make you proud of me. You push me and you give me strength. You are a gift to me every second of my life. I love you. I miss you. I hope you are safe. Sweet dreams, little one.

xoxo

This is now on the John Lennon Wall in Prague thanks to the raddest girl who has ever lived in NYC. Miss Rachel Goldman. Thanks Dolly. You made my day with this.

xoxo

Love and the Locket

Ronan. It’s days like today that give me just a sliver of hope that I am going to be o.k. That being without you, won’t kill me. I know this because today….. I felt something that I haven’t don’t feel very often anymore. Almost happy.

The morning started off as usual. We woke up around 9 and Quinn had asked to have a day at the beach. We texted Auntie Karen to see if Olivia could meet us. She sent her over and we headed out to enjoy the San Diego sun. We went down to the beach and spent a couple of hours there, being lazy and then we swam in the ocean for a while. We headed up to the pool after we got tired of the sand and the flies that seemed to be everywhere. We spent the next couple of hours at the pool and Quinn and Olivia played their little hearts out. Auntie Karen joined us for a bit and we sat and talked about you. She misses you so much. It felt nice to talk about you with her though. She told me how you will always be with her. I know this. You are part of her and always will be. She will forever be your favorite crazy “old lady.” We still giggle all the time about how you would call her this.

After our pool time, we got ready for the evening. Susie drove over from Mission Beach to see us. Macy, Quinn, Susie, Olivia, Liz and I all walked into town to have dinner. All I have to say is your New York Miss Macy is like chicken noodle soup for my soul. She makes me laugh like no other. Somehow, when we were with Liz a few nights ago, Macy started talking in her fake British accent. It caused Liz and I to crack up because it came out of nowhere and it was so awful. We have been teasing her about this for days now and it has turned into a huge joke. Tonight, we spent most of the evening being loud and laughing, while we all talked in our fake British accents. It was an evening full of taking silly pictures, British accents, laughing until our sides hurt and just having wonderful, innocent, fun. Quinn was in heaven and joined in and soaked up everything that we were saying and doing.

After dinner, Susie had to head out and the rest of us headed down to watch the sunset at the beach together. As we were setting our things down, I took off the locket that Macy bought me last week. She found it at a shop in North Park while we were waiting for our table at a restaurant and fell in love with it. She bought one for herself and one for me. It’s gold, long, heavy and we talked about how we would put a beautiful picture of you in it. It is so gorgeous and has become one of my favorite pieces of jewelry. Just knowing that you are close to my heart and inside of it, brings me such a feeling of peace. I took the locket off tonight and set it in one of my shoes. I ran off and forgot about it as we spent the next couple of hours playing on the beach, doing hand stands and silly things.

As it started to get dark we decided to head up to the Hotel Del to get ice cream. As we got there, Quinn asked to go into the toy store instead. We all agreed as the line for the ice cream was really long and it was hot and stuffy in there. We played in the toy store with him for the next 30 minutes all while still talking in our very loud British accents. We were getting ready to leave and I noticed my locket was not on my neck. I immediately went to my purse to see if I had put it in there. No dice. I panicked and told the girls that I had a slight emergency as I remembered I had set the locket in my shoe at the beach. Macy and Liz stayed with Quinn and I grabbed Olivia to come with me. We rushed back to the beach and tried to retrace our steps as best we could. Luckily, we sat and played by a very big hole in the sand which is how I got us back to the spot to where we were sitting. Turns out, this hole was not as helpful as I had thought because we did set our things down kind of far away from it. I knew was at least a starting point and it was better than nothing. We started searching for my locket and I could feel myself starting to panic. It was pitch black and the beach just looked so big; like it could have swallowed us whole. That is how I felt and right as I could feel the tears to begin to pour down my cheeks, Olivia yelled, ” I found it!” I could not believe my ears. The locket was half buried in the sand, it was dark, but somehow Olivia found it. A wave of happiness washed over me. I hugged Olivia and told her thank you. That sweet girl saved me today. It was such a good day and if she would not have found my necklace, the day for me would have completely been ruined. I know it is only a material thing, but the fact that Macy bought it for the both of us, to keep you closer to our hearts means so much to me. Thank you too, Ro. For helping Olivia tonight. I know that was you. I know you wanted me to have a good day today as you know how much I need that every once in a while.

