Hi. I’m in L.A. I like it here. Little 3,4, and 5 year old boys, who look like you, do not exist on Venice Beach.

Ronan. It’s been almost a week since I posted last. I know this usually means I’m in a dark space; but for once this has not been the case. It’s not that I have not been thinking about you, every waking second, because I have been and I always am. I guess I just needed to give myself a little break so I could survive the last week of Coronado Island of 3,4, and 5 year olds, everywhere. Your daddy made it in time to spend the evening of Father’s Day with us. Macy filled the role of the surrogate father for the day and as always, did an amazing job. She was supposed to fly home on Sunday night, but somehow I talked her into staying an extra day. It had nothing to do with the lazy day we spent laying on the beach, soaking up the sun, either. Well, o.k. that maybe had a little something to do with it, but I also know that she could sense that I needed her and she did really want to spend some time with your daddy as well. It was an o.k. day. We made it the best we possibly could for your daddy. It was hard to look into his eyes though and see the pain pouring out of them. A father should never be without any of his children, on Father’s Day, but your daddy, most of all. He is too good of a daddy to have to carry this never-ending pain around. I’m always so sorry and so sad for him. I don’t know that I’ll ever be able to look at him again and not see the constant sadness that fills his eyes, even when he is smiling. I know those eyes all too well as they are a reflection of mine.

The rest of the week was pretty low key. Lots of beach time. A little surfing. Some running. Basketball. A movie. Sleeping. No Ambien for me for a couple of weeks now. Dr. JoRo will be proud of that. I’m kind of proud of that too. I got a text message on Wednesday from our lovie, Charisma. It was more like, “OMG. When are you leaving San Diego? I can’t believe we did not meet up! Wanna make a trip to L.A. to see me?” You know how I LOVE spontaneous plans. I texted her back. “Yes. Let me work my magic. I’m sure I can figure something out. I’m supposed to go back to AZ on Saturday, but let me talk to Woody.” I got home and told your daddy about what had come up. I think I spun it to him as, “Wooddawg. If I don’t go to L.A., who knows when I am going to get to see Charisma again and it’s already been way too long. She’s leaving for Austin to shoot the new series she just got picked up on, to become a regular. I NEED to give her a congrats hug and see my friend.” It didn’t take much convincing on my end. I offered to take one of your brothers with me as they could use the time apart anyway. Of course your Quinny chose to go with me and Liam chose to stay with your daddy. Quinn cannot seem to be separated from me and Liam seems to be stuck to your daddy like glue. Quinn and I hopped in the car super early on Friday morning to drive to L.A. It was a reunion that showed me much too much time had passed since I had last seen my friend. The last time I spent with her, was when she came out for your services and you know I don’t remember any of that. I’ve really missed her.

Quinn and I arrived and it felt so good to get the frick out of Coronado, and a change of scenery. There are no 3,4,5 year old boys, roaming around the streets of L.A. who all look like you. We spent the day at Venice Beach. I soaked up a day of sunshine with Charisma while your brother and D surfed. I soaked up the homeless bums who filled the boardwalk of Venice Beach. I caught up with my friend. I breathed. I exhaled. I needed to, otherwise I was going to burst. We had a nice lunch and an even better dinner at some to die for Mexican food restaurant. Everyone is snug as a bug in a rug now and sound asleep. All except me. My thoughts are swimming with all there is to do. How much I miss you. The awful way I left your daddy today which was which one of us, was going to take Ronan home. Which meant, who is taking your urn home full of your little body. Your daddy did. I took your GiGi with me, instead. We both felt you would be safer with your daddy. The fact that this conversation is now part of our normal lives leaves me sick to my stomach in a way that I am too tired to explain tonight. I’m getting sleepy. It’s 3 a.m. I mainly just wanted to check in. I know how my lovely little blog readers get when they don’t hear from me, for a while. They worry. They are the sweetest and I am thankful that they care so much. I am o.k. And for me, o.k. is as good as it gets. I am happy to have spent today in the presence of someone whom I think, hung the moon. You don’t get much better in life, than my dear friend, Charisma. She reminds me of all the pain in the world, while pointing out the beauty as well. She reminds me that they can coexist in a peaceful manner. She makes me laugh with her crazy car dancing and with her, the smiles are always true. There is no faking or forcing. There is no judgements or disappointments. There are only journeys and love. I like my world when I am with her. It gives me the break that I know I need and I know I deserve. She loved you so much.

I love you, Ronan. So much so, that I know we are going to do everything it is, that I want to do for you. I don’t care if it costs 150 billion dollars. You cannot put a price on our love and the power it has to change this cancer world in the way that it so desperately needs to be changed. I miss you. I love you. I hope you are safe. G’nite baby doll.

xoxo

Hello, 3:43 a.m.

