Health
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A winking kind of weekend
After a whirlwind of a weekend… it’s now just Ronan and myself snug in our bed. I don’t even know what went on this weekend except it was lovely. And a blur. We had a weekend full of non stop fun, laughing, eating, walking, crying, and fighting (3 boys, it happens). In other words, it…
arizona, bullshit, Central Park, Chemotherapy, Childhood Disease, Conditions and Diseases, crazy, Dr. Brian Kushner, Dr. Modak, faith, Family, Flirting, friends, Health, Hospital, maya thompson, Music, Neuroblastoma, New York Miss Macy, Pacific Northwest, Phoenix, rain, Ro baby, Rockstar Ronan, ronan thompson, sadness, Scans, sloan kettering, Star Wars, strength, target, tears, twins, United States, winking, woody thompson -
Freeeeeeeedom!!!!!!!!!!!!!!!!!!!!!!!!!
4 weeks after being admitted inpatient, Ronan was discharged this afternoon. Finallly!!! It felt so good to get my baby outside in the sunshine and it was the most gorgeous New York City day. Woody came and picked us up to help with all of our things. We had so much stuff to carry out…
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You must have been a beautiful baby
Ronan’s counts are still rising. He had a great day. I came to the hospital this afternoon with Liam and Quinn. The 9th floor blocked off the playroom for us so Ronan could play with his brothers. We stayed in there for about 3 hours and the boys played their little hearts out. The twins…
angels, anger, arizona, asspole, AZ, baby blue eyes, bath time, beautiful boy, best friends, birthdays, bone marrow, Chemotherapy, Childhood Disease, Crayola, CSI, CT, Dr. Kushner, Dr. La Quaglia, Energy, facebook, Family, Health, Hospital, hospitals, iMac, iPhoto, love, maya thompson, MIBG scan, MRI, New York, new york city, New York Miss Macy, Phoenix, Ro baby, Rockstar Ronan, Scan day, sloan kettering, Star Wars, strength, tears, The Ronan Thompson Foundation, true friends, true love, Twinkle Twinkle Little Star, Twitter, woody thompson -
Ladies and Gentleman….. we have an ANC!
Finally! Ronan’s little immune system is coming back. It was only at 200 today, but it if finally making an appearance. I was starting to get really worried and frustrated. This can only mean good things to come… it means Ronan will more than likely be able to get out of this hospital soon and…
ANC counts, angels, arizona, asspole, AZ, best friends, bone marrow, Cancer, Chemotherapy, childhood cancer, Conditions and Diseases, Delizia’s, doctors, faith, Fernanda Borletti, Health, honesty, Hospital, maya thompson, Neuroblastoma, New York, new york city, New York Miss Macy, nurses, pizza, Ro baby, Rockstar Ronan, sloan kettering, Spirit Hoods, Star Wars, twins, woody thompson -
24 crazy hospital nights! Somebody bust us out of here!
I feel like I’ve been on a roller coaster of happy and sad today. Happiness came in the form of our dear friend and Tricia’s sister, Sarah, getting a nursing job at Mayo. Soooo proud of you Sar! It also came in the form of my beautiful cousin, Shannon, getting a full ride to…
“The Team”, anger, arizona, AZ, baby blues, best friends, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, College, Conditions and Diseases, Dr. Brian Kushner, Dr. Modak, dreams, Energy, Family, Health, homesick, honesty, hospitals, kids, love, maya thompson, Mayo Scottsdale, Memorial Sloan–Kettering Cancer Center, mom’s, Music, Neuroblastoma, new york city, Night Nurse Alex, phoenix children’s hospital, pizza, Rockstar Ronan, sadness, Shannon Bade, Superheros, The most beautiful boy in the world, twins, United States, USD, woody thompson -
Super Ro to the Rescue!