We all came back up to the condo and I headed out for a quick run. It was late, so I didn’t do my usual route of 6 miles. I did a fast 4 instead. Macy wouldn’t have it any other way because of the fact that it was so late but she knows how I am if I don’t get my run in. She let me go but not before I gave her an exact time of when I would be back. I’ve given her the name of “wife,” now. She is my surrogate Woody. I am going to be so sad when she has to leave tomorrow. I know Quinn will too. He loves her so much. We will see her next week though as she has to be in Newport for a work trip.

This morning Papa Jim sent me a picture. It was of Liam and his first Salmon that he caught. They went out fishing on Papa’s boat early this morning. What a great way to start off my day. He looked so happy and proud of his fish. I was sad that I wasn’t there to see it, but I am so thankful for the happiness that I saw in his eyes today in that picture. He will remember that for the rest of his life.

O.K. baby. I’m going to try to get some sleep. I didn’t fall asleep until 4 a.m. last night and I promised Macy I would try to get to sleep earlier tonight. Quinn is snuggled up tightly in between the two of us. I will kiss him goodnight for you. I miss you so much. Thank you for the love and laughter today. Thank you for Macy. I would have never found her if it wasn’t for you. Your little gifts are everywhere. Sweet dreams my gorgeous boy. I hope you are safe. I love you, Ronan.

xoxo

Love is enough

Ronan. Hi baby. I miss you so much. Today was an o.k. day. I slept in with your brothers and we cuddled in bed for a long time this morning, just watching cartoons. It was a lazy morning, a quiet morning, a cuddly morning. I wish I could say that these mornings bring me peace, but they do not. They just make me miss you more. They just make me want you here so badly, where things were never quiet because you were always up to something.  I was always having to look after you because if I turned my back for a second, you would have done something crazy and silly. Now, without you, I don’t have to look over my shoulder at all times. I can go to the beach with Liam and Quinn and sit quietly without having to worry about them. They are big enough and independent enough that I can just let them be. I hate this so much. I don’t want to be the mom with nobody to look after at the beach. I don’t want to be the mom that doesn’t have to worry about you eating sand, throwing sand, running out too far in the ocean. I remember those days that I had to worry about all of those thing with you and I loved them so much. I miss them so much. I fucking hate this life without you.

Laura, Kasey, Cameron, and baby Chase all came over and we spent the day down at the beach. I sat quietly for a while and it was so peaceful that I couldn’t handle it. I soon got up and played football with your brothers. I drew a start and finish line in the sand and I raced them both a bunch of times. I watched them wrestle and throw sand at each other. I watched them be boys. Boys who are having to learn how to be brothers again without you. It is such a different dynamic now. I feel like a foreigner living in a different country trying to figure out this new life. How to fit in, how to adapt, and how to survive.

After our beach and pool time, we headed up to the condo to get showered and ready for dinner. I talked the Lunds into staying with us for a day or two. We love having them here and your daddy was so excited that they said yes as he was going to miss out on seeing them due to being in Phoenix. We could really use some Thompson/Lund family time now. We ended up grabbing pizza in town and bringing it back to our place to eat. Laura and Kasey offered to watch the boys so I could head out for a run which I gladly took them up on. I have a new little route I’ve found and I’m loving it. It’s a perfect 6 miles total. It felt good and I of course talked to you a lot. I cried a lot on my run too. I wish I could think of something other than the last few hours of your life, but as of now, it is those memories that consume me on my runs. I go over and over them in my head. I go over and over what we could have done differently. This always upsets me and it is always while running that these are the things I think about. I remember every second of your death, every detail, every moment. It is as if they are frozen in time and oddly, as sad as these memories make me… I treasure them too. I talked to you tonight after my run as I was cooling off. I yelled your name, I yelled up to the moon that I loved you. I then started to cry and begged for you to let me be with you. To take me with you as I don’t want to be here without you. I want to be with you, wherever you are, together forever. I don’t want this life without you. But unfortunately, this is not my choice to make. If you wanted me with you badly enough, you would find a way to take me with you. I will wait for you, for however long it takes for us to be reunited. I know it would make you too sad to have me not be here for your daddy and brothers, but honestly Ronan, some days all I want is to be gone with you.