 

Ronan. I am finally getting tired. I might be too tired to write so I’ll just say this. Wes Anderson is a genius. End of story. Officially the shortest post ever. I miss you. I thought about you a lot today. It’s hard not having you here, to do everything, that we did. I miss your laugh, so very much. Sweet dreams baby doll. I miss you. I love you. I hope you are safe.

xoxo

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New friends and extra lipgloss

Ronan. Now matter how low I get or how bad things sound, the bottom line is I will always put on lip gloss to go meet another cancer mom and her babe. That is what happened today. I got up out of bed. I spent the morning cleaning and doing laundry, getting things spotless for my sanity and Macy’s arrival. I showered. I dressed. I had planned to take your brothers to a movie during the afternoon. I checked my FB which I don’t really do, that often. I saw I had a bunch of messages on it. I only clicked on one. It was from another NB mom that lives in California. She reached out to me a few months ago, saying they were in Sedona and wanted to know if I would drive up to meet them. I told her of course, but our plans fell through due to her older boy getting sick. I hadn’t heard from her since, until today. Her message said she knew this was last-minute, but she was in San Diego for her little guys treatment and was wondering if I would like to meet up for a bit. I hesitated for a second, but then messaged her back and said of course. I went in and asked your brothers if we could skip the movie to meet up with this little boy and his mom. They both said, o.k. They are such great boys. They both asked a lot of questions. Who was this boy? How old was he? Did he have the same kind of cancer, as Ro? Does he have any brothers or sisters? Where does he live? I didn’t know much, but I answered them the best that I could. We piled in the car and drove off to meet our new friends at the train museum.

Ronan. Today was the best day that I have had in a long time. It’s during times like this, that I know you are still around. You could not have picked a more perfect day, for me to do the things I did today. Just when I am feeling in such a slump and so freaking sorry for myself, you give me a gift like today. A day where I got to hang out with the sweetest little 3 and a half-year old who reminded me so much of you. Where I got to look into his mama’s eyes and it was an almost unspoken conversation. I saw eyes that reminded me why I have to continue to do, what it is that I am here to do. I needed a good reminder and today I got all that and more. This mama looked at me a few times and asked if I was alright. If it was hard for me to be there, with her little boy. I just smiled and told her, “No.” I do really well in the cancer kid world, Ronan. I do much better in it, than the normal world that is so foreign to me now. This world fills me with a peace and comfort that I cannot explain. I spent the day with your brothers, Teddy, and his most beautiful mama. We looked at trains. We chased balls. We held hands. We laughed. We giggled. I felt alright. I felt alive and brave and I got all of this from a little boy who has the weight of the world on his shoulders, but you would never know it by the look on his face or the laugher that filled the air. I listened to him say things like, “Come on my friends!” as he reached for your brothers hands. I got to hold his little hand while we were crossing the street. I miss little hands, so very much. I talked to his mom a bit about what they have gone through. I listened to her words and the way they have had to fight for everything as far as Teddy and his treatment. The way she is the one, presenting studies to the doctors, demanding scans when they don’t want to do them, and answers when nobody wants to give them. I know I can fix this world and make it better for these families. I am more motivated than ever, to get this done. I have the vision. I have the dream. I will make this a reality. I will make this world less scary for these families. Today was a reminder that I cannot give up. That I need to stop feeling so sorry for myself because there are people out there who are here, fighting and who deserve better than what it is that they are getting. I know without a doubt, what it is that I am here to do and why. It’s what you would want. It’s what we should have had. It’s the reason why I can’t stay in bed and not wear lipgloss anymore. I’m not giving up on this world, these kids, or these families. I may take a few days here or there, to slump down into a really dark place, but I promise I will always come back to fight again. Thank you for the reminder today. Thank you, to Teddy and his mom for stealing my heart and giving me back that hope word just by looking in their eyes. That’s what I saw when I looked into their eyes today, Ronan. Eyes filled with such hope that I have decided I cannot ignore this word any longer. I think I can start to let this word back into my life again. Today, I felt hopeful, calm, and brave. Today, I felt you everywhere. It was a good day.

Macy is here. Quinn and Liam are happy. We all snuggled on the couch and watched a movie. Quinn is sleeping in-between your Macy and I. He fell asleep with the biggest smile on his face. I know why. It’s because he saw his old mom today. The one that can smile, laugh, and be playful. The one that can be brave and who can sit back and watch your brothers and who knows how they are going to go off and do amazing things in this world; all because of you. I can be alright in this life, Ronan because of days like today. Thanks for never giving up on me, no matter how crazy I may get over this never-ending pain. Thank you for giving me a good day, when I needed it most. I love you. I love you and miss you so very much. I hope you are safe. G’nite, little one. G’nite to our new friends, too. Thank you for being brave enough to reach out to me and for being able to see the light, through all of the darkness. The little rays of light, are the two of you.

xoxo

It’s been a no lipgloss past few days…

Ronan. What is this life without you, like? It’s like I cannot remember what happiness felt like at all in my life. This pain is so heavy that I cannot remember it any other way. I try so very hard to remember what it felt like, to hold you after I just had you. I want to remember and feel the happiness that I know I felt, but all that does is bring me to tears for remembering bringing you into this world and watching you leave it, go hand in hand. It’s cruelest thing to experience and feel. I am back in that very dark space of feeling like I am buried alive and I don’t know how I am going to find the air to breathe. I know I go here quite a bit. I imagine it’s hard for others to read about and for those closest to me, to watch me go through. I know all of this. Imagine being me, and feeling all of this and living all of this. Imagine being me and thanking your lucky stars, that you are not.

