Medicine
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I miss him
Ronan. What a day. How I miss the simple days of chasing you around. Laughing as you would pick all the flowers around our neighborhood from other people’s yards, thinking you were so naughty for doing so. I let you think you were being naughty, just to make you giggle and to let you feel…
angels, anger, arizona, best friends, blue eyes, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, CHOP, Conditions and Diseases, doctors, Dr. Giselle Sholler, Dr. Jo, Dr. Sholler, Dr. Yael Mosse, Family, Health, honesty, I miss New York, I miss you, I’m sorry, love, Maya Badass Thompson, maya thompson, Medicine, MISS Foundation, Mr. Sparkly Eyes, Neuroblastoma, new york city, Rockstar Ronan, RoLove, Ronan, ronan thompson, Star Wars, sweet dreams, T-Gen, The Ronan Thompson Foundation, true love, woody thompson, Zolpidem -
Rain in May
Ronan. I have no idea how I survived today. Actually, I do. It is because you are amazing in everything you do. You were amazing during your time here with us and you are amazing even though you are gone. Gone. It’s a word that I’ll never get used to. I know that was you…
angels, anger, arizona, AZ, best friends, blue eyes, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, Cure, doctors, dreams, Energy, faith, Family, Fry’s supermarket, FUCK, Fuck God, god, happiness, Health, honesty, i love you, Lack of awareness, Liam, Liam Gallagher, life, love, maya thompson, Medicine, Miss you, Neuroblastoma, new york city, Philanthropy, phoenix children’s hospital, rain, Rain in May, Ro baby, Rockstar Ronan, ronan thompson, sarah matheson, Science, Sheriff Woody, sloan kettering, Star Wars, the good doctor, The most beautiful boy in the world, The Ronan Thompson Foundation, true love, twins, Woody, woody thompson -
On to the next step…. Transplant here we come!
Wasn’t a lifetime ago that I was sitting in the cafeteria with Auntie Karen, E.J. Tricia, Max and Woody as we went over all the options for Ronan? Wasn’t it a lifetime ago that I had to leave the table because I was hyperventilating and Tricia followed me and I told her there was no…
angels, anger, arizona, Audiology, AZ88, basketball, beauty, best friends, bone marrow, boys, Cancer, Chemotherapy, Childhood Disease, Conditions and Diseases, doctors, Dr. Adams, Dr. Eshun, Dr. Maze, Dr. Robinson, Health, Hematology, High pitched hearing loss, love, Medical Specialties, Medicine, Nana, Neuroblastoma, Rockstar Ronan, Salon Estique, Sharon Deny, Spirit Hoods, Sports, Star Wars, tears, the village, tricia tinney, truth, twins, woody thompson -
Goodnight moon
Home. After over a month of being in and out of hospitals, between Sloan and PCH… we are home again. So sweet. Yesterday, Ronan’s ANC was only at 80… today it jumped up to 240! That is very high for just one day. Ronan’s little body is fighting so hard to come back after being…
angels, arizona, bedtime, best friends, bone marrow, Bone Scan, boys, brothers, Cancer, Candy Shop, Chemotherapy, childhood cancer, Childhood Disease, doctors, Dr. Maze, dreams, Dylan’s Candy Shop, Family, Glitter, happiness, Health, Home, laughter, love, Lovely Bones, Macy Wood, maya thompson, Medicine, MIBG scan, Neuroblastoma, nurses, raw, reality, Rockstar Ronan, sloan kettering, Snow cones, soulmates, Star Wars, strength, sunshine, sweet dreams, twins, woody thompson -
The silence scares me because it screams the truth
A week. It’s been a week of sharing a room. Hospital beds. Hospital clothes. Hospital T.V. Hospital seconds/minutes/days/nights. Hospital tears. Hospital depression. Being home last night for the entire night with my twins felt so good that it hurt. I took them to breakfast this morning and we looked just like the perfect little family.…
3-year-old, America’s Taco Shop, anger, arizona, AZ, blogging, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Coconut Water, Facilities, faith, Health, Home, Hospital, Hospital life, iMac, insomnia, iPad, love, maya thompson, Medicine, mickey mouse, Music, pearl jam, prayers, Rockstar Ronan, sadness, sloan kettering, tears, thankfulness, The most beautiful boy in the world, true love, United States, woody thompson -
Do you know if this hotel is pager friendly?? I’m not getting a sig’ on my beeper.
It’s days like today that make me really angry at cancer. I pretty much sat and held Ronan the entire day. We snuggled in bed and on the couch and watched movies. He won’t let me leave his side; not that I would want to. We watched “The Fantastic Mr. Fox,” and the ever so…
angels, anger, arizona, Arts, AZ, best friends, Blood, Bradley Cooper, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, dreams, fevers, fuck you cancer, Games, Hangover, immune system, maya thompson, Medicine, Neuroblastoma, New York, new york city, nightmares, Pager, Phoenix, raw, Rockstar Ronan, sloan kettering, soulmates, strength, Television, The Fantastic Mr. Fox, The Hangover, this too shall pass, true love, United States, Video Games, woody thompson -
Do you know if this hotel is pager friendly?? I’m not getting a sig’ on my beeper.
It’s days like today that make me really angry at cancer. I pretty much sat and held Ronan the entire day. We snuggled in bed and on the couch and watched movies. He won’t let me leave his side; not that I would want to. We watched “The Fantastic Mr. Fox,” and the ever so…
angels, anger, arizona, Arts, AZ, best friends, Blood, Bradley Cooper, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, dreams, fevers, fuck you cancer, Games, Hangover, immune system, maya thompson, Medicine, Neuroblastoma, New York, new york city, nightmares, Pager, Phoenix, raw, Rockstar Ronan, sloan kettering, soulmates, strength, Television, The Fantastic Mr. Fox, The Hangover, this too shall pass, true love, United States, Video Games, woody thompson -
Magic Medicine…. Day One, Round 4
We are here and settled in our room. The first room we were put in, was drab and small and we didn’t have a window view. I immediately told the nurse, if a window view room opened up, to please let me know so we could move. The little girl we were sharing a room…
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Scans are done… now we wait
We are home finally from our long evening of scans. Ronan started at 4:30 this evening and was not finished until about 8:00 tonight. Dr. Maze was there, as always, to give Ronan his anesthesia. He stayed the entire time, even though I was told that he would more than likely not be there when…
Anesthesia, Anesthesiology, angels, best friends, Cancer, Chemotherapy, Childhood Disease, Conditions and Diseases, courage, darkness, doctors, Family, friends, Health, honesty, hope, Hospital, light, love, luck, Medical Specialties, Medicine, MIBG, MRI, passion, Practices, prayers, rockstar, soulmates, strength, trust, truth, Video Games -
Staying sane… or at least trying
Today was an easy day. It reminded me of our old life which was nice, but bittersweet as well. We spent the day at home and ran to the hospital for about an hour. Then we went and got shaved ice and headed to see our favorite friend, Halle, at our dry cleaners. It was…
angels, anger, AZ, beautiful, bullshit, Cancer, childhood, childhood cancer, Childhood Disease, cut off, daddy issues, dreams, facebook, faith, Family, friends, Games, Health, Hematology, honesty, Iobenguane, life, love, Magnetic resonance imaging, Medical Specialties, Medicine, Neuroblastoma, Parenting, shaved ice, thankful, truth
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