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A Death Day and an Almost Birthday
Ronan. We made it through your death day the best we could. I didn’t sleep much the night before, and I even had my alarm set to go off at the time you passed away, just so I could be awake. I didn’t need the alarm because your sister Poppy woke me up almost exactly…
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Without a doubt, the MISS Foundation saved my life
I just wish I wouldn’t have had to find them by sitting in my bed in the middle of the day, sobbing, and thinking to myself, “If I don’t find someone to help me, I will not survive this. I then turned on my computer and Googled, “What to do if your child has died…
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Your song for the night, Ro baby. From Fernanda. I love you both.
http://www.youtube.com/watch?v=aeyQM3JKpXE Twinkle Twinkle Little Star By Jewel
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2 years makes me want to rip my hair out while screaming for you like the wild animal that I am
Ronan. I’ve started to write a few times, but I’ve erased everything over and over again. I don’t know how to put into words what this day feels like; almost 2 years without you. Your Poppy sister has been a great distraction. So much so that I find myself missing my grief…
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All I Want in Life Is a Cure for Childhood Cancer and to Be Glitter-Bombed
Ronan. Hello May and hello constant stream of tears. Also, hello my little shadow, aka Quinn, who seems to catch me whenever I am a bloody mess. It’s happened twice this week. Both times he found me crying in Poppy’s room. “What’s wrong, Mom? Why are you sad?” I wiped my face and told him…
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We have some new additions to The Ronan Thompson Foundation Auxiliary Board!
Say Hello to Dr. Yael Mosse and Dr. Francis Eshun! So proud to have them as a part of our team! http://theronanthompsonfoundation.com/about/board
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This is for all of my Ohio RoLovies!
A great event in Ohio for The Ronan Thompson Foundation! Thank you, Alanna and Stephanie! xoxo! http://www.ronansdayoflove.com/default.html
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May Is Officially Here. It’s a Really Hard Month for Us. So Thankful for People Like This Who Continue to Do Amazing Things
It’s May. May is the month that we renew our commitment to our cause. It is the month of Ronan’s birth and the anniversary of his death. Last year, Maya, our founder, was fundraising to run a marathon without training. She impressed us all with her determination and success. This year, not even a month…
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Your song for the night, Ro baby and now Poppy’s, too.
http://www.youtube.com/watch?v=RzhAS_GnJIc
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“This is how dreams die.” -Woody Thompson
I’m not going to go into why I titled this post this way tonight because not everything can be shared. Let’s just say Woody came home and said this to me tonight for a very good reason. All I am allowed to say is screw anybody who sets out to get rich off kids…
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Two Years Ago Today, I Went to Hell
Ronan. Two years ago today, April 23rd, I went to Hell. I’ve been to Hell a few times in my life, and it’s not the place people think you go after you die if you’ve lived a life of sin. Hell, to me, is right here on earth. Hell, to me, is what I have…
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That Poppy Girl Has Saved My Life
Ronan. I forgot to write about 23 months without you. I was in the hospital with your sister Poppy. It was the day after I had her. I told your Mr. Sparkly Eyes how I thought that you and your sister had planned for me to go into labor on the 8th so that when…
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That Beautiful Day Your Sister Was Born
Ronan, I know I’m supposed to sleep when your Poppy sister sleeps, but even in these early morning hours, I just can’t seem to do so. It doesn’t matter the lack of sleep I’m getting due to breastfeeding her, holding her, or obsessively watching her sleep because I’m terrified she’s just going to up and…
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Introducing…
Poppy Ronan Thompson Baby Poppy was born April 8th at 5:35 am weighing 6lbs 11ounces. She is perfect and we are all so in love. I know you all have been worrying, wondering, and waiting for an update. I promise to do so soon, but between breast feeding and not wanting to…
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I Thought I Was Ready, but I’m Not Ready
Ronan, It’s normal to sit partly naked on a table at your OBGYN’s office and cry, cry, cry while waiting for her to come in and check your cervix, right? I was really trying to avoid this today. I had my nose busily buried in a book I was reading on my iPad, but somehow…
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I still love this list. How to Live like a ROckstar
People have asked, what they can do, besides the obvious which is donate to Childhood Cancer, to help make a difference in this…
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Oh, and P.S.
