new york city
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The little monkey made it through the night
We ended up staying out of the hospital last night. Ronan slept and slept hard. His fever was off and on through the night, but did not ever go above 100.1. So thankful. I had the most awful dreams last night. UGH. I can’t shake them this morning. I had a dream that Ronan could…
arizona, ASU, best friends, Birthday parties, Camelback Mountain, Chemotherapy, Childhood Disease, Coconut Water, football, Greenbay Packers, Hava Java, honesty, Little Big Planet, little monkey, love, maya thompson, mickey mouse, Neuroblastoma, new york city, Phoenix, Rockstar Ronan, Stacy Frakes, Sundevils -
Do you know if this hotel is pager friendly?? I’m not getting a sig’ on my beeper.
It’s days like today that make me really angry at cancer. I pretty much sat and held Ronan the entire day. We snuggled in bed and on the couch and watched movies. He won’t let me leave his side; not that I would want to. We watched “The Fantastic Mr. Fox,” and the ever so…
angels, anger, arizona, Arts, AZ, best friends, Blood, Bradley Cooper, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, dreams, fevers, fuck you cancer, Games, Hangover, immune system, maya thompson, Medicine, Neuroblastoma, New York, new york city, nightmares, Pager, Phoenix, raw, Rockstar Ronan, sloan kettering, soulmates, strength, Television, The Fantastic Mr. Fox, The Hangover, this too shall pass, true love, United States, Video Games, woody thompson -
Do you know if this hotel is pager friendly?? I’m not getting a sig’ on my beeper.
It’s days like today that make me really angry at cancer. I pretty much sat and held Ronan the entire day. We snuggled in bed and on the couch and watched movies. He won’t let me leave his side; not that I would want to. We watched “The Fantastic Mr. Fox,” and the ever so…
angels, anger, arizona, Arts, AZ, best friends, Blood, Bradley Cooper, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, dreams, fevers, fuck you cancer, Games, Hangover, immune system, maya thompson, Medicine, Neuroblastoma, New York, new york city, nightmares, Pager, Phoenix, raw, Rockstar Ronan, sloan kettering, soulmates, strength, Television, The Fantastic Mr. Fox, The Hangover, this too shall pass, true love, United States, Video Games, woody thompson -
The show must go on
My skinny little chicken leg boy is finally getting his appetite back. Finally. It’s been about 2 weeks since he’s really wanted to eat. Now, I can’t keep him full. He is back to eating every hour on the hour. Oatmeal, eggs, Peanut Butter and Jelly, Fruit, Pizza, Carrots, Hummus, Cottage Cheese, Peas, Cheese Crisps……
All Her Favorite Fruit, angels, arizona, ASU, babies, basketball, best friends, bullshit, Camper Van Beethoven, Cancer, Chemotherapy, childhood cancer, Dr. Eshun, Family, friends, friendship, guitar, happiness, Harry Brown, Health, honesty, jake gyllenhaal, love, mickey mouse, Music, Neuroblastoma, new york city, Ochiocinco, Parenting, raw, reality, Ro baby, Rockstar Ronan, running, sloan kettering, soul mates, US Weekly, woody thompson, Zach Miller -
Magic Medicine…. Day 3 Round 6
Today was beyond depressing. I sat in a hospital room the entire day with Ronan. We didn’t leave once and he made me close all of the shades so it was as dark as it could be. He slept a lot today and I pretty much just cuddled up beside him, talked to him, and…
arizona, AZ, baby ro, best friends, bullshit, Cancer, Captain Rex, childhood cancer, Childhood Disease, Conditions and Diseases, doctors, Family, Health, maya thompson, Neuroblastoma, new york city, Parenting, reality, Rockstar Ronan, ronan thompson, sloan kettering, Star Wars, strength, The Ronan Thompson Foundation, true love, woody thompson -
Magic Medicine… Day 2 Round 6