Your daddy arrived tonight so I went to pick him up and Uncle Kasey went with me. We stopped by your Daddy’s favorite brewing company here to refill his “Growlers.” I don’t really know what they are, except they are two huge jugs and they fill them up with different beers. I knew your Daddy would be needing a beer tonight after his had few days at work. I was happy to see him and so was Kasey. The “Bromance,” between those two continues. We came back to our place where sleepy kids awaited us, but your daddy and Kasey wanted to hang out. Being the lovely wives that Laura and I are, we happily sent them on their way to some bar on the island. It’s some guy time that your daddy really needs right now and Kasey is the best medicine for him. I hope they stay out as late as possible, drink their selves silly, and your daddy is able to let go and enjoy himself for a few hours. He deserves it.

Last night, before I went to sleep he sent me the sweetest test message. He said, “I love you. You are strong, stubborn, witty, articulate, and sexy. Night night.” That daddy of yours made this mommy smile so big. I know you know how hard things have been for us. How in the world do two grieving parents get though this, stay married, while trying to raise a family? It’s got to be the most stressful thing on a marriage in the world. I don’t know what the secret to all of this is, but we are doing it. Even on the days where I want to run away and never come back because there is too much pain and sadness everywhere I look. Even on the days that I just want to disappear, and run away to Vietnam with Tricia….. I won’t. I can’t. I guess it’s simple. It’s because your daddy loves me and I love him. Love will be enough to get us through this. Love is enough.

I have to go to sleep now baby. It’s late. I’m tired and the Ambien is kicking in. Goodnight my sweet baby boy. I love you to the moon and back. Please be safe, please be happy, please don’t cry. I promise I will meet up with you again. I cannot wait for that day to come, but I will wait for you to take my hand and come and get me. I love you so much, my little seal.

xoxo

Just you and me

Ronan. Just another day without you. I wish I could tell you that I am o.k. But, I’m not. I’m just sad. I’m swimming in a sea of sadness and am barely staying afloat. This morning, I took your brothers to surf camp. I sat and watched them for the 3 hours and pushed them as they both complained about the ocean being too cold, etc….. I was the mean mommy that told them to suck it up. My tolerance for their complaining today was at an all time low. At one point, Quinn came in and didn’t want to go back into the ocean. He wanted to stop surfing for the day. I brought up you and how hard you fought for every second of your life. I talked to him about life and how important it is to not give up and to keep fighting. I told him how you would give anything to be living still and if you were having a hard time at something, that you would have never have given up. But life is not fair and now you don’t get to run around, never taking no for an answer, all while pushing every limit, every boundary that came your way. You were just born different from most people, Ronan. Your daddy and I say it all the time. You had a fire and such strength in your soul. That’s  why we were so convinced that you would beat your stupid fucking cancer. I’ve never met a boy stronger than you and I still can’t believe that everything ended so quickly.

After my “get your ass back into the water,” pep talk….. but in a much nicer way, Quinn finished up his class. I don’t know if I’m pushing too hard, but that’s just the way it goes. Your brothers need to learn a little something about fighting to become the best people they can be. To appreciate everything that they are able to do. To never take a second of life for granted. I have no tolerance for whining and complaining anymore. I know what it’s like to watch a little boy go through treatments for cancer and how you never once complained about anything. Except for missing your brothers and just wanting to be home. Complaining about things in our life now just won’t exist anymore, unless it has to do with missing you. That’s the only thing any of us should every complain about. Anything else can be fixed, problem solved, or worked through.

After the boys’ surf lesson, we hit up the hot tub and than came up for lunch. Liam crashed out for a nap, Quinn rested as well and I took my surfboard and headed out for a couple of hours. It was cold, but I welcomed the angry ocean with open arms today. It felt good to be out there and I got tossed around a bit. Coronado is a great place to learn how to surf and the quiet time out in the ocean, when I paddled past the waves to think about you, was nice. After I surfed, I came back up to the condo and hung out with your daddy and brothers. Later in the evening, we went out to our usual spot so your daddy could cook up our dinner. There were a bunch of dolphins out in the water this evening. We spotted about 5 or 6. They were so beautiful and I of  course thought of you. I was than overcome with anger and thought to myself that it was bullshit that a sign from you, had to come in the form of a dolphin. I don’t want any signs…. I just want you. Back with us, the way things should be. I tried to be happy about seeing those dolphins tonight, but it only made me sad and miss you more. You did leave me a lot of signs today, which I am thankful for. I don’t mean to sound ungrateful, Ro. I love all your little signs, but it doesn’t make me miss you any less. Sometimes it hurts more.

