Scans are done… now we wait

We are home finally from our long evening of scans. Ronan started at 4:30 this evening and was not finished until about 8:00 tonight. Dr. Maze was there, as always, to give Ronan his anesthesia. He stayed the entire time, even though I was told that he would more than likely not be there when Ronan woke up. He was, and that meant the world to us. He is truly a doctor that goes above and beyond. The world would be such a better place with more people like him in it. He takes the time to go over everything with us… to make sure we are being taken care of, listens to our question and concerns and to give us advice. We will forever be grateful for him. He has made a huge difference in this experience for us. Ronan trusts him and truly loves him. He is only really like this with Dr. Maze and our wonderful nurse, Sharon. Those are the two people Ronan trusts the most… and those are the two people I trust the most. It makes a big difference when you can look into the eyes of the person who is taking care of your child and see that they truly have a passion and love for what they are doing. I see it every time I look into the eyes of the both of them. It brings me a lot of comfort and somehow makes me feel like everything is going to be alright.

Ronan woke up really grumpy from the anesthesia. He got a little sick to his stomach and slept the entire ride home. He is asleep now and I am hoping he stays that way for the rest of the night. Poor baby. He had a hard day and spent the better part of it being upset that we were at the hospital and not at home. It’s days like today that I feel so heartbroken for him. I just want him better and healthy so he can go back to his life before all of this. I did my best and was strong for him all day long… I spent the entire time at the hospital talking him through everything and trying to distract him. He just wanted to be home with his brothers. I don’t blame him; I did too.

I got to spend some time with Tricia and Marisa tonight. They both came to the hospital so I wouldn’t have to wait alone. It was nice to sit and laugh with them. They know when I need a good distraction and waiting for Ro to come out of anesthesia is always hard for me. Thanks girls for sitting with me tonight and thanks Marisa for checking my blood sugar levels;)

This weekend we are going to lay low and enjoy our family time together. Ronan will start round 3 of his “Magic Medicine” on Monday and I just found out that we will have to be admitted into the hospital for his treatment. The dose is stronger so they will need to monitor him all week. Not excited about that but like always, we will make the best of the situation.

We should hear back about Ronan’s scans some time tomorrow. Praying for good news and praying hard. Sweet dreams my friends.

4 thoughts on “Scans are done… now we wait”

  1. That picture makes me want to hug my monitor. Positive thoughts and prayers are always sent your way. What a Rockstar!

  2. Maya,

    I have been following your story for a month or so (I can’t remember how I found you?). My nephew Christopher was dx’d last September with Stage IV NB and reading your posts brings those days right to the surface again. Nothing in life prepares you for childhood cancer — NOTHING. I’m so sorry your family has been dragged into the mire. My sister keeps a blog of their journey as well — it can read sometimes like “girlfriend’s guide to cancer” but it is her outlet and it helps her to look back on it and see how far they have come. You will, too. It is a long, hard scary road, but you have a great foundation of family and friends, and Ronan’s strength will amaze and sustain you over and over. I will continue to keep your beautiful family in my prayers and hope that treatment continues with no unforseen bumps in the road. My nephew Christopher followed the same treatment protocol — if it is helpful for you to follow it, his caringbridge site is: http://www.caringbridge.org/visit/christophergrimes.

    Oh! I think I found you through ACOR – I follow that site for Kristin and pass on any useful information.

    Lots of love and prayers to you and your family!

    Janice McGovern

  3. Waiting always gave me the jitters. But, like your family we had faith in God and the care team.Hold fast to both.Many prayers and always sending Angels to be with your Rockstar.They love him too. Hugs D

  4. I work with Marisa’s mother, Marta. Marta told us all about Ronan and what you all are going through. I’ve been reading your blog since you started writing it and I just want to say that I think YOU are a rockstar too! I pray for you all every night and I know, in my heart, that you will come out of this even stronger than when you went in. Your boys are beautiful and I wish you all the best! Thanks for sharing your journey with us. God Bless you all!

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