Super Ro to the Rescue!


Lazy Sunday. Ronan and I did not wake up until 10:30 here…. still on AZ time. We had both been up late the night before, enjoying the freedom of not having a roommate in our hospital room. Knock on wood. Still no roommate. We woke up, played and Trish came by with some food for me and to sit with Ronan so I could go and shower. I got out for a few hours and just caught up on some things, organized our room, packed my bags, and showered to get ready to return to the hospital. I had to pack up more than normal, as I won’t be leaving the hospital until Woody and the boys get in Tuesday night. Hoping my sanity stays in check without the little breaks I’ve been getting. I’ve got to stay strong for Ronan and it is only a couple of days. I am hoping the walls of “The Stanley Hotel,” do not start to cave in with visions of Jack Nicholson saying to me, “Heeere’s Johnny!” I don’t need any Johnny sightings.

What a busy day! After Trish left, which was awful but I held it together. I sat with Ronan and ended up bawling. I wasn’t intending on the waterfall of tears today but they came and I let them. Ronan sat quietly and watched me cry. He asked why I was sad and I told him because I was going to miss Tricia. He said he was too. After I pulled it together…. I don’t even know where the time went today. We did our normal routine of his bath and his Star Wars guys bath. We played everything I could possibly think of. We colored, brushed our teeth for a long time, did some laundry at the hospital, and waited for Ronan’s sweet nurse, Jenn to arrive. Ronan LOVES her. She is so so so so good with him. So thankful. It’s hard enough to be away from home but we are starting to form our little bonds here. Slowly but surely. Ronan is very careful about who he let’s into his little world. Jenn has passed the test with flying colors. She thinks Ro is the funniest, cutest kid on the floor. I couldn’t agree more 🙂 He is always messing around with her and playing jokes. He just may end up being a comedian when he grows up. The things that come out of his mouth are a riot.

We did our laps tonight around the hall for about an hour. We dressed up like superheros, took our guns and shot everyone in sight. Ronan was very animated and our entire mission was very detailed. He had very specific instructions on what exactly I was to do, and I was told I had to follow his lead in everything. I was more than happy to agree. After our laps, we came back to our room and did facetime on our phone with Woody, Liam and Quinn. It was so good to see my family and talk to my boys. I miss them so much. Tuesday cannot get here soon enough, for both Ronan and myself.

Our week is a busy one so hopefully it will go by fast and hopefully Ronan’s counts will start to rise and we can get the heck out of here! The big boys arrive Tuesday night, we have scans Wednesday/Thursday, and New York Miss Macy arrives Thursday evening as well. She is so excited that Woody and the twins will be here. I told Quinn tonight that his girlfriend was going to be in town and he just started giggling. I think he may have a little crush 🙂 My friend, Ellen and her daughter, Phoebe, are going to be at Sloan tomorrow for a check up so we will be seeing them as well. I cannot wait to give Phoebe a big hug. I haven’t seen her since December after she had finished her 17th round of chemo and she was finally discharged to go home. I just hope little morning grumpy pants decides to be in a better mood so we can have a nice visit with them.

Party room time is over. We are just now getting roommates. The privacy was fun while it lasted. We took full advantage of it. Ronan is still awake and it is after midnight. He is quietly playing Star Wars in his bed. I wonder if we will ever adjust to the 3 hour time difference. Makes no difference… it’s not like we really have a schedule.

Alright my friends. I’m going to try to get my little monkey to bed. I hope you all had a great weekend full of lovely things. Thank you for checking in on us. Thank you for loving our Ro. Sweet dreams!

xoxo

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6 thoughts on “Super Ro to the Rescue!

  1. Farrah

    Good Morning!
    I am so glad to read that Ronan seems more like his self, and that his pain is so much better. I have been praying daily for his pain to cease. Love, love, love the superhero getup. Superman and Batman got nothing on Ronan! Hope you all get to enjoy much needed family time, and I will praying for good scan results. Sending lots of love and prayers to NYC!

  2. Glenda

    Love the picture of Ronan as superhero.
    So happy for you and your family that you will all be reunited tomorrow.
    Glad to hear Ronan’s pain is under control and feeling himself.
    Stay strong and fight on!!!

  3. Marquita Ward

    Lord continue to fill the needs of this lovely family and make sure You give them more than enough faith to get through each and every day. Let them feel the love and affection You have for them. Strengthen their hearts and minds with Your peace. In Jesus name amen.

  4. :)

    You know what still makes him a super hero? It’s not the cape or the mask. It’s those tubs, because only super heros can handle that♥ And angels, too.

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