A death day and a birthday

 

 

 

Ronan. May 9th came and went. It was a gut wrenchingly hard day. I did my best. I did all I could do. I did not die. It was a rainy day, as it should have been. I got up, showered, dressed. I went and had lunch with your daddy and brothers on this awful, awful day. We had planned a day of hiking. Just as we finished lunch, your purple balloons arrived. 5 of them. Sent by the most thoughtful board members and little intern on the planet. The one’s who put so much thought and effort into sending us off, on this trip, that we have had gifts to open every single day that we have been gone. All things inspired by you. Things that have made us laugh, be silly, and wild and free. Things that have made us cry, like the 5 purple balloons. Who thinks to have purple balloons sent to our hotel, so we can let them go for you because they know we are in a small town, and wouldn’t be able to find them anywhere? My board members. My intern. My sisters. My family. This is why they are the one’s I trusted with your candy cart for Phoenix Children’s Hospital for your birthday. This is why they sit on your foundation board. Because they know this is not just business. This is about unconditional love, thoughtfulness, and helping when help is needed most. They know this without me having to say a word. This Ronan, is the truest form of unconditional love. This Ronan, is why after all of this, I still think I am lucky and blessed. So very blessed even without you. I know these little blessings are all gifts from you, to keep me going. Thank you so much. I don’t know what I would do without them.

After lunch, I grabbed the 5 purple balloons and hugged the front desk girl and told her thank you with tears streaming down my cheeks. One of my lovely little board members, filled her in on the reason for our “vacation.” She knew the reason for us being there. She looked at me and said, “You are welcome. Please, let me know if you need anything.” I told her I would. We headed out for our hike. We drove to somewhere that was recommended to us. I let your daddy navigate and take us to our destination. I sat, numb, and totally zoned out. I tried to let myself get lost in the beauty around us, but it was impossible to take me away from the world I live in, without you. Once we arrived, we scoped out the trails. We ran through the woods down towards the water. I carried your 5 balloons. We all stood together and each of us, took a purple balloon. Your daddy and I held yours, together. We let them go and watched them float away. We clung on to each other, and I buried my head into your daddy’s shoulders. We stayed that way for a while. Your brothers didn’t really know what to do as they seem to be pretty unfazed by everything that is going on around us. As 8 year olds should be. We went on a long hike through the woods. Every stick I saw, ever rocked I threw, every mud puddle I stepped in, was a slap in the face to me. It hurt, so much. It is so wrong that you are not here, running through that forest, with your brothers like you should have been. You would have loved every second of our family hike. It was the most exhausting hike of my life. It wasn’t physically hard. It was the mental part that I struggled with. Hiking on the day that you died, because you died, because nobody knew what else to do. Talk about a mind fuck of a day.

I heard about the storm in Phoenix on your death day, Ro. A spicy storm on May 9th that could have only been caused by you. I have no doubt about that. I loved hearing all about your storm. Nobody could believe it. The people that love you the most, could. You made it pour down on me, in Maine, and you proved your point with your spicy little storm in Phoenix as well. You are such a little badass.

I don’t remember the rest of the day or night. All I know is I went to sleep, exhausted. No Ambien needed. I have not taken that, since the first night we were on our trip. I have slept alright without it.

I have been so preoccupied with your death day, that it is as if your birthday has come up from nowhere and knocked me down so hard on my ass, that today, I did not know if I could get up. I did. I mustered up the energy to go out for a while to explore our new surroundings as we switched locations last night. A new destination was a good change of pace. We explored for a few hours and then headed back to our hotel. I had a raging headache probably due to all the crying I had done. I crawled in bed while your brothers played outside and your daddy worked. I needed to just shut down for a couple of hours, so I did. I got up when I got a text message from one of our lovies here. She was close by our little town and came by to see us. The two of us went out and grabbed a quick bite to eat. She knew I was having a hard day. She knows first hand, all too well about this life. We quietly talked about all things that two mom’s should never have to talk about. Kids getting cancer. Kids dying from cancer. The how’s, the why’s, the unfairness of it all. I spent the hour at dinner, looking across the table at my friend who has the same eyes as mine. One’s filled with so much pain, that it is palpable. But there is a fire there, too. I see her son, in her eyes, every time I look into them. It gives me strength. I left her still feeling pretty sad, but feeling better about your upcoming birthday. I left there, feeling like I could get through tomorrow, without you.

I came out of the restaurant and I had 16 text messages on my phone. FUCK. I had forgotten about the little insane text message party I had with Rita, before going to dinner. The one where I was laying in bed, sobbing, and she just happened to check in on me. The one where I said I wanted to die, and how many Ambien would it take to overdose? She responded right away with one could not overdose on Ambien, but instead they will lose all control of their bodily functions and shit themselves. Well, that sounded like a shitty plan. I would not like to do that. I then asked her the best way to commit suicide, and told her I was googling it. I was. But not because I wanted to really die; mostly out of curiosity. Rita told me she was not playing this bullshit game with me and gave me the sternest text messaging spanking I’ve ever gotten in my life. I threw my phone in my purse, forgot all about our conversation, and headed out the door to dinner. Once I saw my phone, on text message overload, I remembered what had gone down. I quickly responded that I was alright, so sorry, and I would call her in a few. I got home and called the two people I needed to check in with.

Your Fernanda was first. Ronan. Do you know what she did? It is unbelievable. I left for this trip, and I pretty much left my lovely little board members in charge of Ronan’s Day of Love at PCH. I knew I couldn’t be there, so I left the ones I trust most in this world, in charge of it. I knew they would not let us down. I know how hard this was for all of them to do; but they didn’t blink twice when I asked them. They were honored, to be honoring you in a way that meant so much to me. We have planned for a couple of months now. The candy cart, the balloons, the Star Wars characters to visit the kids. Who would be there, helping. A day of love at PCH, all inspired by you, to make others smile and happy and to forget about the fact that they are in a hospital, fighting this beast that no child should ever have to fight. I had an idea about what it is I wanted for your candy cart, but I gave Fernanda free rein to do whatever it is, she wanted. What she put together, ended up being a freaking masterpiece. I don’t know how she did it, but she did. She spent all day Friday, “Pimping your Wagon,” as she said. She had some great helpers, this I know. Thank you, all. So much. Ronan’s purple candy wagon, complete with an iPod and speakers, for the playlist I made, not to mention a secret hidden zombie underneath, is something you would have gone crazy over, Ronan. It was everything you. It was all you. I could not have done a better job myself. This is the reason, your Fernanda wears your ashes that I gave her, around her neck. Because she knows you inside and out. Because you are her Twinkle Twinkle Little Star. Forever and always.

I called her, I broke down and cried, I told her thank you over and over. I listened to her voice and let her put her little spell on me that she always does. The one where she calms me down and takes me away to a world where only you and I exist and she reminds me to remember this. That you are still here, with me. That you are mine and I am forever yours. Nobody else can do this for me, but her. I hung up with her feeling a little better. I had to call Rita, next. Our very long conversation can be summed up best by this.

Me: I am so fucking sorry. I should not have texted you that I want to kill myself crap. That was not o.k. I thought you knew I was kind of joking. You know me. You know I’m not going to do anything.

Her: You are a mother fucker. You are not allowed to do that to me, set the phone down, and not answer it. EVER! I did not know if you were serious or not. I thought you were really dead. I thought you were really dead, but you know what Fernanda told me? She told me this. “Listen, Rita. I believe Maya wants to die, everyday. But not by her own hands. Do you know how I know Maya will not actually do anything? Because she wears lipgloss. Because she gets manicures and pedicures. Because she puts on make-up and fixes her hair. Because this shows me that for all the pain she’s in, she has a shred of self-love left. She takes care of herself by doing these things. We can all be concerned if she stops showering and wearing lipgloss. Until then, she is alright.”

