Ronan’s Day of LOVE

Ronan. I drive home. Alone. In the silence. With your blanket on my lap and your ashes around my neck. Blinded by my tears. I know what I am coming home to. An empty house. I pull into our driveway. Your bedroom window is the first thing I see. Your blinds are open. Everything is just the way you left it. Your room has not been touched. Your clothes are still in your drawers, your closet is filled with all the things you never even got to wear. The hand me downs from your brothers, in bins in your closet. You should be playing in your room. You are not. I hold my breath. Wishing for time to be reversed. I remember everything about this time last year. Everything from the text messages I sent, the phone conversations I had on the patio, to way you told me you loved me to the moon and back, how even though we were at the Ryan House, I did not think you were going to die. Nobody would be so cruel, to make us be apart, right? Who would do such a thing?

Somebody. Somebody did and now May is here. As of today, I only had 9 days left with you. Just 9 days. What would I have done differently, if I had known I only had 9 days to spend with you? I would have not slept. I would have told you over and over, how much I love you. I would have told you over and over, how proud I was to have you as my son. I would have told you over and over, how lucky I was to have you for the almost 4 years that I did. I would have told you how sorry I was. I would have kissed your lips, your fingers, your toes, a hundred thousand times. I would tell you how hard I will work for the rest of my life, to help others because that is one of the few things that is going to get me through this. My soul does not belong to myself anymore. I gave it up the second you left me. You took it with you. I don’t want it back. I know you are keeping it safe for me. I wish I would have had some poison to drink with me. The second you took your last breaths, I could have taken the poison and drank it too, so I could have died with you. So you wouldn’t have to be alone, without me. Like Romeo and Juliet. Only we loved each other so much more than they did. I’m sorry I cannot be with you. It is so wrong, Ronan. So very wrong.

I need you. I cannot do May. I said those words tonight. I know you heard them. I know you saw me. I’m sorry if you saw the pain in my eyes, the hot tears that ran down my cheeks, the way I said, “No, no, no,” over and over again as I clung to the one thing that makes me feel closest to you. Please make May go away. Please bring him back. Please. I cannot do May.

But May is here. There is no stopping it. I would have sent out your birthday party invitations now. We would have had an awesome party. Anything you wanted. I’m sure it would have been Star Wars related. I wonder sometimes if you would have ever outgrown your Star Wars phase. Now, I’ll never get to know because to me, you’ll love Star Wars forever. May 12, you would have been 5. That seems so big. You would have been such an amazing little 5-year-old. I’m still going to plan your party, even though you are not here. I’m calling May 12, 2012 Ronan’s Day of Love. We are doing something very special down at Phoenix Children’s Hospital to make some very sick sweet kids, smile. It’s exactly the way you would have wanted it to be. It’s going to be a very special day down there all because of you. I cannot be there. Not this year. It’s too much. I’ve got our lovely little board members handling it all as well as my intern Rissy and your Liz. They will do a great job.

So, Ronan’s Day of Love. I’ve come up with a few ideas. I think we should all wear purple for Ronan’s Birthday. It’s such a great color. I really loved all of the balloons for his birthday last year. Purple was his favorite color so if you all want to buy purple balloons and let them go, that would be so sweet. Any color would be fine, but purple was his favorite. I loved seeing all the pictures from it too, so if you want to snap the pics and email them to me, that would be nice to see. Any donations to his foundation are always welcome, of course. We are getting pretty close to getting Dr. Mosse’s trial funded. This Marathon of Madness has brought in some good money and we are so thankful for all the support. I’m not done planning Ronan’s party but I’m getting tired. One more thing that I can think of that I would like you to do is grab your child, children, sister, brother, friend, aunt, uncle,…. whomever you are closet to and say these words over and over to them…,”I am so lucky to have you.” I used to say those words over and over to Ronan all the time. And now I’m not so lucky, because he is not here for me to hold and tell him how lucky I was. I always knew. Everyday with that child was such a gift. A gift that I will never understand why it had to be taken away. I will never accept all that he went through and his death. I will carry that anger and pain with me for the rest of my life. It’s mine to carry. It’s a part of Ronan. I’m not letting that go.

But I have to go now. It’s been 2 weeks without Ambien. After tonight, I had to take one. Sometimes the screaming in my head and the tears just won’t stop. Somethings I have to say enough. I’ll be surprised if this post even made sense. I do some weeeeiiiirrddd shit on Ambien. Thank god I have no desire to go and drive a car. Tent City, here I come! Bucket list Rita!!!

