Tag: passion

I kind of think I might do this one day.

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“Desert Runners” is supporting The Ronan Thompson Foundation during the month of June! The film follows ordinary people pushing themselves to extraordinary limits by competing in 4 ultra-marathons in the most treacherous deserts in the world.

Much like how RTF will never quit on funding for new treatments and defeating childhood cancer, these runners will never quit on their goals.

The film is available for download at http://buy.desertrunnersmovie.com/ Any amount of money you choose to spend over $9.99 will be donated to the Ronan Thompson Foundation for us to pursue our goals and fund cutting-edge childhood cancer research. Enter the code: RONAN at checkout and receive a 10% discount on the film!

If you spend over $11 you will unlock the SUPERFAN PACKAGE and get access to over 30 minutes of bonus content including interviews with the director, cinematographer, executive producer and the desert runner himself Ricky Paugh.

We are so very excited to be a part of this amazing adventure.  Clink on the link below to watch and support RTF! Thank you, Desert Runners for choosing RTF as the charity to support!!

http://buy.desertrunnersmovie.com

My dream doesn’t scare me because my dream is you.

I have a dream. A really, really, really, big dream. I’ve been sitting on this dream for a while, trying to figure out when the right time to announce it would be. I’ve been talking to a handful of people about this dream, but for the most part it’s been kept pretty hush-hush. This is one of the reasons, I’ve been so busy Ronan. I’ve been meeting with so many people for months now. Taking so many trips, having so many meetings, phone calls, and lunches. I’ve been chasing this dream of mine, trying to figure out how I can make it a reality. It all came one night, so clearly, out of the blue. Your daddy and I had been to dinner with some friends of ours. It was a magical dinner where we talked a lot about you and how things are just not changing for this disease. It was a dinner filled with, we know we can change things, we feel the power Ronan has to change this, we know our little boy would want us to do something really huge and big, to impact this world in such a big way. We both left the dinner knowing what needed to be done.

The car ride was quiet on the way home. I was trying to wrap my head around the epiphany that I had just had. I was in our bedroom and your daddy looked at me and said, “Let’s build a World Class Neuroblastoma Research/Care Center.” I couldn’t believe my ears. He took the words right out of my mouth. It was one of those moments where you know with every bone in your body, that you are married to your absolute soul mate in life. I teared up and said, “Let’s build World class Neuroblastoma Research/Care Center.” I had no clue how we were going to do it, but I knew that this was our new secret mission and we were going to figure out how to make this happen.

We started talking about ideas. It needs this, this, and this. Who can help us? I reached out to a small group of people. I was fully prepared for the, “This idea is too crazy and big… what in the world are you doing?” I got a lot of those, but they also came with sides of, “If anyone can do this, it’s you and Ronan.” I have been working non-stop on this for a good 8-months now, trying to put all the pieces together like a puzzle. They have slowly been coming together. I have a list. A very big list. I have a vision and a dream of how this center will look. To me, it is so beautiful and safe. I want to create a safe community for these families, where they don’t feel as if they are just another number. Where they know that they matter and they know they have the best doctors/child-life specialist/volunteers/nurses taking care of them. Where they know they are NOT alone. Where they have someone to hold their hand, all the way through this, even if the worst possible outcome happens and a child dies. They will NOT be thrown out into the street like garbage, never to be checked on again. I have a crazy list of crazy things that will be necessities for the care center part of this. A yoga studio! A go beat the shit out of a punching bag area! A quiet area. A movie theatre! A chapel. A theater where kids can put on plays and perform! An Art area! A kick ass play area! A garden! A music room! My list could go on and on. I WILL give these kids the childhood they are being robbed of. I will give them the life they deserve to live, but are having to live it while fighting cancer. I know I can make this world better Ronan. I know I can. I know you can, too.

This is all I have been doing/thinking about. I presented it to my board a few months ago. I think saw their heads start to spin. I quietly told them that I wanted this to be our new mission and although I didn’t know how we were going to get it done, we were going to get it done. I was told by a Master Yoda of mine, to wait to throw this out into the world. How the timing had to be just right. I had dinner with my Master Yoda a couple of weekends ago. I looked at him after our dinner and said, “How will I know when the time is right, to put this out there?” He just looked at me and said, “Maya, you will know.” I left that dinner telling myself to just trust in myself, you, this universe and when the time was right, I would know.