Rita and I were both in stitches. Only Fernanda could rationalize my madness by saying the key to me not taking my own life, is because I wear lipgloss. Only Fernanda, could make it make perfect sense because it absolutely does. I told Rita, I was sorry again. I truly was. I didn’t mean to make her worry. I was in a bad place and I was venting but it still was not right to do. I know I can be a jackass sometimes. I am thankful she loves me enough to forgive me. I fell asleep last night, cuddled up to your Liam. I was missing you extra much. He felt extra soft and snuggly to me. I soaked him in for the rest of the night, knowing what I had to wake up to. But it was another Ambien free night. I was a good girl, for you.

I woke up, feeling sick to my stomach. Ronan’s 5th Birthday day. I didn’t know what to do. I threw on my clothes with your daddy still sleeping and your brothers were just starting to stir. Out the door for a run I went. A little run that turned into a 2 hour run, partly due the detour I took, to sit in the middle of the forest to sob about you, and partly due to the fact that I got lost. Lost on your 5th birthday, without you. Seemed pretty fitting, actually. I ended up finding my way home, Ronan. I always do.

I made it through the day, thanks to the help of your daddy, brothers, and friends. The 4 of us had a low-key day/night. We all wore purple, from head to toe. I played Lacrosse out in the big, grassy lawn with your brothers. There spent the day laughing and giggling as they should have. I have yet to go on to Facebook but I swear it seems as people all over the world were out doing crazy, kind-hearted things for you. I am moved beyond words by just a fraction of the stories that I have heard. They fill me with a bittersweet hopefulness that I never wanted, but now it will always be mine. I will treat this as a gift. I have no choice. This life I live now, Ronan… is one filled with all things beauty and pain. They will always go hand in hand. I have to learn how to let them work together, while being respectful of one another. It’s a heavy-hearted job but it is my job to do. After today, there is the most amazing proof that I am not doing this alone. So many of my family, friends, ex friends, old friends, new friends, and strangers are in this for the long haul, too. Look at all you’ve done and it’s only been a year, sweet boy. Imagine what we will do, in this lifetime together. So many amazing things. I know this.

To everyone out there, who spent today, honoring my Ronan by being extra kind, spicy, loving, honest, brave, caring, wild and free. Thank you. So much. You are getting me through my darkest days. You are making a difference. You are making him, so very proud. I love you all. Without you, this would not be happening. It is because of your loyalty and love that this world is going to change. Thank you for believing this in your hearts and souls and for being grateful for what it is you have. No matter how much or how little because you all get what truly is important. LOVE and HEALTH. That’s it. Those are the only two things that matter in life. If you have those two things, you have everything.

One last little shout out tonight, Ronan. My lovely little board members, my intern Rissy, and sissy, Liz. I know today was so hard for all of you. Words cannot even touch how thankful I am. You took Ronan’s birthday and made the day of so many parents, kids, siblings, nurses, and staff at Phoenix Children’s Hospital. You made them smile. You gave them a good day full of warmth and love. That is priceless. You all are priceless. Thank you for all of your hard work, love and turning today into a day that was all about Ronan, without it having to be, “All about Ronan.” I am blown away at how perfect everything turned out, but not surprised. Just very, very humbled and grateful. I love you all, so much. I know he is so proud. Thank you, thank you, thank you.

Alright my Ronan. I need to end this now. Happy 5th Birthday. You would have been the most beautiful 5-year-old to walk this planet. This is beyond fucked up. This is beyond unfair. I am so sorry. I made one wish for you tonight. That I of course, hope you are safe. I love you to the moon and back. I will fix this. I will make this better. I won’t break my promise to you. I promise on my life, that I choose to live. Because this living thing is a choice and I am not going to waste it. I will live for you. Until you are ready for me to be with you, once again. I love you. Sweet dreams.

xoxo

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Fuck You, Cancer and a Fuck it all day

Ronan. It’s not time yet, right? No. Not yet. I still had a couple of days left with you. I woke up today, not knowing what day it was. I grabbed my phone and thought to myself, please don’t let it be the 8th. I let out a sigh of relief when I saw that it was only the 7th. The 7th I can deal with. The 8th I’m sad for. The 9th I’m scared for. It will be here before I know it. Everyone is scared. I got a text from Rita today telling me she was bloody scared for me. She said she is scared that I want to die the most yet. She said she is scared that I will forget our sacred ninja promise. I responded with the truth which is I want to die, every single day. But I won’t. I don’t care how painful this gets. I would not do something that would be so disrespectful to you. That’s really what it boils down to. Life is so precious. Dying by my own hands would be such a slap in the face to you. It’s the easy way out. It’s the selfish way out. I don’t take the easy way out with anything I do. And I’m not selfish. Except when I need to be ,which is only because I have to take care of myself sometimes. And sometimes taking care of myself makes me seem selfish. Fuck it. I don’t really care. Is that selfish? Probably. But I think I’ve earned that right. I won’t do that to you, Ronan. I won’t off myself like I often dream about. You know I think I failed you. I told Rita I will not fail you, again, by not saving myself. I will not let cancer destroy everything that you are trying to do in this very broken world. Cancer may have taken my soul, but it will not take my spirit. I won’t let it, Ro. I won’t let it for you.

Today, we slept in a bit around here. I fell asleep easily last night, without Ambien, but it was late when I did. I fell asleep and stayed asleep which rarely happens. I needed it. I woke up to your over-anxious brothers, so excited about the day. We showered and got ready and headed out. We spent the day exploring the town, eating the freshest seafood I’ve ever had in my life, playing on the cold beach, and I went for a run. I keep trying to remind myself that I do have a marathon coming up to run. Ummmm… just a little 26.2 miles to do. I have not run, in months. I did 6 miles tonight and it was so easy, it was stupid. Well, not stupid because it felt good. I think I could have kept going. I keep telling myself running is 90% mental, right? I may have just made that up in my head, but it makes me feel better. It makes me feel like I can run this marathon, without training for it because I am surviving you not being here, which is mentally hardest thing one can go through. I can do this marathon. All I’ll have to do, is think of you the entire way through and I will be fine. I think a lot of people are coming to San Diego, to cheer me on. The more the merrier. I will need all the screaming and FUCK YOU CANCER!!! that I can get.

Rita also texted me to say that a lot of people are wanting to do something for your death day. The 9th. She wanted to know if it was alright. I told her of course. People are wanting to let balloons go, which of course I am more than alright with. How about a black day with colorful balloons? Preferably purple balloons. I would like to fill the sky with them for you. I like that. I’m wearing black. Black is sad. Black is the color of grief. But black is also powerful, soulful and strong. For your death day, black fits. White made sense on the day we had your service. But not for the day that you died. There is nothing beautiful about the day you died. I’m going to wear black on this day, for the rest of my life. It is the only thing that feels right to me.

As for other things…. is it too much to say I think that everyone should just stop everything they are doing for the day? If I had my way, the entire world would go black. What did your Sparkly say to me a couple of weeks ago that made me laugh out loud? That maybe he should listen to me and just have a “Fuck it all day.” A day where you literally just do whatever you want and say fuck the rest of the “things” that you are supposed to be doing. Just for one day, blow it all off. Blow it all off because everyone deserves to have one day, where they are so grateful for all that they have, that nothing else matters. If I had you here, if I had you here and Liam and Quinn too, I would to this. I would listen to this and spend the day, totally lost in the world of the three of you. I would have kept you home from school. We would have went to do something extra special and fun. Rules and time-outs would not have existed. I would have told you 100 times how much I love you, how I was the luckiest mama in the world, how there is no place that was more important to me, than being with the 3 of you. It would have been the best day ever.

