30 day challenge of mother fucking madness

 

Ronan. The 30 day yoga challenge. I have a friend who is crazy enough and actually did this. Kudos to D. She is crazy in all the best ways. And she loves her yoga. I do not love yoga. I am quite sure, if I were to try to contain myself in a calming, peaceful environment of yoga, that I would go all turrets on their asses and start freaking out/screaming/crying/puking about how I have a fucking dead kid so NOTHING is Zen, NOTHING is Ommmm and I would like to beat the bloody hell out of the Chakras that surround me. I’m pretty sure I would get kicked out of a yoga class, while offending everyone which does sound pretty badass and dangerous… so it’s a little tempting. If I didn’t respect the whole yoga thing so much, I would totally do this. But I secretly love yoga. I’m envious of those who do it, love it, and are better people because of it. I used to love it, Ronan. Before all of this. Now… I’m just not ready to go back.

I’ve come up with my own 30 day challenge, instead. I started it on Monday. It’s called Maya’s 30 day challenge of mother fucking madness. And the weather is getting hotter, which makes it even better. I spent 3 hours on Monday and 3 hours today, hiking/running/puking/crying/spitting/tripping/getting a rad tan. Skin cancer here I come!!!! I’ve decided to have 30 days of hiking for 3-5 hours a day in complete and total silence. I’ve already told your daddy, that it’s 30 days of solitude. 30 days of not talking to anyone because I’m really on a retreat to Italy/India/Indonesia like that Elizabeth Gilbert wah wah wah, my life is so bad, chick. When in reality, your life is freaking awesome lady. Plus, you got to travel to all of those places, solo, and figure your shit out. Unfortunately, I cannot do that, due to having a thing back here called 2 babes to take care of and a husband. This is my modified version of your little trip, Elizabeth Gilbert or whatever your name is. I think I totally have a one up on you though, due to having a dead kid, so kudos’ for that! One of those little silver linings in life that just makes everything o.k.! I am being sarcastic. Because I am in a pissy/sarcastic mood.

So, I started this on Monday and so far, I have not died. I have visions of dying out there though due to the heat/rattlesnakes/weird scary men that appear out of nowhere! when I am in the middle of nowhere!, alone! Rita! I freaking told you I needed a machete! You are going to be really upset if I get attacked and have nothing on me, to protect myself! I have many reasons as to why I am doing this. One being because if I don’t, I quite simply will stay barricaded up in my house, in my bed, crying. Two being because I need to be with you, Ronan. And being alone, hiking is where I feel closest to you. Three being I need the quietness in my head, or to deal with the screaming in my head by talking to Inferno Fuckwad Bob, alone. My head feels foggy. It feels less foggy when I am out, being active and dealing with this grief but in my way, the solitude way. Isolation. 30 days of intense hiking/isolation/how the fuck am I going to get through this? You’d better start figuring this out. You’d better start taking some control of some things. You’d better start because Ronan, as you told Dr. JoRo, in her dream…. “I can’t get to my mom, because she’s too angry. Tell her that, please.” She couldn’t tell me that for a while. She just told me that, last week. She has watched me struggle with this anger. I told her I was less angry and just more sad now. She decided that it was the right time, to tell me the last thing that you said to her, in her dream. FUCK. We both figured out when it is that I hide the most. It’s when I’m angry. It’s because to me, anger is shameful. It makes me feel dirty, like I need to take a shower and scrub, scrub, scrub. I’ve never been an angry person. I don’t know how to handle it. I’m pretty sure I have done/said hurtful things while being angry. I don’t want to hurt anyone so when I am feeling super angry, I hide. If I hide, I cannot hurt anyone with the stupid/mean things that may come flying out of my mouth. I’d rather just deal with my anger and take it out on myself, like on a mountain where I can beat myself up. Where I can find moments of quiet. Where I can scream, cry, bloody my knuckles and nobody has to see me. This is what I am doing, every single day until May 2nd. Plus, Dr. JoRo is freaking leaving me for 2 weeks! Um excuse me! If I don’t do this/and she is gone I am going to go bat shit crazy!

