4 Months feels like 4 Years. Thanks, Cancer. You’re AWESOME.
Ro. I can write tonight. I need to write tonight. It’s been a couple of days I think. I don’t know that I’ll be able to sleep tonight. It’s creeping up. The 9th of every month date. 3:30 a.m. will be here soon. I’ve been dreading it all week. Consumed by it. 4 months is…4 Months, angels, arizona, Cancer, childhood cancer, Childhood Disease, Dr. Beth, Dr. Joanne, Dr. Rachel, Family, FUCK, Garage Boutique for Kids, Hats, hope, iPod, Lance Armstrong, Lovie, maya thompson, MISS Foundation, Mr. Sparkly Eyes, Neuroblastoma, phoenix children’s hospital, Rockstar Ronan, sarah matheson, Spirit Hoods, Star Wars, Starbucks, The Bravery, The Ronan Thompson Foundation, The Ryan House, Tom Petty, true love, Twinkle Twinkle Little Star
A little seal and a hummingbird
Ronan. It’s only been a week since you left. How can that possibly be? It feels like you left such a long time ago. I think about you all the time. You are never not in my thoughts. I got through another day without you. I don’t know how; but I did. I took Liam…angels, anger, arizona, AZ, best friends, Breast Cancer, bullshit, Cancer, Childhood Disease, CHOP, Conditions and Diseases, Desert Botanical Gardens, Family, Fans, friendship, FUCK, honesty, hope, Hummingbird, iPhone, Liam, little seal, love, Maya’s Mafia, Neuroblastoma, new york city, Parenting, phoenix children’s hospital, reality, Rockstar Ronan, Ronan, sloan kettering, Star Wars, strength, true friends, true love, Twin, woody thompson, Yoplait
Not a kissing day
I sat here at The Ryan House all day with Ronan, rubbing his little leg that is hurting him so badly. We had a lot of visitors in and out. Ronan slept most of the day while I had the chance to sit in our room and see a lot of friends and family. I…angels, anger, arizona, Childhood Disease, CT scan, death, Dr. Giselle Sholler, Dr. Maze, Family, god, Health, heartbreak, honesty, hope, life, love, maya thompson, no kisses, pain, Phoenix, phoenix children’s hospital, radiation, reality, Rockstar Ronan, San Diego, St. Joe’s, Star Wars, strength, tears, The Ronan Thompson Foundation, The Ryan House, twins, Vermont, woody thompson
Music to my ears
I’m feeling peaceful tonight. Today, was a very good day in terms of victories for Ronan. It started off with his little words this morning, “Mom, I have to poop.” Praise the freaking lord. It’s been 5 days of him not pooping and we have been giving him Miralax around the clock. I full on…“A”, American’s Taco Shop, angels, arizona, Cancer, Charisma Carpenter, childhood cancer, Childhood Disease, Conditions and Diseases, Dr. Eshun, Dr. Giselle Sholler, Dr. Sarah Matheson, Fernanda Borletti, hope, I love you to the moon and back, iPad, laughter, love, maya thompson, Mr. Sparky Eyes, Neuroblastoma, Playroom Kathy, Pooping Party, reality, San Diego, Star Wars, tears, The bravest boy, The Ryan House, twins, woody thompson
I’m sorry my baby boy
Not a lot to report today. The day was spent with Ronan waking up bright and early in pain; therefore, he was pissed at the world. We spent the majority of the day playing in his bed and testing out what the correct dosage of morphine for him is as they decreased it last…
Not following the yellow brick road
HAPPY VALENTINE’S DAY! RO, MAMA, AND NANA WENT FOR PEDICURES!!!! I wish I could tell you all that I have not updated my blog for a few days because I have been so busy soaking up all of my precious time with my amazing family. That we have had such a fun filled, fantastic weekend…3f8, adventures, angels, anger, Antibodies, arizona, Atlanta, AZ, basketball, best friends, bone marrow, boys, brave, bullshit, Cancer, Change of plans, Chemotherapy, Chicago, childhood cancer, Childhood Disease, Conditions and Diseases, doctors, Dr. Eshun, Dr. Kusher, Dr. Maze, Dr. Zage, dreams, Family, friendship, fuck you cancer, hope, love, luck, lynn stephens, maya thompson, MIBG Therapy, Mr. Sparkly Eyes, Neuroblastoma, new york city, prayers, raw, Ro baby, sadness, San Francisco, sloan kettering, Stem cell, support, tears, true love, twins, woody thompson
Bone scans results…. kind of.
We started off this morning with Ronan’s Audiology test. It went alright… but we were not able to complete the test due to Ronan’s lack of cooperation. He was able to get through some of it in which the Doctor played high frequency sounds and Ronan would put a dinosaur into a bucket when he…angels, anger, arizona, best friends, bone marrow, Bone Scan, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, CT scan, Dr. Eshun, Dr. Maze, Dr. Wood, fuck you cancer, Health, hearing loss, hope, kids, maya thompson, MIBG, mom’s, MRI, Neuroblastoma, new york city, Pandora, Pet Scan, Propofol, Rockstar Ronan, sadness, sloan kettering, strength, The Ronan Thompson Foundation, true love, United States, woody thompson
An old soul
Ronan had his clinic visit this morning. His levels have dropped just as we were expecting. We are so used to this chemo thing now that we know where his counts will be. What I didn’t expect wash his platelet counts to be so low. They were 10,000 today. WHAT?!?! 10,000 and not a bloody…angels, anger, arizona, Arizona State University, AZ, basketball, beauty, best friends, blue eyed boy, brothers, bullshit, Cancer, Chemotherapy, clinic, Coconut Water, Dr. Adams, faith, Family, friends, friendship, george clooney, happiness, hope, isolation, King Cake, little seal, love, maya thompson, Neuroblastoma, New York Miss Macy, NOLA, Old soul, platelets, Rockstar Ronan, Ronan, ronan sean, ronan thompson, running, Skype, Star Wars, stem cell transplant, strength, twins, woody thompson
Magic Medicine… Day 2 Round 6
I so needed to take a little break from the hospital today. Ronan is still refusing to get out of bed so we spent the morning playing; I tried my best to entertain him. Our favorite nurse, Sharon, came to do Ronan’s dressing change. He did pretty well with it but at one point I…angels, anger, arizona, AZ, best friends, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, doctors, Dr. Kushner, Dr. La Quaglia, Energy, faith, Family, Fred’s team, friends, fuck you, hope, iPad, isolation, iTunes, jake gyllenhaal, love, mom’s, Neuroblastoma, new york city, New York City Marathon, New York Miss Macy, Paul Frank, Phoenix, Purple, Rockstar Ronan, sadness, Sarah Tinney, sloan kettering, Small Paul, Star Wars, stem cell transplant, tears, United States, US Weekly, woody thompson
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