Fiesta of Tears


Ronan. Hi little man. I missed you so much today. We had a lot of things going on that kept us busy at the beach. I packed the car full of your favorites; Quinny, Liam, Macy, and Nana. We ran a couple of errands and stopped at Costco on the way back home. It wasn’t very exciting, but it was nice to be out. We had to hurry back to get your brother, Liam, packed to go to Washington to see Papa Jim. It was kind of a last-minute decision, but he really wanted to go. I’m trying to look at this as a positive thing, but I am mostly just upset about it. I’m upset in the respect that if you would have been here, we would all be there together. I am upset in the respect that we have to be separated from Liam. It makes me most upset that our family is now broken, damaged, and so sad due to losing you. This is the first time in Liam and Quinn’s life that they have ever been away from each other on a vacation. It all feels weird and wrong. Thank GOD I still have Macy here as well as the Kotaliks. Quinn is getting a lot of time with the girls in and he is eating it up with a spoon. I talked to Liam and he arrived safely. He sounded so excited to be there. Papa Jim will bring him back Sunday night and the will stay a few days with us. That will be fun. I only wish you were here to play with all of us. For a split second, I thought that you would be and I imagined you playing outside with him. But then I remember. The fucking one thing I want not be true…………is.

I hate cancer. I texted that to Mr. Sparkly Eyes tonight. Blubbering about how this is the first time in 14 years that I have not been home during the summer, how it is the twins’ first time being separated during a Washington vacation. How I hated cancer and how I was having a pity party. He replied back he does too and I am allowed to have as many pity parties as I need. He was so sorry. Everybody is sorry and sad. I hate that too. I hate the sadness that people now feel for us. I don’t want people to be sad around us. I want happy back before all of this existed.

Ro. I have to cut this short tonight as my Ambien is really kicking in. Also, that I have Macy and Quinn asleep beside me and they both seem so snuggly. I am tired. I miss you so much, boo. I hope you are safe. I’ll talk to you tomorrow. Please give Esther a kiss for me. Her mommy needs her tomorrow as it has been 2 months since she passed away. Make sure she spends some time with her tomorrow, o.k. Ro. I love you to the moon and back my sweet baby. Time to go into my Ambien coma now. The numbness is the only way I can fall asleep.

xoxo

Ronan. Hi baby boy. I think I started this yesterday. Last night maybe. I can’t really remember. Everything is blurry. I’m not sure how the days have been filled, but somehow they have been. I think a majority of my time is being filled with keeping Quinn busy and happy. Macy is doing a great job of helping me while your daddy and Liam are away. She is here with me still. I am so glad; she makes everything better. Today, we woke up a little late to the blaring sun. We decided to take Quinn out to Carlsbad to go Strawberry picking. We go there every time we are in San Diego during the summer. We were on our way, almost there, but I had to stop for gas. I decided to get a car wash too so we just ran through a little drive through one. We were sitting there and I was telling Macy how you used to love to go to the cheap drive through car wash in Phoenix with me. I remember it like it was yesterday. I started to cry and so did she. Quinn just sat in the back quietly and watched us. Thank god we were distracted by a very minor “the car wash just ate the gas cap of my car emergency,” otherwise, I think we would have both sat there forever, crying. We took care of our situation and headed off to pick our Strawberries. It felt so wrong to be there without you today. I remember the last time we were there, with you. I snapped pictures of you and your brothers in the Strawberry fields together. Today, Quinn was an only child and I watched him as he wandered through the day without you and Liam. It made my heart heavy.