So, this is what I’m doing. I have no doubt that I will be up that mountain for hours upon hours for the next 30 days. I don’t know what I am looking for. All I know at this point is I kind of want to die but I also want to kind of stay alive. I’m just leaving it in the hands of the fates at this point. The exercise feels good to me. The not listening to music, feels good to me. The just being with my grief/sadness hurts like hell but it’s not going anywhere. I’m going to go and join it and truly join it, alone. I’m not filling my days with things/lunches/nail parties/all things I need to take a break from. I’m going to fill my days with silence/dirt/nature/barefoot hiking/blisters/cut feet/sunburns/isolation and solitude.

This is my plan. It’s not much but this is what my heart is telling me I need to do if I want to survive this next month that is coming up. Power through April and maybe it will help you to figure out May.

I’m sleepy, Ro. You would be so proud of your brothers tonight and their baseball game. They looked so great and happy. We all miss you so much. Tonight Quinn got blamed for doing something by your daddy that he says he didn’t do. I looked at him and said, “Just blame it on Ronan.” He giggled. We both yelled out, “Ronan did it!” That made us laugh even harder. And then we got sad because you weren’t here to do it, so we snuggled up together and I just held him and we quietly talked about you.

Your Sparkly said it best. Nobody deserves this. But especially not you. Especially not me. Especially not us. I told him it was you I am saddest for. You deserved so much better. You deserved so much more. You were robbed of living the most beautiful life. I am the saddest for you, always. I love you. I miss you. I hope you are safe. Sweet dreams, baby doll.

xoxo

I’m not dead. I may be dying. Or I may just be…

Ronan. The weekend is almost over. I spent it with Liam, Quinn, and your daddy. Not sure all of what we did. We stayed around the house a lot. We played in your room a lot. We made breakfast together and sat around at the table, without you. I am never going to stop being sad. None of us will. But slowly we seem to be coming back together; as a family. For so long, everything felt like it was so broken, that it was unrepairable. It’s not unrepairable. I can feel things being glued back into place. It’s because of the love from your daddy and your brothers, that we will be repaired. It just takes time. None of us are in a rush. You cannot rush something like this. Do you know what your daddy says to me, every night before we fall asleep? That he loves me. And that he is so sorry. We both will never stop being sorry. This is just one of the little reasons, that I know we are going to be o.k. Because we are both so sorry. But there is no blame, no resentment, no anger towards each other. We are both just really, really, sad.

It rained here today. It made me miss you so much. If you were here, we would have gone puddle jumping or played in our backyard, in the mud. Your brothers went to a birthday party. I hung out at home with your daddy, in our quiet house. Our now too quiet of a house that is so empty without you. Your daddy asked if I wanted to go to a movie. I told him no. I didn’t feel like doing much of anything. I watched the rain from our bedroom, instead. I’ve been tired lately. I’ve slept really well, which is weird to me.

So, this new friend of mine, Margarita, has been spreading around some rumors that I am not all that dangerous! Can you even believe that, Ro? She totally thinks she has me figured out. I knew I had to come up with a way, to prove to her, that I am in fact, really reckless and dangerous. It was about 6:15 tonight when I suddenly, felt the need to get some fresh air. I texted her and said, “I’m going hiking. Are you coming?” She told me no, she would not be coming, that it was too cold and wet outside and she hated the rain. And she might hate hiking, too. Yoga. She likes Yoga. I do not. Well, that’s not entirely true. I used to love Yoga. Until my life turned into total chaos. Now yoga make me angry. It’s too happy/peaceful/calm. All the things that I used to be, but am not anymore. Maybe someday I will go back to it. Dr. JoRo swears by it. I’m just not ready for it. I told Margarita fine, but I was going… and it was not all that wet outside. She tried to put up a fight, but once she knew I was serious, she decided to meet me. It was starting to get dark as we began our death hike. I don’t know why I decided to go hiking, so late tonight but you know how I am… once I get an idea into my head there is no stopping me. We hiked up, it got dark, we turned on the flashlight on my iPhone. Soon the wind started to howl, (as well as an owl) and down came the buckets of rain. “Ummm, don’t think we are making it to the top, we’d better turn around!” I yelled to Rita. We were about half way up. Crap. It was really raining/windy/dark/totally dangerous. Rita yelled to me, “Maya, you may call this dangerous… I just call it stupid.” I started cracking up. “You are so going to hate me, after this!” I said. We made it down the mountain, without breaking our necks or spraining our ankles. We both yelled out, “Fuck you cancer!!!!!!!!!!” at the top of our lungs. I told Rita I wouldn’t have been hiking on a pitch black, rainy, windy night if you were still here. She said she knew. She asked why she was hiking, with me. I said because you were not here. Same answer as mine. She agreed.

