Inferno Fuckwad Bob

Ro baby. So, remember how I told you I was going to stop cold turkey, taking my Zoloft…. mainly because everyone told me not to. That I needed to slowly come off from it. I didn’t listen. I stopped taking it over two weeks ago. I did it, all by myself and I’m still here. I didn’t have any side effects. I just feel better. One less medication that I am on. I do not want to live my life with the help of Zoloft. Not that there is anything wrong with it. I just want to find another way to get through this pain and I don’t want any help from a pill. I tried this last night with the Ristoral I am taking to help me sleep. I tried not to take it. It was awful. I tossed and turned for a few hours, while lying next to your Daddy. I dozed off, here and there but the screaming in my head was too much to take. The dreams were too mean and vivid. I got up, around 12:30, and paced the house; looking for you. I took 2 of my sleepy meds and ate a bowl of cereal. I had not eaten all day long. I crawled up into Liam’s top bunk bed and fell asleep until 7 a.m. I woke up groggy, and felt hung over. Your Daddy looked worried as he could see the glazed over look in my eyes. He decided to take Liam and Quinn to school for me. It was a good thing, because I mentally was a wreck today. I don’t remember what happened next, but before I knew it, I was laying my head on the kitchen table, sobbing into your blanket, with your Urn in front of me. I went and grabbed the locket that Macy got me, that does not have a picture of you in it yet. I got out the scissors and cut open the plastic holder that keeps your ashes sealed. I found some glue, rubbed it on the inside of the locket, took my hands and picked up some of your ashes. I felt them for the first time. I kissed them and I took a little of them and sprinkled them to the inside of the locket filled with glue. Fernanda called. I ignored her phone call. I sat and sobbed with you instead. She called, again, about 20 minutes later. I picked up this time. “What are you doing?” she said. I couldn’t talk, so I didn’t say anything; I just sat and cried into the phone. “Where are you?!” she asked in her beautiful English, Spanish, and Italian accent. “Home,” I said. She said,”I’ll be there in 2 minutes.” And she was. She pulled up and I opened up the door, my face black from my mascara. I really need to freaking invest in some waterproof mascara at this point in my life. She grabbed me and let me cry all over her all white blouse. My angel.

We sat at the table for a bit. I told her what I had just done with some of your ashes. I said to her, what if these had been your beautiful blue eyes. She told me they were not. Your eyes, left long before you were cremated. I agree. She put her head down on the table with me and we sat and cried and talked. I told her I needed to get coffee if I was going to function at all today. We ran to Safeway and sat on the couch at the Starbucks. A woman came and sat down next to us. She overheard some of our conversation. We started talking to her. Turns out, she had a 2-year-old who had died, and she had lost a baby from a miscarriage as well. She told me how lucky I was to have a friend, like Fernanda… as she had nobody. All I wanted to do was take this woman home and love her. She does not have a Liam and Quinn to keep her going. She does not have a reason to get up in the morning. But she has found one…. whatever it may be. That is true strength. I told her about your website, and I gave her one of the MISS Foundation cards. I told her about them. She said she didn’t even know something like that existed. I told her to call them. I hope she will. I wish I could have done more for this woman today; but I did all I could do.

The rest of the day was a blur. Quinn went to Dr. Beth. He is so needing her now. As well as your brothers are doing in school…. which from what I can tell, they are excelling….. I know this outside help is so important for them now. I know in the long run, it will make a difference. We are choosing to face this head on, not bury it down in the ground. Their therapy is a big part of this so I plan on continuing it for as long as we need…. even if it is for the rest of their lives. I hope it won’t be, as I want them to be able to go on and live normal, happy lives. But to get them to that point, this is so necessary.