This is all I can do tonight, little one. Tomorrow is the 8th. I have to figure out how to wrap my head around what is to come. I love you so much. I’m so sorry. I miss you. I hope you are safe. Sweet dreams, baby doll.

xoxo

Ronan’s Day of LOVE

Ronan. I drive home. Alone. In the silence. With your blanket on my lap and your ashes around my neck. Blinded by my tears. I know what I am coming home to. An empty house. I pull into our driveway. Your bedroom window is the first thing I see. Your blinds are open. Everything is just the way you left it. Your room has not been touched. Your clothes are still in your drawers, your closet is filled with all the things you never even got to wear. The hand me downs from your brothers, in bins in your closet. You should be playing in your room. You are not. I hold my breath. Wishing for time to be reversed. I remember everything about this time last year. Everything from the text messages I sent, the phone conversations I had on the patio, to way you told me you loved me to the moon and back, how even though we were at the Ryan House, I did not think you were going to die. Nobody would be so cruel, to make us be apart, right? Who would do such a thing?

Somebody. Somebody did and now May is here. As of today, I only had 9 days left with you. Just 9 days. What would I have done differently, if I had known I only had 9 days to spend with you? I would have not slept. I would have told you over and over, how much I love you. I would have told you over and over, how proud I was to have you as my son. I would have told you over and over, how lucky I was to have you for the almost 4 years that I did. I would have told you how sorry I was. I would have kissed your lips, your fingers, your toes, a hundred thousand times. I would tell you how hard I will work for the rest of my life, to help others because that is one of the few things that is going to get me through this. My soul does not belong to myself anymore. I gave it up the second you left me. You took it with you. I don’t want it back. I know you are keeping it safe for me. I wish I would have had some poison to drink with me. The second you took your last breaths, I could have taken the poison and drank it too, so I could have died with you. So you wouldn’t have to be alone, without me. Like Romeo and Juliet. Only we loved each other so much more than they did. I’m sorry I cannot be with you. It is so wrong, Ronan. So very wrong.

I need you. I cannot do May. I said those words tonight. I know you heard them. I know you saw me. I’m sorry if you saw the pain in my eyes, the hot tears that ran down my cheeks, the way I said, “No, no, no,” over and over again as I clung to the one thing that makes me feel closest to you. Please make May go away. Please bring him back. Please. I cannot do May.

But May is here. There is no stopping it. I would have sent out your birthday party invitations now. We would have had an awesome party. Anything you wanted. I’m sure it would have been Star Wars related. I wonder sometimes if you would have ever outgrown your Star Wars phase. Now, I’ll never get to know because to me, you’ll love Star Wars forever. May 12, you would have been 5. That seems so big. You would have been such an amazing little 5-year-old. I’m still going to plan your party, even though you are not here. I’m calling May 12, 2012 Ronan’s Day of Love. We are doing something very special down at Phoenix Children’s Hospital to make some very sick sweet kids, smile. It’s exactly the way you would have wanted it to be. It’s going to be a very special day down there all because of you. I cannot be there. Not this year. It’s too much. I’ve got our lovely little board members handling it all as well as my intern Rissy and your Liz. They will do a great job.

So, Ronan’s Day of Love. I’ve come up with a few ideas. I think we should all wear purple for Ronan’s Birthday. It’s such a great color. I really loved all of the balloons for his birthday last year. Purple was his favorite color so if you all want to buy purple balloons and let them go, that would be so sweet. Any color would be fine, but purple was his favorite. I loved seeing all the pictures from it too, so if you want to snap the pics and email them to me, that would be nice to see. Any donations to his foundation are always welcome, of course. We are getting pretty close to getting Dr. Mosse’s trial funded. This Marathon of Madness has brought in some good money and we are so thankful for all the support. I’m not done planning Ronan’s party but I’m getting tired. One more thing that I can think of that I would like you to do is grab your child, children, sister, brother, friend, aunt, uncle,…. whomever you are closet to and say these words over and over to them…,”I am so lucky to have you.” I used to say those words over and over to Ronan all the time. And now I’m not so lucky, because he is not here for me to hold and tell him how lucky I was. I always knew. Everyday with that child was such a gift. A gift that I will never understand why it had to be taken away. I will never accept all that he went through and his death. I will carry that anger and pain with me for the rest of my life. It’s mine to carry. It’s a part of Ronan. I’m not letting that go.

But I have to go now. It’s been 2 weeks without Ambien. After tonight, I had to take one. Sometimes the screaming in my head and the tears just won’t stop. Somethings I have to say enough. I’ll be surprised if this post even made sense. I do some weeeeiiiirrddd shit on Ambien. Thank god I have no desire to go and drive a car. Tent City, here I come! Bucket list Rita!!!

G’nite Ro baby. I love you to the moon and back. You are my best friend. You were the best thing that has ever been mine. I miss you. I love you. I hope you are safe.

xoxo

A promise and a baby lizard.

 

Ro baby. Hi. Hola. I cannot believe you are not here. I cannot believe you are really gone. I hate this so much. I’ve had a lot going on. I’ve done my hiking everyday or every night just like I said I would. I’m proud that I’ve stuck with it and have not missed a day. Even on the days that I have not been feeling well or have been too sad, tired, sore, or it’s too late. I don’t care. I have made myself climb that mountain, every single day. I have no excuse not to. I broke the most important promise in the world to you, which was how I promised to save you. I’m not breaking this one. I will spend the rest of my life, fulfilling the promises I make to you. It’s one of the things I take very seriously in this oh so insane life without you.

I had  a board meeting yesterday. It was productive and fast. We are getting a lot of things done. I made it through yesterday by the skin of my teeth and a very long, hot hike. I’ve slept the past 4 nights without our little frienenemy, Ambien. Yay me. My sleep has been horrific though. So many intense nightmares. I cannot even think about them without being sick. A lot of them have to do with you being tortured and I cannot get to you, in time to save you. I wake up scared and sad but I’m back to fighting off having to take Ambien. I don’t like taking any kind of prescription sleep aids. I’m back to trying to suffer through sleep, without their help. Dr. Jo is happy about that. I am too.

I spent today running around, getting things done. It seemed everywhere I went, I was surrounded by babies. It was weird. It made me really sad and miss you. I met Rita for lunch. I was waiting for her and I texted her something like, “Fucking babies everywhere.” She said we could go somewhere else. I told her no. That I would just ignore the babies. She got to the restaurant. I think she saw the look on my face as sweet innocent baby #1 was right behind me. She sat down. She looked at me and goes, “Oh my god. Whatever you do, DO NOT TURN AROUND. They just took their baby out and it is a lizard. It’s not even a human. They had a freaking lizard for a baby and it is disgusting.” I started cracking up. The baby lizard story continued for a few minutes while the laughter escaped my lips. It was a really, really, good story. I almost believed it. That Rita of yours, knows just how to make me giggle when I need it the most. #Thankful (hashtag, right Rita?)