That was Sunday, Ro. It’s now, Wednesday. Hi. Hello. I have too much to say. I haven’t been writing, for a few reasons. The main one being, I just don’t know how to say this so I guess I’m just going to fucking say it. I’m either dying of some horrific disease (more than likely, cancer) or I am pregnant. Or I am having a false pregnancy in my head which could very well likely be a possibility too. The placebo effect is very real and a total possibility, but I don’t think it’s that. I think I am dying or pregnant. Or both. But maybe just pregnant. How in the world could this have happened, you might ask?? Well, let’s backtrack way far back, to right before you were diagnosed. I had that little IUD removed out of my body. I remember driving home from the OBGYN and having the conversation with your daddy which was, “I just had my IUD taken out….. so now what?” Your daddy asked if we were done having kids. I vaguely remember saying, ” I don’t think so… do you?” We didn’t decide on anything right then and there. We just left it as an open-ended conversation. And then, a few days later, we heard the words that a parent never wants to hear which was, “You child has stageIVfuckingbullshitwhatthefuckthiscannotberealcancer.” Our lives changed over night. The baby thing obviously went on the back burner. I stopped talking about it. Your daddy started to bring it up, right around Christmas time, when we went to NYC to have your base tumor removed from your abdomen. Your daddy would bring it up, and ask why I wouldn’t talk about it anymore. I mostly just ignored him and told him we could talk about it, once you got better. He pushed a little. I ignored him and he pretty much stopped bringing it up. I talked about it with you only. We talked about having another baby brother or sister. You wanted one so badly. We talked about names and if you wanted it to be a boy or a girl. You wanted a sister. We joked about having more twins. You liked the thought of that. You liked the idea of a little one or ones, to boss around. We talked about it a lot, the two of us. It was our little secret plan that when the time was right, and you were better…. another baby was in the cards. Before the blink of an eye, you my healthy boy who was kicking cancer’s arse…. was not anymore. I swear you were doing so well, and then *BAM!* within weeks you were dead. I still can’t wrap my head around how that happened…

So, Ro…. since you’ve been gone, the baby thing has come up again. Not many people have brought it up. Your daddy has hinted around here and there, and I pretty much refused to talk about it. I only really talk to Dr. JoRo about this baby thing. We’ve been sitting with it, for a while. I divulged my deepest fears, lots of tears, guilt, I’m betraying Ronan, what if this baby dies, or gets cancer, or I don’t love it as much, I’m not worthy of having another baby since Ronan died…. I should not be allowed to feel any happiness or love that a baby could bring into this world, and how will I know, when the time is right??? She told me there would never be a right time. She didn’t argue with any of my worries/feelings/fears. We talked about them instead. We’ve talked about all these things for a good 4 months now, in-depth. She had her baby boy, Josh, after Chey died. She gets it. Sometimes I feel as our lives or so parallel, that it was fate that we met the way we did. Your fate. I believe you were the one behind me finding her. I am so thankful to you for that. We have too much in common for it not to be something more then just a coincidence.