I did a lot of things today, that consisted of doing a lot of nothing at all. Your brothers had a day with their Mimi and Papa. This left me to my own project solo mission Maya. Mission complete. Mission success? Mission failed? I am still here I guess. Mission still standing, but barely breathing is good enough for me. I had a lot of conversations today. Names shall not be revealed. I said a lot of things. I meant them all.

Phone call number one went a little something like this, but not exactly like this. Ring, Ring!!!!!!

I picked up the phone. I rarely do this for anyone. I pick up the phone for about 4 people in my life, consistently. The conversation was long, so here is the short version.

-Maya. I feel like you are not wearing lipgloss. I don’t know what to do.

I peel my matted hair, off of my pillow. Shit. I think I’m so far gone, that I don’t even realize that I have not really worn lipgloss, in about a week. “Shit! I don’t know how to tell you this, but I have not worn lipgloss in a week. OMG. And, you should see my nails. They are chipped, chewed, and they have been like this, for over a week now. DO NOT TELL FERNANDA.”

-What are we going to do, I don’t know what to do. You know I’m calling Dr. Jo, as soon as I get off the phone with you, right?

“Yeah, I know.” I whispered. Now I am crying. I hate crying into the phone when I am trying to explain to somebody, the reasons that I am not going to kill myself.

“You know what I’ve been doing, since I got here? I’ve been being still (besides the marathon but exercise doesn’t count) I’ve been sitting still, like I know I need to do, and it does NOT feel good. If fact, I feel worse than I have felt in a long time. I know this is part of the process, but I don’t think it’s working for me!”

– This sounds like depression. You distract a lot. You are always doing. This is maybe what you need to do?

“Well, if this is what I need to do, then this blows. This does not feel good or healthy to me. I like being busy when I am doing busy things. It may be a distraction, but I think of Ronan in everything that I do. I hurt in everything I do. But the businesses helps me to survive.”

-Please don’t die. Please put on some lipgloss. Have you been showering?

“Yes. But only because I am hygienically OCD. Otherwise, I would not be. I’m going to go now. I need a manicure and I don’t think I’ve eaten in 3 days.”

-That is not good. Go and eat. I love you, little friend. Know that.

“I know.”

I run out the door as fast as my weary body will take me. I need a taco. And some chips and salsa, asap.

I know I cannot come back here, next year. I came here really only for the sake of your brothers. And because this is our one special thing that we do consistently, every year. We’ve been doing this since your brothers were 2 months old. It’s been our family getaway, our time together, our peace and your daddy’s way of working his butt off, so we can do this great family thing, and feel good about this is the reason why, he works 70 hours a week. I don’t know what we will do next year, but it won’t be this. This family tradition is going to have to change, because our family is no longer the same. All I want to do here is sleep and cry and sleep and cry. I have no motivation to do anything at all. After an exhausting day of doing nothing, I got your brothers home and spent a few hours, hanging out with them. They both drifted off to sleep fairly early. This leaves me alone, in the dark, watching them sleep. I pray to you for a long time. I close my eyes. My phone rings. I feel a real smile come across my face when I see who it is, that is calling. I am aware when real smiles happen in my life now. It’s as if you are putting them there. My real smile, makes my heart float. I pick up the phone.

-Lover!!!!!!!! Do I get to see your face tomorrow?” purrs the voice on the other end.

“Hi, Macy. Please tell me you are coming tomorrow. Please. We can’t wait to see you.”

-I can’t wait to see you all! I miss you and the boys so much!!

“It’s all Quinn and Liam have been talking about. I am going to feed you a lot of hummus, coke and candy.” (that’s all we lived off of, last summer)

-I will see you tomorrow! Give Q-dub a squeeze for me, since I know he’s right there.

“Goodnight, Macy. I love you.”

I hang up the phone. Macy will be here tomorrow night. Macy will make everything better for a few days. Macy is the life raft I need right now. I am thankful. I fall asleep with a smile on my face.

Tomorrow is here. Happy New York Miss Macy Day, to me. Today is guaranteed to be a better day. I love you sweet boy. I miss you. I hope you are safe.

xoxo

Can someone print that picture below for me, and put it on a tee-shirt. I think I would like to wear it, everyday, for the rest of my life.