The time is right now. I know this because of the ways the stars have aligned and the way divine intervention is taking place. I know this is all because of you. I am ready to put this out there. I know what it is, we are going to do. I am going to create the best world possible for a child and a family diagnosed with Neuroblastoma, to be taken care of. I can take the pain of losing you, Ronan, and turn it into something beautiful. For a long time, I didn’t think I was going to be able to do this. For a long time, I was so scared this pain was going to destroy me and everything I had. It was only after the idea of this center came to me, that I figured out how I could survive this. It is by being able to help others in such a way that only a mother who has experienced such a devastating loss, can do so. I can do this in a way that is so different from others. I can take all of my pain and magically spin it into beauty because of the love that I know from you. I made you a big promise when you died. You left me here, knowing I was not going to do something small. I have always known the things that I do for you, are going be huge. I have always known you would lead me to where it is I needed to go. I have always trusted in you to map out this path for me. This is what we were meant to do. This is what we are going to do. This dream doesn’t even scare me, because I know I have you behind me and you won’t let me fail.

I know how hard this is going to be, but it cannot possibly be as hard as living my life without you. If I can do that, I can do anything.

I sent out an email asking my board if they were o.k. with me announcing our new little mission. Their responses left me with tears pouring down my cheeks. One of my board members responded back with, “Just Do It!,” (taken from Nike). Then she wrote back and said, “Or as my dad says, JFDI!” (just fucking do it!) I was crying and laughing all at the same time. I LOVE THEM ALL SO MUCH! I love that they are so behind this! It means everything to me. I had Tricia tell me not long ago that she hadn’t seen me so excited about something, in such a very long time, as I was about this. She told me she knew this was going to happen just due to seeing my passion, excitement, and fire behind it. I loved hearing that from her. I am glad people can still see that in me. It takes a lot to bring it out.

You know those days I disappear, and I don’t write? It’s not because I have dug myself into a hole and I am hiding. It’s because in between grieving, being a wife, mama, trying to be a friend again, trying to find myself a little bit again, I’ve been working on this with everything I have. This is what I want to do for you. This is now, my ultimate goal, besides a cure for the thing that killed you and took you away from me. I will fight until I die, with everything I have, for the rest of my life for this and for you and the other kids who deserve better. I am not going to slink away or disappear. This is my life mission. This is what I was meant to do. I will fix this, Ronan. I promise.

I love you baby doll. I miss you, I love you, I hope you are safe. Thank you for guiding me in everything I do.

xoxo

P.S. Dear loviest of lovelies,

I hope you know how much I appreciate all your love and support. I hope you know how much I appreciate you sticking by me through all of this because you knew with all of your hearts Ronan was going to do something amazing. This to me seems pretty amazing. This is why I am so thankful, for every dollar you have sent our way. Every penny counts. Especially now. You humble me. You make me want to shoot for the stars. You give me strength and keep me going, on the darkest of days. Thank you so much for loving me in a way that I never knew strangers could love someone. Thank you for loving my little boy so much that it makes you want to be better people. I love that so much. I know this is a big job, but I also know my Master Yoda was right. If anyone can do this, it’s us. I also know that I could not do any of this without all of you. I will forever be grateful for you all. I love you.

Also, please watch Stand Up 2 Cancer tomorrow night. It’s the one night of the year, where we can all stand up together. They are a great organization, doing amazing things.Things have to change and it’s a very powerful show with a very special message for anyone who has been touched by cancer. Thank you.

Fuels in the fire. Burn baby, burn.