It’s just been recently that I don’t cringe every time somebody touches me or gives me love and affection in a physical way. I’ve been so detached from everything and everyone. Your daddy and brothers included. I’ve told Dr. Jo that I think a baby is going to be the only way our family can learn to be a little happy again. It’s been in the back of my mind, for a long time now, but it’s only recently that I’ve started to come around a bit to start thinking about it more. Your Sparkly has been buzzing in my ear about it for a while now. Sometimes I’ll talk to him in-depth about it or sometimes it hurts so badly that I’ll say something snarky like, “Not having this conversation with you, today. I don’t want to go there now.” I always see the sad look in his eyes, when I refuse to have the baby talk with him. He always gives me the look and the, “Please think about it. You are the best mother. Please do it, before I get too old. It would be so good for you, Woody, and the boys.” I usually just look at the ground and try not to cry. And then he asks my to smile for him and I am too upset so I’ll just tell him, “No. No smiles today. And what are you talking about? You are not old at all. You are so young…” There are a lot of days when I won’t smile when he asks. I hate those days the most.

So, it was last Monday that it kind of clicked for me that, “Ok… maybe it would be o.k. to start trying to have this baby. Trying being the operative word here. Just once. Not that it would actually happen, but more like, let’s get used to this idea that we are not going to not try to not have a baby. I woke up Friday morning with a very familiar feeling. The same one that I had with you. Mother fucker! I thought to myself. I’m fucking pregnant! I’m not making those words up. That’s what I thought in my head. There were no tears of joy. No jumping up and down. It was complete and total shock, along with a lot of cuss words that followed. Wait a minute. I did not mean I wanted to actually get pregnant right this second. I don’t keep track when I ovulate or anything. I was just getting warmed up to this new idea. And HOLY SHIT. OH MY GOD. My boobs. They felt like they were on fire. That’s how I knew within in a week of conceiving you, that I was pregnant. I remember I went to meet Tricia for a run. I looked at her and said, “My boobs really hurt. I think I’m pregnant.” I was. That’s always been my first and biggest indication. It’s too early for a pregnancy test and I may full on be making this up. My body is so out of whack these days, I never know what is going on. But I’m exhausted. Sleeping like a baby. My boobs are still on fire. I have an appetite and I am eating weird shit like this seaweed crap from Trader Joe’s that no less than 2 weeks ago, I was making fun for Dr. JoRo for eating. Guess where I found myself, yesterday?? At Trader Joe’s, scouring the aisles for seaweed. Who am I?? What is going on?? I think I have a pretty good idea.

I’m mildly freaking out. But I cannot fully freak out until I know for sure. I can of course say, I was not ready for this. If I am indeed pregnant, I’ll have 8 and a half months to get used to this idea. If I am not, I will be totally o.k. with that as well. But I may be slightly worried about the power of my mind and it’s ability to trick my entire body into thinking that a baby is on it’s way. That will really freak me out and I may consider going on a long vacation to the middle of nowhere to try to prevent this nervous breakdown that is clearly happening due to your deathday/birthday/fuckingmother’sday that is coming up. That is a whole other post that I just don’t have the energy to write about tonight.

I sat in Dr. JoRo’s office for a couple of hours today. We talked a lot about you and the possibility of another baby. We talked about how a baby will NEVER take away this pain/sadness/grief I feel for you. How this baby, will never lessen this pain. How this baby will never replace you. How I need to prepare myself for the stupid shit that people are going to say like, “OH!!! A new baby! I’m so glad to see you are over the death of your son! I am so glad to see that you are moving on! This is a sign, from God! This is what was meant to happen! God DID have a plan, it included your child dying, so this child could be born! You are all better, etc….etc….etc….”

I get that people mean well, but I would really like to hear none of those things. I will never be over the death of you, Ronan. Never. I will never move on. I will never be better. I am just learning how to live a whole new life and this whole new life will always include the pain of not having you. I am learning how to manage these feelings that I now have. This life is wrong without you. This life is broken. This life will never be the same. But I am learning to manage all of this. Manage is the new key to this life now. I can’t change the pain, but I can make it manageable so it doesn’t destroy me. I won’t let it.