Ronan. Day over. Almost. I was a good mama today. I got the boys up and ready. I said, “Do you two want to go to the zoo today?” They both did. I tried to let me feet do a happy dance but really my heart dropped to the floor. O.k. Zoo. Without Ronan. You can do this. And do this I did. I packed those little brothers of yours, up in the car and off we went. We saw Lions and Tigers and Bears, oh my! But no Ronan. I still looked for you, everywhere I went. We walked around the zoo for a good 3 hours. At the end of our adventure, we stopped to watch the spider monkeys. Quinn ran over to them, before I could get there. “MOM!” he yelled. “That monkey is eating the others monkeys butt!!!” OH.MY.GOD. I walked over, to inspect the situation. Sure enough, that was the case and Quinn could not stop laughing. Liam started gagging. Other people came over to see the monkeys. Everyone yelled out something in disgust. I told your brothers how you would have went crazy over the little monkeys disgusting grooming habits. You and Quinn would have had a field day with what was going on in front of us and lasted until I seriously started to get sick to my stomach and had to tear your brothers away from the spectacle. We drove home with Quinn still giggling. Liam was just confused and didn’t really think it was funny at all.
We got home, I fed your brothers lunch and offered to take them to the rec center to play basketball. As soon as we were about to go to the gym, Quinn looked at me and said, “Mom, I don’t feel well.” The next thing I knew, he was puking in the bushes. I turned us around and took everyone back home where I laid Quinn down for a nap. I told him I had a sneaking suspicion it was the pound of Kettle Corn that he ate at the zoo. Sneaking suspicion was right as he is totally fine now. While Quinn was curled up in bed, I was trying to find the basketball game on T.V. for him. He was flipping through the channels. He stopped on MTV’s, “Teen Mom.” I told him to keep flipping the channels, that this was not the basketball game. “What’s Teen Mom?” he asked. UGH. Really, MTV? I might hate you and your Teen Mom show. “Ummm… it’s a show, about young mom’s who have babies.” “Why do teenagers, have kids, and then get a TV show about it?” he said. “Quinn, that is a really good question. Because society is stupid and likes to watch crap like this. Please change the channel.” He did. Thank god. Otherwise the remote control was going to get thrown through the T.V. I don’t watch T.V. EVER anymore. That Teen Mom show, makes me hostile. It is everything that is wrong with our stupid society and the way it glorifies all the things that do not deserve to be glorified in this world. Being 15, having a kid and then becoming “famous,” for it, is RIDICULOUS! It makes me angry and is one of the biggest reasons I just cannot watch TV anymore. Too much stupid shit being put out there, that our society seems to be obsessed with. I turn on the T.V. rarely anymore. I don’t watch the news, therefore, I have no idea what is going on in the world. The noise makes me anxious. The stories make me mad and my skin crawl. T.V. quite simply is of no comfort to me, whatsoever. I miss the days when I used to be able to get lost in the world of Jeff Lewis from “Flipping Out.” I miss Jenny and Zoila. I miss my friends from “Law and Order.” But most of all, I miss the days of snuggling up with you to watch “Mickey Mouse Playhouse,” “Clone Wars,” or “Glee.” Maybe that’s why I hate T.V. so much now. Because that was our special cuddle time together and now it’s feels so awful to be without you, that I cannot seem to do anything that we used to enjoy. That does not explain my hatred for MTV’s Teen Mom though. Seriously, MTV. Get your shit together. You are embarrassing.

I did not run today. I did not surf today. I spent the day, trying to get lost in your brothers. I don’t know how many times I heard them tell me, “Thank you. Please. Yes, mom. O.k. mom. No thank you, Mom. Thank you for cooking for me, Mom. Thank you for taking us to the zoo, Mom. Thank you for taking care of me when I was sick, Mom. Thank you for the ice cream, Mom.” As much as I love this, what I wouldn’t give to have you here, yelling at me, “NO!!! I am NOT eating that broccoli!” while throwing it across the room. What I wouldn’t give to have you here to push every single button in the elevator, before we got out. What I wouldn’t give to have you here, to do all the naughty things, that you loved to do. I miss your spiciness. I feel lost, without it. I had some random people come up to me the other night, out at the pool. They had been in the hot tub with Liam and Quinn. They must have been around 40. They came up to me after they saw Liam and Quinn, come over to get bundled up in a towel. They looked at me for a minute. The man said, “Are you the mom of the twins?” For a second I thought to myself, “Ohhh, crap. What did they do?” But then I remembered, nothing, because they aren’t boys like that. “Yes, I am.” I replied. “Wow. Your twins are awesome. We just had to come over and tell you how we sat in the hot tub with them, for 25 minutes and we have never heard 8 year olds, talk as eloquently as yours. You should be really proud of them. They are exceptional little human beings.” I just smiled. “Thank you. That means a lot to hear. Today is their 9th birthday. I am really lucky, they are great boys.” The lady looked at me and said, “We are here on vacation, away from our kids. Your boys, really made us miss ours.” It took everything I had to say, “They had a really great brother, too. But he died of cancer. So they have been through a lot, which might explain why they seem a little different than kids their age.” I wanted to say this, but I didn’t want to ruin their night. Plus, I knew if I did, I would not have been able to get my words out, without choking on my tears. I just let the moment happen and the moment pass, while pretending that my heart wasn’t breaking on the inside. I know they would have told me how amazing you were too, if you had been there with Liam and Quinn, like you should have been.

