We are here and settled in our room. The first room we were put in, was drab and small and we didn’t have a window view. I immediately told the nurse, if a window view room opened up, to please let me know so we could move. The little girl we were sharing a room with, sounded like she was hacking up a lung so I told our nurse, Ronda, it was making me nervous and I requested a room change. Voila! New room and a window view. Very grateful. There was no way I was going to survive 5 days here in the cramped dark space that we were in before. Ronan didn’t nap today, so he fell asleep a bit ago. I did not want that to happen, but there was no keeping him awake. He was in pretty good spirits today, lots of energy. He wasn’t happy about coming here but I just explained to him that we have to get his “Magic Medicine,” to make him all better. He seemed o.k. with that explanation and keeps talking about his medicine that is going to make him better so he can get his Iron Man out of his chest. Sweet little guy. I can’t wait for the day that we can take that thing out of his chest. And then we are going to burn it.
While we were at the clinic today, Ronan took out his favorite little blanket that he has had since the day he was born. He was tired and he was snuggling with it. When we got over here, I went to unpack his bags and realized I didn’t have “KiKi,” (the name of his blanket) Holy PANIC! He has never slept a night without that thing! I figured we left it over at the clinic so I called and had our lovely Elaine put on the case of finding it. Thank the lucky stars above…. it was found and someone from here ran over to get it for me. A night without that thing would have been disastrous. Our new roommate is a little boy who seems to be around 8. His parents have not been here at all today and as I’m writing this at 7:30 tonight… they are still nowhere in sight. I went and introduced myself and told him to let me know if he needed anything. Breaks my heart. I will always be grateful for being able to spend this time with Ronan. I could not imagine having to leave his side. This hospital is filled with babies and kids who are cared for by the nurses because their parents can’t be there. It is really sad to see.
I am missing being at home tonight with my husband and big boys. I wish I could be cooking dinner and reading them books and snuggling up with Woo to watch one of our shows. In our old life, that is what we would be doing. That old life seems like it was so very long ago. What I wouldn’t give for a taste of that again. I know we are on our way there… slowly but surely we will win this race. Speaking of races, I started reading Lance Armstrong’s book, “It’s Not About the Bike.” What an extraordinary man he is. I have a newfound respect for him and all he has accomplished.
I am doing o.k. tonight. I will be strong and get Ro through this week. He deserves a mommy that will fight for him and be strong. I can be that mommy. He is worth everything I have.
Goodnight, my friends. Sleep tight<3