new york city
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Not following the yellow brick road
HAPPY VALENTINE’S DAY! RO, MAMA, AND NANA WENT FOR PEDICURES!!!! I wish I could tell you all that I have not updated my blog for a few days because I have been so busy soaking up all of my precious time with my amazing family. That we have had such a fun filled, fantastic weekend…
3f8, adventures, angels, anger, Antibodies, arizona, Atlanta, AZ, basketball, best friends, bone marrow, boys, brave, bullshit, Cancer, Change of plans, Chemotherapy, Chicago, childhood cancer, Childhood Disease, Conditions and Diseases, doctors, Dr. Eshun, Dr. Kusher, Dr. Maze, Dr. Zage, dreams, Family, friendship, fuck you cancer, hope, love, luck, lynn stephens, maya thompson, MIBG Therapy, Mr. Sparkly Eyes, Neuroblastoma, new york city, prayers, raw, Ro baby, sadness, San Francisco, sloan kettering, Stem cell, support, tears, true love, twins, woody thompson -
Yoga, Hiking, and Tears
What a busy, yet peaceful day. I started off my day joining my friend, Stacy, for a hot yoga class. An hour and 15 minute class where I was drenched in sweat and tears almost the entire time. I have not done a yoga class in years, but it has been something I have dying…
ASU, basketball, best friends, Cancer, Childhood Disease, Church, Coconut Water, faith, Family, friends, friendship, Health, Hiking, life, love, maya thompson, mom’s, Music, Neuroblastoma, new york city, prayers, Religion and Spirituality, Ro baby, Rockstar Ronan, sloan kettering, Summits Yoga, tears, The Ronan Thompson Foundation, the village, United States, woody thompson, Yoga -
There’s beauty in the breakdown
Ronan and I headed to PCH this morning for his clinic visit and audiology test. Once we got to the clinic, I could tell Ronan had been put through enough this week, so I ended up calling audiology and rescheduling the rest of his test for next week. Enough is enough. It was a good…
angels, anger, arizona, AZ, basketball, best friends, breakfast, bullshit, Camelback Mountain, Cancer, Chemotherapy, Child, Childhood Disease, Conditions and Diseases, doctors, Dr. Eshun, Dr. Maze, Dr. Wood, dreams, faith, Family, Father, fuck you cancer, Health, honesty, Hot Yoga, kids, maya thompson, Music, Neuroblastoma, New York, new york city, Parent, Parenting, Ro baby, Ronald McDonald House, Ronald McDonald House Charities, sadness, Sandy “ho” Fromm, sloan kettering, stem cell transplant, strength, The Bravery, The Ronan Thompson Foundation, the village, true friends, truth, twins, woody thompson, World Cancer Day, YMCA -
MRI, CT, and Pet scan results…. kind of
After what seemed like the longest day ever; we returned home around 7:30 tonight. Ronan insisted we stop at CPK for pizza so we met Woody for dinner. I ate my one meal of the day, Ronan didn’t eat a thing and ended up just making me hold him while I ate. As soon as…
angels, anger, AZ, best friends, blogging, bullshit, Cali, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, CT, doctors, Dr. Maze, Dr. Wood, friends, honesty, hospitals, isolation, Magnetic resonance imaging, MRI, Music, Neuroblastoma, New York, new york city, New York Miss Macy, Nuclear medicine, nurses, Parenting, Pet Scan, raw, reality, Rockstar Ronan, sadness, sloan kettering, sociopaths not allowed, Star Wars, Stem cell, strength, true love, truth, woody thompson -
Bone scans results…. kind of.