Alright little man. This is all I’ve got, for tonight. I’m sorry you couldn’t go to the zoo with us today. You would have been the wildest animal, there. I miss you. I love you. I hope you are safe.

xoxo

13 months without you and 9 years with Liam and Quinn

 

 

Ronan. Turns out, I don’t do so well, in Coronado. I don’t think I did so well here last year, and I don’t think I’m doing so well here, this year either. It just dawned on me, a few days ago as to why. It dawned on me, while I had been sitting in bed for the entire day, watching one certain video of you, over and over again. The video is of you, when you were maybe almost two. I shot it right out in front of the beach that we have been playing at every single day, since getting here. It might just be one of my most favorite videos I have of you. Where you are sitting in the sand, you take a handful of it, shove it in your mouth and eat it. I yelled to you, “Ewwww, Ronan!!! Don’t eat the sand!” You looked me dead in the eye, and shoved some more sand in your mouth and ate it, again. I love that you ate the sand. I love so much, that you ate the sand, again, even when I told you not to. I cannot come back to Coronado again, next year. I cannot keep coming to the same place, that we used to take you every year, without you. Not having you here, and trying to make all these new memories in the very same spot I spent so much time with you, is not happening. It’s making me sick to my stomach. I keep looking for you in the pool that I used to watch you swim in, the beach that we used to run on, the grass we used to play in, and you are just not here. This is the last summer that we will come here. I cannot do this again.

I have been taking your brothers across the street every day to play basketball. And I’m not the kind of mom, who just sits on the bench and watches them play. I’ve been playing with them. Engaging, encouraging, running, and jumping with them. Doing it all when it takes everything I have, to do all of this. I was doing fine, until a mom came into the empty gym with her 3 boys. An older boy who was about your brothers age and twin boys who looked to be about 3. I was doing fine, until this mom started playing with her 3 boys too. I looked over at them, laughing and shooting the basketball. I tried my best to ignore them. I was getting ready to make a sweet lay-up, and all of a sudden, I felt like I no longer had the attention of your brothers as I could feel their eyes, elsewhere. I stopped what I was doing to see why it was that nobody was guarding me or trying to block my shot. My eyes fell over to Liam and Quinn. They both looked like they were in a trance and were stopped dead in their tracks, watching this mom and her 3 boys. I did my, “Hey, you guys! I’m going to score on you!” But they both didn’t budge an inch. They were totally engrossed in this mom and her 3 sons. I wanted so slit my wrists, right then and there. I tried to throw my basketball so hard into the backboard, that is shattered the glass, everywhere. That plan didn’t work. That glass is pretty resistant. You know what isn’t resistant? The palpable pain in your brothers eyes. The way I swear I could see your reflection, in their eyes due to the way they both miss you, so much. I did my best to distract the situation at hand and it took everything I had not to just stop and scream at the top of my lungs, ” HEY! LIAM AND QUINN! STOP STARING AT THAT MOM AND HER 3 BOYS! JUST STOP! I KNOW THAT SHOULD HAVE BEEN US! I KNOW I PROMISED YOU THAT RONAN WOULDN’T DIE! I KNOW RONAN WAS OUR ENTIRE WORLD! I KNOW HOW MUCH YOU MISS HIM! I AM SO SORRY FOR EVERYTHING! I AM SO SORRY NOTHING WILL EVER BE THE SAME! I AM SO SORRY WE ARE ALL SO SAD AND WE HAVE TO LIVE WITHOUT HIM! BUT PLEASE, STOP STARING AT WHAT SHOULD HAVE BEEN AND WHAT WILL NEVER BE AGAIN! PLEASE! IT’S KILLING ME!” I didn’t yell that. I gathered your brothers up instead and we left the gym. We came home, I fed them lunch, and then they went off to play with your cousins at the beach. I stayed behind and sunk into bed for the rest of the day. I think I’ve been in bed, off and on, for days now. I’ve been going for some runs, here and there. I’ve been surfing a little. I’ve been crying a lot. Quinn asked why I’ve been sleeping so much. I’ve been sleeping a lot more than normal. I guess not as much sleeping, but more laying in bed, crying. I woke up crying this morning. Your daddy wanted to know what was wrong. I told him the same as always, but today my sadness seemed extra heavy. It wasn’t until half way through the day, that I realized that today is the 9th. 13 months now, since you’ve been gone.

Today, is your brothers 9th birthday. I cannot even believe, it’s been 9 years since I had them. They have grown up so fast, in the best and worst way possible. The best being that up until losing you, they had the best life possible. Since losing you, they have had to grow up in a way that one should never have to grow up. They are more insightful, compassionate, and wise beyond their years due to watching their little brother get cancer, and then die from it. I would not wish their wise beyond their years ways, on anybody. We all did the best we could do today. It was actually an o.k. day and your brothers seemed to have a great birthday. Thankfully, they have your cousins here to take away some of the sadness. They spent the day playing basketball, video games, swimming, and now they are all tucked in having a sleepover and watching a movie. We all dropped your daddy off at the airport tonight as he had to go back to Phoenix. It’s always extra sad when he goes. He won’t be back until next week so I’ll have to figure out a way, to find my pretend happiness while he is away. I cannot just lay in bed, crying all day as your daddy is not here to take your brothers off and away so they don’t see that. Thankfully, your New York Miss Macy is coming in on Thursday for a few days. I can be guaranteed some happiness on the days that she is here. She is the sunshine in my life that always makes everything better. The days are less gloomy when she is here. A true gift from you indeed.