Dear Rude Creepy Stalkers, I made a decision a couple of months ago to stop posting the insane hate comments that a few people are leaving. Not many, but I do get a few that I usually don’t even read as they go straight to the spam folder. I have already gotten one over this…
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Baseball, Brisket and Marriage Equality for all!
Ronan. I think time is standing still. At least that’s how it feels to me. Maybe it’s because I’m having to take things easy now that your Poppy sister is almost here. Maybe it’s grief. Or a combination of both. I remember things feeling this way right after you passed away for the first 6…
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A SPLENDID Event!
How SPLENDID is this! Get this event on your calendars for 4/11/13! A discount at one of our most favorite retailers AND they are committing a minimum donation of $1000. 3 cheers for SPLENDID!
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The Day We Pretended Like You Were Alive
Ronan, Today, I got a phone call from your brothers’ school in the middle of the day. A phone call like that is never good. I picked up and listened as the school nurse informed me that Liam got hurt at recess and I needed to come pick him up because he needed stitches. She…
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Promises made, promises broken
Ronan. Yesterday was St. Patrick’s Day. One of my favorite holidays. We didn’t do much. Your brothers had baseball and basketball practice and we kind of just went along like it was just another day. Holidays are still weird for us and celebrating feels funny to me. I make sure to always stay off of…
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The pink lint in the dryer made me cry
Ronan. A few weeks ago, I told your daddy, “I think I can be o.k. if we put Poppy’s crib in Ronan’s room.” He looked at me, startled, and told me hearing those words out of my mouth gave him a lot of anxiety. I said those words a few weeks ago, and nothing had…
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That hair, that hair, that hair…
Phoebe is on the left in this picture. Is her hair to die for or what? Big thank you to my little Rachel for making her day yesterday. Love you, Rach. You are the sweetest soul. Thank you all who have left such sweet comments on Phoebe’s page. Truly made my day.…
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If you know anyone dealing with Neuroblastoma….
Please pass this along to them. I found this about 2 months after Ronan was diagnosed and it became my bible. A group of parents put this together. I hope you all are well. We are alright here. Just trying to prepare for this Poppy baby a bit. Love you all. xoxo http://www.cncfhope.org/cms_images/file_72.pdf
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Miss Taylor, how I love you so.
I wish this is what the media would focus on. Thanks to one of my little Tweethearts for sending this to me. I love you, Taylor. Thanks for making my day a little brighter and putting a smile on not only my face, but this sweet girls as well. I love you to the moon…
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“Do this for Ro.”
Ronan. I survived your 22 months. It was actually an o.k. day. It didn’t start out that way. I woke up, upset, crying, worrying about you like I always do. I swear I worry about you more now than I did when you were here and alive. Your brothers had basketball playoffs. They were the…
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Today is 22 months since you left this world.
Ronan. 22 months seems impossible. 22 months seems like a joke. 22 months does not seem real. We all miss you so much. Today, is also Macy’s birthday. I know you would not want me to be sad on this day. I know if you were here, we would have woken Macy up by calling…
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I love you
I watched this video a lot yesterday. It only added to my breakdown. I miss your squeaky little voice, so much. I love you, Ronan. I’m so sorry. http://www.youtube.com/watch?v=T3HsDsrBwb8&list=UUDEakKuXcCmFO8KnT4FdmBQ&index=17
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A bedtime song for you and your Poppy sister, too
This is the song your daddy has mastered for your Poppy sister. It sounds beautiful. You would have loved it. I’m tired tonight. I had a hard day. An o.k. night due to being with good, old friends and watching your brothers rip it up on the basketball court on this rainy night. Wish…
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Rain, Rain, Don’t Go Away… and Please Don’t Let Poppy Be Born Dead
Ronan, It’s the middle of the night, and I can hear the rain. It’s pouring down outside. I just went to check on your brothers, and in doing so, I have to walk past your empty room. I peeked inside. Nobody was there. That reality never gets easier. I think I lost my shit yesterday.…
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You Know What Is So Totally Awesome About Cancer? Fucking Nothing
Ronan. Today, I was sitting at my kitchen table pounding out emails, mailing bracelets to people, and missing you. A new email came in, and it was an update from your old roommate at Sloan Kettering, Phoebe. I still check in on her every once in a while. I still try to see her mom…
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I heart my Tweethearts. They are insisting that I post this. I shall listen.