That was today. I’ve been writing and not posting. I needed some time to digest the maybe baby thing. Your daddy asked me what I thought you would say about all of this. I told him I thought you would be happy, but sad that you are not here, to be the big brother that you should have been. You would have been the best big brother ever. I’m sad for that too. I’m sad for another reason that has had me hysterical the past couple of days too. Today, is Sparkly’s birthday. I’m sad you are not here, to sing to him. I remember exactly where we were, last year, due to it being his birthday. We were in NYC. You were getting better, or so we thought. You were upset that we could not see your Sparkly. We took a picture of you with your big, gorgeous smile and bald little head to send to him. We sent him a text with your picture and said, “Happy Birthday, Sparkly! We love and miss you!” You were so excited to send him that beautiful picture of yourself. I wished him the best Happy Birthday I could muster up, without having you here to do it with me. I made sure my voice did not quiver while I was telling him to have a great day. I got a, “Thank you, sweetheart,” in return. I could hear the sadness in his voice though. I hung up the phone and buried myself in the pillows of our bed, and drenched them with my tears. I HATE THIS SO MUCH. You should be here, singing in the phone. I should not be on the phone, using my strongest/bravest/I am o.k. but really I am not/but have the happiest birthday ever voice. Please come back. I hate doing all of these things, without you.

Little man. I have to end this now. It’s a long, long, post. I love you to the moon and back. I miss you so much. I hope you are safe. G’nite baby doll.

xoxo

Why hello beautiful boy

Today was actually a wonderful day. Wonderful as in we only had to go to the clinic for the standard blood tests and to have Ronan’s broviac dressing changed. We got to see our favorite nurse, Sharon, which is always a treat. Ronan told me today that she is his favorite person to see at the clinic. So sweet he is. This morning he woke me up at 7 a.m. on the dot demanding scrambled eggs, pronto! I tried my best to put him off as I was so cozy in bed but he wasn’t having it. I got up, made him his eggs, and got Quinn ready for school. Liam is still at Mimi and Papa’s due to not feeling well. After Quinny got off to school, I spent the rest of the morning cooking for Ronan and making him food about every half an hour. He is constantly hungry which is a very good thing, but leaves me exhausted and I don’t get much else done around the house. We headed out to PCH and had a chance to talk to Dr. Eshun about Ronan’s scans. He overall seemed pleased with everything but does not want to give us any concrete statistics until we get the MIBG scan done. This will be the most telling of all of the scans. Thursday cannot get here soon enough. After the clinic visit, Ronan was begging me to take him to Chelsea’s Kitchen for lunch. We met Woody there and watched as Ronan chowed down some of Woody’s French Dip, french fries, and his Grilled Cheese Sandwich. I had my favorite, the Ahi Tuna Tacos. Most amazing things ever. I could never get tired of that place. Ronan was happy to be out with his mom and dad and it was a gorgeous day spent with a gorgeous boy who is feeling wonderful. You have no idea what it does to my heart to see him so happy and carefree. Forget the fact that his life has been overtaken by cancer; today none of that mattered. Quinn came home from school and cousin Luke came over for a couple hours to play. The boys played baseball outside and ran around like crazy. I felt like a normal mom for a minute… making them after school snacks, helping with homework, doing laundry, and getting to hear all about Quinn and Luke’s day at school. It’s days like today that the cancer cloud that hangs over my head disappears for just a short amount of time. It is the most wonderful feeling in the world. I made the boys’ dinner and as soon as Woody got home, I headed out to my gym to get in a quick workout. I’d better try to get in as much exercise as possible before transplant starts because I know once that starts, all of my workouts are going to be gone for awhile. Not looking forward to that but I will just have to suck it up and keep telling myself that this isn’t forever. Soon we will have Ronan back and our lives will return to being somewhat the same; but with much more appreciation for anything and everything that comes our way. After going through something like this, the little things are going to seem so less in our life and we have learned what truly matters. I am grateful in a way for this lesson and I have all the faith in the world that Ronan was put here on this earth to teach us these things and to help us change the world. He has such a special journey planned for all of us and we are going to follow his lead. I have learned to just go with my gut feeling with most everything in my life and it always turns out right. I will follow Ronan to the end of the earth and back and feel so lucky to do so. He is the most amazing little boy. Never in my life have I known someone so strong, brave and beautiful and he is all of this at only the age of 3. Just imagine what he is going to be like as an adult. I cannot wait to see what life has in store for him.