This is all I can write tonight. I’m tired from the day. Happy Birthday to your brothers. I am so lucky to be their mama. They are the best things that I have left in my life, besides your daddy. I love you. I miss you. I wish you could have been with us tonight. I tried not to cry as I watched them blow out their candles. Everything they do, is a reminder to me, of what you are not here to do. I’m sorry, baby boy. I hope you are safe.

xoxo

Somedays, the littlest things are too much

 

 

Ronan. Tonight, I am sad. As in, really, really, really, sad. I suppose that was bound to happen, after the build up of the marathon, the actual marathon itself, and now it’s over. I am sad, every single day, but today I just miss you so freaking much. I had a quiet day. Those are the days when I miss you the most, because if you were here, there would have been nothing quiet about my day. I hung out at the beach with your brothers and cousins for part of the afternoon. That pretty much sucked. For as much as I love seeing Liam and Quinn, soak up every single thing that they should be, it still feels wrong to me. I am still constantly still looking for you, over my shoulder. Doing normal things, is still not easy and it still stings. Today, I tried to get lost in the ocean for a bit, on my surf board. Not even that could wash away my pain today. I stayed out only for about 40 minuets. The waves were big and I  kept getting tossed underneath the water, again and again. At one point, I got tossed so hard underneath the water that I thought I might drown; but then I remembered I was wearing my wetsuit. I may have hoped to drown for a few seconds, but my headed popped up above the surface of the water where I could breathe again. Lucky, aren’t I?

After our afternoon at the beach, I brought your brothers back up to our place. I played the role of the best mama ever. I made them dinner, sat and ate with them, did laundry, cleaned up, watched a movie with them, and tucked them both away in sleep, in bed with me. The big huge gaping hole in my heart won’t go away, today. The lump in my throat, won’t go away today. The alligator tears, are never-ending, tonight. Somedays, I get tired of being so strong. Somedays, the screaming questions of why, why, why, are unbearable. Somedays, I get tired of hearing how our story has made people, better people. Somedays, it stings to hear how much of a better mama or daddy people are, because of us. They all get to tuck their kids in at night. I do not. I will not, ever again. Where is my prize? I just want you.

I’m sad tonight, so I’m going to end this now. But I’ll leave this sad little post, with something sweet down below. A little slide show of how I got though May, how I ran a marathon, without training, and how I will continue to get through this life without you physically here with me. With the help of a lot of a lot of inspiring people out there, who remind me that I am strong, even when I think I am not.

I love you. I miss you. I hope you are safe. Sweet dreams, baby boy.

xoxo

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To live with ghosts requires solitude

Ronan. Is the world ending? I have never in my life had a year full of so many awful things happening around me. 2 deaths on Coronado a couple of weeks ago. I don’t know much about what went on, as I don’t watch the news or read the paper anymore. I only heard the whispers of others around me. I heard that the little boy passed away a few days ago. It made me cry. It made me sad. It made me angry for this fucked up life that his parents will now have to go on living, without their little boy. After an awful night of sleep last night, even with my Ambien, I woke up to very sad news. A girl that I had never met, but we had talked via email many times, lost her battle with cancer.  A young girl, around my age. She was married and she wrote an amazing blog about her life, her passion, her strength and her determination to beat it. Her name was Jen and I followed her blog. I don’t follow anyone’s blog, but I stumbled on hers a couple of months after you were diagnosed. I reached out to her, to tell her how inspiring she was, how much she inspired me to keep fighting for you and to never give up. She emailed me back and it went from there. I fell in love with her and her fighting spirit. I told her I was convinced that the two of you, would beat the odds. We tried to meet up in New York City the last time I was there with you, but it just didn’t work out. She was sick and you were sick. She so wanted to meet you and I so wanted you to meet her. I wanted to wrap my arms around her and give her the hug that she deserved. She recently went all the way to Switzerland with hopes that this new trial would make her better. It didn’t work. This is all so unfair. I hope now you get the chance to meet her. I hope you will look after one another. Her service is tomorrow. She loved life so much and wanted her leaving of this world to be celebrated. She wants a dance party for tomorrow. This is what was posted today:

As you are all aware, Jen’s funeral is tomorrow and we wanted to give you some insight into Jen’s last wishes regarding honoring her memory. Jen believed “life was for the living.” She wanted her funeral and any other memorials to be as much of a celebration of her life as possible. In fact, she even wrote of possibly wanting a “dance party!” In that vein, please feel free to smile and laugh as you recall special memories of Jen and please dress however you like. Jen would have loved there to be some color in the room and not have everyone dressed in all black! 
As much as Jen wanted her memorial to be upbeat, she was respectful, however, that everyone mourns in their own way and that there was no “right” way to do so. Please help us honor Jen and her legacy in whatever way you see fit. 
We have cherished reading the tributes written here and on Facebook. Please continue to contribute memories, thoughts and wishes. Those who love Jen have already taken great comfort in your kind words.
PLEASE TAKE THE TIME TO READ SOME OF HER STORIES. HER LINK IS ON THE SIDE OF MY BLOG, UNDER MY OTHER HERO. OR GO TO WWW.YOUFEARLESS.COM
LET’S HELP HER CONTINUE HER FIGHT AND HER VISION. SHE NEEDS EVERYONE NOW MORE THAN EVER TO KEEP HER DREAM ALIVE. I LOVE YOU, JEN. TAKE GOOD CARE OF MY BABY.
Although I didn’t know Jen, she inspired me throughout your journey, Ro. She was all about living a life without fear. She felt, if you took fear out of the equation, you could accomplish anything. I am absolutely sold on what she believed. Fear is for the weak. Fear is for the ignorant. Fear can ruin your life. If there was ever a time that I was feeling defeated, frustrated, mad, or just plain tired, I would often time read Jen’s blog and email her to tell her thank you and how much I believed in the two of you. You two should have both survived this. You two should have both beaten the odds. My heart breaks for everyone who knew her, but how lucky they were. I hope you two have the biggest dance party tomorrow together. She would have fit right in with us and our love for dance parties, Ro. I know you two will take good care of each other. In honor of her tomorrow, I am going to make another music video just for Jen. Get ready for another youtube hit:)