I went to see Dr. Joanne. It was a really long, intense session. I ended up being able to write out that grief worksheet before I saw her. I wrote it out this morning, in a really random, public place. I have struggled with the finding the words to fill it out all week. I have carried that worksheet all over with me, and when I sat with it today, the words to the questions just came pouring out. It took me only a few minutes to answer the 5 or 6 questions. One of the things I had to answer was, if I had to Name my grief; him/her, I’d call him/her…… ??? What???? I had to come up with a name for my grief. The name, Inferno Fuckwad Bob, just flew out of my head. That is what I wrote. I named my grief, INFERNO FUCKWAD BOB. I have no idea where in the world this name came from, but it is perfect. Dr. J sat with my sheet of paper and asked if I thought I could read it out loud to her. I told her No. She asked if she could read it out loud. I said yes. So she did. I think I cried while she was reading my words. I think I bawled pretty much the entire time I sat and talked with her today. When she got to the name of your grief part, hearing her say that out loud, made me laugh. She giggled a bit too, and told me she had heard some interesting names for Grief in her time, but this may have been the most interesting. It was at that point, that I knew that there was no other name in the world for my pain, my hurt, my grief. Inferno Fuckwad Bob, it is. I hope he is not always so present in my life, but for now he is; and I cannot ignore him.

After our session, I came home, threw on my hiking clothes and drove to The Inferno. I ran my butt off up the mountain. I saw Mountain Mike again, which was strange because I was there much later in the day than I usually am. He was coming down as I was running up. I took out my headphones to say Hello. We chatted for a minute, then he said for me to keep going as he didn’t want to keep me. As I got to the top of the mountain, I took my time to talk to you. I didn’t see the Eagles today, but that was o.k. I did some stretching and breathing. I put my headphones on full blast and got ready to run as fast as I could down the mountain. Just as I was getting ready to run, I got this text from Dr. Joanne.

Goosebumps ran down my spine. I had gone into the bathroom, after I left her office. I just needed to wipe down my face and dry my eyes. I was in the bathroom for maybe 30 seconds. I am always intentionally leaving your bracelets places…. on my hikes, random restaurants, grocery stores, etc….. It never even crossed my mind to leave one in the bathroom of her office building today. But she found one, in the sink. I asked her if it was the naughty or nice version. It was the naughty. I thought I was totally out of all of those, but apparently one found it’s way to Dr. Joanne. So random. So something you would do. I have hesitated about giving her one…. just not wanting to overstep my boundaries as I know not everyone is comfortable with the F word. I guess you had other ideas and know she is deserving of wearing it. Because she is a badass:) I am so glad, baby. I thought so too, but you made it happen. Thank you for that and for making me smile so big after seeing that text from Dr. J.

As soon as I turned my headphones up as loud as they would go, and starting running as fast as my legs could possibly carry me, without falling on my face, another little thing happened. I have decided one of the ways you are communicating with me, is through music. I had my iPod blaring, and you had decided what my playlist was going to be. From the time I started running, until I stopped at my car, these are the songs that came on, in this order. Pearl Jam, Given to Fly. Coldplay, Fix You. Band of Horses, No One’s Gonna Love You, and it ended with Katy Perry, Firework. I mean really, Ro. That was so sweet of you. It made me smile, cry, smile, laugh and blow kisses up into the sky. I love you so much, baby. I miss you so much.

The rest of the evening was spent at home with your brothers, Daddy, Danielle and Dave stopped by with their new puppy; Bash. We sat outside and played with him. Such a sweet, simple night. I often feel you around when Danielle is with me. She is one of the people in my life that makes me feel peaceful. I needed that tonight. Thanks, D. Love you.

