I’m just a girl in the world

Favorite conversation of the night:

Me: “Ronan, you’re so nice.”

Ronan: “Thank you.”

Me: “You’re welcome.”

Ronan: “Mom, you’re so cute.”

Me: “Thank you.”

Ronan: “Your so welcome.”

I love his little voice so much. And that smile could melt your heart. I love that every night, he curls up beside me and holds my hand as he falls asleep. I love waking up to him each morning and his bright blue eyes, and how excited he is to wake up his brothers and start the day. Being with Ronan is like a piece of heaven. He is my little pea, and I am so lucky to be his pod.

Sarah came over early so I could go to my therapist appointment. It was a good one, as always. I always leave there more vunerable and with a flood of emotions running through me. I feel like it’s a cleansing of my soul that I really need though. After that, I ran some errands and came home to a happy Ronan who told me he missed me so much. He was all snuggled up in my bed with Sarah. As Sarah was leaving she told Ro she loved him and he told her he loved her too. So sweet.

Ronan is not feeling well today. He was really clingy most of the day. My dear friend, Gay, came over to help me pack. Thank GOD for her! She just comes in here and snaps her fingers, and bam!, it’s done. She is so much fun to be with, even when we are doing things like packing up bags. We got Liam and Quinn’s bag packed and Ronan’s. One more check mark off my list! Pam also stopped by and cracked Gay and I up the entire time with her funny stories about being at Sloan with her daughter and how important her flat iron for her hair and lip gloss were to her. It was her coping mechanism and I love it. Her daughter was having a major surgery done and Pam sat and applied lip gloss over and over again. I totally get it. I know I am going to be the same way. Anything to make the situation seem a little more normal. I was so happy and thankful for those two today. They made me laugh a lot which is something I needed today since I spent the majority of the morning crying over anything and everything. The anticipation of leaving her is enough to send me over the edge.

I also got to see Niki and Fernanda for a bit. They both buzzed by quickly. Again, so lucky for the friends I have. They keep me going because I can see how much what we are going through has changed them. Their lives will never be the same just because of the kind of people they are. That shows me what amazing hearts they have. All of my friends are this way; they are the one’s I keep closest to my heart. I will keep them there for the rest of my life.

Woody and I had a good little pow wow tonight. He is always so interested in my therapy sessions and sometimes I don’t really feel like telling him about them. We got into it a little bit, in a healthy way. I told him what was going on and how I need to deal with a lot of this, on my own, in my own way. He gets it and is giving me my space. He also told me he knows exactly what I am thinking…. how my deepest fears are he is going to walk out on me like my dad did. He told me he will never give up on me and never let me down… like me father has. I know this about Woody; it is one of the main reasons I married him. No matter how much I push him away, because I am hurting, he won’t let me get too far. He has been really great about giving me my space, but also reminding me that we need each other. Before I met Woody, I was used to dealing with things in my life on my own by myself. When you are in the middle of a crisis, it is easy to revert back to that. I am trying not to; but I am very independent and stubborn and my mind tricks me into thinking I can do everything on my own. I am working on these things… I don’t want to go though this alone, but I also want my space. I am hoping to find a happy medium, if that is possible.

Woody and I always joke the Gwen Stefani‘s “I’m just a girl in the world,” is my theme song. So tonight’s song is dedicated to the Wooddawg. And the other love of my life, Gwen Stefani.

Take this pink ribbon off my eyes
I’m exposed
And it’s no big surprise
Don’t you think I know
Exactly where I stand
This world is forcing me
To hold your hand
‘Cause I’m just a girl, little ‘ol me
Don’t let me out of your sight
I’m just a girl, all pretty and petite
So don’t let me have any rights

Oh…I’ve had it up to here!
The moment that I step outside
So many reasons
For me to run and hide
I can’t do the little things I hold so dear
‘Cause it’s all those little things
That I fear

‘Cause I’m just a girl I’d rather not be
‘Cause they won’t let me drive
Late at night I’m just a girl,
Guess I’m some kind of freak
‘Cause they all sit and stare
With their eyes

I’m just a girl,
Take a good look at me
Just your typical prototype

Oh…I’ve had it up to here!
Oh…am I making myself clear?
I’m just a girl
I’m just a girl in the world…
That’s all that you’ll let me be!
I’m just a girl, living in captivity
Your rule of thumb
Makes me worry some

I’m just a girl, what’s my destiny?
What I’ve succumbed to Is making me numb
I’m just a girl, my apologies
What I’ve become is so burdensome
I’m just a girl, lucky me
Twiddle-dum there’s no comparison

Oh…I’ve had it up to!
Oh…I’ve had it up to!!
Oh…I’ve had it up to here!