I have learned that my days now are filled with both sadness and beauty. I am o.k. with that because I try so hard to make sure the beauty outweighs the sadness. Maybe Ronan was born such a beautiful boy for this purpose… because this has always been what his journey in life was meant to be and being so beautiful, would help me get through this?? Never has a more beautiful boy existed and I am not just saying this because I am his mother. I am not biased, this is the truth and I now know it was for a very special reason. All I have to do when I am feeling too sad or scared is look into his big blue eyes and my fears melt away. The look in his eyes tells me over and over that he is going to be fine. I truly believe that with every part of my mind, body, and soul. Everyday, I am finding things I am thankful for and it reminds me how precious life on this earth is. Ronan is a gift and I am so happy I get to share him all with you.

That is all for tonight. I am going to hot yoga with Stacy at 5:30 a.m. in the morning. Told you I’m taking full advantage of my freedom and what better way to start my morning than drenched in sweat and tears. Love you all my dear friends. Sweet dreams of peace and happiness.

xoxo

Love my name
Love left dry
Frost or flame
Skeleton me
Fall asleep
Spin the sky
Skeleton me
Love, don’t cry
Love, don’t cry
Love, don’t cry
Skeleton me
Skeleton me

Soon comes rain
Dry your eyes
Frost or flame
Skeleton me
Fall asleep
Spin the sky
Skeleton me
Love, don’t cry
Love, don’t cry
Love, don’t cry
Skeleton me
Skeleton me

Skeleton me

Yoga, Hiking, and Tears

What a busy, yet peaceful day. I started off my day joining my friend, Stacy, for a hot yoga class. An hour and 15 minute class where I was drenched in sweat and tears almost the entire time. I have not done a yoga class in years, but it has been something I have dying to get back into. It was almost too much… intensity wise. I felt broken, vulnerable, sad, yet strong and calm too. Stacy looked over at me at one point while we were standing up doing our poses and saw the tears pouring out of my eyes. She came over and held me for a minute and then asked if I needed water. She then goes, “What about Coconut Water? I have some!?” She made me laugh out loud at that one. Ah yes, Coconut Water makes everything all better. We had some after Yoga and it was the best Coconut Water that I’ve ever had in my life;) Thank you Stacy for the yoga today… I really hope to get a bunch of these classes in before we start isolation. It is a good way for me to let everything go and release all of the things I am feeling.

After yoga, I came home showered and got ready to head over to The Village for Liam and Quinn’s basketball game. I took Ronan with me. He was in heaven and spend a lot of the time helping Woody coach. He even had his own whistle hanging around his neck. It was adorable and he loved being out with his brothers. Liam and Quinn did great as always. They are such good little basketball players. Watching them play basketball is one of my favorite things to do in life. I am so thankful I was able to go today; it meant a lot to all of us.

After basketball we came home and I took a long nap. I think the hot yoga and all the crying I did this morning did me in and I had a bad headache the entire day. I felt better after I woke up and around 5 I headed out to church, a.k.a. hiking. I needed an active day today. It has been way too long since I’ve been in touch with nature and hiking is something that I have been missing so much. I ran up the mountain, watched the sunset, and prayed my ass off. It was one of the most gorgeous evenings tonight and hiking always clears my head. Today was absolutely perfect in every way.

The boys’ have their cousin, Luke, staying the night tonight. He is a fifth grader at their school and all three of my guys idolize him. Woody took them to play basketball at The Village and then to pizza tonight. If my boys’ turn out to be anything like Luke, I will feel like the most blessed mama in the world. He is a parents dream come true. Such a sweet soul, funny, and is so good with all of my boys’ but especially Ronan. We love having him here and spending time with him. I think it is really good for Liam and Quinn; it is good for them to have somebody to look up to who is a little closer to their age. Thanks Heidi for letting us borrow your Lukey. We love him like one of our own:)

Tomorrow we are having another low key day. I’m going to breakfast with a few girlfriends to go over isolation things in the morning and then we are planning on watching the Superbowl over at Uncle Jay’s house. He lives right around the corner so if Ronan gets too tired, I can just walk him home. I may try to sneak in another hike before my insanely busy week starts. My body is already beyond sore and it is a feeling that I miss so much. Before all of this exercise was my stress relief. It’s hard not to have the consistency of that in my life anymore as I don’t have any other outlets. I’ve got to make the most of these couple of weeks before transplant.