I’m writing today to you all because I have a lot of fuels in the fire. I know I am supposed to be enjoying my family beach time, but being busy is helpful to me as well. First of all, last night I had the chance to go and look at all of the pictures that the amazingly talented, Emily Carroll, took at Ronan’s Fundraiser, and posted to her Facebook page. The link is on my Facebook page as well. I cannot tell you what an out of body experience it was for me to see all of your beautiful faces, most of whom I didn’t know, supporting us. I cried the entire time I looked through them. It is was beyond hard for me, to know that all of you were there because of the love you have for our family and because our little boy is dead. Can you put yourself in my shoes for one minute? Just take one minute, close your eyes, and think of your child dying. In that one minute, allow yourself to experience the pain I feel, my family feels, every second of the day. Take this one minute of pain and know this is why you all have taken it upon yourselves to inject yourself into our lives, when most of you don’t even know us. Take a minute to think about what amazing human beings that makes you and be proud of who you are. You all know there is more to life then the superficial things that surround us. You all get the bigger picture and you all know you are about to help me change this world and the way most people live with their eyes closed and lack of passion. You all have made me beyond proud and honored to have your love and support.
Ronan lived everyday of his life as if it was his last, without ever knowing that he would only get to be on this earth for almost 4 short years. Maybe deep down, in his old little soul, he did know this, which is why he made everyday a party and gave us so much happiness. He lived his life to the fullest, the way everyone should. I can guarantee you, if Ronan would have grown into an adult, the way he should have, he would have changed the world in some way shape or form. He would have had such a huge impact, as it was what he was put on this earth to do. Look at how much he has done with his life in the short amount of time that he did get to be here. His life was taken away from him, but I still believe he was meant to change it. I will never stop believing in the power of my son and his big blue eyes. The connection that Ronan and I have was so beyond deep, that it is beyond this life. I know it is him who is pushing me to keep going with his mission, his life, and his soul. I know what he wants me of me and every idea that I have, I am going to fight for it. Every goal I want to reach, I am going to fight for it. Every breath that I have to take, when I don’t want to anymore, I will fight for it. He is surrounding me still and I cannot rest until things in this world start to change. Ronan wants to be the voice for childhood cancer, so someday, children will not have to suffer and lose their lives the way he did. Ronan wants all parents to know that you should never take a day for granted with your kids and that the little stuff, really does not matter. He wants to help make parents, better parents. He wants all children to be loved as much as he was, because he knows how precious life is and he would give anything to be back here with us, where he was loved every second of his life. I gave my whole heart, body, mind and soul, to Ronan from the time he was born. I think deep down, I knew that I wasn’t going to get to have him forever which is why our connection was so deep and so different. I gave him a lifetime of love in his almost 4 short years that he was here. I will forever be heartbroken and feel like we were robbed of the most amazing child, but that his fight has to continue on.
Back to my fuels in the fire. I have a lot of things to take care of in regards to Ronan’s Foundation when we get back to Arizona. I am going to pour my heart and soul into it. Some things that I want to see happen are the following:
I want to make The Brightest Star in the Sky a yearly event. I want to make it huge. The amazing women who put it on for us this year are completely invested in our cause and for that, I cannot say thank you enough. I cannot wait to be involved with you all and to work with you to make it spectacular. I cannot wait to watch how it evolves and grows into something that everyone knows about and I have all of you beautiful woman to thank for getting this started. This would have not happened without you and for that I will forever be grateful.
I want to find a big voice for Childhood Cancer. People worship the power of celebrities so much, and as much power as they have, why hasn’t anyone stepped up to the plate to start a movement for Childhood Cancer? I know a lot of celebrities support St. Judes, which is amazing, by why not just Childhood Cancer in general??
Also, Yoplait. They change all of their lid colors to pink in October, which is also amazing, so why not Yellow for the month of September for Childhood Cancer Awareness?? I don’t have their contact info yet, so if anyone knows of it, please email me at mayawoody@gmail.com
I think the more people they hear from, the more they would be willing to listen. A movement has to start and it has to start now. The sooner the better as we all know when  you are dealing with Childhood Cancer, time is not on your side.
Lastly, I wanted to tell you that last night I did dream of Ronan. I could cry just telling you about it. I was pushing him on a raft, he had hair, and he was laughing and happy. In my dream, he was alive, but I was also talking to people about his death. My childhood friends, Missy and Mandy were in it and we were on Missy’s farm with Ronan running around. My friend, Lisa, was in it and I was hugging her about Ronan dying. It was a dream where life and death both existed, but they were both beautiful. I am so thankful for my dream last night and I didn’t take my Ambien to go to sleep. I didn’t fall asleep until about 3 a.m. but at least I got to see my sweet baby boy. It was the best thing to happen to me in a long time.
That is all for today my friends. I have been getting a lot of emails also about getting bracelets to out of state peeps. Once I figure this out, I promise I will let you know. Just give me a few days:) Thanks for your support and love, always. Have a good day, my friends. Love you all.
xoxo