After dinner, we came back up to the condo and although it was late…. 9:30, I headed out for my run. (sorry Mr. Sparky Eyes) I promised him I wouldn’t run late at night anymore, due to an encounter I had with some creepy man a few nights ago; but I had to go tonight. It’s the restlessness in me that never goes away. I ran 7 miles…. all the way over to the Coronado Bridge and back. It felt good, it hurt, and I of course thought about you a lot. Sometimes, when I am thinking about you, it hurts so bad that I cannot even cry. I was thinking about being at The Ryan House with you and I felt like I was going to stop breathing as I still can’t come to the realization that you are gone. I think I have Post-traumatic stress disorder. For real.

Post-traumatic stress disorder

Post-traumatic stress disorder is a type of anxiety disorder. It can occur after you’ve seen or experienced a traumatic event that involved the threat of injury or death.

Causes, incidence, and risk factors

Post-traumatic stress disorder (PTSD) may occur soon after a major trauma, or it can be delayed for more than 6 months after the event. When it occurs soon after the trauma, it usually gets better after 3 months. However, some people have a longer-term form of PTSD, which can last for many years.

PTSD can occur at any age and can follow a natural disaster such as a flood or fire, or events such as war, a prison stay, assault, domestic abuse, or rape. The terrorist attacks of September 11, 2001, in the United States may have caused PTSD in some people who were involved, in people who saw the disaster, and in people who lost relatives and friends. These kinds of events can produce stress in anyone, but not everyone develops PTSD.

The cause of PTSD is unknown, but psychological, genetic, physical, and social factors are involved. PTSD changes the body’s response to stress. It affects the stress hormones and chemicals that carry information between the nerves (neurotransmitters). Having been exposed to trauma in the past may increase the risk of PTSD.

Having good social support helps to protect against PTSD. In studies of Vietnam veterans, those with strong support systems were less likely to get PTSD than those without social support.

People with PTSD re-experience the event again and again in at least one of several ways. They may have frightening dreams and memories of the event, feel as though they are going through the experience again (flashbacks), or become upset during anniversaries of the event.

Symptoms

People with PTSD re-experience the event again and again in at least one of several ways. They may have frightening dreams and memories of the event, feel as though they are going through the experience again (flashbacks), or become upset during anniversaries of the event.

Symptoms of PTSD fall into three main categories:

1. Repeated “reliving” of the event, which disturbs day-to-day activity

  • Flashback episodes, where the event seems to be happening again and again
  • Recurrent distressing memories of the event
  • Repeated dreams of the event
  • Physical reactions to situations that remind you of the traumatic event

2. Avoidance

  • Emotional “numbing,” or feeling as though you don’t care about anything
  • Feelings of detachment
  • Inability to remember important aspects of the trauma
  • Lack of interest in normal activities
  • Less expression of moods
  • Staying away from places, people, or objects that remind you of the event
  • Sense of having no future

3. Arousal

  • Difficulty concentrating
  • Exaggerated response to things that startle you
  • Excess awareness (hypervigilance)
  • Irritability or outbursts of anger
  • Sleeping difficulties

You also might feel a sense of guilt about the event (including “survivor guilt”), and the following symptoms, which are typical ofanxiety, stress, and tension:

  • Agitation, or excitability
  • Dizziness
  • Fainting
  • Feeling your heart beat in your chest (palpitations)
  • Fever
  • Headache
  • PalenessYup. That pretty much sums me up. Except for the paleness, but that is only due to the sunny Cali weather:)

I thought about the lecture I was going to get from Mr. Sparkly Eyes about running so late at night and thought about how I would tell him that I was sorry; but fear is a word that doesn’t exist in my vocabulary anymore. I have already lived through the thing I was most scared of in my life. So now what? What else do I have to fear? Nothing. Of course, I worry about your brothers and Daddy, but when it comes to me… I just don’t give a fuck. I’m not going to live my life being scared of anything anymore because I know whatever else is thrown my way, will be nothing compared to losing you. So , I will run my runs when I want, say the things I feel, swim in the ocean at night, and not be scared. It’s actually very freeing and liberating. To live a life of not being scared of things is how all people should live, otherwise what’s the point? Before all of this, I don’t know if I would have ever taken up surfing, because I was scared of sharks. And forget about running the dark. I used to make up things in my head to be scared of. Well, I’m done with that. At 33 years old, after losing you, I’m done with fear. I’m going to live my life the way you would have lived yours. Head on, embracing every adventure and pushing the limits for the most beautiful outcomes. I will live my life this way for you, because I know as an adult, this is the way you would have grown up to be. Life would have been scared of you.

