ROCKSTAR RONAN

I’m not sure what exactly has been going on lately. Do I dare say it as I feel like I’m jinxing myself? I’ve been feeling really happy. Like, really, really, really, happy. Not a lot of tears, not a lot of sadness, just a feeling of complete and utter happiness. I cannot remember the last time I’ve felt this way. I’ve taken this hospital thing and totally turned it around. I’m making every second that I am here with Ronan as fun as possible. We have done so much playing and laughing. Nights are the best around here. especially tonight. Tonight, we have our own room. It’s a miracle! We have taken full advantage of it too. We had Trish come over for a little while, until Ronan kicked her out. After she left, we played Star Wars and guns. We ichatted with Woody, Liam, and Quinn. We danced to some silly Star Wars thing on YouTube. We bathed his Star Wars guys and Ronan took a bath himself. Or as much as one as he could. We cuddled, snuggled, and made a fort. He stayed up super late and is just now starting to drift to sleep. I know a lot of this happiness is coming from me watching him get “better.” His pain is almost entirely gone in his arm and you have no idea what a relief that is. Seeing him hurt like that was one of the hardest things I’ve ever had to watch. I know we have scans coming up and I know it is going to be tough, but I really feel like we are going to see something positive come out of them. I feel like he is on the right track and we can start moving forward. I have nothing to base this on…. lord only knows what could really be going on in that little body of his. It’s just a feeling I have and that in turn has a lot to do with my happiness. He just looks SO great. So much like his old self. I cannot get over how strong of a little boy he is. His strength amazes me more and more everyday. I certainly do feed off of him and the way he is feeling. He is happy right now so I am happy. It is very simple.

I’m also basing a lot of this happiness on just being in New York. Don’t get me wrong, I miss my twins, my hubby, my home, and my friends, so much. But if I have to be anywhere else in the world; this is where I want to be. I feed off this city. All of the running I have done has really been helping me too. It is so therapeutic to me. There is just something about pounding the pavement and getting out all of my aggression in a way is a healthy outlet for me. Many times while I am running and if a hill becomes too hard or I get a cramp, I make myself push right though it. I like to picture Ronan as a teenager running beside me and me trying to keep up with him. I envision these things a lot. I also think about all the pain he has gone through and if I start to feel tired or sore, I know it is nothing compared to what he has gone through, so I just keep going. He is so inspiring to me and I refuse to give up on life, on running, on my relationships, on myself. I will keep pushing forward for him. Woody is very surprised at how well I am sounding lately. I told him not to hold his breath, as I know it can change in an instant… but for now I am just doing the best I can in this very moment and nothing more. A good day is cherished more so than it has ever been in my life before all of this.

Trish came over today and stayed with Ronan for the day. I went back to the RMH, crashed in bed for a while due to the 3 hours of sleep I had gotten the night before. I then got up, showered, and ran down to Starbucks with my laptop to catch up on some things. I ordered my coffee…. the place was packed with nowhere to sit so I went to the nearby neighborhood pub. They have WiFi so I sat in there and drank my coffee. My friend Barbara called me and said she was on her way home and I should stop by. She has an apartment right across the street from the RMH. I told her I’d be right up. When I arrived, she wasn’t home yet and I was greeted by her lovely husband, Stewart and their adorable little dog, Uno. I plopped on the couch and was surprised at how at home I felt. I talked with Stewart for a while and a few minutes later Barbara came busting in the door as excited as could be. She had just taken a family to buy a new stroller for their 3-year-old little girl who is staying at the RMH house. Super sweet family and their daughter Brooke was absolutely darling. She has Neuroblastoma as well. They are here to have Dr. La Quaglia do her surgery on Monday. I told them they were as close to God as they could get with that man caring for their daughter. He is the next best thing. They soon left and I sat on Barb’s couch and talked with her for a bit. I did not want to leave and totally could have stayed there forever. It was so cozy and comfortable. I am so glad she is right across the street from us. Makes me feel a lot less lonely here. She is so welcoming and warm. A true New Yorker with a heart of gold.

It’s people in the world like Barb that make me feel like I am going to be o.k. in this city. I will find my way, meet new faces, and build my new little world of helpers here. It will take time but I’m on my way. There are so many nice people in this city. I’m not scared, intimidated, or overwhelmed. It just feels right. It just feels like my second home.

Tricia is leaving tomorrow. Let the tears begin. I wish I could keep her with me here forever. It is so good to be together. She will be back though and I know all I have to do is say the word. Woody is flying in on Tuesday and I called him today to see if her could please bring the boys’ with him. We talked to their teacher and she said it was fine. Ronan misses them so much. I miss them so much. We need to see them. They will come out with Wood Tuesday night until Sunday. It’s is going to be so wonderful to all be together. I’m going to turn my little Liam into a New Yorker after all:) The scan days are going to be hard with them here, as those days are always very intense but we will make it work.

Getting sleepy now and Ronan is passed out cold. He played hard today. Sweet baby boy. I hope you are all having a wonderful weekend. Thank you for checking in on us. G’nite dear friends!! We love you!!

xoxo