I live my life for you

Ronan. Ouch. Ouch doesn’t come in the form of you hurting from your broviac dressing changes we used to do every week. Ouch doesn’t come in the form of the pokey shots we used to have to give you after you finished your round of chemo. Ouch now comes in the form of living this life. This life without you. It comes in seeing all of the little kids who are your age running around the beach. It comes in the form of seeing the beach towel today that had your Paul Frank monkeys all over it. It comes in the form of my obsession with taking pictures and you are now missing in every one of them. You are just gone. I’m waiting for you to appear in a picture of your brothers, right in the middle where you used to always be. It is beyond weird not having you around to take pictures of, Ronan. You were such my little ham and I used to absolutely die over talking pictures of you and your big blue eyes. I miss you so much it hurts. The pain is not getting any better. I still think it is getting worse as the days go on and I watch everyone else in life with their beautiful kids. I sit and wonder to myself, do they know how lucky they are? How lucky they are to be able to just hold the hand of their little ones to cross the street? How lucky they are to deal with a tantrum or go through the terrible twos? Those people I watch from my new set of eyes are so unbelievably lucky. I find myself sitting back a lot now and just absorbing my surroundings and wishing for you. I want to scoop up every little person I see and tell them I love them, because I do. They all remind me of you in different ways. The little boy with the blue eyes, the little girl with the mischievous smile, the laughter and innocence that these little people are so blessed to have and they don’t even know it. And they shouldn’t know it; but their parents should. I hope so much that all these people who are touched by your little life now take the time to be grateful for having something so simple and beautiful. I hope they kiss and love their kids so much more now. That is my wish for you, Ronan. After you passed away, I sat and kissed your little cold lips about a dozen times. I wanted to sit in that room with you and kiss you forever. Instead, I now get to sit and cry about how I will never be able to kiss your little lips again. You had the best lips too. They were so full and soft. Your daddy and I were talking about you the other day and how unbelievably perfect you were. I keep thinking you were too perfect for this world? Your beauty was unlike anything that I have ever seen before. I don’t understand why you had to be taken away from us. I will never understand this which is why something has to be done, Ro. After this summer is over, I’m going to figure out a plan. I have got to help other kids like you who deserve to survive this disease. I will do it for you and in your honor. I know this will not bring you back, but I know it is something that would make you proud and smile. I miss your smile so much.

Yesterday, I laid in bed for a long time and held your blanket and cried. I cry about you all of the time now because I am constantly feeling the emptiness of life without you. No more shock, no more numbness. Your brothers have been taking really good care of me though. Quinn likes to lay with me when I am sad and we talk about you. He falls asleep holding my hand much like you used to always do. You have the most amazing brothers, Ronan. I thank god for them everyday of my life. I don’t know what I would do without them. We are slowly finding our way back together. They have had such a great time being little beach bums with their cousins, Jake and Carter. It is so therapeutic to watch them grow close to their cousins. It gives me a lot of peace of mind. One of the most beautiful things to come out of this has been seeing all the new bonds and relationships that have been formed. I said this the other day to someone….. that one of the things I treasure most is how I’ve watched my beautiful girlfriends all come together and the new friendships that have come from this. The bond that they have all created is such a gift to me. They have all given me such a gift by helping me through this that I hope this gift is something that I have given to them. It’s been like watching a puzzle slowly come together and I know the friendships that have been formed will be friendships for life. We are all like sisters now. I watched the way they all came together for our family and for you. They fought and continue to fight for us. I never knew what a powerful thing love could truly be, baby. It was only when you got sick that my eyes were opened up to a whole new world. It is a beautiful world indeed, but I so wish I was learning this lesson through something else rather than losing you. I don’t know how we are going to heal without you, Ronan. I think our new life is going to have to drastically change. It’s going to have to have a much bigger purpose, a much bigger meaning than living in the little bubble that we lived in before all of this. We are working on the healing part of this a now. Baby steps. The ocean. Family time. New adventures. Simpleness. I can’t tell you how exactly we are doing this, but the fact that we all get up everyday and somehow manage to smile is a good enough start for me. It is all we can do right now, Ronan.

Today, Quinn and I were taking our usual walk to Starbucks. I had on my sunglasses, fedora hat…. my usual, “hello I just woke up look on and I’m going into town.” We were walking on the boardwalk and this girl and her boyfriend passed us. I only noticed her because she had some flannel shirt on and I thought how cozy and cute it looked. A minute later, I heard someone running up behind me and she goes, “Maya!” I turned around and it was the girl in the cute flannel shirt. She then told me how she reads my blog. I was shocked  she recognized me and I asked her name and introduced her to Quinn. She introduced me to her boyfriend and I asked where she was from; she said Arizona. It was so random and so sweet. So to Allie today, thanks for having the guts to run up to me and say Hi. It was really nice to meet you:) Enjoy the rest of your time here, although I think you are leaving to go back to AZ soon. I hope you had a nice trip here.

