Dr. Eshun
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Romama’s Busy Day
Ronan. I don’t have time to dig my hole this week, because due to a last minute invite…. I am so busy. And so tired. But in a very good way. I got an email from a lovie from T-Gen a few days ago. She wanted to tell me that Dr. Giselle Sholler was coming…
Cancer, childhood cancer, Childhood Disease, Conditions and Diseases, death, doctors, Dr. Eshun, Dr. Giselle Sholler, honesty, insomnia, maya thompson, Neuroblastoma, New York, oncology, phoenix children’s hospital, reality, Rhabdomyosarcoma, Rockstar Ronan, Ronan, San Diego, Sarah, sleep, sloan kettering, T-Gen, The Ronan Thompson Foundation, twins -
Ronan. You Stink. You Smell like Beef and Cheese.
Ro baby. Hi. I love you. I miss you. For as often as I write to you, I still can’t get over the fact that I am writing to you because you are dead. This will never be o.k. with me. I will never get over this. I will never stop wishing this wasn’t my…
angels, anger, arizona, AZ, best friends, Buddy the Elf, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Christmas Trees, Conditions and Diseases, doctors, Dr. Eshun, Dr. Maze, Elf, Family, honesty, maya thompson, Neuroblastoma, new york city, phoenix children’s hospital, Rockstar Ronan, The Rabbit Hole, The Ronan Thompson Foundation, true love, woody thompson -
Where is Ronan?
Somehow, I am in my cozy bed at my house. I cannot get out of my bed. It feels like quicksand, and even when I try to get up, it pulls me back down. My house and heart feel empty. I hear people, but the biggest voice of all is missing. “Where is Ronan?” That…
angels, anger, arizona, AZ, best friends, Charisma Carpenter, childhood cancer, Childhood Disease, death, Dr. Eshun, Dr. Maze, Energy, Family, Fernanda Borletti, happiness, life, maya thompson, Mother’s Day, Mr. Sparkly Eyes, Neuroblastoma, phoenix children’s hospital, Ralph Lauren, reality, Rockstar Ronan, sadness, sloan kettering, Star Wars, tears, The Ronan Thompson Foundation, The Ryan House, true love, twins, woody thompson -
Music to my ears
I’m feeling peaceful tonight. Today, was a very good day in terms of victories for Ronan. It started off with his little words this morning, “Mom, I have to poop.” Praise the freaking lord. It’s been 5 days of him not pooping and we have been giving him Miralax around the clock. I full on…
“A”, American’s Taco Shop, angels, arizona, Cancer, Charisma Carpenter, childhood cancer, Childhood Disease, Conditions and Diseases, Dr. Eshun, Dr. Giselle Sholler, Dr. Sarah Matheson, Fernanda Borletti, hope, I love you to the moon and back, iPad, laughter, love, maya thompson, Mr. Sparky Eyes, Neuroblastoma, Playroom Kathy, Pooping Party, reality, San Diego, Star Wars, tears, The bravest boy, The Ryan House, twins, woody thompson -
The next person that tells me Ronan wants to go home, to heaven, can piss off
Holy Fuck. How did I get here? I’m at The Ryan House; the most beautiful place we have been so far on this journey because my son is going to die? And everybody knows this except me? Am I in that movie, “The Truman Show,” where everything is just pretend and I’m some experiment being…
Bad Peter, blue eyes, Camelback Mountain, Charisma Carpenter, Chemotherapy, childhood cancer, Cowboy Guns, Dr. Campbell, Dr. Eshun, Dr. Giselle Sholler, Family, Fernanda Borletti, friendship, god, heaven, Home, honesty, I love Fernanda Borletti, life, love, maya thompson, miracles, Mr. Sparkly Eyes, new york city, New York Miss Macy, Paul Frank, prayers, raw, Ro baby, Rockstar Ronan, Stacy Frakes, Star Wars, Strawberries and Whipped Cream, Team Woody, tears, The Princess, The Ronan Thompson Foundation, The Ryan House, true love, Truman Show, twins, Woody, woody thompson -
Please don’t leave me
Please tell me today didn’t happen. Please tell me I didn’t have a conversation with my husband about what we are going to do for Ronan’s services. Please tell me I then didn’t go to Hava Java and sit with Fernanda, Stacy, Marisa, Danielle, Tricia, and Macy about planning everything. This all happened so fast.…
angels, arizona, best friends, Cancer, Childhood Disease, doctors, Dr. Eshun, Dr. Giselle Sholler, faith, Hava Java, love, maya thompson, morphine, Neuroblastoma, pain, Phoenix, phoenix children’s hospital, Rockstar Ronan, sadness, sleep, Star Wars, The Ronan Thompson Foundation, The Ryan House, twins, woody thompson -
Hellllllooooo Philly!
I’m not scared yet. Is that weird? Because at this point I should be scared shitless. And I don’t need to point out the obvious for you all to know what it is I should be scared about. Maybe it’s because I’m too numb, still in too much shock, or in deep denial. But I…
“A”, angels, anger, arizona, AZ, beautiful strangers, best friends, bipolar people NOT allowed, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Children’s Hospital of Philadelphia, CHOP, Conditions and Diseases, Dr. Adams, Dr. Eshun, Dr. Kushner, Dr. Maze, Dr. Yale Mosse, Fernanda Borletti, fetal position, fighter, Fuck you cancer boots, I love woody, I love you to the moon and back, love, Luke, maya thompson, MIBG Therapy, new york city, Pat Tillman, Patty, phoenix az, phoenix children’s hospital, red-eye, Ro baby, Rockstar Ronan, tricia tinney, Twinkle Twinkle Little Star, twins, woody thompson -
The knot
The knot in the pit of my stomach is back and stronger than ever. So bad, that I am convinced I have an ulcer. I spent most of the day trying to get things done, while begin doubled up in pain. I also had to hang up the phone with my mom because I couldn’t…
angels, anger, arizona, AZ, best friends, blue eyes, bone marrow, boys, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, Dr. Eshun, Dr. Kushner, Dr. Modak, Energy, fear, friends, fuck you cancer, Home, honesty, I hate cancer, marriage, maya thompson, MIBG, Music, Natural killer cell, Neuroblastoma, New York, new york city, New York Miss Macy, pain, Parenting, raw, soul mates, strength, tears, the most beautiful boy, The Ronan Thompson Foundation, tricia tinney, twins, United States, woody thompson -
Never-ending tears
How much can one little person endure? It’s amazing because the strength of Ronan seems endless. All he has gone through so far… all he is going to have to go through still. I am exhausted just thinking about it. He is back getting his bone marrow aspirates done and MIBG scan as well. I…
Anesthesia, angels, anger, arizona, AZ, best friends, Bob strollers, bone marrow, bullshit, Cancer, Central Park, Childhood Disease, Conditions and Diseases, doctors, Dr. Eshun, Dr. Kushner, Dr. Maze, Dr. Modak, dreams, Energy, faith, FAQ Schwartz, friendship, Health, Home, i love you, MIBG scan, Neuroblastoma, new york city, New York Miss Macy, nightmares, nyc, pch, Phoenix, Rockstar Ronan, sloan kettering, Starbucks, strength, tears, The Ronald McDonald House, The Ronan Thompson Foundation, true love, woody thompson -
Never looking back
Hi my friends. I’ve missed you. It’s been a whirlwind of a week to say the least. We did our duty as parents to get all the opinions possible as far as Ronan goes. We have met with the best doctors, visited the best hospitals, talked to everyone we could get our hands on, strategized,…
ROCKSTAR RONAN 
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