The Saddest Hour

Ronan. The night is finally creeping in. Another day done without you here. The days still drag on and on without you, no matter how busy I keep myself. We all woke up this morning and I walked into town. Your brother, Liam, has swimmers ear so I had to pick up his prescription. When I returned back to the condo, your brothers were all ready to hit up the beach. We packed up our things and headed down to the beach. We took a big bag of your little Star Wars guys with us and decided that we would build them a fort for you. Liam was in charge of the “bad guys,” area and Quinn and I were in charge of the “good guys.” It was so hard for me to keep it together for your brothers while we did this today. You would have loved it so much. I took pictures for you so you could see how it turned out. We had fun doing this together in your honor today. Or as much fun as we could without you being here with us.

After the beach, we headed to the pool. It was really nice out today so we played in the pool and the hot tub for a couple of hours. Your brothers are missing you so much. They get so board with each other and without having you around to play with. My entertainment pales in comparison to the way you would have entertained them for hours. I did my best, but they were soon ready to come back up and they were tired from the sun. The rest of our day slowly went by and Mimi and Papa called to see if they could take your brothers to the movies. They both wanted to go and this was a good chance for me to have some quality time with your Daddy. Your brothers left with Mimi and Papa and your Daddy and I went out for our date. We sat at a little restaurant in Coronado for their Happy Hour. So much for that. Happy Hour should have been called  the Saddest Hour because that’s what it turned into. I sat with your Daddy, and pretty much cried the entire dinner. We talked about you the whole time, went over again and again, what we could have done differently. I told your Daddy how much I worry about you and I can’t stop thinking about where you are. The whole time I kept thinking in my head, how I was your mommy and I couldn’t save you. I was supposed to protect you and I will always feel like I failed you. I was supposed to keep you safe, baby. But there was nothing I could do and I’ll never understand how that wasn’t enough. How our love for each other wasn’t enough. Wasn’t anybody listening? Couldn’t they see how much we loved each other and deserved to be together for the rest of our lives? Who would be so cruel to take that away? The love we had for each other was so powerful I was sure it was going to save you. The love you had for me was the same….. something beyond this earth even, Ro. Where are you?!?!?!?! Why did you have to go?!?!?!?!? I will never stop questioning everything, Ro. I will beg for you to come back for the rest of my fucking life.

I didn’t eat much at dinner, but instead I sat and watched how sad your Daddy is too. At one point, the waitress came up to us while my tears were pouring. She quickly walked away. I wondered what she thought I was crying about. I am pretty sure she thought something like a failed marriage, an affair, one of us losing a job. I’ll bet you in a million years she would have never guessed my tears were for you. My tears were because our beautiful boy just died of cancer. Our reality is just too awful to be reality. I still can’t believe all of this and I swear I am still waiting to wake up from this nightmare.

After dinner, we came back to our place but it was so nice out we decided to go on a walk. We walked to The Hotel Del and then down to the beach. We climbed up on some rocks together and looked at all the crabs crawling about. Your Daddy was looking out to the ocean and all of a sudden, a fin appeared. The next thing we knew we were watching a bunch of dolphins jump about. One of your little signs, baby?? I’ll take it, but it still doesn’t make me miss you any less. I grabbed your Daddy from behind and wrapped my arms around him as we stood for a long time together and watched them play about. It was peaceful and I wished so badly that we could just be that normal, happy, couple that we used to be. Back when you were here and we had nothing to be sad about. Now, we will be branded for life as the couple who lost a child. Sadness will always be a part of our togetherness. All innocence we once had will never be again and therefore, we as a couple will never be the same. Will we come out of this stronger? I don’t think we have a choice. We have to as we have too much to lose if we do not. But the sadness that now exists in our world hurts so much, Ro. Nights like tonight though are important to the both of us. Grieving about you, together is something I haven’t been ready to do yet but I can slowly feel myself coming around. I can’t do this all alone and I feel like I can heal better by letting my guard down a bit. As much as I want this wall up, keeping everyone out…. that isn’t going to do anyone any good and I really need to stop just thinking of myself as there are other people hurting just as badly as I am. Your Daddy being one of them. The bottom line is, he needs me and I need him. I need to be better about remembering that as it is very easy to get wrapped up in my own little world where nobody else exists except me and my pain for you. Sometimes I prefer it that way, but this is not healthy. I will try harder for you, baby. For our family.

