phoenix children’s hospital
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Look at the stars and how they shine for you
Ro baby is doing well. His ANC is still at 0, but his spirits are great. Sarah came this morning so I could run home and shower which is always a treat. Ronan and I have been playing a lot in his bed. I put on a puppet show with him with his…
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Hellllloooo Phoenix
Home. Safe and sound. Tonight, my life flashed before my eyes as I pictured not having Ronan on a private jet to get him home. I seriously was almost sick to my stomach and I looked over at Trish and said, “Could you imagine if we would have had to fly home on a commercial…
angels, arizona, baby ro, best friends, birthdays, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Dr. Eshun, dreams, Fred’s team, friendship, Happy Un-Birthday, Health, jake gyllenhaal, maya thompson, Neuroblastoma, new york city, New York City Marathon, pay it forward, Phoenix, phoenix children’s hospital, Rockstar Ronan, running, sloan kettering, true love, US Weekly, woody thompson -
He is my sun, my stars, my moon above
A bloody nose led us to the clinic for platelets earlier today. As soon as we were ready to head home, Sharon came over to flush out Ronan’s tubes and the saline started squirting out the side. Not a good thing. He had a tiny hole in the line that leads to his broviac which…
anger, arizona, AZ, beautiful boy, bloody nose, Cancer, Chemotherapy, childhood cancer, Childhood Disease, christmas music, Conditions and Diseases, ER, Family, Health, life, love, maya thompson, Neuroblastoma, Parenting, phoenix children’s hospital, raw, reality, Rockstar Ronan, ronan baby, sadness, tears, truth, woody thompson -
Heart of a mother, soul of a fighter
Anxiety is the word of the night. Not sure why… but tonight I am more anxious than I have been in a while. We had a great day; a beautiful day. We started off up bright and early and Ronan knew that we had a clinic day ahead of us. He was actually really excited…
a new york minute, anxiety, best friends, bubble baths, Cancer, Chemotherapy, childhood cancer, Christmas, Conditions and Diseases, doctors, Dr. Kushner, Dr. La Qualia, Dr. Maze, Family, fighter, friendship, liam and quinn thompson, life, maya thompson, Neuroblastoma, new years, New York, Parenting, phoenix children’s hospital, raw, Rockstar Ronan, running, scared, seperation, sloan kettering, strength, the good doctor, woody thompson, yo mama -
A change of plans
Ronan’s counts are not high enough to start chemo this week. What does this mean?? It means a lot… his surgery date will now have to be changed, as well as our flight out to New York. Trying not to stress too much… everything happens for a reason, right?? We will now get to spend…
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Welcome to hell
Can I even blog about today/tonight? I don’t know. It was that horrific. And I don’t mean to sound like a whiney baby… because it takes a lot to break me. But if I have to hear one more fucking “beep, beep” from the machine Ronan is hooked up too, and then wait 10 minutes…
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Stem Cell Harvest day
Today got off to a bumpy start. I woke Ronan up around 6:45 a.m. and he was not happy to say the least. One, he was mad that I woke him up so early, and two, he was even more mad that he had to spend his day at the hospital. After having him hit,…
angels, anger, best friends, Biotechnology, Bone Scan, Cancer, Chemotherapy, childhood cancer, Conditions and Diseases, doctors, exercise, Family, fun, happiness, Health, Kim, love, marriage, nancy botwin, Neuroblastoma, nurses, Pacific Northwest, Phoenix, phoenix children’s hospital, quality of life, rain, Science and Technology, sleep, Star Wars, Stem cell, Stem Cell Research, storms, sweet dreams, thankfulness, true love, truth
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