I came home to your daddy and brothers watching a movie and soon Quinn was ready for bed. We came into our room and as soon as we turned on the T.V. guess what was on, Ro. “Zombieland.” One of our very favorite movies that we used to watch all the time. That’s where you got the saying, “Just you and me,” from. Another one of your little signs. That was one of our favorite things to do in the hospital was watch that movie on your iPad. Quinn watched it for the first time tonight and laughed a lot. It’s a little mature for him, but he has had so much of his innocence taken away that I let him watch it anyway. We cuddled up and watched it together. I held him extra tight for you.

We say goodnight to you every night. Do you hear us?? I hope you do. I’m going to say goodnight now baby. We have an early camp tomorrow again, hoping those brothers will pick up a little more passion and zest for the opportunities that they are given. I just want them to be thankful for being on this earth everyday, with 2 parents who are so broken, but are somehow managing to make this summer as good as it can possibly be. It’s a lot of work, but as a family, we have to do this. For all of us. I know it is what you would want.

I love you little man. I love you to the moon and back. As I was running tonight, I stopped and blew a kiss up to the moon and said, “I love you, Ronan.” I hope you heard me. Life is so precious and I know it doesn’t’ seem like it now, but I am not going to let it swallow me whole. I promise I will start living it again when I am ready. But ready is not now, and I don’t know when it will ever be. I need more time to pass between your death. I still cry all the time, but mostly over being with you that final night and saying goodbye to you. I still tell myself it just can’t be true. You were true and all I wanted was you. Forever. What am I supposed to do without you my little bug?? As of now, I don’t want to do anything except survive and not totally fuck up your brothers with the crazy shit that goes though my head. All I can do is be present for them and do the little things for them that I know mean so much. I will deal with them first, and myself later. I can wait. The damage done to them cannot be undone, which is why when we get back to AZ, therapy will become a big part of our lives. I have to be proactive about this and it is something we are going to have to do as a family, together.

I also forgot to tell you a funny story from last night. I took Quinn to dinner, on a date. We had finished up and we were walking out of the restaurant and there was a family of 5 sitting on the bench and standing up, smoking. I was holding on to Quinn’s had and I looked at them, straight in the eyes, and said, “Smoking causes cancer,” and kept walking. I thought Quinn was going to fall over. It’s like I have no censor anymore and he wanted to know if we were going to get into trouble for saying that. I said for what, “For speaking the truth? Ronan got cancer because he didn’t have a choice.” The fact that people in this day and age, take it upon themselves to smoke, knowing what the risks are, pisses me off. I’m sensitive to this, especially now. I wanted to say, “You should get cancer, not my 4-year-old child who didn’t do a thing wrong in this world.” You make the choice to suck on those freaking cancer sticks, then suffer the consequences. My child had to suffer for not a god damn reason at all except for bad luck. If anyone deserved to live, it was you baby. I will never stop thinking that. This whole things turned out so unbelievably wrong. For everyone involved. Everyone misses you Ronan. Even though you are gone, you are still changing lives. I promise you, a cure for this will be found before I die. I know I made you a lot of promises, but I promise to keep this one. I owe it to you and all the other little babies out there. Give me some time. Some time to mourn you, but when I feel ready….watch out cancer world. You’ve fucked with the wrong mommy and baby team. You are going to be sorry, but it will never be sorry enough for having to lose you over Ro. I will be sorry about that everyday for the rest of my life. Your fire now burns in my soul, you live with me, in my body. I know you may go away now and again, but when you want to come home, I know this is where your soul rests. I feel you all the time.

This is all for tonight my little monkey man. I love you to the moon and back a million times over. Just you and me, baby:) Sweet dreams. Go and visit some of your favorite people. Nighty Night baby boy.

xoxo

“Take away a man’s son. You’ve truly given him nothing left to lose.” Quote from Zombieland

Fuels in the fire. Burn baby, burn.