And yes, how lovely is this dress…. I would totally wear this dress while singing “I’m just a girl,” to the Wooddawg.

xoxox

Nighty Night! Sweet Dreams!

I heart Pamela White

Today was busy. I spent most of the day prepping for our Channel 12 news interview. Mama, ready. Boys ready. House ready. Check, check, check. I’m a perfectionist when it comes to things like this. It was surprisingly very laid back. Woody and I sat at our dining room table and Ann, the interviewer, asked us questions about Ronan and our situation. I held it together as much as I could and put on my bravest face. We kept it very positive and to the point. I think I did at one point catch myself saying how this is every parents worst nightmare. What can I say, I wear my heart on my sleeve. It is and everybody should know that. Nobody, as a parent wants to go what we are going through. Woody did most of the talking… the Mr. Attorney came out and it was a good thing. What can I say, the man has a way with words… it’s what he does for a living. Lin Sue Cooney is going to go over it, edit things, and will let us know when it will air. Any exposure we can get is good exposure. We truly belive in the power of prayers and positive thinking. It just has to work<3 Life cannot be just so black and white.

After the interview Woody left and went back to the office. Ronan was tired and fell asleep in my arms for a little bit. When he woke up, he was in one of his moods. He ran to my room for no reason, started slamming the door and screaming at the top of his lungs. I let him scream things out for about 15 minutes and then I sat down in front of the door and tried to talk to him. He kept telling me he hated me and I was mean. I sat there and let him yell at me while trying to rationalize with him. Then the hitting started. I let him hit me and get his frustration out. I sat on the ground and cried the entire time. After about 10 minutes of this, he crawled in my lap and cried with me. Quinn saw everything, and came and held my hand and kept telling me everything was o.k. That may have been the lowest point of my life thus this far. Today, I watched my 7-year-old become a man because mommy was too sad to pull it together and be strong. I felt proud and sad all at the same time. Proud because  I am watching Quinn grow up, and I know what an amazing adult he is going to be. Sad because no 7-year-old should have to witness their mom crying so hard that she can’t stop or get up off of the floor. Quinn, Ronan and I sat on the ground for a good 20 minutes and held each other and I finally was able to stop crying. Liam was off playing with my iPad and had no idea what was going on. Sometimes I wonder if he really gets it, but chooses to ignore it all. Maybe it’s his way of coping with all of this. That boy is too smart not to understand what is going on. I’m content to let him just be. He seems to be doing the best out of everyone. Woody came home after that and I got a break and went out to dinner with my new friend, Pamela White.

Dinner with her could not have come at a better time. I really needed some time out and Pam could not have been a better date. Her little girl, Victoria, had cancer when she was 3. So Pam has been through everything I am going through and feeling. She has such wisdom and compassion and is very comforting to me. She also cracks me up, which as you know, is one of my favorite qualities in a person. Victoria is beautiful, healthy, and a survivor. Ronan is going to follow in her footsteps. Tonight, with tears in her eyes, my beautiful new friend pulled out something from her purse for me. It is a bracelet that was given to her by a friend right when Victoria was diagnosed. Pam wore it everyday up until Victoria had the port taken out of her chest. Pam gave it to me tonight and I will wear it everyday until Ronan is healed. It was one of the most thoughtful and meaningful things that somebody has ever done for me. I will wear this and think of Victoria and her amazing family everyday. It will give me the strength and courage that I need to get through this.

I came home to all of the boys asleep and Woody playing some new PS3 game with his headset on and his friends online playing with him. I love to see him doing things that he used to do and just letting everything go. It is good for him to be able to decompress and unwind. Ronan is sound asleep in my bed and I am going to snuggle up to him for the night. It is my most favorite time of day. There is nothing sweeter than cuddling with my baby boy.