I also found out that one of  our good friends’ brothers, Eric, passed away from cancer yesterday. I spent a summer in Newport with your daddy and Eric when your dad and I first started dating. He was such a gentle soul and I always felt as his eyes were smiling. My heart is beyond broken for his family. I called your daddy tonight and we talked about him going to the services on Saturday. I told him I really think that he should. We both won’t feel right if he doesn’t go. Mark has been a very good friend to us. Your daddy should be there for him. Eric leaves behind a wife and two little boys. I just want to know what the fuck is going on in the world. Two amazing people, just gone. It’s as the world is opening up and swallowing all of these beautiful souls up, one by one. It is beyond unfair. Hey world. I have an idea. Why don’t you take the freaking Casey Anthony‘s of the world instead and leave all of the amazingly good people alone. You are about to royally piss me off and I am on the verge of doing something crazy just to see if I can fucking cheat death and survive the odds. Fuck you world. You can piss off.

I went to Yoga this morning. Yay me! I have been saying I was going to go all summer, but I just haven’t gotten myself to do it. No Yoga fail this morning. Liz picked me up and we headed off to do a class. I was afraid to go this morning. I have been avoiding it. The last time I went to Yoga, was while you were in the hospital. I went and ended up crying pretty much the entire time. It seems to open up a lot of emotions for me. Today, I was o.k. I tried to focus all of my energy on you, Jen and Eric. I tried to stay positive. At the end of the session, our instructor asked us to close our eyes, and to be thankful for the life we had. I had to restrain myself from standing up and screaming at the top of my lungs that I was not thankful for life, because you are gone. I am mad today, sad today, lost today. I don’t know who I am without you. I don’t want to be anybody. I am trying to take these thoughts and make them motivate me. Motivate me to do something amazing for you. I will, because if I don’t, then who the fuck will? Nobody. I have to take these lessons that I have learned and turn them into something good. For the sake of you, and all of the other people in the world who are affected by cancer. Nobody is safe. This can happen to anyone. I still wish this were me and not you. I would still trade places with you in a heartbeat.

So, after I finished Yoga, Liz and I walked to Starbucks. We got a coffee and talked about everything from UFO’s (duh, they totally exist) to my sparkly nail polish that I am obsessed with. Oh, don’t worry….. it was just a nice peaceful stroll back to The Shores when we saw the smoke pouring out of one of the units. Not only was smoke pouring out, but flames as well. And not just any flames, but huge flames, out of the sliding glass doors and out to the balcony. One of the units had caught on fire. It was a big fire and everyone sat outside and watched, took pictures, and video taped it. The firefighters showed up but it seemed to take them forever. Liz and I just looked at each other and both asked what in the world is going on and that is when we decided that the world must be coming to an end. Bring it on. I’m totally fine with that.

Ronan. Somebody told me he thought you were too pure and good for this evil world. I sat with that for a while and I think I kind of agree. I don’t think such an ugly would like this would have known what to do with all of your wisdom, beauty, love, courage, strength, fearlessness, and the brains that you possessed. The world decided that you were too perfect so it had to take you back. I have schemed up so many theories about you and your life. It’s what I do at night while I sit her and think about you. Do I need a higher dose of this Ambien shit? I took it two hours ago and it’s almost 2 in the morning and nothing. Well, I hope it doesn’t have to do with the fact that I am drinking a COKE right now. My only vice in life really.

Not sleeping, mind is still racing. I don’t mind though. As long as your brothers are asleep, and my music is playing, cold Coke nearby, and you are here….. this is my heaven. Thanks for my perfect playlist on Pandora tonight. You have been playing the best songs. Everyone reminds me of you and some of them were our favorites. I hope you can still hear music. You loved it so much. I always play it twice as loud for you when I am running in hopes that you can hear it too.

Alright my little bug. Think I will cozy up with your brothers and try to get some sleep. I love you to the moon and back, Ro. Just you and me. Forever. Sweet dreams. I hope you are safe.

xoxo

 

Love and the Locket

Ronan. It’s days like today that give me just a sliver of hope that I am going to be o.k. That being without you, won’t kill me. I know this because today….. I felt something that I haven’t don’t feel very often anymore. Almost happy.