After lunch I ran to see Dr. JoRo. We sat in her office and hashed out what has been going on. I cried. A lot. She asked what we were doing, this time last year. I told her. She asked me if I had written it down. I said I am pretty sure I had written a blog entry. She asked if I minded if she looked it up, from around this time, last year. I told her I never re read what I wrote, but sure. She found an entry. She read it out loud. She had to stop a few times, to compose herself. I just sat quietly and let the tears slide down my cheeks. I closed my eyes and pretended like I was listening to someone else’s story. Please don’t let this be about us. Please don’t let this be about you. I begged. I pleaded. I opened my eyes. There your little obituary sat on the same place it always is. Right in the middle of her desk. This is our story and it fucking sucks. I don’t care what good comes from this, Ro. All I want is you back here with me. More than anything.

I’ve been making plans though. Plans for your birthday, plans for our trip, plans for summer, plans for this marathon of madness. Lots of plans. Lots of plans that I don’t want to make but what choice do I have? I have to do these things for my sanity and for the sake of your best brothers, who deserve to have as normal as a summer as possible. I saw your Sparkly. I had your GiGi with me when I saw him.

“Why are you carrying that around? I’ve never seen you do that.”

I had it draped over my neck.

“I need it today. It smells like him. I take it a lot of places. I just don’t pull it out in front of you.”

He gave me that curious/sad look that I get a lot. We chatted about some things that have gone on/are going on. I sat quietly and let him talk. Sometimes I need to do that. Sometimes, I don’t have much to say because it’s all I can do not to choke on my tears. Sometimes, it’s just good for me to sit back and listen. He may have told me sometimes he wants to ring my neck due to certain things that tend to just come flying out of my mouth. I told him I knew. I apologized for my non existant filter that does not exist around him. I asked him what was I supposed to do? I told him to stop telling me I was going to be fine because that is what he is always telling me. I finally got him today, to admit that I am not going to be fine. He told me today, “I know you are not going to be fine. I’m not telling you this ever again. I am going to tell you what I know about you and that is you are going to survive this. You will survive.”

I buried my face into your blanket. I spattered out the words, “May. How am I going to do May?”

“You know how you are going to do May? With Ronan. Ronan will get you through May. Nobody else. You have to trust that. He is not going to let you down. He is going to get you through May. I promise you that.”

I looked up, my eyes burning with tears. I quietly said, “O.k.” and nodded my head. I trust his words. I trust you. I have to, Ronan. I just wish I didn’t have to. I just wish I had you back here with you trusting me, because that’s the way it should be. It should not be like this.

I fell asleep, baby doll. I miss you. I love you. I hope you are safe.

xoxo

Rita… meet my friend, Mandy Bee. #awkward

 

Ronan. This is what my nights are like. Fall into a light sleep. Into a place where you are in between being awake and asleep, floating in and out of dreams/reality. But the entire time you are kind of sleeping, you have a bad feeling in the pit of your stomach. Like something is really, really wrong. Just as I get to sleep, I am jolted up out of bed. I’m drenched in sweat. Something indeed is not right. But what? Then I remember that you are not here. I get up, slam another Ambien and eventually it knocks me out. When my alarm goes off at 7 a.m. I cannot get out of bed fast enough. You’d think it was if I thought I had you to wake up to. I don’t really ever think this. I think it’s mainly just adrenaline that fills my body and makes me so restless, that waking up to do things feels better than the quietness that fills the dark nights. Do you know what I do at night? I wander around the house and turn our dryer on about 2/3 different times. I don’t care if the clothes are dry. I’ll dry them again, anyway, just to hear the noise. This is not normal. I know this, but I don’t really care.

I busied myself today with just getting normal things done like a normal mom would do. I ran to Trader Joe’s. It still takes my breath away that I am the mom in the grocery store, without the kid in tow. I went into bereaved mission mama you still have 2 kids mode and threw some things in a cart anyway. I did alright. I made it out of the store without abandoning my cart. To me, that is a success. I hiked up the mountain today with Mandy Bee in tow. We were there for a couple of hours. We had a dance party at the top. She definitely has moves like Jagger. In a Canadian radness sort of way. The weather is getting hotter which means less people on the mountain. Your daddy asked if it was an Inferno yet. I told him it was close, but not quite. It has to be over 100 to truly be an inferno day. It’s getting closer. That was yesterday, this is today, Ro. Yesterday was all things madness. I ended the exhausting day, in the ER of PCH with Mandy Bee because her babe is sick. This is how last night went down. Could be the funniest mix up/awkward first meeting of friends for the first time. I had told Rita, earlier in the day, that Liam was not feeling well. I had picked him up from school and he had a little cough. No biggie but he looked beat. I also may have told her I was in my room with the door closed, crying my eyes out. Both things were true. The part that I left out was that Liam was asleep in his bed, therefore it was o.k. that I was having a moment. The the last thing she heard from me for a few hours until she texted me to check in, was that I was not o.k. I’m throwing this next part in and calling it texts from one bereaved mom to another clearly sane but insane mom. It went a little something like this…

 

 

 

 

 

 

 

 

 

 

While I was texting with Rita back and forth, it may have dawned on me for .2 seconds that, hey, this is a little strange… she wants to come down to PCH, to sit in ER, with me, Mandy whom she’s never met, and Mandy’s son. I then thought to myself, what a good friend she is… I may have also thought for .2 seconds that this was totally out of character for Rita to do, but because of my lack of sleep/grief brain/talking to Mandy, those thoughts quickly left my mind. I said to Mandy, “Hey Rita wants to come down here. It that o.k.?” She replied with, “Of course!” Rita ran down to PCH as fast as she could and came flying through the door. I had no idea that anything was off. I was just glad that both of my friends were meeting and Zane was out like a light and resting comfortably. After introductions were made, Rita said something about the going to the vending machine to get candy. “I’ll come with you,” I told her. As soon as we got to the vending machine, Rita looked at me and said, “Um.. I have a confession to make.” “What?!? I asked her all blood-shot eyes/confused. She looked at me with a look of amusement/what the fuck is wrong with you, crazy pants?!! “I totally thought you were here, with Liam. I had no idea it was Mandy and her son here. I thought I was coming to see you and Liam!” “What do you mean?” I squealed. “I sent you a picture of Zane and everything!” She looked at me like and said, “You sent me a picture some boy with brown hair and the back of his head! Awkward! I’ve never even met Mandy, yet here I am, in an ER room with her and her little boy. Not that I wouldn’t come down here for Mandy, but maybe lunch first would have been nice!” We both started dying laughing. “I have to tell Mandy this. She will die.”

We told her. She laughed but is so the kind of person that loves me so much, that she just rolls with whatever shit I throw her way. This includes, “Hey, meet my friend, that you’ve never met before, in the ER while your son is getting breathing treatments. It’s a party now!” It ended up being fine. And provided me with the laughter that I so needed for the day. Yesterday was a really hard day for some reason. I told Rita that I was so sorry. Mandy too for the totally awkward but not awkward mix up because both of them are so accepting of me and my crazy head. I came home hoping to drift to sleep. That did not happen. I sobbed in bed instead. Your daddy just told me he was sorry and how he’ll never understand this. He fell asleep. I did not. I wrestled with sleep for a couple of hours and woke up, ready for another day without you. Liam did not look well this morning. Quinn was so snuggly in his bed, that I did not want to wake him. I let them both sleep. I kept them both home. I was supposed to hike today with a group that all met up and hiked for you. It was put on by a girl named Rachel whom I met at your fashion show. She organized a whole hike for you and ended up raising 400 dollars in a really short amount of time. Can you believe that?! She had balloons, signs, a cute little table set up with your pictures everywhere. She hiked it barefoot, in a purple tutu and everything. I am amazed at all the good people in the world, Ro. Every time I hear of people like this, it is a little reminder to me, to continue on. Thanks to all the lovies who went out today. It meant a lot to me. I thought about you all, all day long.