After our date, we came back to our condo and I slipped out for my run. UGH. I was so not feeling it tonight but I pushed through my 6 miles at a sluggish pace of a 9 minute mile. What the heck is that?? I’ve been pretty consistent with my 8:23 minute mile. Tonight was brutal. At one point, I wanted to stop and walk but I heard you in my head so I refused to stop. Thanks for that extra push tonight when I needed it most. The rest of the evening was spent playing with your brothers and Daddy. We played PS3 together… something I don’t do very often but it ended up being pretty fun. We played Call of Duty: Black Ops. I was on a team with Quinn and we beat your Dad and Liam. There was a lot of laughing and I think your brothers were surprised at my mad shooting skills. Never underestimate the power of your mama… video games and all.

This is all for tonight my love. Until we meet again, hopefully in my dreams tonight. I love you, Ronan. Forever and Ever. Just you and me, baby. I hope you are safe.

xoxo

Deep breaths, Patience and Xanax

Fork em' Devils!

What a long day. We don’t know anything yet but should know the results by tomorrow afternoon/evening. Now Dr. Eshun will meet with a team of doctors to go over the results of all the scans combined, with a fine tooth comb. Waiting is the hardest part. Sleep is going to be extra difficult tonight. UGH. I hate these nights.

Today, we started out at the clinic just doing Ronan’s normal labs. He needed to get blood, but we did not have enough time to do it before we had his MIBG scan. We will go back tomorrow for a transfusion as his counts were a little low. We did have some time to kill in between the clinic and our scan time so we went to the car wash and ran home for about 15 minutes. We then headed back to PCH to get ready for Ro’s scan. He was in a pleasant mood today and was excited as always to see Dr. Maze. We brought him a coffee and Ronan introduced Dr. Maze to his favorite show that he was watching on his iPad, Max and Ruby. Dr. Maze and our favorite of his helpers, Angela, were eating Ro up like always. We had some fun play time with them before it was time for Ronan to get his “sleepy medicine.” We did the usual, I held him, and Dr. Maze injected him. Ronan cried out his usual, “Mama, Mama, Mama!” I put on my brave face and gave Dr. Maze the look he knows so well now, which is, take the best care of my baby ever. I don’t even have to say the words anymore. He knows and he does. So thankful.

I walked myself out to the waiting room where Auntie Karen and Fernanda sat waiting for me. I am so glad they were there to keep me company today. They kept my mind occupied and I am so happy the two of them finally were able to meet. I am so used to going to PCH alone and by myself and I never realized how much work it is for me. Today, after Ro came out of anesthesia, Fernanda went and got my car for me so I didn’t have to walk all the way to the parking garage while carrying my bags and Ronan as I usually do. Today was easy and I am going to try to make myself take the help from my friends more often. It makes all the difference in the world. They kept my mind busy and my spirits happy. Thank you both for today…. I know I tell you all the time, but I love you so much. Ronan woke up a little grumpy and just wanted to get out of there asap. That is precisely what we did.

We came home to Mimi and Papa helping Liam and Quinn with their homework. Ronan was starving so I made him his favorite scrambled eggs and he scarfed them down. Woody came home soon after and we snuck out just the two of us for dinner. It’s been so long since just the two of us have gone out alone. It was nice to just sit with my husband and try to be as normal as possible. I caught myself laughing easily at his funny stories and we got caught up on our plans for the weekend. It was a very nice, much needed night together. My mom comes into town tomorrow until Monday and I am so very excited to see her. It should be a busy, fun, weekend <3

Fernanda sent me a text tonight that melted my heart. She said one of her little boys’, Brando, who is four, was at school today and a little boy asked him where his mommy was. Brando told the little boy that his mommy was at the hospital helping a little boy grow back his hair. That is one of the cutest things I have ever heard and filled my heart with so much joy. Fernanda is doing so much more than that; she is teaching me what it truly means in life to be an amazing person to the core. What it means to live a life full of passion, laughter, and love with just the right about sass to go with it. Fernanda is the kind of women who can light up a room with her quick wit and bright eyes. I told you she has the same sparkle in her eyes as Ronan and I find so much comfort in that. Even though what we are going through, sucks balls, I am so thankful for the beautiful souls that I am surround by. If not for this, I would be missing out on all the loveliness that has surrounded me for so long, but I just didn’t know how beautiful it truly was until now. Everyday is a combination of heaven and hell…. it’s a beautiful, tragic love story to the fullest.

Deep breaths tonight. Hot Yoga at 5:30 a.m. Yes, please. I will be there and I will be focusing all of my energy into my Ronan baby like I always do. We need some good news tomorrow. Please.

G’nite and sweetest dreams to you all. Love you for checking in on us and loving our little Ro so much.

xoxo