Lazy Sunday. Ronan and I did not wake up until 10:30 here…. still on AZ time. We had both been up late the night before, enjoying the freedom of not having a roommate in our hospital room. Knock on wood. Still no roommate. We woke up, played and Trish came by with some food for…
angels, arizona, AZ, best friends, Cancer, Chemotherapy, childhood cancer, Childhood Disease, doctors, Family, Health, Hospital, hospital laps, Jack Nicholson, laughter, Lazy Sunday, little morning grumpy pants, maya thompson, Neuroblastoma, new york city, Nurse Jenn, Rockstar Ronan, sloan kettering, Stanley Hotel, Star Wars, tears, The Ronanld McDonanld House NYC, The Shining, The Stanley Hotel, tricia tinney, twins, woody thompson -
Welcome back, hospital insomnia
Beeping machines. Check. Headache. Check. Cold hospital room. Check. Missing Woody. Check. Hospital insomnia back. Check. Check. Check. Where does this leave me? Miserable. With a foggy head. I really, really, tried to go to sleep without my sleepy meds tonight, because I thought I left them at the RMH. I’ve lain awake for 3…
Ambien, angels, anxiety, arizona, AZ, beauty, Beeping machines, Cancer, doctors, faith, Family, Fernanda Borletti, friends, friendship, good parents, grumpy maya, Health, honesty, insightfulness, insomnia, Jet Blue, life, maya thompson, Missing Woody, Mother, Mr. Sparkly Eyes, New York, New York Miss Macy, nurses, obsessing, Phoenix, reality, Ro baby, Rockstar Ronan, ronan thompson, sick kids, sloan kettering, STFU, strength, tears, The Ronald McDonald House, true love, trust, woody thompson -
I wish Neuroblastoma was an April Fools’ Joke
Last night, I left Sloan beyond beat due to our traumatic day. Woody came and met me and we swapped places so I could sleep at the RMH and spend a little time with Quinn. As soon as Quinn and I stepped outside, we were hit by all the rain. I wasn’t prepared at all……
angels, April Fools’ Day, arizona, ballet flats, best friends, bone marrow, boys, Cancer, Cartoon Network, Chemotherapy, childhood cancer, Clone Wars, Conditions and Diseases, courage, Delizia’s, Dr. Kushner, Energy, faith, Health, honesty, love, maya thompson, Mr. Sparkly Eyes, new york city, Phoenix, Pizza Party, radiation, rain, Rockstar Ronan, sloan kettering, Star Wars, strength, The Ronan Thompson Foundation, Today (NBC program), tough love, woody thompson -
What else do you have for us, world???
I’ve done so well these past few days. Enjoying Ronan feeling better, enjoying Quinn, enjoying Woody, just living life being so thankful for what we have in the here and now…. trying not to worry about the future or what tomorrow may hold. Living in the present, in the moment, and nowhere else. It’s days…
Anesthesia, anger, arizona, best friends, Blood donation, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Conditions and Diseases, doctors, Dr. La Quaglia, Family, fuckyouyoufuckingassholecancer, Health, homesick, maya thompson, Mediport, Memorial Sloan–Kettering Cancer Center, Neuroblastoma, new york city, nurses, pain, Phoenix, Phoenix, Arizona, reality, Rockstar Ronan, sadness, screams, tears, true love, woody thompson, xrays -
Sometimes it takes a really good fall to know where you stand
Where have I been the past 24 hours? Dead. Or the closest I’ve ever felt like dying. Yesterday, Dr. Kushner came to see us and we got the news that Ronan’s bone marrow is now longer clear of Neuroblastoma. All 4 sights from his scans a couple of weeks ago here are positive which explains…
Advil, Ambien, anger, bone marrow, bullshit, Cancer, Chemotherapy, childhood cancer, Childhood Disease, Coconut Water, Conditions and Diseases, Dr. Kushner, Dr. Modak, Ed Lynch, Energy, faith, Family, friendship, FUCK YOU FUCKING CANCER, happiness, Health, honesty, Jet Blue, kids, life, love, maya thompson, Motherfucker, Mr. Sparkly Eyes, New York, new york city, New York Knicks, Phoenix, raw, reality, Rockstar Ronan, sadness, Starbucks, this too shall pass, twins, woody thompson
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