Alright, my “not spicy, little monkey boy. I’m going to try to get some sleep. Really want to do boot camp in the a.m. but have not been succeeding in waking up for my 5 a.m. booty, boot camp call. Maybe tomorrow. I love you to the moon and back. I hope you are safe. G’night my love.

xoxo

Boot camp baby steps

Ronan. 5 a.m. The alarm on my phone goes off. I grab it, although I have only fallen asleep a few hours ago. I look at my phone as it sings, “Fix You,” by Coldplay. It speaks to me. The words on the screen flash, “Please get up. Ronan would want you to.” I stumble out of bed, throw on my workout clothes, brush my teeth and run out the door. It is still dark outside as I drive down the familiar route to my destination. I think back to the last time I had been there. You were sick. I was so beaten down, out of shape and I remember feeling for the first time in my life, that the physical exercise that I was trying to do,was just too much. More mentally than physically. I pulled into the parking lot of Boot Camp today just as the sun was starting to rise. I carried my yoga mat and weights to the oh so familiar place. My heaven. There stood Tammy, just like always. I set down my things as she greeted me with a smile and a much overdue, long hug. I don’t remember the words that were exchanged, as it doesn’t matter. Words were not even needed, as it just felt right. I took off for our warm up laps and my feet felt light as feathers beneath me. I spent the next 45 minutes drenched in sweat and determination. At one point, we were all in our groups doing something on our mats. I cannot even remember what exercise it was…. the plank maybe. We were all yelling out our standard, “One havalina, two havilana, three havalina……. something Tammy makes us scream out during exercises…. Instead of havalina, I said Ronan instead. “One, Ronan, Two, Ronan, Three, Ronan……….. I pushed myself to the point of almost throwing up. I pushed myself and I didn’t care as the pain didn’t matter. All that mattered is that I there, and was doing the very best I could do with you pushing me to work harder. Boot Camp should be called Soak Camp because you leave there totally drenched. The combo of hard work and heat was enough to make anyone pass out. It felt so good to be there today. I am so sore already.

As I was leaving and telling Tammy thank you, she cornered me and told me she wanted me to commit to coming to her boot camp tomorrow too. I told her about my sleep and how messed up it is but she didn’t seem to care. She made me promise, if I’m up, I’ll be there. She pushes me and that is exactly what I need now. I’ll be there. If I want to start trying to heal a bit from the loss of you, Ro. I have to start doing some healthy things that will open me up. Living the life I am living has been awful as it is not a life at all. Baby step 1) Committing to Boot Camp. That is all I can commit to as of now. But it least it is a start. And it is such a huge release to me as I tend to keep everything inside. Getting it out while sweating my butt off, in nature, is so therapeutic. And Tammy is so gifted with her ability to motivate everyone, no matter what their situation is. She has such a feisty, pure, sassy soul that I adore. Even when she is yelling at us, I catch myself smiling.

After Boot Camp ended, I drove home and hopped in the shower. I got ready for the day, packed lunches, got the boys up, showered, dressed, and fed them breakfast. We were out the door right on time. Liam was so excited, Quinn was so nervous. I dropped Quinn off first, kissed him goodbye, told him I loved him and would see him at 3:15. I walked Liam down to his class, and he practically skipped into his classroom without even a kiss goodbye. I grabbed him, told him I loved him, and kissed him on the cheek.

I walked out of that school today, a wreck. I talked to you a lot, Ro. I looked for you in the backseat of my car. You weren’t there. I’m sorry. I drove home in a blur of tears again. I looked at my “To Do,” list and starting checking off boxes. I had the entire thing done in 2 hours. I ran some errands, met Woody and Uncle Jay for lunch. Jay was there before your Daddy. I sat across from him and just started bawling. He held my hand and listened to me blab about how my life has no meaning anymore. Well, at least from 9-3. How I had for the past 8 years, always been taking care of my babies, and now my big babies are off at school and my little baby is dead. I don’t know what to do with myself as I am not used to all of this freedom. I don’t like it. It should be illegal. But there is nothing I can do about it now…. when my plan comes to place it is going to be because it is right, not rushed. So for the time being….. I’m in limbo…. totally lost….. feel like a total loser…… feel scared….sad…. and empty. I came home a couple of times during the day and just held your ashes in your bedroom and cried on the floor for you. I yelled for you a lot in this house today. At one point, I almost threw up all over the laundry room.