Quinny is stuck to me like glue. And not in a good way. Poor little guy. He cannot leave my side for 2 minutes. This has been going on pretty much since your funeral. It has gotten really bad over here though. I am doing my best to be patient with him as I know he is so scared. I am trying to talk to him about everything as much as possible, but I have mostly just been smothering him with love and attention that he seems to be craving so badly. He worries so much about everything… especially when I leave to go on my runs which is pretty much the only time that I am away from him. We have a lot of work to do when we return back home as far as getting us all into therapy. I am trying my best while we are here to work though things with him, but there is only so much I can do. Having Macy here for as long has she has been has been really helpful with everything. She is so good with me, the boys, with the Wooddawg. She is scared for us though. She told me last night about how hard it is for her to watch us all try to go on with our lives. How unfair this whole thing is and how she see’s the toll it is taking on our entire family. She is watching me struggle to breathe every second of the day. She is watching as I continue to push everyone away. She is watching as I continue to drown. I know what I look like. I know what it looks like from the outside because I often feel like I am watching myself from above my own body. I see myself, from above, all the time. I see myself under the water, trying to get to the surface for air, but I never do. I watch the bubbles reach the top, but never my body. I watch my eyes and I can tell you that I can see them crying the tears I cry, while I’m trying to get to the surface for air. It never happens. I see my eyes, and the bubbles and the dark, black ocean. I see Ronan. I think about this a lot during my runs when I am having a hard time breathing because I am running so fast. It makes me run faster. So does the thought of my “slayer,” attacking me. I daydream about that…. about the day that someone will come out and grab me on one of my runs and they will kill me, but not before I have the time to send Woody a text message saying how much I love him, Quinn and Liam, how they are all my soul mates but I have to go and be with my other soul mate now. Which is you, Ro. I daydream about the day I will be reunited with you all of the time and I go over all the different ways in which it could happen. I’m not scared of it. Even when I picture my eyes as I am drowning in a sea of black water…. my eyes are still vibrant green and they are happy; even though they are filled with tears. I’m not scared of death anymore. I watched you die right before my very eyes. I know when my time comes, it will be a beautiful thing and you will be waiting for me on the other side. I cannot wait for that day, until I see your little face again. To kiss your sweet lips and to hear your squeaky voice. I miss you so much.

After the Strawberry fields, we had nowhere special to be. We decided to drive down PCH and enjoy the scenery and sunshine. We opened the sunroof, blasted Pearl Jam, and watched the ocean come alive with surfers, people, birds, and sparkling sand. We stopped for lunch at a little Mexican food place as none of us had eaten today and Macy said she could not take being on the “Maya diet,” for one second longer. We sat and ate and started to talk about you. We talked about Dr. Kushner and have decided that the way he was with us, is just his personality. He cuts off all emotional ties when he knows the outcome is not going to be good. He has had to desensitize himself so he can do his job, the best way he knows how. Unfortunately, that means often making people feel more awful about their situation and leaving them feeling let down, helpless, and regretful. He is like a robot as I’m sure he decided a long time ago this is how he was going to be when he decided to become a Pediatric Oncologist. That still does not make it right and I will  have my sit down with him and he will look me in the eyes. I promised Ronan and myself. I will get this done. Sooner, rather than later. I want to go out there in the Fall. I’m not going to put this off.

I was telling Macy about your amazing hair color and how I was so sad she never knew you when you had hair. We started looking at pictures on my phone of you and the tears started again. At one point, I was so consumed by guilt for being in San Diego, at the beach, when there are so many sick kids with cancer right now. I felt like running right to the nearest hospital just so I could be in the presence of all of those amazing kids. I felt guilty that I wasn’t doing something for them, at that moment. A lot of the guilt came from knowing I was sitting there with Macy and Quinn, with the sunshine on our backs, the memories of you flooding in, and how many kids are trapped in hospitals and do not have the freedom that we do. I don’t like this freedom I have without you, Ronan. It gives me major anxiety and I will never be able to enjoy it again. I look at people around me, who have no clue, and they are just so happy. Happy at the beach, happy together as a family, happy because they all still live in their little bubble of a world. It makes me want to throw up. In fact, I did throw up tonight after we came home. Just driving through the town of Coronado is enough to do me in. I get so sick to my stomach that we are here and you just died almost 2 months ago. FUCK. July 9th is coming up soon. It will have been 2 months since you passed away. That is not going to be a fun day. Please watch over me on that day, Ronan. I know you do everyday, but especially on that day. I hope you were with Esther last night. I wish I would have dreamt of you two, together. My dreams are black and empty. Just like my heart.