I so needed to take a little break from the hospital today. Ronan is still refusing to get out of bed so we spent the morning playing; I tried my best to entertain him. Our favorite nurse, Sharon, came to do Ronan’s dressing change. He did pretty well with it but at one point I…
angels, anger, arizona, AZ, best friends, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, doctors, Dr. Kushner, Dr. La Quaglia, Energy, faith, Family, Fred’s team, friends, fuck you, hope, iPad, isolation, iTunes, jake gyllenhaal, love, mom’s, Neuroblastoma, new york city, New York City Marathon, New York Miss Macy, Paul Frank, Phoenix, Purple, Rockstar Ronan, sadness, Sarah Tinney, sloan kettering, Small Paul, Star Wars, stem cell transplant, tears, United States, US Weekly, woody thompson -
Magic Medicine…. Day 1, Round 6
I feel like I don’t have a lot to say tonight. Ronan hasn’t gotten out of bed, except to use the bathroom, since we got here on Sunday. He says his legs are hurting and does not want to walk around, go to the playroom, or anything. I tried all day to get him out…
anger, arizona, AZ, best friends, boys, brothers, Childhood Disease, honesty, I love woody, jake gyllenhaal, magic medicine, maya and woody thompson, maya thompson, Neuroblastoma, new york city, phoenix suns, Rockstar Ronan, Ronald McDonald House, sadness, sloan kettering, tears, true love, US Weekly -
Hellllloooo Phoenix
Home. Safe and sound. Tonight, my life flashed before my eyes as I pictured not having Ronan on a private jet to get him home. I seriously was almost sick to my stomach and I looked over at Trish and said, “Could you imagine if we would have had to fly home on a commercial…
angels, arizona, baby ro, best friends, birthdays, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Dr. Eshun, dreams, Fred’s team, friendship, Happy Un-Birthday, Health, jake gyllenhaal, maya thompson, Neuroblastoma, new york city, New York City Marathon, pay it forward, Phoenix, phoenix children’s hospital, Rockstar Ronan, running, sloan kettering, true love, US Weekly, woody thompson -
There is nothing sweeter than kissing the bald head of a cancer child
You know how some things in life were just so meant to be? Things like this seem to be happening to me often these days, but today it is truer than ever. I’ve mentioned before my new friend, Macy, who did not know me, but my blog was passed along to her through a friend.…
angels, anger, Anna Faris, anxiety, arizona, Arizona State University, AZ, bald heads, best friends, bullshit, Cancer, Central Park, Chemotherapy, childhood cancer, Childhood Disease, COG, Conditions and Diseases, doctors, Dr. Eshun, Dr. Kusher, Dr. La Quaglia, dreams, Emma Stone, faith, Family, Fred’s team, friends, fun, Games, happiness, Health, honesty, jake gyllenhaal, joy, kids, laughter, life, Liz Kotalik, Master Yoda, maya thompson, Neuroblastoma, new york city, New York City Marathon, nurses, pain, Phoenix, raw, Rockstar Ronan, sloan kettering, Sparky, spoiled, tears, The House Bunny, The Rabbit Boiler, tricia tinney, true love -
Hospital Reality sucks
We moved out of the POU (Pedatric Oncology Unit) today and into a different area of the 9th floor. I wish we could have stayed in the POU, but moving to this room is a step up as far as getting us out of here. The POU only has 3 rooms and they are so…
angels, anger, arizona, AZ, baby ro, best friends, blue eyes, bullshit, Cancer, Central Park, Chemotherapy, childhood cancer, Childhood Disease, death, doctors, Dr. Kusher, Dr. LaQuaglia, dreams, Fred’s team, fuck you cancer, hell, life, love, maya thompson, mom’s, Neuroblastoma, new york city, New York City Marathon, nightmares, nurses, pain, Rockstar Ronan, ronan thompson, sadness, sickness, sloan kettering, strength, The Ronan Thompson Foundation, tricia tinney, true colors, true love, twins, woody thompson
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