My life is meaningless without you. Especially now that your brothers are gone for 6 hours out of the day. I know I want to start helping others….. I just don’t know if I am mentally stable enough to do that yet. It has only been 3 months. 3 months in 5 and a half hours. 3:30 a.m. will be here soon. I cannot believe I’ve lived 3 months without you already Ronan. I miss you so much. We all do.

I picked up the twins from school. I watched all the other mom’s, holding the hands of their 3.5/4-year-old siblings. O.k. I’m usually not like this, but it ripped my heart out. I wanted so badly to be holding you hand. Or fighting you to make you hold my hand because you always would refuse to and would run ahead of me instead. Baby Danger we used to call you. I sat and waited outside of Quinn’s class, sweating like a pig. Seriously, this heat has got to go. I smiled to a few people, but mostly just put my head down to avoid eye contact. There was no way I was capable of holding a conversation today. Quinn bounced out of the classroom, so excited to see me. I asked his teacher how he did, and she said she was the luckiest teacher in the world to have him as her student. Maybe she says this about every kid, but it was still nice to hear. Quinn is a good boy. I know he is a teacher’s dream student. Same with Liam. They are such good boys and I am so thankful for that.

Liam and Quinn were both so excited about their day at school. They gave it 5 out of 5 stars and said they loved it. That’s one less thing for me to have to worry about tonight. I am so happy they loved it so much. It means everything to me that they do well in school and are well rounded, good, kids…. especially considering everything we have just been though. That says a lot about them. I really couldn’t ask for better boys.

We returned home and I got Quinn ready to go and talk to Dr. Beth. He was nervous, but I explained everything to him as detailed as I possibly could. Dr. Beth greeted us in her waiting area and we just kind of got to know each other out there. We all 3 stayed out in the waiting area for a good 25 minutes. She then had Quinn come into her play office and I sat outside the window in a comfy oversized chair. I could hear Quinn in there giggling, as always. I waited patiently for him to finish up as I was anxious to see what they had done. When the hour was up, Quinn came out of the room and gave me the biggest hug. He then wanted to show me what they had done. I went in to the room that they had been in and sat down in the little chair in front of the whiteboard. Quinn had written out names of our family members: Mom, Dad, Liam, Quinn, Ronan. Dr. Beth said she and Quinn talked about how even though Ronan wasn’t here, he would always be in our hearts; forever. Quinn also had Luke’s name written down. Dr. Beth said Quinn told her all about Luke and how he came to the Ryan House to lay with Ronan and how much time he spent with him. Dr. Beth was very impressed with Luke and said he must have a very big heart. I told her that he has become a big part of our family and that he and Ronan had a very strong bond. I thought it was sweet that Quinn brought it up. It means so much to him.

We left there saying goodbye and Dr. Beth said she would talk to me about Quinn more tomorrow. Liam’s appointment is tomorrow at 5. I’m anxious to see how he takes to it. Quinn did quite well and said he wants to go back on Monday. Music to my ears! He needs this so badly and the fact that he has already taken to it lifts a little weight off of my shoulders. I spent the rest of the night telling the boys how proud I was of them for their great day at school, how much I loved and missed them, and how I had a good day too. Although, my day could not have been more painful, I could not tell them that. I knew it was going to be hard…. but today was ridiculous. I am surprised I survived. I usually get so tired during the days that I do boot camp, but my body does not seem to do tired anymore. It’s like I am running on electricity 24 hours a day. Adrenaline, maybe? Whatever it is, it’s not fun. I would love to be so exhausted that I have no choice but to fall asleep in a REM sleep for a good 6 hours. I wonder if that day will ever come again. I wonder if any of this will get any easier. I cannot take another day like today, but I suspect it will not be my last.