G’nite Ro baby. I love you to the moon and back. You are my best friend. You were the best thing that has ever been mine. I miss you. I love you. I hope you are safe.

xoxo

A painfully gracefully clumsily beautiful existence

Ronan. I had a rough sleep last night. I think there was a lot of tossing/turning/punching pillows involved. It was 1:45 a.m. when I pretty much said FUCKTHISSHIT and popped an Ambien. Hate it. But sometimes the silence of nothingness is needed. More so than not lately. Nights have been more brutal than they normally are lately. Nights are when the cries from you to me and me to you, scream the loudest. Nights are never quiet.

I got up today, running on the little sleep I had gotten, but I had a lot to do. Too much to do so I went into tunnel vision to get everything done. Foundation things. I had a meeting at Phoenix Children’s Hospital that I needed to prep for too. Prepping came with basically giving myself a pep talk and telling myself how I would be brave today and talk about you, without sobbing like a baby. Prepping for today came with a lot of,”You can do this. For him. He would love this.” Rita met me down at PCH. I was waiting in the lobby for her, busying myself with doing things like cleaning out my purse. Busying myself with a lot of things to distract myself from crying. I don’t have a problem with being at PCH. I’m down there a lot still. I had a problem with the reason I was down there today. I didn’t want to be there, without you, asking for permission to do something for your birthday, and you are not even here to celebrate it. I wanted to be down there, with you holding my hand, doing something for your birthday and celebrating the fact that you were here and we together, wanting to do something nice at PCH because we were so lucky to still have you. I fought back my tears today and bravely did this without you. I sat in a conference room with Rita and clumsily/gracefully talked about your upcoming birthday and what it is, we would like to do, to honor you. I am used to hearing the word no a lot now. I am used to getting met by skeptical glances and it usually involves a… “Well if you want to do this, you have to check off this box and this box and this box, to have it done.” I am used to having to work/fight for everything in life. Today, none of that existed. I was met with a big fat, “We love this idea! We love everything about it. We will do whatever it is, you like. How can we help/what can we do/how would you like to see this idea, happen all the time in Ronan’s honor!” I was quite simply shocked. I think Rita almost fell over in her chair. This was not what either of us, was expecting. We left there stunned but smiling. We went for tacos afterwords and talked where we talked about your birthday and how we are going to execute the ideas that we have. We are going to make it a very special day for a lot of kids. I know it would make you smile and so happy.

After I left Rita, I drove to your brothers baseball game. I was feeling alright. I arrived to the game and just as I was sitting there, thinking about an email I was supposed to send today, in regards to an event I am trying to pull off for you in September, a little text message popped up on my phone. A little text message from the person I was going to email, but did not. I read it, sat with it, and the tears started pouring. I don’t want to go into details about what the text message said as it’s not important. I’ll sum it up with a little Taylor Swift lyric instead…one of my favorites. “Don’t you worry your pretty little mind, people throw rocks at things that shine.” I was crying for about 10 different reasons during that moment. 1) Because baseball games are hard in general. 2) Because I miss you. 3) Because this little text messaging person, blows my mind 4) Because I am so thankful that truly good people in the world, like her, exist 5) Because the stars are aligning, right before my very eyes 6) Because just when I start to doubt myself, this person always seems to know it and reminds me that she believes in me and you 7) Because I am so about letting things just come about/not push them and this was a huge reminder/sign to me to continue to do things, this way. There are a few more reasons for my tears, but I don’t want to go into them. Mostly it was just a huge fat thank you, Ronan. For reminding me that you are still here, working away during the times when I feel the most defeated. Or tired. I told your Sparkly eyes that I was just freaking tired of everything. I was quickly met with a, “So what? That’s bullshit. You’re tired? That means nothing.” He is one of the few people who I allow to slap me in the face and I don’t become defensive or feel offended. I am able to step back, assess the situation and say, “You are right. I am acting like an asshole and I need to knock this shit off.” I am learning to let myself take little breaks here and there, but I will never give up on you. I will work as hard as I can, to make some things in this mad world, right.

