Stay Gold…

 

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http://www.huffingtonpost.com/rainesford-alexandra/staying-gold-world-fights_b_6046890.html

Arizona Foothills Best of the Valley 2014! Get your vote on! Voting ends 11/1/14. Thank you for the nominations and for voting!

http://www.arizonafoothillsmagazine.com/best-of-our-valley-2015/voting/321.html

http://www.arizonafoothillsmagazine.com/best-of-our-valley-2015/voting/324.html

http://www.arizonafoothillsmagazine.com/best-of-our-valley-2015/voting/311.html

Maya and Poppy take NYC

Fashion Show final

Please come and join me for the awesome event that Bloomingdale’s in New York City is putting on for RTF and our friends at Solving Kids’ Cancer. It’s going to be such a fun and inspiring day! If you cannot come, please help us get the word out on this event.  We are pulling kids from the Ronald McDonald House in New York to be our little models! I feel so honored to be a part of this event!!

I love you, New York!

xx

Thank you to all of you

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for helping us be a part of amazing things such as this.  We could not fund these things without you. I am forever grateful for every penny that comes our way.

http://www.eurekalert.org/pub_releases/2014-10/skc-fod100614.php

 

Ronan. I promise I will write soon. So much to tell you. I miss you. I love you. I hope you are safe.

xx

Wow. Who are the bully’s now???

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http://www.myfoxny.com/story/26549430/esb-facebook-review-controversy#.VBjjA2kkM1c.twitter

Dear Empire State Building, Part 16

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Empire State Building,
We, as a community, are not asking you to light up for individual childhood cancers. All we are asking is that you light up Gold to teach to the millions of people that don’t know today that kids get cancer too. When you light up for world cancer day, most of the viewers don’t know that it includes children. People are unaware that children can get cancer as well and when they think world cancer day, they think of adults. By lighting up gold, you represent and show that kids get cancer too. Again, we are not asking for you to light up Gray for brain cancer, even though it is one of the deadliest forms of childhood cancer. We are not asking for orange for leukemia or pink for breast cancer. We are asking for Gold, the color to symbolize ALL CHILDHOOD CANCERS… that is all..

I lost my friend to cancer in 2012. She was 12 years old. I have a current friend now fighting for her life as well. She’s 14. These kids need our help to raise awareness. We have celebrities donating money and time to these kids. We have people working three jobs, taking time to help raise awareness. We have college, high school and elementary school students starting clubs and raising money. All we ask is that one of the most important and well known buildings in the world, light up gold for one of their available nights to show the people who don’t know, that kids get cancer too.

If it is the way we have applied that is what is causing our request to be denied, then please do us the honor of giving instructions on how to apply differently. If you are going to keep denying us the real reason of why you won’t light gold one night in September, than please do not light up for movie promotions and anniversaries of events. You say you won’t light up for those events as well, however you continue to do so. If you are unable to break rules for dying children, why do four teenage animated turtles, get awareness?
Children are fighting for their lives, receiving adult medications for a disease that is under researched because people are unaware. If you wouldn’t give your child an adult size portion of Tylenol, why are we giving them an adult size portion of a toxic, second cancer causing drug as well? We need awareness.
Thank you,
Jenny Formica

Dear Empire State Building, Part 15

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Dear Empire State Building,

Two and a half years ago, this was my daughter. It is hard to look at these pictures; to go back there. She received a stem cell transplant for a very high risk form of Leukemia. To prepare her body for her transplanted immune system she was given high dose chemotherapy and four days of total body irradiation. All of this, just as she was turning two years old. We were told that the treatment itself could kill her and the list of immediate and late side effects was almost endless. We went ahead with the treatment though,signed those terrifying consent forms because, we had no other choice. There was no plan B. This, as her doctors told us, was her only hope for life. Three years post diagnosis, she is still here with us which, I am eternally grateful for but, the cost to her has been high. She has graft verses host disease in her skin, cataracts in both eyes, and her thyroid has been damaged. We have been told that she will not go into puberty without the aid of synthetic medication, and perhaps most crushing, she will be sterile; unable to have children of her own. She is also at high risk of developing secondary cancers and heart disease due to the extremely toxic nature of her treatment.