Ronan. Where are you?? I wish I could see you. I felt you at boot camp this morning. You make me go faster and work harder. I love you for that. You know when I need that push to get me going. Thanks for making me get up out of bed this morning. I love you to the moon and back baby. I hope you are safe.

xoxo

P.S. Our good friends, Brandon and Janette welcomed a new baby boy into their lives today. They named him Cooper Ronan. I cried looking at his sweet picture. He is perfect. Congrats Bunger Family!!

Oh Ro….. what am I going to do without you??

JUNE 9th……………………..

Ronan. It’s almost been two months. Two months since you left me. How is this possible? It makes my head spin. It’s 1:30 in the morning…… 3:30 a.m. will be here soon. That’s around when you took your last breath. When I kissed your lips and whispered in your ear to come with me so we could get out of this place. I still can’t believe all this has happened. How my worst nightmare, really came true. I was so sure you would get better. You were going to beat all of the awful statistics and live to be a normal, healthy boy. You were so strong, so brave, and so proud. I remember how the day before you passed away and you weren’t really going to the bathroom anymore. I kept trying to get you to go. Finally, you told me in your squeaky little voice that you needed to pee. You didn’t want to go in the urinal right by your bed, you made me carry you to the toilet even though you were in so much pain that it hurt for me to even pick you up. I carried you to the bathroom and set you down on the toilet. Your little body was so skinny and frail that it took my breath away. But you were so proud. Too proud to do the easy thing and just use the potty by your bed. You always hated that thing. You held your chin high as cancer tried to take away your dignity. It never won. Cancer may have taken your life, but it never took away your pride. It would have been such an easy thing to give up and I don’t know that I know many souls in this world that would have put up such a fight like you did. I feel so privileged to be your mommy, Ro. You are so amazing in every way.

New York Miss Macy left today. Everyone was sad to see her go. Quinn and I took Olivia with us for the day as he wanted to go to a movie. We ended up seeing, “Turtle: The Incredible Journey. It was all about a little Loggerhead turtle and her journey in life. Her purpose, which ends up being to travel the paths of her ancestors, only to return home 25 years later to give birth to her offspring while fighting every odd stacked against her along the way. Only 1 in 10,000 turtles survive this journey. Throughout the movie, I felt as though the turtles journey is similar to mine. It may sound weird, but so many things that happened in this movie made me feel so vulnerable and struck such a chord. It started with the fact that these babies are buried alive after they hatch out of their shell and it takes 3 days for them to dig themselves out of the sand. Yup. I know a little something about feeling like you are buried alive just like you, little turtle. The baby, who is the size of a small child’s hand, has to leave the beach for it’s new world of the dangerous ocean. Many of them do not make it due to being eaten by crabs, birds, or the oceans waves are just too tough for them. The Loggerhead turtle, has one of the most difficult and longest migratory patterns of any marine animal. It reminds me of a bereaved mother. After you lose a child, it is almost like you are born again and thrust out into this cruel, cruel world. You are expected to survive it by everyone, you are expected to do as others think they would do, but the truth of it is….. we are all different and will follow our own instincts to hopefully return to our place of peacefulness and our home once again, when we are ready to go there. Just like the loggerhead turtle.

It is a very long journey and the turtle has to continue to fight, without giving up. They are survivors. Just like a mom who has lost her child. A mom who is just trying her best, trying to pull herself out of bed everyday;  to do what is somewhat normal for her kids so they can have days like yesterday where one of them spends time with his very special Papa Jim, and catches his first Salmon. Where the other one, spends his day with his mama and all of her amazing “sisters.” I have not heard Quinn laugh so much since he was with Ronan, before he was sick. Do I feel weird being out and about, laughing away?Absolutely. But I am not really doing this for myself. I am doing it for my children. I want them to look back at this summer and remember being surrounded by the people who love them so much and to remember all the laughing and silly bonding time we had together. I want them to be able to see that even though I cry a lot, I can still laugh. Even though it is the saddest summer that we’ve ever had. I cannot let my children drown in their sadness like I want to. I will not have them secluded and take away any more of their childhood, any more of their innocence. They deserve to have as much normalcy as possible.

