Health
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Bone scans results…. kind of.
We started off this morning with Ronan’s Audiology test. It went alright… but we were not able to complete the test due to Ronan’s lack of cooperation. He was able to get through some of it in which the Doctor played high frequency sounds and Ronan would put a dinosaur into a bucket when he…
angels, anger, arizona, best friends, bone marrow, Bone Scan, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, CT scan, Dr. Eshun, Dr. Maze, Dr. Wood, fuck you cancer, Health, hearing loss, hope, kids, maya thompson, MIBG, mom’s, MRI, Neuroblastoma, new york city, Pandora, Pet Scan, Propofol, Rockstar Ronan, sadness, sloan kettering, strength, The Ronan Thompson Foundation, true love, United States, woody thompson -
Goodnight moon
Home. After over a month of being in and out of hospitals, between Sloan and PCH… we are home again. So sweet. Yesterday, Ronan’s ANC was only at 80… today it jumped up to 240! That is very high for just one day. Ronan’s little body is fighting so hard to come back after being…
angels, arizona, bedtime, best friends, bone marrow, Bone Scan, boys, brothers, Cancer, Candy Shop, Chemotherapy, childhood cancer, Childhood Disease, doctors, Dr. Maze, dreams, Dylan’s Candy Shop, Family, Glitter, happiness, Health, Home, laughter, love, Lovely Bones, Macy Wood, maya thompson, Medicine, MIBG scan, Neuroblastoma, nurses, raw, reality, Rockstar Ronan, sloan kettering, Snow cones, soulmates, Star Wars, strength, sunshine, sweet dreams, twins, woody thompson -
Because I’m still in love with you
Clarity. It’s what I’ve found tonight. It came in many different forms. A long talk with Mr. Sparkly eyes, an email from my Mrs. Darling(P.S., SB… that’s your new name) , an honest talk with my husband, and the music that blares on my headphones from a mixed C.D. that my New York Miss Macy…
angels, anger, arizona, best friends, blogging, bullshit, Cancer, Charisma Carpenter, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, Darling, doctors, Energy, Family, friends, friendship, Health, honesty, Honey, Husband, love, marriage, maya thompson, neil young, Neuroblastoma, New York, Parenting, pearl jam, Phoenix, relationships, Rockstar Ronan, sadness, sloan kettering, soul mates, Star Wars, strength, tears, true love, truth, woody thompson -
The silence scares me because it screams the truth
A week. It’s been a week of sharing a room. Hospital beds. Hospital clothes. Hospital T.V. Hospital seconds/minutes/days/nights. Hospital tears. Hospital depression. Being home last night for the entire night with my twins felt so good that it hurt. I took them to breakfast this morning and we looked just like the perfect little family.…
3-year-old, America’s Taco Shop, anger, arizona, AZ, blogging, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Coconut Water, Facilities, faith, Health, Home, Hospital, Hospital life, iMac, insomnia, iPad, love, maya thompson, Medicine, mickey mouse, Music, pearl jam, prayers, Rockstar Ronan, sadness, sloan kettering, tears, thankfulness, The most beautiful boy in the world, true love, United States, woody thompson -
I just want to be home
Am I staring in Bill Murry’s movie, “Groundhog Day?” That’s what the days feel like around here. I texted Woody today and said is it Thursday or Friday today? I had no clue what day it was. I ran home to shower and repack my bag, hit up the grocery store for Ro, then headed…
angels, anger, arizona, AZ, best friends, bullshit, Cancer, Chemotherapy, childhood cancer, doctors, Games, Groundhog Day, Health, Hospital, laughter, love, Lovely Bones, maya thompson, Neuroblastoma, new york city, nurses, Phoenix, reality, Ro baby, Rockstar Ronan, rules, sloan kettering, Star Wars, tears, The Ronan Thompson Foundation, woody thompson -
A Margarita, Sangria, or George Clooney??
I talked to Dr. Wood this morning and Ronan’s ANC counts came up from 0 to 25. This still doesn’t mean we will be getting out of here anytime soon as they have to be up to 200 and rising for Dr. Eshun to discharge us. Dr. Wood said he expected us to be here…
angels, anger, Annie Leibovitz, annie leibowitz, arizona, AZ, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Coconut Water, Dr. Eshun, Dr. Maze, Dr. Wood, dreams, Family, friendship, fuck you cancer, george clooney, happiness, Health, love, Lovely Bones, Margaritas, maya thompson, Neuroblastoma, new york city, passion, Phoenix, privacy, raw, Rockstar Ronan, sangria, sociopaths not allowed, Star Wars, strength, vanity fair, woody thompson -
Living is easy with your eyes closed
I have no idea what day it is even…. Wednesday I think? The days and nights are so blurry here and it is so easy to lose track of the time, days, and nights as they all seem to blend together. I do know that today is my dear birthday bunny, Jen’s birthday. Happy Birthday…
angels, anger, arizona, AZ, best friends, Birthday, Birthday Bunny, blogging, Bose Headphones, bullshit, Cancer, Cancer sucks, Charisma Carpenter, Chemotherapy, childhood cancer, Christmas, Coconut Water, Conditions and Diseases, Dr. Wood, Health, honesty, immune system, Insomnina, Jen Wood, maya thompson, Music, Neuroblastoma, new york city, Pandora, Parenting, pearl jam, Phoenix, reality, Ro baby, Rockstar Ronan, sleep, sloan kettering, Soul, Star Wars, Starbucks, strength, The Ronan Thompson Foundation, twins, Yoga -
Serenity now
Deep breaths and an amazing friends have gotten me through this past 24 hours. We were admitted into the ER last night around 9:00 due to Ronan’s low grade fever. I didn’t have to wait in the waiting room of the ER; THANK GOD. It was beyond packed even at 9:00 at night. The doctor…
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Julien – The Julien Collot Foundation
Julien – The Julien Collot Foundation. I don’t have words tonight. Only tears. Macy, you know why. Mace and I saw this little boy while we were at Sloan. We couldn’t figure out what he had, but we knew it was something serious. I told Macy it had to be cancer, since that is what…
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The show must go on
My skinny little chicken leg boy is finally getting his appetite back. Finally. It’s been about 2 weeks since he’s really wanted to eat. Now, I can’t keep him full. He is back to eating every hour on the hour. Oatmeal, eggs, Peanut Butter and Jelly, Fruit, Pizza, Carrots, Hummus, Cottage Cheese, Peas, Cheese Crisps……
All Her Favorite Fruit, angels, arizona, ASU, babies, basketball, best friends, bullshit, Camper Van Beethoven, Cancer, Chemotherapy, childhood cancer, Dr. Eshun, Family, friends, friendship, guitar, happiness, Harry Brown, Health, honesty, jake gyllenhaal, love, mickey mouse, Music, Neuroblastoma, new york city, Ochiocinco, Parenting, raw, reality, Ro baby, Rockstar Ronan, running, sloan kettering, soul mates, US Weekly, woody thompson, Zach Miller
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