Clinic Day

Ronan and I went off to the clinic this morning to do his usual Monday checks of his blood and platelet levels. Poor little guy is having bad tummy aches from the chemo last week. A lot of diarrhea and him saying his tummy hurts. I talked to “A” about this and she said it is a normal side effect from the chemo and to just watch him. She expects it to last most of the week. If it goes into next week, then we will have to do something about it. As for now, we just have to make sure he is staying hydrated. His counts are dropping, but still look o.k. We will expect them to continue to bottom out until the end of the week, then hopefully they will start to come back up. After the clinic, we went upstairs to meet with Dr. Jan who is one of the psychiatrists at the hospital. We only got to meet with her for about 10 minutes due to Ronan’s tummy hurting and him not wanting to be there. She is trying to help me work on some boundaries with Ronan.

We are still waiting to hear the finalized dates for New York. We should know in the next couple of days. It is going to be here before we know it. I am trying to mentally prepare for everything. As long as I have all my ducks in a row here, I should be fine.

Today, I spoke with Lin Sue Cooney from Channel 12 news. She has been playing phone tag with Woody since last week. They want to do a story on Ronan and our family and asked if they could come to our house to shoot tomorrow early evening. It was very last minute, but I am not going to turn down that opportunity. I will let you all know when it is going to air when I find out. I am assuming they will have to edit, etc…. Either way, I am honored. Channel 12 is the only local news channel I watch. Watch out world, this is just the beginning! Little Ronan is going to bring so much light and hope to this disease…. he will be the poster child for it. We have to find a cure. Everyday I hear of more and more babies not surviving. It is gut wrenching to read about and rips me to pieces. I try to stay away from stories like that, but it’s like a bad car accident…. sometimes you just have to look. As much as I try not to, it is a horrific reality check for me and keeps me focused on what we need to do to keep Ronan kicking cancer’s ass.

Tonight we played a lot of baseball outside. Ro has been running around like mad. There is no stopping my little guy. He runs circles around his 7-year-old brothers. I’ve never in my life seen a child like him before. He is so strong willed and determined. I dream about the day that he can just be carefree and happy and not have to live the life of going back and fourth to and from the hospital.

My sweet friend, Jules, brought over dinner tonight and it is always a treat to see her. We tried to catch up for a bit but it was busy around here with homework being done and Ronan wanting attention. We sat and ate dinner as a family, watched a little football, and Ronan fell asleep around 8:30. He didn’t nap today so he was tired tonight. After he fell asleep, I ran to the grocery store so I actually have food in my house. Ronan has been quite upset that there has been a lack of string cheese around here. We are all stocked up for a while. It’s amazing how much food 3 little guys go through. I seriously need to buy stock in Gatorade.

My friend, Gay, is coming over tomorrow to help me get ready for our channel 12 news story. She is going to help me put away all of our Halloween decorations and things like that. That women is a force to be reckoned with. I am SO lucky to have her as a friend. I hope someday after all of this is over to take a big trip with my very special girls to celebrate them and all they have done for me. A girls trip will definitely be in order and way overdue. We have so many plans for when we are done and over with this bullshit. So much of it is just going to consist of being together as much as possible and enjoying every little second of being healthy and free. Our lives will forever be changed, but we are going to change them for the better. This won’t get the best of our family<3 Nobody can take that away from us.

Last Friday night I went down to my beautiful friend and neighbor, Niki’s for a few cocktails and girl time. Tricia and Jen joined us too and I cannot tell you how good it felt to just be with them. We sat, talked, laughed, cried, and laughed some more. I swear this is the first time I have really laughed in months.  And I mean, laughed so hard that you can’t breathe and your stomach aches and hurts. It felt so good to feel something other than pain. I know I am surrounded by amazing friends when they can get me to feel that way and to just let everything go, even if it is just for a few hours. To my Niki, Tricia,and Jen…. thank you for being the beautiful souls that you are and the sisters I was meant to have. You have no idea how much that night meant to me. The only thing missing was our Lindsey and Marisa. <3 <3 I thought about them the whole night though and it felt like they were there in spirit. I love you all.

To all of you keeping up with Ronan and this blog, I think about you everyday and I am so thankful that you are touched by his story. It is going to be a long journey but it is going to be worth the ride. Sweet dreams, friends. Be thankful for what you have, who you are, and all the blessings you have in your life. You never know when something could take it all away<3<3 I pray that none of you ever have to experience what we are going through… we will walk this walk for you and hope you take the lessons along the way.