I’ve had a really rough past 2 days, which I don’t want to say too much about, until I am 100% sure, but it turns out, people are not always who they say they are. In my naïve head, I want to believe that everyone is good and would not take advantage of others, but I am learning a very hard lesson that this is just not true. There are bad people out there. I often forget this but due to this lesson, I am learning that I need to have my guard up a little more often. I just cannot believe there are people out there who would take cancer and use it to their advantage. There are and it’s due to this that I’m going to have to start being a little more protective of our situation. Tonight, I do not have the energy to sit and fly off the handle about this. Maybe one day, but not tonight. I’m too mentally beat to have another thing to be upset about.

I hiked in the dark tonight. I ran down to PCH to check in on Mandy Bee. I was not prepared for how hard things were going to hit me tonight, until I left there. I am usually fine there. Not tonight. I left there, tears steaming down my face. I heard your voice. “I love you, Mama.” “You’re my best friend.” “Come on baby doll!” I had visions of chasing you down the hallway that we used to walk through. I could not get out of there, fast enough tonight. But you know what, Ro? Mandy Bee would walk through fire for me and I would do the same for her. In a heart beat.

I booked some flights today. It was a fuckwad of a mental block. I sat at our kitchen table for 2 hours, and with the help of Mandy Bee and Rita, I picked dates and booked 4 fucking airline tickets. Not 5, but 4. It was horrific. Your daddy said, “Can’t you wait until I get home, to do this?” I responded with an, “No, I cannot. I’ve tried to do this for weeks now. I have to get it done today or else I am going to slit my wrist. I have to just book these, and at least get our airline tickets taken care of. Airline tickets are done. That’s all I could do today in regards to May. It was enough today. It was almost too much but I cannot bear the thought of scrambling so last minute. A plan is good for all of us.

This is all for tonight. I miss you. I love you. I hope you are safe. G’nite baby doll. G’nite little lovies. Thank you to all my badass hikers today. I loved hearing about how so many of you got so dirty and how much you thought of Ro, the entire time. Thank you, so much. Thank you, Rachel. For working so hard and throwing together, such an amazing event. And FUCK CANCER.

xoxo

 

 

 

A tutu, mustache wearing, dance party, hike with a little badass Bee

Ronan. I cooked the eggies this morning. And the sausage. And bacon. Fruit. I had croissants that Rita gave me last night, but I forgot to take them out of your daddy’s car. They were the kind that are frozen and you leave them out over night, to rise. Your daddy called me this afternoon. “Did Rita give you croissants or something last night?” “Yeah! I can’t find them!” I said. “They are in the back of my car. They are rising as we speak. I’ll run them home for you.”

I chuckled. Grief brain. What an asshole it is. I cooked them anyway for your brothers. They were an awesome afternoon snack for them. I felt like a good mom for not burning them. I played baseball with your brothers, too. I tried really hard to be a good mom today. I’m exhausted from it all. It was a long day of missing you.

I ran around and got some things done this morning. I met up with Mandy Bee. She has been gone a lot so I have not seen much of her. I miss her and the ability she has to make me forget about all this pain for a bit. Even if it’s only for a few hours. I told her I had to get my hike in for the day. She offered to come, even though she had already done some crazy work out early in the morning. I told her I would love for her to come with me. We both decided that we needed to hike in our tutu’s today. We ran to her house and got hers and then met back up at our house. We drove to the mountain and went on probably one of the best hikes I’ve had since you’ve been gone. We bolted up the mountain for 90 minutes of pure craziness. We went on a different trail with music from her iPhone blaring, and we full on had a dance party the whole way to the top. I laughed. I wore my mustache sunglasses. I didn’t cry hiking that mountain today with Mandy Bee. I got lost in the world that she creates for me which is either really, really sad when I need it to be. Or else it is really, really happy. In the craziest way possible. We looked like we were nuts today. It felt good to look nuts and not in the way that I normally look hiking that mountain with red eyes and black mascara running down my face. The break from that was much needed, especially after last nights heavy-hearted hike. I know I desperately need more days like today where I am able to laugh and let go. They don’t come very often but when they do…. watch out. They make me feel like I am on top of the world with you right by my side, holding my hand. My best days always remind me of you.

I did not decide on our trip today. I am procrastinating in a big way.  I deserved today. I just could not deal with the pressure of making any big decisions about fucking May. Maybe tomorrow.

Short post tonight, baby doll. The little sleep I had last night is hitting me. I miss you. I love you. I hope you are safe. G’nite. Sweet dreams

xoxo

Scrambled Eggies and a Fucking AIMS Test

 

 

Ronan. The weekend is over. I guess it was busy. It’s late now but I actually just got home. This weekend went a little something like this… A baseball game. Dropped your brothers off for a sleep over at a friends. Your daddy looks at me as to say now what? Because another date night of me staring across a table at him, sobbing so hard that I cannot eat and I will blow my fucking brains out. Luckily, we had made some kind of sort of let’s do something with Danielle and Dave, plans. We went to dinner. We caught up. We went bowling. I may have sucked really bad the first game. I may have gotten the high score the second game and redeemed myself. I may have smiled. I still felt sad, but it’s good to be with friends like Danielle and Dave. They are easy. They both love you. Sunday, your daddy went into the office. I picked up your brothers. We all then went to this place called Mike’s Big Breakfast for lunch. Oh, how you would have loved it. This was all I could think of the entire time we were there. I think Liam ate 10 pieces of bacon. And pancakes. We sat at the bar. Everyone smiled at us. It felt weird to me. I wanted to scream out, “Hey! No smiling allowed! We are not the happy family that we may look like! Don’t you know our Ronan is missing? Don’t you know our Ronan is gone? I just want him back! Why isn’t anyone bringing him back?!! But this food is really fucking good.” And I don’t even really like food anymore, so that’s saying a lot. Unless it comes in the form of Airhead Extremes Candy. Or Coke. I will love those two things, forever. Your brothers went over to a friends’ house later Sunday for another play date. It’s good for them and helps out over here so much. I can use the break and so can your daddy from the constant parenting that we are always doing. Parenting that is so exhausting when you are constantly dealing with this pain and grief. Your daddy asked what I wanted to do. It was so sunshiny and nice out. Shiny mother fucking people everywhere. Put me in a dark room please and let’s watch “The Girl with the Dragon Tattoo.” That’s what we did. I had already seen it. Your daddy had not and I knew it was right up his alley. It was while watching this movie, that I found out about our little friend, Jaiel. The 16-year-old girl that I had told Rita about around a month or two ago, who was fighting Neuroblastoma. The girl that was the reason that we decided to go to the anti bullying press conference that Nicole Stanton had because Jai had posted something about how it was nice to know that people who you thought were your friends, really were not because they were all just waiting for you to die. Her post ripped my heart out. She is 16 and she is dealing with real life in the most horrific way. She does not have normal you are so fucking lucky to only have a boyfriend breaking up with you problem, to cry about. This girl was fighting for her life. Something that  so many people, take for granted.