I have shaved my head twice in an effort to raise awareness and research funds, signed petitions to light the White House gold, kept a blog documenting our journey through the hell that is the pediatric cancer world, and I’ve often felt as though I’m just screaming into the void.

We, as a community, feel so alone and isolated. Evidently the Empire State Building doesn’t take lighting requests from individuals but, we are a community of parents, grandparents, siblings, extended family, and friends that is hundreds of thousands strong. We have hardworking researchers, hospital networks, and non-profit organizations desperate to change the options and outcomes for our CHILDREN. Childhood cancers need their own recognition. A light to shine into the dark places, where cures have yet to be found and young, developing bodies are not poisoned to death or near to it in order to have any sort of hope at life.

It is the right thing to do. Helping our children, the most innocent and undeserving members of our society, could never be wrong. Please help us. Please help kids like Olivia. Please help the desperate moms and dads out there who just want to give our children a voice in a world that largely ignores them. Please imagine walking a mile in our shoes. Please shine the light gold.

Sincerely,
Rachel Ambroson
Mom to Olivia

 

GOLD PARTY TICKETS!!!!

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The tickets for the Gold Party are going fast.  Get yours here and join us for a very sparkly night to celebrate the life of a very beautiful boy.

Can’t wait to see you all there!!

https://go.ordermytix.com/event/3867801

 

Get your Spicy on!

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They’re back! I am thrilled to announce that the spicy monkey SpiritHoods are now back in stock just in time for fall.  They make such great gifts and kept Ronan’s bald little head so warm in the hospital.  He loved wearing his so much.

 

100% of the profits go to The Ronan Thompson Foundation which is just beyond amazing.  A huge thank you to our friends at SpiritHoods for releasing these again just in time for September to help us bring awareness to this cause.

Thank you all for your continued love and support!!

 

https://www.spirithoods.com/spicymonkeys

Dear Empire State Building, Part 14

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As a mother of a child fighting cancer, I’m deeply saddened to hear that pediatric cancer is not worth enough, special enough, important or whatever it may be, to be recognized and have Empire State Building go Gold for just one night.Living in pediatric cancer world is horrible for so many reasons. Seeing your child in pain, the feeling of being helpless in so many ways, the agony of treatment plans, sleepless nights, and anxiety are just some that come to my mind, and there are plenty more that I have experienced in the last year and a half. On top of all that I also feel sad, disappointed, let down, ignored by the society we live in.
That’s what brings me to write this letter to you.
I read the statement published by ESB in the response to the EmpireGoGold campaign and it brings out all those feeling of sadness, disappointment, let down, ignorance.. The responses is exactly the reason why community of parents who lost children due to cancer, parents fighting the battles of cancer with their children or advocates for pediatric cancer are trying to be heard, trying to bring attention, or almost uncover the truth about this. I’m begging you to understand the reasoning behind this need, to hear the statistics about funding for pediatric cancer, to read about drugs and treatments offered to children.

My 4 year old, should have a better chance, better treatment plan, less invasive protocol as she is fighting for her life. As voices of our children, we are asking for awareness which equals funding, funding equals research, research equals cures. Life with child battling cancer feels like you are attack every second, you are harassed every minute and still are considered very lucky because every day 7 children die from it, and I cannot even try to imagine what that feels like.

I would never ever wish this on anyone, but what I do wish for you and many others is not to look away because this is a reality of so many, it can happen to anyone. Here is my passion, my reason for living, breathing, fighting. But it’s not just her, it’s also for 46 kids who will be diagnosed with cancer today.

Kids deserve so much more.

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