After 25 years, the Loggerhead turtle grows into a big strong turtle and is no longer afraid of the ocean. She develops a big, hard shell and very thick skin. If you have ever lost a child, this is a necessity for survival. Especially if you have decided to share your inner most thoughts and feelings though a blog for everyone to read. You really need a thick skin for that one. Luckily, I have always had thick skin so I’ve pretty much got that covered. The hard shell can be for my hard head, as I tend to be pretty stubborn, or so I’ve been told. My point being, that while watching this movie today, and seeing how many obstacles this little turtle had to overcome to survive, I was forced to think about my new life without you, Ro. It is so hard to go on, move forward, and not want to just give in and sink to the bottom of the ocean. This little turtle could have easily given up. So could I. But I keep telling myself I am a  survivor just like the turtle.

JUNE 11th……………….

Ronan. I did not finish the post above due to falling asleep. I have no idea what was written above as I don’t go back and re read the things I write. I hope it made sense. I think I remember something about a turtle…….. Everything is blurry. I don’t even know what has happened since I last wrote. Except I am still in miserable, extreme pain. My head hurts, my shoulders still hurt, my toes hurt, my heart hurts….. everything hurts. I think I managed to run 6 miles last night though. I think I have managed to get out of bed the past couple of days…. although not until at least 11. I think yesterday was the 2 month date of you being gone. I remember staying up really late the night before and crying with your daddy. I remember waking up the next morning and my head felt so heavy that I could not get out of bed. I remember talking to Mr. Sparkly Eyes and just crying in the phone and telling him how I couldn’t get out of bed, how I couldn’t believe it had been 2 months. He begged me over and over to get up and get out of bed. I told him I could not. I laid there for an hour after talking to him and I couldn’t get the sound of his voice, out of my head. If it wouldn’t have been for his words, ringing in my ear and not going away, I wouldn’t have gotten up. I made myself get up out of bed. I think we went to the beach with Auntie Karen, Liz, and Olivia. I surfed. Quinn fell asleep in the sun. Later in the evening, as we all sat there together as the sun was setting; dolphins appeared. They always do for me. Auntie Karen said it was you. It made me smile. Last night, I fell asleep really early. Well, really early for me. I remember cuddling up with Quinny and we fell asleep around 11.

Today, I didn’t get up until 11. Seems like if I don’t have a reason to get out of bed, I’m just not going to. Your daddy was up with Quinn, playing video games. I texted Liz and asked what they were doing. They said they were going to the Farmer’s Market in Hillcrest. Your daddy, Quinn and I met them there. We walked around and ate some food. I bought some humus. That and rice pudding seem to be the only thing I can keep down. Weird combo. After the Farmers Market, Auntie Karen took Quinn home with them. Your daddy and I needed some time together. We walked back to our car and held hands. It felt nice. We decided to go and see a movie. We saw, “Horrible Bosses.” We both agreed it was o.k. We had some laughs.

Lots of signs have happened the past few days. It seems as everywhere I go…. Coldplay is on the radio. I swear, I heard it 4 times in a row a couple of days ago. We always loved to listen to them together. Something else happened today. After the movie, your daddy and I walked into Nordstrom Rack as it was right by the theater. He went off to look at ties and I was looking at shorts. There was a lady right next to me and her little girl, who looked to be about 3, was playing right by me. She was hiding underneath the clothing racks which was one of your favorite things to do. I heard her mom call out her name. It caught my attention. I looked up and said, “What’s your daughter’s name?” as I was sure I had heard her wrong. She goes, “Ireland.” I just looked at her, stunned. I told her how your daddy and I had picked that name out about 9 years ago if we ever had a girl. I then had to walk off because I just started bawling. I walked around and found your daddy. A few minutes later, the little girl and mommy walked past us. I pointed her out and told him what had just happened. He seemed a little shocked too. The fact that the name is so uncommon, that this Ireland girl just happened to be in the same spot as me, the way her mom just happened to call out her name……..it kind of shook me to the core today. I can’t stop thinking about it. I wonder if it was your way of telling me that you are still here. That you are really watching over me. I think it must be. I can’t think of any other reason that would have happened today. It had to be you.