Somebody posted something on Facebook saying she had passed away yesterday. Impossible, I thought to myself. I had just been messaging back and forth with her a week or so ago. She had just had another surgery, so she could continue to fight. I thought she was doing o.k. I should have known better. Because I know first hand, how evil and unpredictable this disease can be. I sat in my bed, in shock. Your brothers came home soon after that. I had to keep it together for the sake of them. Your daddy asked if I wanted to play outside with them. “No,” I quietly said. I would not. I played catch out in the parking lot today of Matt’s Big Breakfast. That’s enough for today. That’s all I can do, for today. Unless Ronan is there too. Then I would like to play. You were not. So I left. I went for a very dangerous, night hike instead. But before my little hike, this is what I did. I parked. I sat in the car and sobbed. I sobbed for Jai. I remember thinking to myself poor Jai. And her parents. I cannot imagine what they are feeling. I cannot imagine what it feels like, to be them. Then I had visions of your little face, your little voice, your little lips and how lucky I was to be able to have all of those things. But then I remembered that you are dead. I had forgotten. My head started spinning and I thought I am never going to see him, again. At least not in this life. How is that even possible? How can this even be real? I bolted out of my car. Luckily, I had decided to wear my FUCK YOU YOU FUCKING FUCK tee-shirt while hiking up the mountain today. I do not think my fellow hikers appreciated it very much. The amount of dirty looks I got was actually quite humorous. Quite a few people gave me dirty looks. I gave them dirty looks back while the black tears poured down my cheeks. I’m pretty sure I looked mad. Like in a Mom’s Gone Mad sort of way. I’m pretty sure I didn’t really fucking care today. I am glad nobody said anything out loud to me because I might have punched them. Maybe not punched, because I don’t do physical violence, but I totally would have assaulted them with my middle finger instead.

I came home and your daddy just looked at me. I had snuck out of the house without him seeing what tee-shirt I was wearing. Score 1 for secret operation ninja Maya plan. Score 0 for OH MY GOD NO YOU DID NOT WEAR THAT Woody. I did. And I’m not sorry. Cancer can be sorry, for killing my child. And this is how I feel about cancer, so I’m wearing it. Plus Jai died. And all of these babes are dying, so yeah, fuckyouyoufuckingfuck, was appropriate. I don’t care who says otherwise.

This is what Quinn said to me about 10 times today. “Mom. We have an AIMS test tomorrow. Can you cook us a really good breakfast??”

“Ummm…. of course I can, Quinny.I will cook it and you will do awesome on your test.”

He asked me this, about 5 more times tonight.

I thought to myself, don’t I always cook a good breakfast before school? Then I remembered that no. No I do not. I used to. I used to ALWAYS cook a good breakfast for all of you. Your eggies. Your scrambled eggies. Bacon. Sasauge. The works. I would feed you all, scoop you up in your P.J.’s and throw you in the car. We would drop your brothers off at school and come back home to play for the rest of the day. Now eggies only really happen, on the weekends. During the week, it’s every man for himself here is some cereal and shove some yogurt down your throat if we have time. Eggies pretty much kill me, without having you to feed them too. Tomorrow, I will cook eggies on about the 4 hours of sleep I am going to get tonight. Tomorrow, I will get up extra early to cook the eggies without you. I already hate tomorrow.

This is the other conversation that has gone on for months now. May. May consists of telling your daddy, I think we need to go away.  I do not think it would be a good idea for us to be here, in May. Your daddy wants to know, where I want to go. China. Thailand. Vietnam. Australia. I think it may be a little late for those places. I don’t think I can plan a trip like that. I cannot make a decision to save my life. Why can’t I plan a freaking trip? What is wrong with me? This is easy! Turns out, it’s not so easy. I think I am having major mental block out May issues. If you block out May, it won’t come. It’s coming. I cannot be in Arizona for it. East Coast. I think it’s going to be an East Coast trip. I told your daddy this tonight. Maine? Boston? All of it? “Whatever you want,” was his reply. Just please plan it. Fuck. A plan? How can I plan this let’s get the fuck out of here, because Ronan’s 1 year of everything is coming up??? Because if I do not, I know what will happen. And it is not good.

I tucked your sweet brothers in tonight and sent Rita a text. “Hey. Do you have HBO? I do not. And “Girls,” is premiring on HBO.” It’s our fairy RoMo’s good friends show. I don’t watch T.V. but I did tonight due to Rita’s response  that she did indeed have HBO and she lives close by. We sat and watched, laughed, and LOVED it. I stayed over there late. We talked about May. She has been trying to help me make a decision for weeks now. I’ve been ignoring her. I thought she was going to fly off the couch with happiness when I said, “I’m thinking East Coast…” She seemed to think that was great idea. Maybe tomorrow will be the day that I can make your daddy proud, by figuring this shit out. Maybe tomorrow is already here and it looks bleak. We shall see.

Eggies to cook in the morning, Ro. I love you. I miss you. I hope you are safe. Sweet dreams, baby doll.

xoxo

A painfully gracefully clumsily beautiful existence

Ronan. I had a rough sleep last night. I think there was a lot of tossing/turning/punching pillows involved. It was 1:45 a.m. when I pretty much said FUCKTHISSHIT and popped an Ambien. Hate it. But sometimes the silence of nothingness is needed. More so than not lately. Nights have been more brutal than they normally are lately. Nights are when the cries from you to me and me to you, scream the loudest. Nights are never quiet.

I got up today, running on the little sleep I had gotten, but I had a lot to do. Too much to do so I went into tunnel vision to get everything done. Foundation things. I had a meeting at Phoenix Children’s Hospital that I needed to prep for too. Prepping came with basically giving myself a pep talk and telling myself how I would be brave today and talk about you, without sobbing like a baby. Prepping for today came with a lot of,”You can do this. For him. He would love this.” Rita met me down at PCH. I was waiting in the lobby for her, busying myself with doing things like cleaning out my purse. Busying myself with a lot of things to distract myself from crying. I don’t have a problem with being at PCH. I’m down there a lot still. I had a problem with the reason I was down there today. I didn’t want to be there, without you, asking for permission to do something for your birthday, and you are not even here to celebrate it. I wanted to be down there, with you holding my hand, doing something for your birthday and celebrating the fact that you were here and we together, wanting to do something nice at PCH because we were so lucky to still have you. I fought back my tears today and bravely did this without you. I sat in a conference room with Rita and clumsily/gracefully talked about your upcoming birthday and what it is, we would like to do, to honor you. I am used to hearing the word no a lot now. I am used to getting met by skeptical glances and it usually involves a… “Well if you want to do this, you have to check off this box and this box and this box, to have it done.” I am used to having to work/fight for everything in life. Today, none of that existed. I was met with a big fat, “We love this idea! We love everything about it. We will do whatever it is, you like. How can we help/what can we do/how would you like to see this idea, happen all the time in Ronan’s honor!” I was quite simply shocked. I think Rita almost fell over in her chair. This was not what either of us, was expecting. We left there stunned but smiling. We went for tacos afterwords and talked where we talked about your birthday and how we are going to execute the ideas that we have. We are going to make it a very special day for a lot of kids. I know it would make you smile and so happy.