The morning started off as usual. We woke up around 9 and Quinn had asked to have a day at the beach. We texted Auntie Karen to see if Olivia could meet us. She sent her over and we headed out to enjoy the San Diego sun. We went down to the beach and spent a couple of hours there, being lazy and then we swam in the ocean for a while. We headed up to the pool after we got tired of the sand and the flies that seemed to be everywhere. We spent the next couple of hours at the pool and Quinn and Olivia played their little hearts out. Auntie Karen joined us for a bit and we sat and talked about you. She misses you so much. It felt nice to talk about you with her though. She told me how you will always be with her. I know this. You are part of her and always will be. She will forever be your favorite crazy “old lady.” We still giggle all the time about how you would call her this.

After our pool time, we got ready for the evening. Susie drove over from Mission Beach to see us. Macy, Quinn, Susie, Olivia, Liz and I all walked into town to have dinner. All I have to say is your New York Miss Macy is like chicken noodle soup for my soul. She makes me laugh like no other. Somehow, when we were with Liz a few nights ago, Macy started talking in her fake British accent. It caused Liz and I to crack up because it came out of nowhere and it was so awful. We have been teasing her about this for days now and it has turned into a huge joke. Tonight, we spent most of the evening being loud and laughing, while we all talked in our fake British accents. It was an evening full of taking silly pictures, British accents, laughing until our sides hurt and just having wonderful, innocent, fun. Quinn was in heaven and joined in and soaked up everything that we were saying and doing.

After dinner, Susie had to head out and the rest of us headed down to watch the sunset at the beach together. As we were setting our things down, I took off the locket that Macy bought me last week. She found it at a shop in North Park while we were waiting for our table at a restaurant and fell in love with it. She bought one for herself and one for me. It’s gold, long, heavy and we talked about how we would put a beautiful picture of you in it. It is so gorgeous and has become one of my favorite pieces of jewelry. Just knowing that you are close to my heart and inside of it, brings me such a feeling of peace. I took the locket off tonight and set it in one of my shoes. I ran off and forgot about it as we spent the next couple of hours playing on the beach, doing hand stands and silly things.

As it started to get dark we decided to head up to the Hotel Del to get ice cream. As we got there, Quinn asked to go into the toy store instead. We all agreed as the line for the ice cream was really long and it was hot and stuffy in there. We played in the toy store with him for the next 30 minutes all while still talking in our very loud British accents. We were getting ready to leave and I noticed my locket was not on my neck. I immediately went to my purse to see if I had put it in there. No dice. I panicked and told the girls that I had a slight emergency as I remembered I had set the locket in my shoe at the beach. Macy and Liz stayed with Quinn and I grabbed Olivia to come with me. We rushed back to the beach and tried to retrace our steps as best we could. Luckily, we sat and played by a very big hole in the sand which is how I got us back to the spot to where we were sitting. Turns out, this hole was not as helpful as I had thought because we did set our things down kind of far away from it. I knew was at least a starting point and it was better than nothing. We started searching for my locket and I could feel myself starting to panic. It was pitch black and the beach just looked so big; like it could have swallowed us whole. That is how I felt and right as I could feel the tears to begin to pour down my cheeks, Olivia yelled, ” I found it!” I could not believe my ears. The locket was half buried in the sand, it was dark, but somehow Olivia found it. A wave of happiness washed over me. I hugged Olivia and told her thank you. That sweet girl saved me today. It was such a good day and if she would not have found my necklace, the day for me would have completely been ruined. I know it is only a material thing, but the fact that Macy bought it for the both of us, to keep you closer to our hearts means so much to me. Thank you too, Ro. For helping Olivia tonight. I know that was you. I know you wanted me to have a good day today as you know how much I need that every once in a while.

We all came back up to the condo and I headed out for a quick run. It was late, so I didn’t do my usual route of 6 miles. I did a fast 4 instead. Macy wouldn’t have it any other way because of the fact that it was so late but she knows how I am if I don’t get my run in. She let me go but not before I gave her an exact time of when I would be back. I’ve given her the name of “wife,” now. She is my surrogate Woody. I am going to be so sad when she has to leave tomorrow. I know Quinn will too. He loves her so much. We will see her next week though as she has to be in Newport for a work trip.

This morning Papa Jim sent me a picture. It was of Liam and his first Salmon that he caught. They went out fishing on Papa’s boat early this morning. What a great way to start off my day. He looked so happy and proud of his fish. I was sad that I wasn’t there to see it, but I am so thankful for the happiness that I saw in his eyes today in that picture. He will remember that for the rest of his life.

O.K. baby. I’m going to try to get some sleep. I didn’t fall asleep until 4 a.m. last night and I promised Macy I would try to get to sleep earlier tonight. Quinn is snuggled up tightly in between the two of us. I will kiss him goodnight for you. I miss you so much. Thank you for the love and laughter today. Thank you for Macy. I would have never found her if it wasn’t for you. Your little gifts are everywhere. Sweet dreams my gorgeous boy. I hope you are safe. I love you, Ronan.

xoxo