After we returned back to our place, we met up with Stacy who is here for the week with her kiddos and Kenny. So fun to have them here with us. We split up since I had a surfing date with Katie and Sarah. We took lessons today and I’ll have to say it could become my new obsession. For the first time in 9 months, I had to fully forget about everything in my life and focus on fighting to get up on that board, stay up, and concentrate like I have not had to concentrate on just myself in a very long time. We stayed out in the ocean for about 3 and a half hours today. It was just what I needed and I loved every second of it. I’ve always wanted to surf. So stupid that I’ve waited so long to try something that I’ve always wanted to do. There were always too many excuses before. Well, not anymore. I’m done making excuses, Ronan. I’m going to live a life full of passion and adventure and I’m going to do it not only for myself, but for you too. Life is too short to let things hold us back. All fear is out the window. I’m done being scared. You were never scared of a thing in your life. You have left me this gift and I will keep living this way for you. I owe you so much for teaching me so many lessons. You are my hero, Ronan. You are my everything.

That is all for this evening little man. I love you to the moon and back. I will keep you in my heart forever. Sweet dreams, my love.

xoxo

A Margarita, Sangria, or George Clooney??

I talked to Dr. Wood this morning and Ronan’s ANC counts came up from 0 to 25. This still doesn’t mean we will be getting out of here anytime soon as they have to be up to 200 and rising for Dr. Eshun to discharge us. Dr. Wood said he expected us to be here until next week. Our little monkey is getting restless and tired of being here. How in the world am I going to entertain him until next week? We will just have to make due. My friend, Fernanda, came and sat with Ronan for 4 hours today so I could run home, shower, do some laundry, and run some errands. I got a chance to catch up on the phone with my Susie and Bethany. Both of those phone conversations were long overdue and it was so good to hear both of their voices and catch them up on things. I miss them both so much. Thank you, Fernanda, for taking such great care of Ronan for me. He LOVED having you here and is still talking about the things you two did. I am so lucky and blessed to have the amazing friends I do. I am thankful every second of the day for all of you. <3<3

I am really, really, really, excited for a few things that some amazing people are stepping up and doing for us. Not going to go into too many details but so many people have been coming out of the woodwork and wanting to help change PCH and the way things are done around here. They know who they are and they are just as passionate and excited as I am. All they needed was Ronan and his story to fuel the fire for making the world of Pediatric Cancer, a better place. I am so excited to be involved in this process with the vision and help of great friends. Ronan is changing the world already at the small age of 3… I can't wait to see what amazing things come of this. Thank you, my dear friends who shall remain nameless due to them being the kinds of people that don't want recognition, who just want to do amazing things when nobody is watching. I can't tell you how much I love this. There are not many people in the world who just do things without the whole world needing to know about it. I am going to have to come up with a nickname for this new friend of mine…. you know who you are<3 I will think of something after I get to know you a little bit better:) Maybe Mrs. Margarita due to your email tonight;) Love you, your passion, and your heart. Thank you, sweet girl.

The rest of today was spent playing with Ronan. We had a new nurse today that we haven’t ever had before. Imagine that! I thought we knew everyone on this floor. Her name is Holly and she was a delight. Ronan adores her and she was very sweet to us. We hope to have her again and also love the fact that she too is a former Sundevil:) The ASU baseball team came to visit the kids on the floor and I coaxed Ronan out of his room to go to the playroom to see them. I am so glad he agreed to go because he was able to meet some very special people and also get a couple of baseballs signed. Thanks Margaret for being extra sweet to Ronan. It was so nice to meet you today:) He was a little overwhelmed and a little shy but was very excited about the baseballs when we returned to his room.

I wasn’t going to ask to switch to a window room view while we were on the second floor….. because I thought we were going to be out of here by Saturday; but I did. If we are going to be here until next week; I will not survive without one. I feel like the biggest pain in the butt… as Dr. Maze said to me today, “What are we doing, playing musical rooms?” Made me laugh but that’s how it feels. What can I say, I’m a girl who knows how happy the little things make me and I’m not shy about asking for it. One of Ronan’s favorite things to do at night is to look out the window at the pretty neon lights that flash at the top of the new PCH hospital. He loves to say the colors out loud and we count the stars and say Goodnight to the moon.