I talked to Fernanda tonight. It has been so long since I have heard her voice. She is still in Mexico. She picked up the phone and goes, “Buenas!” I squeaked, “Fernanda…. hi….” She goes, “Who is this??” I said, “Maya.” She goes, “Oh, Maya, Maya, Maya……I miss you so.” I started sobbing into the phone. I was overcome with how much I miss her and thoughts of you. We talked for a good half an hour. She has been having such a hard time, just trying to get back to her normal life. It will never exist for her again either. We talked about you. How this feels like a life sentence. How cruel it was to have you and then to have you taken away. How if she hears one more person tell her God needed another angel she is going to fucking lose it. Fuck that saying. It’s bullshit and the only people that say that, are people who have never lost a child of their own. We talked about what we are going to do once school starts up again. How she will help me find my way because nothing that I do, if not in honor of you, will make any sense. We both want to do something more with our lives than driving freaking carpool. We both feel the need to help other babies and families. I don’t know how we will do this yet, but I promise you, something will be done. She will be here on Friday. I cannot wait to wrap my arms around her. I hate being so far away from her.

Quinn is asleep next to me. We had a good night together. I talked to Liam and he will be back tomorrow night. I can’t wait to see him. We have missed him so much. I am so proud of him for going to Washington without us. He is so brave and independent. I know he has had the best time. It meant so much to Nana and Papa.

Ok my baby boy. I’m going to try to get some rest. I miss you so much. I love you, Ronan. I love you to the moon and back. I hope you are safe. Sweet dreams.

xoxo

And P.S. To all the people on my husband’s flight back to AZ tonight from San Diego….. you embarrass me. A family of 4 asked if anyone would switch seats with them so that the two parents could each be with one kid, so they wouldn’t have to be separated. NOBODY offered. Except Woody. My 6’6 husband gave up his aisle seat to sit in a middle for them. WTF is wrong with you people??? There should have been at least 10 people offering to give up their seats. Such little acts of kindness are things my husband has been doing his whole life. And he, the person who deserves it LEAST in this world, just had his son die of cancer. Fuck all you mean people. As my dear Charisma would say, “RUDE.” Miss you CC. Miss you Big Daddy Woo. Love you both.

Learning how to live, half alive

Ronan. My heart is still heavy. My mind is still a mess. I didn’t cry today though. I have no doubt that my pillow will be soaked tonight when all is quiet and the memories of you trickle in. Night time is hard. I fall asleep and wish for you to wake me up with one of your famous, “Good morning, Mom!” You were always so excited for our days. Back when you were healthy I would pretend I was still asleep just so I could listen to you run to my room after you had woken up to give me a kiss and tell me good morning. It was one of my favorite things in the world. You would never want to get in bed with me and cuddle; instead you would demand that I get up to make your breakfast and wake up your brothers for school. I was always happy to do this for you. Everyday with you was the best day of my life. I can’t believe I will never have that again. I would give anything for you, Ronan. I remember how when I would take you out, how many people would stop me to tell me you were the most beautiful boy they had ever seen. I used to joke with Tricia that I felt like I was with a celebrity when I was with you. We called you our mini Brad Pitt baby. You had an impact on everyone even before you were sick just because of the beauty that people saw from the outside. They didn’t even know the beauty you possessed on the inside. I still can’t believe you aren’t mine anymore. I still don’t understand why you had to leave. I asked Dr. Maze if he thought that you heard me as I was talking to you before you went… those last few minutes when I told you it was time to go. When I told you to come with me, because we were getting out of this place. He says he thinks you did, as many people say a persons hearing is the last thing to go. I wish I would have said more to you. I wish I could have told you everything I was feeling in my heart but that would have been impossible. I know you know how much I love you. I will never get over the fact that I alone couldn’t save you. I’ll always think that I let you down because I couldn’t fix you. I know there was nothing I could do as your disease was so uncontrollable but that guilt will never go away. I am so, so, sorry Ronan. I would have traded my life a million times over for yours. I think about this every single day.