I’m writing today to you all because I have a lot of fuels in the fire. I know I am supposed to be enjoying my family beach time, but being busy is helpful to me as well. First of all, last night I had the chance to go and look at all of the pictures that the amazingly talented, Emily Carroll, took at Ronan’s Fundraiser, and posted to her Facebook page. The link is on my Facebook page as well. I cannot tell you what an out of body experience it was for me to see all of your beautiful faces, most of whom I didn’t know, supporting us. I cried the entire time I looked through them. It is was beyond hard for me, to know that all of you were there because of the love you have for our family and because our little boy is dead. Can you put yourself in my shoes for one minute? Just take one minute, close your eyes, and think of your child dying. In that one minute, allow yourself to experience the pain I feel, my family feels, every second of the day. Take this one minute of pain and know this is why you all have taken it upon yourselves to inject yourself into our lives, when most of you don’t even know us. Take a minute to think about what amazing human beings that makes you and be proud of who you are. You all know there is more to life then the superficial things that surround us. You all get the bigger picture and you all know you are about to help me change this world and the way most people live with their eyes closed and lack of passion. You all have made me beyond proud and honored to have your love and support.
Ronan lived everyday of his life as if it was his last, without ever knowing that he would only get to be on this earth for almost 4 short years. Maybe deep down, in his old little soul, he did know this, which is why he made everyday a party and gave us so much happiness. He lived his life to the fullest, the way everyone should. I can guarantee you, if Ronan would have grown into an adult, the way he should have, he would have changed the world in some way shape or form. He would have had such a huge impact, as it was what he was put on this earth to do. Look at how much he has done with his life in the short amount of time that he did get to be here. His life was taken away from him, but I still believe he was meant to change it. I will never stop believing in the power of my son and his big blue eyes. The connection that Ronan and I have was so beyond deep, that it is beyond this life. I know it is him who is pushing me to keep going with his mission, his life, and his soul. I know what he wants me of me and every idea that I have, I am going to fight for it. Every goal I want to reach, I am going to fight for it. Every breath that I have to take, when I don’t want to anymore, I will fight for it. He is surrounding me still and I cannot rest until things in this world start to change. Ronan wants to be the voice for childhood cancer, so someday, children will not have to suffer and lose their lives the way he did. Ronan wants all parents to know that you should never take a day for granted with your kids and that the little stuff, really does not matter. He wants to help make parents, better parents. He wants all children to be loved as much as he was, because he knows how precious life is and he would give anything to be back here with us, where he was loved every second of his life. I gave my whole heart, body, mind and soul, to Ronan from the time he was born. I think deep down, I knew that I wasn’t going to get to have him forever which is why our connection was so deep and so different. I gave him a lifetime of love in his almost 4 short years that he was here. I will forever be heartbroken and feel like we were robbed of the most amazing child, but that his fight has to continue on.
Back to my fuels in the fire. I have a lot of things to take care of in regards to Ronan’s Foundation when we get back to Arizona. I am going to pour my heart and soul into it. Some things that I want to see happen are the following:
I want to make The Brightest Star in the Sky a yearly event. I want to make it huge. The amazing women who put it on for us this year are completely invested in our cause and for that, I cannot say thank you enough. I cannot wait to be involved with you all and to work with you to make it spectacular. I cannot wait to watch how it evolves and grows into something that everyone knows about and I have all of you beautiful woman to thank for getting this started. This would have not happened without you and for that I will forever be grateful.
I want to find a big voice for Childhood Cancer. People worship the power of celebrities so much, and as much power as they have, why hasn’t anyone stepped up to the plate to start a movement for Childhood Cancer? I know a lot of celebrities support St. Judes, which is amazing, by why not just Childhood Cancer in general??
Also, Yoplait. They change all of their lid colors to pink in October, which is also amazing, so why not Yellow for the month of September for Childhood Cancer Awareness?? I don’t have their contact info yet, so if anyone knows of it, please email me at mayawoody@gmail.com
I think the more people they hear from, the more they would be willing to listen. A movement has to start and it has to start now. The sooner the better as we all know when  you are dealing with Childhood Cancer, time is not on your side.
Lastly, I wanted to tell you that last night I did dream of Ronan. I could cry just telling you about it. I was pushing him on a raft, he had hair, and he was laughing and happy. In my dream, he was alive, but I was also talking to people about his death. My childhood friends, Missy and Mandy were in it and we were on Missy’s farm with Ronan running around. My friend, Lisa, was in it and I was hugging her about Ronan dying. It was a dream where life and death both existed, but they were both beautiful. I am so thankful for my dream last night and I didn’t take my Ambien to go to sleep. I didn’t fall asleep until about 3 a.m. but at least I got to see my sweet baby boy. It was the best thing to happen to me in a long time.
That is all for today my friends. I have been getting a lot of emails also about getting bracelets to out of state peeps. Once I figure this out, I promise I will let you know. Just give me a few days:) Thanks for your support and love, always. Have a good day, my friends. Love you all.
xoxo