I wasn’t going to pimp this because I feel like you all work in a sweatshop for me or something but my die hard Twitter fans are demanding that I do so. I’m going to post this for them. They truly are the sweetest and have been voting like mad. It’s another blog contest I…
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Current Obsession? This song. Which is from my other current obsession, the HBO show, GIRLS.
http://www.youtube.com/watch?v=UxxajLWwzqY
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I Think I’m Supposed to Be Nesting. I’m Not.
Ronan. I miss you so much, but isn’t that always the case? I think I am supposed to be nesting now. That is the term used for when you get everything ready for the baby that is coming. I think I am still avoiding nesting, as I cannot seem to get a single thing…
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A Date Where No Pants Are Required
Ronan. Another week done. Another week closer to your baby sister’s arrival. A lot happened this week for nothing happening at all. I’ve spent most of the week doing I don’t even know what. Taking care of your brothers has kept me pretty busy. I feel like I’ve poured everything I have into…
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This is all thanks to you and your votes! Rockstar Ronan won! Thank you!
http://www.parents.com/parenting/better-parenting/advice/parents-blog-awards-finalists/#page=3
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I Have a Chronic Illness and It’s Called Sadness
I had big plans today. HUGE plans. I had decided on them last night while I was in my bed, crying. I thought to myself, “Tomorrow I’m going to do nothing but stay in bed all day long.” I got up this morning, hopped in the shower, and just as I was getting dressed for…
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This explains why I will never support the American Cancer Society. They do nothing for our kids except use them. Making money off of our kids for your huge salaries!?!? NOT COOL!
http://www.huffingtonpost.com/jonathan-agin/friends-dont-let-friends-_2_b_2759403.html
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Grants, Grants, and more Grants.
Do you all know of any grant applications that we need to know about? Our board is currently in the process looking for them to help us build our center and continue to help children in clinical trials.. If you do, I’m kindly asking you to forward anything at all to one of our board…
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I Miss You and Normal Still Hurts
Ronan. Things around here have been quiet. The quiet that is so hard for me. A normal quiet that still makes my skin crawl. You know the normal things that we used to do when you were here. Big breakfasts, family dinners, going to movies, playing sports, watching TV as a family. Things like that.…
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Last Day to Vote is Sunday at Midnight! Let’s do this for Ro and all the kids who deserve to have a voice! The world needs to know that kids get cancer, too!
https://www.facebook.com/parentsmagazine/app_124605674371692?ref=ts
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Thank you, Dr. Jo for this amazing blog post. My spicy monkey is so thankful for you.
http://drjoanne.blogspot.com/2013/02/diagnosis-41107-privileged-dystopian.html
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Your song for the night, Ro. It’s been a while and this was one of your favs.
http://www.youtube.com/watch?v=yFTvbcNhEgc
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I Am in Love with Your Sister and Her Hiccups
Ronan. I have no idea what I did this week. Not only do I have grief brain, I have pregnancy brain to go with it as well. It’s amazing that I can even drive a freaking car. I feel foggy, heavy, sad, tired… this is NOT depression, P.S. It’s hormones, grief, and pregnancy. And…
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WOW! This is all because of you! Thank you so much! For our first marathon, this is amazing!
We are beyond EXCITED to announce that our P.F. Chang’s Rock-n-Roll Marathon and Half “Run Like A Rockstar” Team raised OVER $94,000!!!! Can you believe it? $94,000!!! A special thanks to ALL involved! We are already gearing up for next year!! xoxo
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Voting doesn’t end until February 24th and you can vote once a day! Thank you! xoxo
https://www.facebook.com/parentsmagazine/app_124605674371692?ref=ts
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