I’m not sure what just happened…. except for while I am writing to you I am of course listing to Pandora. I have it on the Coldplay playlist. Right when the tears where pouring down my cheeks, this random song came on. One I have never heard before but here are the lyrics…….

Come thou fount of every blessing
Tune my heart to sing thy grace
Streams of mercy never ceasing
Call for songs of loudest praise
Teach me some melodious sonnet
Sung by flaming tongues above
Praise the mount I’m fixed upon it
Mount of thy redeeming love

Here I raise my Ebenezer
Hither by thy help I’m come
And I hope by thy good pleasure
Safely to arrive at home
Jesus sought me when a stranger
Wondering from the fold of God
He, to rescue me from danger
Interposed His precious blood

O to grace how how great a debtor daily I’m constrained to be!
Let thy goodness like a fetter, bind my wandering heart to thee
Prone to wander Lord I feel it, prone to leave the God I love
Here’s my heart, O take and seal it, seal it for thy courts above

Whatever. I’m still too mad to think this is anything. But I will say that the piano playing this song was pretty. I miss you so much. I know I tell you this all of the time, but I will miss you for the rest of my life. I worry so much about you. I still cannot believe you are safe and happy without us. How could that be possible? I know I took better care of you then anyone. You deserve to be with me still. Your daddy watches me and the way I sit and am still with my thoughts. He knows I am tortured. I actually said to him that we made a mistake with your treatment. We should have done this, we should have done that, we should have been more aggressive. I know I am wrong about this. Nobody knew what was to come. Your daddy talked to all the best doctors and they all agreed with what we were doing. I told your daddy we should have had you scanned after every round of chemo. Nobody would have done this for us. But this is the only way we would have known that everything was spreading so rapidly. The day of your last scans, at Sloan…. Dr. Kushner’s face will haunt me for the rest of my life. He knew you were going to die. He couldn’t even look at me, Ro. Walking out of Sloan, they all knew you were going to die. But I wish they could have told me, instead of avoiding me and my tears. I don’t think badly of Dr. Kushner at all. If I saw him today, I would give him a great big hug and thank him for all he is doing to try to figure out this disease. I guess I’m just having a hard time because I feel like I didn’t get closure with him. I feel like he owed you more than the send off he gave us. But I also get that he is a man. A brilliant man and an amazing doctor. And I am sure he feels like he failed us and that is a hard pill to swallow. I get all that. But I also get that you deserved more, little man. Because you are going to change the world of this disease and I know someday he will be telling you thank you, Ronan. I will make sure of this. You will not be forgotten by him. And someday, I hope to replace a new image of him in my head from the awful one I am left with. I don’t want to carry that around with me forever.

I drew your name in the sand tonight while I was on my run. I went for a run on the beach in the dark. It is the only way I like to run now. In the dark, alone, where I don’t have to look at anyone in the eyes and I don’t have to see all the happiness surrounding me. All of that stings so badly. I don’t know if that pain will ever go away. We used to be that family. The perfect family that had it all. We had it all because of you. Now we are all so wounded, so empty. Although I did hear your brothers laughing today. I played with them all morning. I tried to stay focused on them, but my mind kept wandering back to how different everything would be about our day if you had been with us. Nothing about our day would have been the same; you changed everything.

G’nite my little man. Everyone is asleep now. Quinn is right next to me, all cuddled up with your blanket, GiGi. I’m going to cuddle up to him now. See you in my dreams, baby doll. I love you.

xoxo