Fred’s team
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Let the hiding begin….
Hello. Hope you all are well. I have officially gone into hiding. So much so, that my 3 besties had to bust into my house on Sunday morning to make sure I was o.k. I felt like I was on that show, “Intervention.” I don’t mean to shut everyone out; but it’s what I do…
baby ro, best friends, bone marrow, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, CT scan, Dr. Adams, Dr. Eshun, Dr. Kusher, Dr. La Quaglia, Dr. Maze, Dr. Modak, Family, Fred’s team, Macy Wood, maya thompson, MIBG scan, MRI, Neuroblastoma, NYC Marathon, raw, reality, Rockstar Ronan, sadness, sloan kettering, stem cell transplant, tricia tinney, true love, United States -
Magic Medicine… Day 2 Round 6
I so needed to take a little break from the hospital today. Ronan is still refusing to get out of bed so we spent the morning playing; I tried my best to entertain him. Our favorite nurse, Sharon, came to do Ronan’s dressing change. He did pretty well with it but at one point I…
angels, anger, arizona, AZ, best friends, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, doctors, Dr. Kushner, Dr. La Quaglia, Energy, faith, Family, Fred’s team, friends, fuck you, hope, iPad, isolation, iTunes, jake gyllenhaal, love, mom’s, Neuroblastoma, new york city, New York City Marathon, New York Miss Macy, Paul Frank, Phoenix, Purple, Rockstar Ronan, sadness, Sarah Tinney, sloan kettering, Small Paul, Star Wars, stem cell transplant, tears, United States, US Weekly, woody thompson -
Hellllloooo Phoenix
Home. Safe and sound. Tonight, my life flashed before my eyes as I pictured not having Ronan on a private jet to get him home. I seriously was almost sick to my stomach and I looked over at Trish and said, “Could you imagine if we would have had to fly home on a commercial…
angels, arizona, baby ro, best friends, birthdays, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Dr. Eshun, dreams, Fred’s team, friendship, Happy Un-Birthday, Health, jake gyllenhaal, maya thompson, Neuroblastoma, new york city, New York City Marathon, pay it forward, Phoenix, phoenix children’s hospital, Rockstar Ronan, running, sloan kettering, true love, US Weekly, woody thompson -
Sad to leave, but have to go
The update is we are coming home tomorrow. I am scrambling, have been scrambling for a couple of days now, mentally, I was not ready to go back to Arizona. I feel like I’ve taken these past couple of days to get my mind wrapped around coming home. I feel like I am ready now.…
angels, anger, arizona, AZ, baby ro, best friends, Big city, bullshit, Cancer, Chemotherapy, childhood cancer, childhood cancer awareness, Coconut Water, COG, Delizia’s pizza, diseases, doctors, Dr. Kramer, Dr. Kushner, Dr. La Quaglia, Dr. Maze, faith, Family, Fred’s team, healing, Health, jake gyllenhaal, Macy Wood, maya thompson, Neuroblastoma, New York, New York City Marathon, Nursing, peacefullness, Phoenix, sangria, sloan kettering, tears, tricia tinney, true love, United States, yellow ribbon -
There is nothing sweeter than kissing the bald head of a cancer child
You know how some things in life were just so meant to be? Things like this seem to be happening to me often these days, but today it is truer than ever. I’ve mentioned before my new friend, Macy, who did not know me, but my blog was passed along to her through a friend.…
angels, anger, Anna Faris, anxiety, arizona, Arizona State University, AZ, bald heads, best friends, bullshit, Cancer, Central Park, Chemotherapy, childhood cancer, Childhood Disease, COG, Conditions and Diseases, doctors, Dr. Eshun, Dr. Kusher, Dr. La Quaglia, dreams, Emma Stone, faith, Family, Fred’s team, friends, fun, Games, happiness, Health, honesty, jake gyllenhaal, joy, kids, laughter, life, Liz Kotalik, Master Yoda, maya thompson, Neuroblastoma, new york city, New York City Marathon, nurses, pain, Phoenix, raw, Rockstar Ronan, sloan kettering, Sparky, spoiled, tears, The House Bunny, The Rabbit Boiler, tricia tinney, true love -
Hospital Reality sucks
We moved out of the POU (Pedatric Oncology Unit) today and into a different area of the 9th floor. I wish we could have stayed in the POU, but moving to this room is a step up as far as getting us out of here. The POU only has 3 rooms and they are so…
angels, anger, arizona, AZ, baby ro, best friends, blue eyes, bullshit, Cancer, Central Park, Chemotherapy, childhood cancer, Childhood Disease, death, doctors, Dr. Kusher, Dr. LaQuaglia, dreams, Fred’s team, fuck you cancer, hell, life, love, maya thompson, mom’s, Neuroblastoma, new york city, New York City Marathon, nightmares, nurses, pain, Rockstar Ronan, ronan thompson, sadness, sickness, sloan kettering, strength, The Ronan Thompson Foundation, tricia tinney, true colors, true love, twins, woody thompson -
Aubrey’s story. Simply amazing.
If this doesn’t inspire you to get up and do something, nothing will. It’s time to change the world, people!!! Aubrey was just four when she was diagnosed with acute lymphoblastic leukemia, a disease that was once fatal for nine out of ten children. “My first doctor was the head oncologist at a local hospital…
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Day 1, Post Op
We have been back at Sloan since yesterday. Dr. Angel (La Quaglia) came by yesterday and was blown away that Ronan was already out of the Picu. Dr. Kusher, whom is one of the Neuroblastoma Doctors here, came by as well. He has been the one from the beginning whom has been talking to Woody…
ROCKSTAR RONAN 
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