Finally! Ronan’s little immune system is coming back. It was only at 200 today, but it if finally making an appearance. I was starting to get really worried and frustrated. This can only mean good things to come… it means Ronan will more than likely be able to get out of this hospital soon and enjoy some freedom. They are not giving me a discharge date yet… but I am pushing for tomorrow. I have not heard what time his scans will be tomorrow and am waiting to speak with one of the doctors. I am trying not to get too nervous… but these scans have to show us good news so we can figure out what our next step is as far as Ronan’s treatment goes.
We have played non-stop today. It was a big arts and crafts day in our room. I went on a hunt and found us everything I could find to let us make a mess and have some fun in our room. We got messy with glue, paints, markers, stickers. We have been up and about a lot and I even got our nurse to unhook Ronan from his “asspole,” for about 20 minutes so we could run around crazy in the halls. He was so excited to be unhooked and kept telling me it was the best day ever. He is going to be so happy when we finally get out of here.
Liam, Quinn, and Woody are on a plane as we speak. They are landing around 8:00 tonight. It will be so nice to have them here and to all be together. The plan is for them to come to the hospital, sneak in a quick visit with Ronan, and I will take the boys back to the RMH and Woody will stay the night here. I am thinking this is a good idea as I have not been out of the hospital in 48 hours and I am starting the freak out a bit. I need fresh air, I need a shower, I need a full night of sleep. It will be good to spend some time with the twins too. It kills me how much I miss them.
I am waiting to talk to one of the doctors on the floor. I asked our nurse about the scans and she said that they had changed them until next week. 18.104.22.168.1- Remain calm. I told asked her to please get a doctor in here as we were not told about these changes. I also explained to her that Woody was flying in tonight just so he could be here on scan week, which we were told would be tomorrow and Wednesday. After speaking with the on call doctor, she told me that “The Team,” met tonight and decided that they wanted Ronan’s counts to come up some more before doing the scans. Especially since they are doing a bone marrow test. They want his bone marrow to recover more before they go in and test it. I understand fully, but it still is frustrating. But it’s not in our hands so we once again will just have to roll with it. If his counts keep coming up we will do the scans at the end of the week. If not, next week will have to do. It will be fine either way. Woody and the boys are leaving on Sunday but Fernanda will be here Monday-Friday so she can be with me. So thankful for the amazing friends surrounding me and helping me through this. I can’t wait to see her and cannot believe she is leaving her 5 kids to be with me. The thought alone is enough to make me burst into tears. So.Very.Blessed.
Woody and the boys arrived safe and sound. They came directly to Sloan and Ronan and I sat in the lobby and waited for them in front of the elevators. He was so excited to see his brothers and Daddy. It was a quick reunion, as Liam and Quinn are not allowed on the floor. I grabbed my things, kissed Woo and Ro goodnight, and headed out for some much-needed fresh air and time with my favorite twins. We dropped our bags off at the RMH and then I took them to get something to eat. I was worried that Delizia’s was going to be closed, as it was already 11 p.m. I was happy to find out they stay open until 1 a.m. My kind of place. I sat with my two boys and listened as they chatted away. They had so much to say tonight and I was in heaven. I had my usual soup and they both chowed down on pizza. While we were in the middle of dinner, I had remembered that I forget to leave Woody saline solution for his contact lenses. I texted him to ask if he needed his things and he said he did and that he was hungry as well. I told him that I would bring him his things and pizza. The boys and I gathered up our things and went back down to Sloan to drop everything off to Woody and Ro. We had such a good time on our rainy and windy walk there. No complaints at all from my little men who were beyond tired; they were just happy to be with me. I so felt the love tonight. I love my Liam and Quinn so much. I miss them so much when I am away for so long. This is going to be a good week. Quinn was so excited talking all about New York Miss Macy coming into town. Liam goes, “Who’s Macy?” Quinn’s response was adorable. He goes, “You don’t know who Macy is?! I can’t believe you don’t know who Macy is. She’s one of mom’s funnest friends.” I was dying at his response. It’s like Macy is a celebrity in his eyes and everyone should know her. Beyond adorable. I can’t wait to spend some time with her this weekend with my boys. Wooddawg is excited too. Spirit Hoods will reunite!!
I’m all tapped out tonight and I’ve got Quinn in bed sound asleep beside me. Liam is in the bed next to us passed out as well. It’s pouring down rain here and that is my favorite thing in the world to fall asleep to. Hoping for some peaceful dreams tonight and to get a full nights sleep. We shall see. Sweetest dreams to you all. Have a beautiful day tomorrow. Love you. Go Ronan’s ANC!!!!
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