After I left Rita, I drove to your brothers baseball game. I was feeling alright. I arrived to the game and just as I was sitting there, thinking about an email I was supposed to send today, in regards to an event I am trying to pull off for you in September, a little text message popped up on my phone. A little text message from the person I was going to email, but did not. I read it, sat with it, and the tears started pouring. I don’t want to go into details about what the text message said as it’s not important. I’ll sum it up with a little Taylor Swift lyric instead…one of my favorites. “Don’t you worry your pretty little mind, people throw rocks at things that shine.” I was crying for about 10 different reasons during that moment. 1) Because baseball games are hard in general. 2) Because I miss you. 3) Because this little text messaging person, blows my mind 4) Because I am so thankful that truly good people in the world, like her, exist 5) Because the stars are aligning, right before my very eyes 6) Because just when I start to doubt myself, this person always seems to know it and reminds me that she believes in me and you 7) Because I am so about letting things just come about/not push them and this was a huge reminder/sign to me to continue to do things, this way. There are a few more reasons for my tears, but I don’t want to go into them. Mostly it was just a huge fat thank you, Ronan. For reminding me that you are still here, working away during the times when I feel the most defeated. Or tired. I told your Sparkly eyes that I was just freaking tired of everything. I was quickly met with a, “So what? That’s bullshit. You’re tired? That means nothing.” He is one of the few people who I allow to slap me in the face and I don’t become defensive or feel offended. I am able to step back, assess the situation and say, “You are right. I am acting like an asshole and I need to knock this shit off.” I am learning to let myself take little breaks here and there, but I will never give up on you. I will work as hard as I can, to make some things in this mad world, right.

You know what else you are doing for me? Or should I say, this grief is doing for me? It’s making my heart bigger than ever. I did not know that was even possible, but it is. There are things now that I just cannot look away from. I want to save/help everybody. It’s helping others, that is saving me. Dr. JoRo told me this after a few times of seeing her. She talked about how my heart, would eventually start to turn outward again. I remember being in a fog, listening to her words, but not really understanding what she was saying. My heart would turn outward and grow bigger? Not possible. It is black, broken and shattered into a million pieces. I am starting to understand what she has told me, from the beginning. I’ve always believed her, but I think until now, I wasn’t truly ready to hear what it is, she was telling me. She is so freaking humble. I talked to her today. She is still on her trip and just found out she is getting some huge/really big deal award for being what I think should be called, “The Most Amazing Woman Alive on the Planet Award.” I listened to her talk about it like it was not really a big deal, even though it is. She would never come out and say that because that is just how she rolls. I tried to tell her it was a big deal, that she deserves this for everything she is doing. I was met with a, “Maya. That’s the thing. I’m not really doing anything except just being with you. Just holding your hand as you do this. All I am doing is sitting with you while you feel this, while you go through this, while you find your way.” I wiped the tears off of my cheeks. I told her that what she was doing, was walking through this with me in a way that nobody had done before. By truly listening. By speaking for me when I cannot, even if it’s not saying anything at all. By NEVER judging. By NEVER pushing. By NEVER expecting. By NEVER telling me I am doing this wrong. By NEVER lessening my pain. By never trying to numb my pain by shoving 10 different pills down my throat. By never saying, “Oh, I lost a child too, so I TOTALLY get it. By never telling me it’s time to get over this/move on. By never comparing her pain to mine. By NEVER using the words, “Well at least you have these things/people to get you through this. By never using the words, “You should be grateful for the things you do have.” By never telling me this gets easier. By never giving me false hope. By being brutally honest about how fucking awful this all is and she cannot fix it. She cannot fix it, but she will forever be here to watch me as I do, as I am the only one that can. And finally, by believing and me and trusting me, even when I do not believe or trust in myself. She always does. I know she always will too. She is one of my biggest reasons for continuing to fight as hard as I do. When I grow up, I want to be just like her;) She is beyond inspiring, Ronan. She reminds me a lot of you. She reminds me a lot of me, too. So much some days that I can see my pain, in her eyes. But the thing with her is it never hurts to look at her eyes, full of all of my pain. When I look into her eyes, I see a quiet strength that makes me feel the most at ease. It’s like I can breathe for a bit.

Guess what I did tonight? I did not get to hike today due to my busy day of getting shit done. I was quietly panicking in my head about it. I took Liam out tonight to grab a bag of ice for your daddy. It was dark. It was late. I drove the two of us, to our mountain. “Liam. I didn’t get to hike today, buddy. You want to go with me really fast?” I was met with an, “Ok mom. But I don’t have shoes.” I quickly told him no problem, that we could just go barefoot. He was so excited. “Good thing I have tough feet, mom.” Tears sprung to my eyes. “Yeah buddy. Good thing. I do too, so we will be alright.” We hiked, barefoot, in the dark together. He talked the entire time. We didn’t go to the top but that was not the point. We went as far as we could with bare feet/no flashlight like we didn’t have a care in the world. We bonded. We laughed. We missed you. It was a very sweet hike with a very sweet boy. I bawled like a baby over it and the fact that we were simply doing that crazy thing, because you are dead. If you were here, I would have never been on a mountain, holding Liam’s hand with bare feet and a broken heart. But I was. And I am. And I will continue to be for the rest of my life. This is just the way it is now. This is just the way it will always be. This grief/pain will never leave. I can’t have you anymore so this is what I am left with. A beautifully, painful life. I am noticing that the amount of beauty that I see in the world is endless but so is the amount of pain. They both seem to go hand in hand, everywhere I look. They are never without each other. It is as if they are best friends/worst enemies. You cannot have one, without the other. I wonder if other people notice this or if it is just a bereaved parent thing. I think my friend Rita sees it all the time, as well. Maybe this is one of the reasons I like her so much. That and she is funny as a mo fo. I cannot contain laugher/her snarky ways when I am around her, kill me. Like in an I almost pee my pants kind of way. Laughter truly is the best medicine. I need a lot of it. She is good at providing it. Plus, sometimes she makes me feel like I am being funny and making her laugh, too. So sometimes I feel like it’s just not a one way street;) YAY ME! I can still be kind of funny, when it comes out naturally. I only do this with the people I feel most comfortable around. It’s a weird introvert characteristic of mine.

Alright babydoll. Turing in for the night. Ambien I hate you but I have to sleep is here. G’nite baby doll. G’nite sweet friends. I miss you, Ro. I hope you are safe. I love you.

xoxo

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Inferno Hiking. Safer than Meds.

Ronan. I cannot shake this funk. I have a few ideas as to why.

1) The maybe baby thing. I am honestly o.k. with it. Somebody asked me if we were going to try again. Well, we didn’t really try the first time and I don’t foresee us trying in the future. I will not be watching the calendar for when I ovulate. I can’t do it. It’s too much pressure. If this happens, I just want it to happen. I can’t handle the stress/worry/waiting/wondering/emotions that come along with the whole trying for a baby. I trust in you. If this is what is meant to happen, you will see to it that it does.

2) Fucking Easter is coming up. Fuck! Enough with these holidays! I think we all decided last year, in Coronado to ban Easter. If my memory serves me correctly, which it often does not anymore, we decide to ban Easter and celebrate “Feaster!” instead. I have no idea what this means but I am feeling the pressure to come up with a plan and come up with a plan, fast. For the sake of your brothers. I think we talked about how we will worship a chocolate easter bunny for the day. There will be no pastel clothing. No fancy clothes. No Jesus at all. Not that there ever was, so it won’t be that different, in that regard. I know the root of why I am having such an issue with this “holiday of pretend.” It is because it was the last holiday that you were here. I remember exactly what we were doing/where we were last year. I remember how I still not did think that you were going to die. I think everyone around us did, but of course, everyone hoped for a different outcome. I remember how happy you were but now I know you were in such extreme pain. You had to have been although your smile would have said otherwise.

3) I’m still fucking bloody exhausted. I think my body is having an allergic physical reaction to you being gone. Is that possible? I think that it is. I think that I am having it. I am trying my hardest to push my way through this. I don’t have a choice.

4) This whole 1 year thing is harder than I thought it was going to be. It’s distracting me from everything that I am trying to do/get done. Every single fiber in my body is missing you to the extreme. I can usually control my sadness, Ro. I can usually feel it, deal with it, embrace it, and it sometimes it does not feel so heavy. This has not been the case for the past week. This sadness that I am feeling, is so heavy that I feel like every step/breathe I take, is weighed down by 100 elephants. Everything that normally works for me, is not working at all. I am borderline scared.