Ronan is really missing his house and brothers tonight. He must have told me a dozen times how much he misses Liam and Quinn. It KILLS me to hear him say those words to me. I hate that he can’t be with them. He called tonight and talked to the boys’ for a while. I sat and while Quinn was on speaker phone and the boys’ went back and fourth telling each other how much they missed one another. It was heartbreaking and sweet all at the same time. After the phone call, Ronan and I spent the evening playing “lets throw the stuffed monkeys back and fourth to each other but not let them hit the ground due to the hot lava, game.” We played for a solid hour and he was laughing the entire time. We then went on a hut for our favorite nurse, Arica, and found her but she was in a room with a patient. She blew Ro kisses and came to visit us later tonight. Ronan was almost asleep but woke up as Arica was giving him kisses and loves, just so he could give her a smile and a giggle. I love that girl<3

Woody has been so busy this week that he hasn't been able to stop by the hospital to see us. Between his law firm and coaching the twins' two basketball leagues, he hasn't got a free second. Our catch ups have been consisting our our 3 minute phone conversations about 10 times a day. I HATE THIS. I miss my husband, my twins, my house, my old normal everyday life. I am tired of falling asleep listening to the screams and cries of our roommates and their parents. I'm tired of the lack of privacy and this sharing room bullshit. It's bad enough that my child has cancer, but it's even worse the lack of privacy that comes with it. I know, I know… the new hospital will have it's private rooms. That does me no good as of now. I'm burnt out, I'm discouraged by all the sadness that surrounds me everyday. Listening to the screams at night haunts me and is another huge reason to why I never sleep well. I know Transplant is going to be hard, but at least we get our own room. Trying so hard to find the positive in anything and everything I can.

That's all for tonight. I hear some Coconut Water and a movie calling my name. I could really use a Margarita and some freaking chips and salsa. What I wouldn’t give for that. I need to get lost in something tonight, otherwise I’m going to lose my freaking mind. Ahh… spoke too soon. My friend Stacy just texted me to ask if she could bring me anything. My reply was, 1) A margarita, 2) Some Sangria or 3) George Clooney. Can you guess what she is showing up with?!?! Either way, I win!! YAY FOR GOOD FRIENDS!!!! G’nite dear darlings. Sleep well.

xoxo

Kathryn~ Thank you for the Star Wars picture you sent for Ronan that Annie Leibovitz shot and signed for him. He is going to freak out over the picture; I am freaking out over the fact that such an amazing, talented soul, took the time to do such a sweet thing for Ronan! Made my day!! Tell her thank you as well:)

Scans are done… now we wait

We are home finally from our long evening of scans. Ronan started at 4:30 this evening and was not finished until about 8:00 tonight. Dr. Maze was there, as always, to give Ronan his anesthesia. He stayed the entire time, even though I was told that he would more than likely not be there when Ronan woke up. He was, and that meant the world to us. He is truly a doctor that goes above and beyond. The world would be such a better place with more people like him in it. He takes the time to go over everything with us… to make sure we are being taken care of, listens to our question and concerns and to give us advice. We will forever be grateful for him. He has made a huge difference in this experience for us. Ronan trusts him and truly loves him. He is only really like this with Dr. Maze and our wonderful nurse, Sharon. Those are the two people Ronan trusts the most… and those are the two people I trust the most. It makes a big difference when you can look into the eyes of the person who is taking care of your child and see that they truly have a passion and love for what they are doing. I see it every time I look into the eyes of the both of them. It brings me a lot of comfort and somehow makes me feel like everything is going to be alright.

Ronan woke up really grumpy from the anesthesia. He got a little sick to his stomach and slept the entire ride home. He is asleep now and I am hoping he stays that way for the rest of the night. Poor baby. He had a hard day and spent the better part of it being upset that we were at the hospital and not at home. It’s days like today that I feel so heartbroken for him. I just want him better and healthy so he can go back to his life before all of this. I did my best and was strong for him all day long… I spent the entire time at the hospital talking him through everything and trying to distract him. He just wanted to be home with his brothers. I don’t blame him; I did too.

I got to spend some time with Tricia and Marisa tonight. They both came to the hospital so I wouldn’t have to wait alone. It was nice to sit and laugh with them. They know when I need a good distraction and waiting for Ro to come out of anesthesia is always hard for me. Thanks girls for sitting with me tonight and thanks Marisa for checking my blood sugar levels;)

This weekend we are going to lay low and enjoy our family time together. Ronan will start round 3 of his “Magic Medicine” on Monday and I just found out that we will have to be admitted into the hospital for his treatment. The dose is stronger so they will need to monitor him all week. Not excited about that but like always, we will make the best of the situation.

We should hear back about Ronan’s scans some time tomorrow. Praying for good news and praying hard. Sweet dreams my friends.