After our fiesta of tears, we hopped back in the car and continued on our way. We ended up pulling over in Del Mar to enjoy the amazing beach. Quinn, Macy and I all held hands and ran to put our toes in the sand. It was such a gorgeous time of day and the beach was breathtaking. Quinn took off, alone, and went to find some rocks. He never does things alone and I could see the sadness on his face as he had to do all of this without you and Liam today. He soon came over and asked if I would help him. I said of course and off we went. We ended finding some really pretty rocks for his collection which he is so into right now. He was so proud of them. Macy and I could have eaten him up with a spoon today. He really is everything, kind, sweet, and full of nothing but love. As I was getting my purse out to pay for parking at the beach today, Quinn goes, “I have money in my wallet, mom. I can pay for it.” Cutest thing ever. He has saved up his money and has offered to pay for anything  and everything. I keep telling him no, to save his money, but I know how proud it would make him to buy a little something for me. I’ll let him leave the tip at a restaurant or buy me a coffee soon. What a gentleman. Some girl is going to be very lucky one of these days.

We finally got home around 7:30 and everyone seemed pretty tired. We put in “The Wedding Singer,” and watched it together. Now, Quinn is in the middle of Me and Mace. They are snuggled up together so sweetly. Macy is like the sister I never had; but I should have. I totally have that sisterly connection with her and it has always come so naturally to us. I swear I’ve know her in a past life as well. Maybe we were sisters then. There has to be something….. the way we met, and had an instant bond. The way Ronan loved her so much and we all know how picky he is about people. He took to Macy instantly too. He knew Macy in a past life too; I’m just sure of it. I feel like the new people I’ve really, truly, deeply connected to since all of this, are people that Ronan and I have both known before. I’ve got my list….. there are about 10 people on it. I will forever hold these people close to my heart as I consider them family now. It’s as if I have a whole new family, thanks to Ronan. Just another one of his little gifts he has left behind. You, my son, amaze me everyday.

Alright my little man. It’s late and Macy told me I needed to go to sleep early tonight. Early means 2 a.m. not 4 a.m. I’m going to snuggle up with them now. I wish you were here to snuggle with us. I miss you baby. I hope you are safe. Sweet dreams my favorite blue eyed boy. I love you, Ro.

xoxo

  

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14 thoughts on “Fiesta of Tears

  1. Laura

    As always our thoughts and prayers are with you and your entire family. I’m glad you are finding Ronan’s gifts like Miss Macy to be such a true comfort. I’m sorry the boy are not together, but new adventures are always good. I hope the boys each have lots of adventures to share with each other. I hope today finds lots of fun for you all. The sun is shining on you all. Glad the weekend is almost here so you all can reunite as a family. All our love to your entire family.

  2. Megan P

    Your words are so beautiful Maya. I think of you and Ronan often. Also, I give trainings on trauma, and the definition that I like to use most frequently is “forced reorganization of the brain.” I think of this so often when I read your words–your mind, your world, your family’s world, is going through this so deeply. Forced reorganization of the brain. You are exactly as you should be when something this fucked up happens. I think, honestly, that I am even bothering to write this now because I have seen other reactions to some similar posts “oh Maya I am worried about you . . .” I think that it would be more concerning if you didn’t let yourself feel this. Nothing that I can say can make anything better, but I just felt like sharing a few thoughts . . .

  3. linaisobell

    Hey Maya,

    at first, please excuse my bad english, i’m still learnig:)

    To have soulmates is a really really amazing feeling. I know right.. i found my two Sisters. Almost one year ago. I feel we knew us in a past live. And they feel it, too. I love them so much. Endless much. They came into my live as all my friends (i thought they were my friends) left me. Some of them treated me bad, just like that it seems. But the truth is that they couln’t deal with my illness. And they didn´t dare to tell me.But i can understand. I really do. But right in this moment i found my beloved sisters. And that is amazing. I call us “The Three Mighties”, cause that’s what we are, yay! Today i’ll show them your blog. More followers:)

    Love and hugs to You, Ro. Liam and Quinn, Woody and all your soulmates. Lina

    P.S. It’s 5 p.m here in Germany:D

  4. Holly

    Hi Maya-
    I think you can relate to this quote and I wanted to share.