We started off this morning with Ronan’s Audiology test. It went alright… but we were not able to complete the test due to Ronan’s lack of cooperation. He was able to get through some of it in which the Doctor played high frequency sounds and Ronan would put a dinosaur into a bucket when he…
angels, anger, arizona, best friends, bone marrow, Bone Scan, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, CT scan, Dr. Eshun, Dr. Maze, Dr. Wood, fuck you cancer, Health, hearing loss, hope, kids, maya thompson, MIBG, mom’s, MRI, Neuroblastoma, new york city, Pandora, Pet Scan, Propofol, Rockstar Ronan, sadness, sloan kettering, strength, The Ronan Thompson Foundation, true love, United States, woody thompson -
I just want to be home
Am I staring in Bill Murry’s movie, “Groundhog Day?” That’s what the days feel like around here. I texted Woody today and said is it Thursday or Friday today? I had no clue what day it was. I ran home to shower and repack my bag, hit up the grocery store for Ro, then headed…
angels, anger, arizona, AZ, best friends, bullshit, Cancer, Chemotherapy, childhood cancer, doctors, Games, Groundhog Day, Health, Hospital, laughter, love, Lovely Bones, maya thompson, Neuroblastoma, new york city, nurses, Phoenix, reality, Ro baby, Rockstar Ronan, rules, sloan kettering, Star Wars, tears, The Ronan Thompson Foundation, woody thompson -
A Margarita, Sangria, or George Clooney??
I talked to Dr. Wood this morning and Ronan’s ANC counts came up from 0 to 25. This still doesn’t mean we will be getting out of here anytime soon as they have to be up to 200 and rising for Dr. Eshun to discharge us. Dr. Wood said he expected us to be here…
angels, anger, Annie Leibovitz, annie leibowitz, arizona, AZ, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Coconut Water, Dr. Eshun, Dr. Maze, Dr. Wood, dreams, Family, friendship, fuck you cancer, george clooney, happiness, Health, love, Lovely Bones, Margaritas, maya thompson, Neuroblastoma, new york city, passion, Phoenix, privacy, raw, Rockstar Ronan, sangria, sociopaths not allowed, Star Wars, strength, vanity fair, woody thompson -
Living is easy with your eyes closed
I have no idea what day it is even…. Wednesday I think? The days and nights are so blurry here and it is so easy to lose track of the time, days, and nights as they all seem to blend together. I do know that today is my dear birthday bunny, Jen’s birthday. Happy Birthday…
angels, anger, arizona, AZ, best friends, Birthday, Birthday Bunny, blogging, Bose Headphones, bullshit, Cancer, Cancer sucks, Charisma Carpenter, Chemotherapy, childhood cancer, Christmas, Coconut Water, Conditions and Diseases, Dr. Wood, Health, honesty, immune system, Insomnina, Jen Wood, maya thompson, Music, Neuroblastoma, new york city, Pandora, Parenting, pearl jam, Phoenix, reality, Ro baby, Rockstar Ronan, sleep, sloan kettering, Soul, Star Wars, Starbucks, strength, The Ronan Thompson Foundation, twins, Yoga -
Look at the stars and how they shine for you
Ro baby is doing well. His ANC is still at 0, but his spirits are great. Sarah came this morning so I could run home and shower which is always a treat. Ronan and I have been playing a lot in his bed. I put on a puppet show with him with his…
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Serenity now
Deep breaths and an amazing friends have gotten me through this past 24 hours. We were admitted into the ER last night around 9:00 due to Ronan’s low grade fever. I didn’t have to wait in the waiting room of the ER; THANK GOD. It was beyond packed even at 9:00 at night. The doctor…
“A”, angels, anger, arcadia, arizona, AZ, baby seal, best friends, Camelback Women’s Health, Cancer, Charisma Carpenter, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, Death Star, doctors, Dr. Eshun, Dr. La Quaglia, Dr. Maze, Dr. Schwartz, Dr. Wood, emergency room, happiness, Health, kids, Los Angeles, love, maya thompson, Mexico, mom’s, Music, Neuroblastoma, new york city, nurses, oncology, Oreo, Parenting, peace, Phoenix, Rockstar Ronan, ronan baby, RSV, sadness, sloan kettering, snow patrol, sociopaths, Star Wars, Starbucks, the devil wears prada, true love, United States, Zombieland
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