Today, I was productive or as productive as I could be. I did some foundation things. I had a little lunch with two of the loveliest souls. I felt lucky to have them helping me. So lucky, Ronan. I am still amazed how due to your story, the most amazing people have trickled into my life, wanting to help and be a part of this change. I am very blessed in that regard. I came home after lunch and I swear to you, my bed was a magnetic force field that I could not fight. I crawled in it. I crawled into it and I felt like I was going to drown in tears/sadness and pain. I had to tell myself I could have 20 minutes of laying down. After 20 minutes, I yelled at myself in my head. Get up now. You cannot do this. You cannot stay in bed for the rest of the day. I made myself get up, out of bed, and back to our little mountain I went. I ran up it as fast as I could. I made myself almost throw up. I ran down it even faster so I would not be late to pick up your brothers from school. It was hot and the mountain was empty once again. Just the way I like it.

I picked up your brothers and we went to Rita’s Italian Ice place with some friends for an impromptu play date. I love things like that and I love the friends we went with. Your brothers giggles and smiles almost helped with my sadness. I ran into a mom I know. A mom that I don’t know all that well, but I always love seeing her. She has the kindest eyes and has a way about making me feel like even though she has no idea how I feel/what I am going through, she kind of does. I guess it’s because I can see the way she loves her twin boys so much. The same way that I love you and your brothers and I can tell she is a really good mom. I appreciate that so much.

I came home, helped your brothers with their homework, cooked dinner and that was all I could do. I slipped into bed, early. Not really sleeping, but tossing and turning. My sleep is all out of whack again. Go figure. Tomorrow, I have a day planned with Dr. JoRo. I obviously need it badly. I am hoping it will help with whatever is going on. I cannot take much more of this tiredness/fog/fatigue that I cannot get out of. WTF. It’s getting old.

That’s all for tonight, little one. I love you to the moon and back. I miss you. I hope you are safe. Sweet dreams.

xoxo

A barefoot hike and a spicy little dragon

Ronan. Every single morning I wake up, the first thing I do is miss you. I will never be the mama that wakes up with a fresh set of eyes. My eyes are always sad, mostly bloodshot and my heart is always heavy. Every single morning, I have to make a choice to get out of bed. It’s a choice because a lot of days, I do not want to wake up at all. After a very heavily induced Ambien coma sleep last night (yeah, I totally went there), I woke up this morning saying all kinds of shit in my head. You HAVE to get up today. You HAVE to make 2 decisions today. You HAVE to check 2 things off of your list. You have to start making some decisions about Ronan’s death day/birthday that is approaching. I get up. I make my way to your brothers room the same way I do every morning. I walk past your room. My stomach drops that you are not in there. Your bed is neatly made. I go into Liam and Quinn’s bedroom. I open their blinds. “Good morning, boys! Rise and shine!” I turn on their shower. I text back and forth with Rita. We make some plans for tonight, as a family. YAY! I get to see her little dragon! I pack your brothers lunches and drop them off at school. “Bye boys! Have the best day! Try your hardest! Be nice! Be kind! Help others! But don’t take anyone’s crap! I love you!”

I decide to make a run to Target for a couple of things and one of them includes a couple of little trucks for my little dragon friend of mine. I get so excited about seeing him. I love his little raspy voice, the way he says my name over and over, just to say it, and the way I get to hear him call out to Rita, “Mama,” because that is what he calls her. I am a sucker for that mama word. I am a sucker for the way he sometimes talks about himself in 3rd person. I am a sucker for this little dragon friend of mine who makes me want another baby/child so freaking badly. I would actually just like to take him home, but I don’t his two totally amazeballs parents, would be o.k. this. I’ll just continue to take him in the doses I get him in, which totally makes my day.

It’s while browsing through the toy aisle at Target that I of course, walk past the Star Wars toys. I can’t resist. My heart flip-flops back and forth. New guys! New helmet guys that Ronan did not have, but totally would have wanted. I pick them up. I put them back. I almost walk away. I can’t. I turn around and grab the new guys and throw them in my cart. I’m buying them for Ronan. I don’t care if he is not here to play with them. I run home, look at my get two fucking things done list, I sit down and do them. Good job, you. I look around at our house. It’s so freaking clean. Everything is put away. There is not even laundry to do or windows to clean from your little pudgy, dirty hands smearing stuff everywhere. This is FUCKING BULLSHIT. I throw on my workout clothes. Well, since there is no maybe baby, I guess I can go beat myself up a bit. I drive to our mountain.

I listen to Dr. JoRo’s voice in my head telling me, no headphones… just try to be quiet. To be mindful. I run up our mountain. Except instead of taking our usual route when I get to the top, I turn the corner instead. I slip off my shoes and continue up, down, around, and around the unfamiliar trails. It’s hot. Nobody is around at all. My heaven. Inferno hiking season is almost back. My feet don’t really feel any pain. I run for a long time, barefoot. I stop after about an hour and a half of hiking up, up and up. I find a nice spot, throw my things down, sit down on a big, black rock. I close my eyes for a long time and think about you. I snap a picture to send to Rita. She responds back that the cactus I’m sitting in front of, looks like it flipping off cancer. I laugh. It totally does.

I head back down the mountain, keeping my shoes off for half of the way. I stop to put them on and start to cry. A few ideas trickle into my head about what it is, that I would like to ask people to do for your death day. I’ve decided that’s what I’m calling it. Not your passing day (that sounds too sweet) not your anniversary (i hate that too) I guess I could call it your Fuckiversary. That has a nice ring to it as well. You deathday/fucking bullshit Fuckiversary it is. I know a lot of people will want to do something. I’m creating a little list in my head of what it is, I would like to see done. Up until today, I have not been able to even think about it without getting physically ill and drawing a total blank. It was only today, during my hike of numb pain, that ideas started to spin around. I’ll write about them later, not tonight. I’m tired and I want to be able to let this all come about, naturally, and I don’t feel like I’ve gotten it all figured out yet.

My little hike lasted 3 hours. It was nice to be outside, connecting with nature in a physical way. I get in a funk when I don’t do things like that. I always feel close to you and I tend to feel the closest to you, on that little mountain of ours. I left your bracelets all over the same tree below, like I do every single time I am there. I always wonder who finds them. I always wonder if they will google your name and learn about the most beautiful little boy who ever lived. I hope they do.

I went to your favorite restaurant tonight, Chelsea’s Kitchen, with that little Dragon friend of mine, his parents, your daddy and brothers. I felt like you were there with us. Especially as I watched Little Dragon, jump into the water fountain outside of the restaurant with his shoes, socks and pants on. If you were there, you totally would have done it with him and I would have laughed. I laughed and I almost heard your giggles in the distance. I laughed even harder when that Little Dragon, grabbed someone’s shoe that was just sitting near a rock by the patio (seriously who takes their shoes off, at a restaurant?? if you ask me, they were just begging to be thrown into the water by a very curious 4/maybe 5 year old) and threw it in the fountain/pond. Such a little rebel Ronan move. Your brothers thought it was hilarious. Rita, apologized profusely, but secretly /not so secretly to me, thought it was funny. I looked up at the sky and blew you a kiss. It was a great ending to an almost good day.

I love you to the moon and back my very spicy, little monkey boy. I’m so sorry for all of this. I miss you. I love you. I hope you are safe.

xoxo