    It is its own religion, this love. Uncontainable, savage, and without end, it is what I feel for my child.

    From the book “Come Back” – Claire and Mia Fontaine

  5. sara maurer

    Maya…I am so sorry. I think of you and your family everyday. I believe in you all…and I promise never to take even a minute with my children for granted. You have changed me so much. I am just so sorry for all you are going through. Take care and I hope today is at least O.K. for you.

    Love..

    Sara

  6. Rosemary S.

    Hi Maya. I think of you and your family often….holding you in prayer, hoping that it might in some small way, help. Every day, each one of us puts one foot in front of another…going down the path.

    A friend of mine led me to a short film to watch…(it’s about 20 minutes, but well worth it). It’s all about struggle and life and accomplishment. Perhaps you would like to watch it too? It’s called The Butterfly Circus. ((Hugs))

    http://thebutterflycircus.com/short-film/

  7. Danielle Annette Cloakey

    I don’t know you personally, but I love you and your family soooo much! I just know that one day we’re gonna meet and I am going to be able to wrap my arms around you and hug you tight. The fact that you no longer have your Ro baby by your side (in a way that you can see) breaks my heart. Neuroblastoma needs to be vanquished NOW.

  8. Chris

    Maya,
    I have been reading your blog for months and have never known what to write on here. While you have been going through hell- I thought you should know how you have influenced other mothers in such a profound way. I think you do know, but I’d like to say thank you for being brave enough to share your story and your struggles so honestly. In the months that I’ve been learning about you and Ronan, I have never had a dream about you… until the other night. I dreamed that we met randomly; you were working on a small project. I told you that it was time to go big, do more, and that it was time to start now. When I woke up, I went outside to make a phone call (I never go outside to make phone calls) and a humming bird came straight up to my face and just looked at me for a while. It was the craziest thing that has ever happened to me. I instantly thought of Ronan and the dreams that you have for the foundation. So… go big. I honestly think that you and Ronan are saints; you both possess the power to do more than you even imagine. Don’t be afraid of asking for help from your faithful followers- we are all here and will do whatever it takes to make your goals a reality.

  9. Glenda

    Maya,

    Thinking of you, Ronan, Woody, Liam and Quinn.

    Quinn is definitely your twin 🙂 and Liam is Woody’s twin 🙂 Handsome boys they are!

    Hope today is an OK day for you. Enjoy the beach, pool, sun…run…kick the pavements ASS.

    I’m so glad you have your girls there with you… your friends and family to make you smile even if in the outside you’re crumbling. Peace and strength mama bear!!

    Love, love that picture of you and Quinn!!!

    XO

  10. Jaime Harris

    I think of you often and pray for you daily. My heart goes out to you. I am glad you are surrounded by such wonderful friends and family. May that help a little bit. Ronan was such a beautiful, precious gift and I know you will see him again someday. I’m so sorry for all your pain and the great loss you have suffered. Praying for you continuously!!!

  11. anon

    Maya….sometimes there really are no words. But there is always love, and I send some to you and your family.

    Your Quinn is just the cutest thing ever! What a heartbreaker he’ll be with ladies one day….actually I guess he already is with Macy. 😉

    Keep plugging away Maya. You’re a born survivor, and you’ll make it. I know you will. May strength, peace, and comfort find you today, on Saturday especially, and every day.

  12. kim

    i wish i had the right words, the right answers, anything to help comfort you and bring a little piece of mind to you. there are just no words to express my sadness for you and your family. fuck this. fuck cancer. ok that’s all i got. you, woody and your 3 beautiful boys are always in my thoughts every single day. you are a dedicated, beautiful, and loving mother who did not deserve to have her sweet baby boy taken from her. i will never understand it…
    i hope you see your sweet ro in your dreams. xoxo

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