love
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Ronan baby takes NYC
Today, has been non-stop. We got up at 7 NYC time, got all ready and headed over to Sloan Kettering. Ronan was not happy and is still not happy about being here. He keeps asking for Sharon, our nurse back home, and said he doesn’t want to make any new friends here. He was so…
angels, arizona, Cancer, childhood cancer, Conditions and Diseases, Dr. Modak, faith, Family, happiness, Health, love, maya thompson, Neuroblastoma, new york city, Rockstar Ronan, ronan thompson, Ronanld McDonald House, sloan kettering, Stem cell, Stem Cell Research, The Ronan Thompson Foundation, woody thompson -
I am numb… and cancer is dumb
Clinic Day! Ro got platelets and blood to boost him up for our flight on Monday. He has been tired the last couple of days; crashing from the chemo. His ANC is at 10… which means he has no immune system. Dr. Eshin said it was good that we were flying on a private jet,…
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I’m just a girl in the world
Favorite conversation of the night: Me: “Ronan, you’re so nice.” Ronan: “Thank you.” Me: “You’re welcome.” Ronan: “Mom, you’re so cute.” Me: “Thank you.” Ronan: “Your so welcome.” I love his little voice so much. And that smile could melt your heart. I love that every night, he curls up beside me and holds my…
anger, arizona, AZ, baby blues, best friends, boys, brothers, bullshit, Cancer, Channel 12, Charisma Carpenter, Chemotherapy, childhood cancer, Childhood Disease, Christmas, Conditions and Diseases, doctors, dreams, Energy, faith, Family, friends, friendship, Gwen Stefani, GwenStefani, Health, hearts, iPhone, kids, Lin Sue Cooney, lipgloss, love, mama bear, maya thompson, Mother, Neuroblastoma, new york city, Pink, reality, Recreation, Rockstar Ronan, sarah matheson, shopping, strength, tears, true friends, true love, twins, United States, woody thompson -
He is my sun, my stars, my moon above
A bloody nose led us to the clinic for platelets earlier today. As soon as we were ready to head home, Sharon came over to flush out Ronan’s tubes and the saline started squirting out the side. Not a good thing. He had a tiny hole in the line that leads to his broviac which…
anger, arizona, AZ, beautiful boy, bloody nose, Cancer, Chemotherapy, childhood cancer, Childhood Disease, christmas music, Conditions and Diseases, ER, Family, Health, life, love, maya thompson, Neuroblastoma, Parenting, phoenix children’s hospital, raw, reality, Rockstar Ronan, ronan baby, sadness, tears, truth, woody thompson -
A picture is worth a thousand words… and a thousand tears
Last night, I took a picture of Ronan, and it took my breath away. He doesn’t even look like the same baby anymore. Cancer has taken over and completely changed his appearance. He is skinny, pale, his eyebrows and eyelashes are gone, his bald head and sunken in eyes are heart wrenching. After I looked…
anger, arizona, AZ, best friends, bullshit, Cancer, Childhood Disease, Christmas, Christmas Tree, Conditions and Diseases, dreams, Family, Fore!!Axel and Hudson, fuck you cancer, happiness, Health, Holidays, honesty, love, maya thompson, mom’s, New Years Eve, New York, new york city, Phoenix, Rockefeller Center, Rockstar Ronan, sadness, tears, United States -
The eyes of an angel
I had a visit from my friend, Fernanda, this morning. I’m not going to go into too many details about things, but looking into her eyes is like looking into the eyes of an angel. There is not enough beauty in this world to fill her heart, because her heart is bigger than anything out…
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And the word of the day is……
I’m restless. I’m scared. I’m sad. These are my feelings tonight. I’m allowed. I’ve spent the majority of the night watching Ronan sleep. He is so peaceful, which gives me lots of time to think. Thinking tonight, is something that is not healthy for me. I tend to over think everything, go over every possible…
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Magic Medicine… Round 4, Day 3
I slept in my own bed last night. Woke up around 3 a.m. though…. couldn’t sleep. Saw that my dear CC was up on Twitter, so, we text messaged for a while back and forth. She couldn’t sleep either. Just shows how connected we are. I finally fell back asleep around 4 a.m. and slept…
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Beautiful weekend, beautiful friends
What a great, long weekend. We spent it pretty low key. We really just hung out at home, watching movies, playing outside, and getting ready for the upcoming week. On Saturday, Charisma, and her family, who had been in Tucson for Thanksgiving, drove up for the day to see us. We spent the day watching…
Alice in Wonderland, angels, arizona, awareness, brave, Charisma Carpenter, chelsea’s kitchen, Chemotherapy, childhood cancer, dreams, Energy, faith, Family, friends, happiness, honesty, jennifer woodard, laughter, life, Lindsey Beller, love, maya thompson, Neuroblastoma, Rockstar Ronan, sangria, strength, suzanne rauscher, tricia tinney, true friends, weekends, woody thompson -
Just gonna stand there and watch me burn? That’s alright because I like the way it hurts
Sooooo, I made the mistake of watching the movie “7 pounds” tonight. I knew it was a bad idea from the start. Way too sad but I wanted to see if I would feel anything from watching it. I’ve kind of been freaking out that my medication is making me numb to everything. I don’t…
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