brothers
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Deep breaths, Patience and Xanax
What a long day. We don’t know anything yet but should know the results by tomorrow afternoon/evening. Now Dr. Eshun will meet with a team of doctors to go over the results of all the scans combined, with a fine tooth comb. Waiting is the hardest part. Sleep is going to be extra difficult tonight.…
angels, arizona, ASU, AZ, beauty, best friends, boys, brothers, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, Date night, Dr. Maze, Family, friends, fuck you cancer, honesty, iMac, insomnia, laughter, little seal, love, maya thompson, MIBG scan, Mother, Music, Neuroblastoma, Phoenix, phoenix az, Ro baby, Rockstar Ronan, sociopaths not allowed, trust, truth, twins, woody thompson -
Goodnight moon
Home. After over a month of being in and out of hospitals, between Sloan and PCH… we are home again. So sweet. Yesterday, Ronan’s ANC was only at 80… today it jumped up to 240! That is very high for just one day. Ronan’s little body is fighting so hard to come back after being…
angels, arizona, bedtime, best friends, bone marrow, Bone Scan, boys, brothers, Cancer, Candy Shop, Chemotherapy, childhood cancer, Childhood Disease, doctors, Dr. Maze, dreams, Dylan’s Candy Shop, Family, Glitter, happiness, Health, Home, laughter, love, Lovely Bones, Macy Wood, maya thompson, Medicine, MIBG scan, Neuroblastoma, nurses, raw, reality, Rockstar Ronan, sloan kettering, Snow cones, soulmates, Star Wars, strength, sunshine, sweet dreams, twins, woody thompson -
There’s no place like home
The morning started off early and Stacy offered to bring me coffee; which I really needed. She then ever so sweetly offered to stay with Ro so I could run home and shower. So thankful for her because just being able to go home and shower makes such a difference in my day. Ronan was…
angels, arizona, Arts, AZ, baseball, basketball, best friends, brothers, Cancer, Chemotherapy, Childhood Disease, Conditions and Diseases, Energy, Family, happiness, iPad, maya thompson, mickey mouse, mom’s, Neuroblastoma, Parenting, ricky bobby, Rockstar Ronan, sloan kettering, Star Wars, strength, twins, woody thompson -
An old soul
Ronan had his clinic visit this morning. His levels have dropped just as we were expecting. We are so used to this chemo thing now that we know where his counts will be. What I didn’t expect wash his platelet counts to be so low. They were 10,000 today. WHAT?!?! 10,000 and not a bloody…
angels, anger, arizona, Arizona State University, AZ, basketball, beauty, best friends, blue eyed boy, brothers, bullshit, Cancer, Chemotherapy, clinic, Coconut Water, Dr. Adams, faith, Family, friends, friendship, george clooney, happiness, hope, isolation, King Cake, little seal, love, maya thompson, Neuroblastoma, New York Miss Macy, NOLA, Old soul, platelets, Rockstar Ronan, Ronan, ronan sean, ronan thompson, running, Skype, Star Wars, stem cell transplant, strength, twins, woody thompson -
Magic Medicine…. Day 1, Round 6
I feel like I don’t have a lot to say tonight. Ronan hasn’t gotten out of bed, except to use the bathroom, since we got here on Sunday. He says his legs are hurting and does not want to walk around, go to the playroom, or anything. I tried all day to get him out…
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I’m just a girl in the world
Favorite conversation of the night: Me: “Ronan, you’re so nice.” Ronan: “Thank you.” Me: “You’re welcome.” Ronan: “Mom, you’re so cute.” Me: “Thank you.” Ronan: “Your so welcome.” I love his little voice so much. And that smile could melt your heart. I love that every night, he curls up beside me and holds my…
anger, arizona, AZ, baby blues, best friends, boys, brothers, bullshit, Cancer, Channel 12, Charisma Carpenter, Chemotherapy, childhood cancer, Childhood Disease, Christmas, Conditions and Diseases, doctors, dreams, Energy, faith, Family, friends, friendship, Gwen Stefani, GwenStefani, Health, hearts, iPhone, kids, Lin Sue Cooney, lipgloss, love, mama bear, maya thompson, Mother, Neuroblastoma, new york city, Pink, reality, Recreation, Rockstar Ronan, sarah matheson, shopping, strength, tears, true friends, true love, twins, United States, woody thompson -
Sometimes I’ve believed as many as six impossible things before breakfast
I feel a little like Alice in Wonderland. A little lost, scared, curious, brave, hopeful, determined, a champion, a dreamer and strong. A little like the Mad Hatter too. Crazy, funny, smart, and zany. And the White Queen, confident, gracious, and sassy. I relate to so many of these characters in this movie. I feel…
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I heart Pamela White
Today was busy. I spent most of the day prepping for our Channel 12 news interview. Mama, ready. Boys ready. House ready. Check, check, check. I’m a perfectionist when it comes to things like this. It was surprisingly very laid back. Woody and I sat at our dining room table and Ann, the interviewer, asked…
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Angels waiting in the wings
I am amazed at the people who have come out of the woodwork to help us. People that we know and complete strangers just because they are touched by Ronan’s story. I put something out into the universe today… and I am getting amazing responses. People who are willing to go above and beyond to…
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Magic Medicine… Day one, Round 3
This chemo is going to be rough. This is the stuff that causes major vomiting… and a few other side effects that we will PRAY hard, do not happen to Ronan. Hearing loss is a big one. High pitch hearing loss to be exact which I can absolutely live with, if it means keeping him…
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