You know what else you are doing for me? Or should I say, this grief is doing for me? It’s making my heart bigger than ever. I did not know that was even possible, but it is. There are things now that I just cannot look away from. I want to save/help everybody. It’s helping others, that is saving me. Dr. JoRo told me this after a few times of seeing her. She talked about how my heart, would eventually start to turn outward again. I remember being in a fog, listening to her words, but not really understanding what she was saying. My heart would turn outward and grow bigger? Not possible. It is black, broken and shattered into a million pieces. I am starting to understand what she has told me, from the beginning. I’ve always believed her, but I think until now, I wasn’t truly ready to hear what it is, she was telling me. She is so freaking humble. I talked to her today. She is still on her trip and just found out she is getting some huge/really big deal award for being what I think should be called, “The Most Amazing Woman Alive on the Planet Award.” I listened to her talk about it like it was not really a big deal, even though it is. She would never come out and say that because that is just how she rolls. I tried to tell her it was a big deal, that she deserves this for everything she is doing. I was met with a, “Maya. That’s the thing. I’m not really doing anything except just being with you. Just holding your hand as you do this. All I am doing is sitting with you while you feel this, while you go through this, while you find your way.” I wiped the tears off of my cheeks. I told her that what she was doing, was walking through this with me in a way that nobody had done before. By truly listening. By speaking for me when I cannot, even if it’s not saying anything at all. By NEVER judging. By NEVER pushing. By NEVER expecting. By NEVER telling me I am doing this wrong. By NEVER lessening my pain. By never trying to numb my pain by shoving 10 different pills down my throat. By never saying, “Oh, I lost a child too, so I TOTALLY get it. By never telling me it’s time to get over this/move on. By never comparing her pain to mine. By NEVER using the words, “Well at least you have these things/people to get you through this. By never using the words, “You should be grateful for the things you do have.” By never telling me this gets easier. By never giving me false hope. By being brutally honest about how fucking awful this all is and she cannot fix it. She cannot fix it, but she will forever be here to watch me as I do, as I am the only one that can. And finally, by believing and me and trusting me, even when I do not believe or trust in myself. She always does. I know she always will too. She is one of my biggest reasons for continuing to fight as hard as I do. When I grow up, I want to be just like her;) She is beyond inspiring, Ronan. She reminds me a lot of you. She reminds me a lot of me, too. So much some days that I can see my pain, in her eyes. But the thing with her is it never hurts to look at her eyes, full of all of my pain. When I look into her eyes, I see a quiet strength that makes me feel the most at ease. It’s like I can breathe for a bit.

Guess what I did tonight? I did not get to hike today due to my busy day of getting shit done. I was quietly panicking in my head about it. I took Liam out tonight to grab a bag of ice for your daddy. It was dark. It was late. I drove the two of us, to our mountain. “Liam. I didn’t get to hike today, buddy. You want to go with me really fast?” I was met with an, “Ok mom. But I don’t have shoes.” I quickly told him no problem, that we could just go barefoot. He was so excited. “Good thing I have tough feet, mom.” Tears sprung to my eyes. “Yeah buddy. Good thing. I do too, so we will be alright.” We hiked, barefoot, in the dark together. He talked the entire time. We didn’t go to the top but that was not the point. We went as far as we could with bare feet/no flashlight like we didn’t have a care in the world. We bonded. We laughed. We missed you. It was a very sweet hike with a very sweet boy. I bawled like a baby over it and the fact that we were simply doing that crazy thing, because you are dead. If you were here, I would have never been on a mountain, holding Liam’s hand with bare feet and a broken heart. But I was. And I am. And I will continue to be for the rest of my life. This is just the way it is now. This is just the way it will always be. This grief/pain will never leave. I can’t have you anymore so this is what I am left with. A beautifully, painful life. I am noticing that the amount of beauty that I see in the world is endless but so is the amount of pain. They both seem to go hand in hand, everywhere I look. They are never without each other. It is as if they are best friends/worst enemies. You cannot have one, without the other. I wonder if other people notice this or if it is just a bereaved parent thing. I think my friend Rita sees it all the time, as well. Maybe this is one of the reasons I like her so much. That and she is funny as a mo fo. I cannot contain laugher/her snarky ways when I am around her, kill me. Like in an I almost pee my pants kind of way. Laughter truly is the best medicine. I need a lot of it. She is good at providing it. Plus, sometimes she makes me feel like I am being funny and making her laugh, too. So sometimes I feel like it’s just not a one way street;) YAY ME! I can still be kind of funny, when it comes out naturally. I only do this with the people I feel most comfortable around. It’s a weird introvert characteristic of mine.

Alright babydoll. Turing in for the night. Ambien I hate you but I have to sleep is here. G’nite baby doll. G’nite sweet friends. I miss you, Ro. I hope you are safe. I love you.

xoxo

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