Ronan is curled up beside me. Luke has been in my room reading him some books and cuddling up with him. So cute… he loves to love on Ronan. It has been such a nice family night at home tonight.  We have really been needing this time together. I’m finally getting a little sleepy so time to shut things off. Hope you all had a great Saturday; thanks for checking in with us. Sweet dreams!!

xoxo

Living is easy with your eyes closed

I have no idea what day it is even…. Wednesday I think? The days and nights are so blurry here and it is so easy to lose track of the time, days, and nights as they all seem to blend together. I do know that today is my dear birthday bunny, Jen’s birthday. Happy Birthday my sweet friend. Thank you for being a rock for me these past 5 months. I love you dearly<3 I hope you had a beautiful day.

My morning started off great with my friend Melissa bringing by coffee and her gorgeous smile for me. Ronan wasn’t up for visitors, kicked her out of the room, so we went into the hallway and caught up for a bit. Ronan would scream for me every so often so I would come and and tell him I was looking for Dr. Wood. He seemed satisfied with that answer so I was able to go back into the hallway and finish my conversation with Melissa. After she left, I was able to get out of the hospital today for most of the day. It was much needed and Mimi Kay and Papa Charlie came and sat with Ronan for me. So thankful. I can feel myself going a little stir crazy. It was nice to be out and about today. I returned around 5 to a happy Ronan and our 3-year-old roommate, Angel, who had been left alone almost the entire day. He sat and told me that his parents were never coming back. These are the same parents who left him alone last night for about an hour and when I went to ask Angel where they went he replied, “They went to smoke.” OMG. I spent the next 2 hours tonight tending to him and sharing Ronan’s popsicles and toys. I felt bad for the little boy. A 3 year old should not be left alone, EVER! He started throwing things at Ronan which in turn, made Ronan upset and the two of them were screaming back and forth at each other. Ronan ended up in tears because the roommate said to him, “You’re a bad boy!” Ronan looked at me and said, “I not a bad boy, mama!” I told him of course he was not but that didn’t stop the little tears from sliding down his cheeks. He is so tough but really got his feelings hurt tonight. There was not a nurse in sight up on 3 to handle this, so I did best I could. That floor 3 is a little coo-coo. Dr. Eshun gave us the green light to move to the 2nd floor tonight, thank god! We moved down here after the Angel incident and his parents had still not returned. We are just happy to be out of that room and down to our fun floor with the BEST nurses in the world. They were all so excited to see Ronan and he was just as happy to see them. The 2nd floor is like our second home now… it was weird to be here, but not with our “family.”  Somebody even wrote, “Rockstar Ronan,” on the whiteboard where all the nurses/patients info goes…. so cute that they know his nickname:) We are happy campers to be back down here and Ro baby is sound asleep. His ANC was still at 0 as of this morning. UGH. Please let it come up tomorrow. We are itching to get out of here and be back home.

Somebody sent some goodies tonight and I have no idea they  came from, as there was not a card. It was a bag full of some Star Wars toys, some fun books, Coffees for me…. Any takers??!?! Please let me know who you are… I would like to give you a proper thank you. It made our night! Ronan has been having a blast with his coloring books and little light saber racing car. THANK YOU!!!!!

I’m getting anxious and homesick tonight. Hoping I can unwind with a movie or something. I could seriously use some yoga in my life right about now. I feel like I have a lot to say, but my mind/body/soul is shutting down. Hospital exhaustion is kicking in. I am so thankful for my thoughtful husband and the Bose Headphones he bought me for Christmas. Music is saving my life through all of this…. thanks Wooddawg for being so thoughtful all of the time. You are the best gift giver in the entire world. Hope you all have a beautiful, blessed night. Sweetest dreams!

Extra special dreams tonight to my dear Charisma. I told you all the stars would end up aligning for you. More good things to come your way my dear. I can feel it!!

xoxo