radiation
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No more plans…..just a new adventure
We started off the morning early as we got up and ready to take Ronan to St. Joe’s for his CT scan and RT. Dr. Maze met us at the Ryan House and then over at St. Joe’s just to make sure we were taken care of. He knew Ro did not need anesthesia, but…
adventure, angels, Baseball games, Cancer, childhood cancer, CHOP, CT scan, Dr. Maze, Dr. McBride, Dr. Mosse, Dr. Sholler, dreams, Family, friends, friendship, maya thompson, medulloblastoma, Neuroblastoma, new york city, Nifurtimox, radiation, raw, reality, Rockstar Ronan, Ryan House, San Diego, San Diego Children’s Hospital, St. Joe’s, Star Wars, strength, The Killers, The Ronan Thompson Foundation, twins, United States, woody thompson -
Not a kissing day
I sat here at The Ryan House all day with Ronan, rubbing his little leg that is hurting him so badly. We had a lot of visitors in and out. Ronan slept most of the day while I had the chance to sit in our room and see a lot of friends and family. I…
angels, anger, arizona, Childhood Disease, CT scan, death, Dr. Giselle Sholler, Dr. Maze, Family, god, Health, heartbreak, honesty, hope, life, love, maya thompson, no kisses, pain, Phoenix, phoenix children’s hospital, radiation, reality, Rockstar Ronan, San Diego, St. Joe’s, Star Wars, strength, tears, The Ronan Thompson Foundation, The Ryan House, twins, Vermont, woody thompson -
Just another hospital night, yo! I don’t miss my bed at all!
Tonight, my heart is peaceful and content. My mind is quiet; which doesn’t happen often anymore. Tonight, I am once again filled with a peacefulness that everything is going to turn out o.k. I’m not sure why. I haven’t felt this way in a long time. I’ve been so caught up with my worrying…
arizona, asspole, baseball, Bloomingdales, boys, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Coconut Water, Conditions and Diseases, doctors, Dr. Brian Kushner, Dr. Modak, dreams, Energy, faith, Family, friends, friendship, fuck you cancer, happiness, honesty, Hospital, iPad, life, love, lynn stephens, maya thompson, mom’s, Neuroblastoma, new york city, New York Mystery Person, Parenting, Paul Frank, peacefullness, radiation, Ro baby, Rockstar Ronan, sloan kettering, Star Wars, The Ronan Thompson Foundation, true love, twins, woody thompson, YouTube -
Goodbye little eyelashes, until we meet again
My mamacita made it safe and sound. She showed up to the hospital around 10 a.m. EST, and I didn’t even have to give her directions. Ronan decided last night that he did not want her to come. He kept saying he didn’t want to see anybody except for: Me, Woody, Liam and Quinn. When…
“A”, angels, anger, arizona, AZ, best friends, bullshit, Cancer, Central Park, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, doctors, Dr. Maze, dreams, Eastern Time Zone, eyelashes, facetime, friendship, happiness, Killers, maya thompson, Neuroblastoma, new york city, Nurse Kristen, Nurse Sharon, radiation, Ro baby, Rockstar Ronan, strength, Susie Schryver, The Killers, The Ronan Thompson Foundation, The Ronanld McDonald House, true love, woody thompson -
I wish Neuroblastoma was an April Fools’ Joke
Last night, I left Sloan beyond beat due to our traumatic day. Woody came and met me and we swapped places so I could sleep at the RMH and spend a little time with Quinn. As soon as Quinn and I stepped outside, we were hit by all the rain. I wasn’t prepared at all……
angels, April Fools’ Day, arizona, ballet flats, best friends, bone marrow, boys, Cancer, Cartoon Network, Chemotherapy, childhood cancer, Clone Wars, Conditions and Diseases, courage, Delizia’s, Dr. Kushner, Energy, faith, Health, honesty, love, maya thompson, Mr. Sparkly Eyes, new york city, Phoenix, Pizza Party, radiation, rain, Rockstar Ronan, sloan kettering, Star Wars, strength, The Ronan Thompson Foundation, Today (NBC program), tough love, woody thompson -
In a New York minute
As Ronan slept last night, I found myself cuddled up on the single little bed that we have in the room with Woody. It is so tiny but I fit absolutely perfect in it snuggled up to Wood. At one point, he was rubbing my back while I was sitting up, looking at the floor.…
angels, anger, arizona, AZ, best friends, bullshit, Cancer, Central Park, Chemotherapy, Childhood Disease, Conditions and Diseases, doctors, Doucebag Doctor, Dr. Modak, Europe, faith, Family, happiness, honesty, hospitals, India, London, love, maya thompson, new york city, New York Miss Macy, NYC Marathon, Perfection, radiation, raw, Rockstar Ronan, Shaushan Purim, sleep, Star Wars, strength, Wild Wild West, woody thompson -
I’m sorry my baby boy
Not a lot to report today. The day was spent with Ronan waking up bright and early in pain; therefore, he was pissed at the world. We spent the majority of the day playing in his bed and testing out what the correct dosage of morphine for him is as they decreased it last…
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Jar of hearts
Tonight, I honestly sat here and could not remember what month it was. It literally took me opening up my calendar on my computer to figure it out. That is how fried my brain is. What even happened today?? I’ll have to sit back and reflect so that I can tell you. We were all…
angels, anger, arizona, Auntie Karen, best friends, Cancer, Central Park, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, doctors, Fernanda Borletti, honesty, maya thompson, morphine, Neuroblastoma, Never ending tears, new york city, radiation, raw, reality, Ronald McDonald House, Ronald McDonald House Charities, ronan thompson, sadness, sloan kettering, Star Wars, Starbucks, tricia tinney, true love, twins, woody thompson -
Bravest boy in the world
We arrived to Sloan bright and early to start our plan for Ronan. Once again, you can never make a plan with all of this because as of now, our plan has changed. We headed back to Dr. Modak’s office and as soon as we walked in I looked at him and told him Ronan’s…
Anesthesia, angels, anger, arizona, AZ, best friends, bravest boy in the world, bullshit, Cancer, Chemotherapy, childhood cancer, Dr. Kushner, Energy, Music, Natural killer cell, Neuroblastoma, new york city, pain, radiation, Rockstar Ronan, ronan thompson, sadness, sloan kettering, strength, The Killers, true love, woody thompson
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