What Am I Doing? Not Sleeping…

UGH. I should be sleeping. I can feel myself getting tired. I tried. I really did. I cuddled up with Ronan and he was sooooo snuggly. He soon fell asleep. I did not.

As soon as I started to drift off, the nurses began coming in and out — checking his fluids, his blood pressure, giving him his anti-nausea meds — and they finally started the chemo around 1:00 a.m. This means we’ll be here until Saturday now.

I’m not complaining. I’m not going to have a breakdown like last time. I am seriously thankful that we are moving ahead. I am thankful that he is strong enough to start round five. One more round after this — which we will do in New York City — and Ronan will be finished with all of his chemo.

I think it is going to be bittersweet. I have learned to depend on the chemo simply because I know it is killing his cancer. Being off of it feels a bit scary to me. All of the unknown in all of this is scary. I just have to remember: deep breaths and one day at a time.

This baby is so precious to me. I guess I have such a strong bond with him because he is my last baby. Even though I would have ten more if Woody would let me 😉 Kidding. But I do love being a mommy and having babies. I think it is the greatest gift on earth, and I am so proud to be the mommy to three amazing boys.

There is something that has me a little shaken. Maybe not shaken… I don’t know how to explain it. So I’ll just tell you.

Every summer, when I am in Washington, I take my journals home with me and write my heart out. I write about what we’re doing, funny things the boys have said or done, what I’m feeling — everything. Washington purifies my soul. It is slow-paced, peaceful, quiet. I have so much time there to reflect.

A few weeks ago, I remembered something I had written in one of my journals while I was in Washington, and I couldn’t remember if it was real or if I had imagined it. I went and dug it out. Sure enough, there it was.

I remember waking up in the middle of the night, grabbing my journal, and scribbling down:

“This is going to be the hardest year of your life. If you can make it through this, you can make it through anything.”

I haven’t stopped thinking about it since I re-read it. It unsettles me. How in the world did I have such a strong feeling about something that it caused me to wake up in the middle of the night and write it down? I don’t know what possessed me to write that, but it was written in early August. Ronan was diagnosed August 12.

I never thought this would be what I was up against. But it is.

And I’m not sure what it all means, but somehow I knew something was coming. And I know I have to fight my hardest and pour everything I have into Ronan, Woody, Liam, and Quinn.

Ronan will beat this. We will survive this as a family. We will win. We will have a positive story to tell when all of this is said and done. Ronan is the strongest little boy out there, and I know if anyone can beat this, it is him. He is fighting every day and will never stop. I, as his mommy, will never stop.

The outcome of this will be beautiful and life-changing. It just has to be.

2:00 a.m.

Okay. Really going to try to get some rest now.

Thank you for listening to me. Thank you for being my outlet.

G’nite, again.

Comments:

8 responses to “What Am I Doing? Not Sleeping…”

  1. Jules Avatar
    Jules

    That’s crazy and awesome at the same time! Sound like God was talking to you.
    You are right– you guys WILL WIN this battle, and you most definitely be stronger because of it. Keep fighting, an we’ll all keep praying 🙂

  2. Lisa Berg Avatar
    Lisa Berg

    Good God Maya. This post was amazing. I have shivers running down my spine and tears in my eyes. You are AMAZING! For some reason this was meant to be and you will prevail! Keep being strong and keep writing. You are making a difference!

  3. Trish Avatar
    Trish

    Mother’s Intuition, listen to that at all times. You seem to really be in touch with yourself. Consider it a gift and just listen!!! I hope this week is super speedy and uneventful for your little man and your family. I hope that your surgery is scheduled quickly in NY too. Please feel free to reach out about NY when and if you need. I’m friends with Melissa D and Gay. I’m born and raised in NY and have lots of contacts in and around NYC. I’m happy to help if you need.

  4. sheryl Avatar
    sheryl

    Wow… Intuition is amazing…

  5. Marquita Ward Avatar
    Marquita Ward

    I am really feeling like I should be praying for families in general today and your advice is even more proof of that..since there is a Jewish holiday coming up very soon..my belief is there will be an “Open Heaven”…I have learned to ask any extra special requests at these times of the year…so my prayers will be family focused..what would YOU ask of your Heavenly Father? He hears us all the time but this is a very special time to honor Him with special requests..call me crazy..couldn’t hurt. Another chance for Him to show His glory!

  6. Danielle Avatar
    Danielle

    That is a great quote Maya! I hope you still journal even in this chaotic time. Get some sleep and see you soon. Keep on trucking 🙂 xo

  7. Sheri Avatar
    Sheri

    Your heart apparently knew what was coming, just like it knows now that Ronan is going to fight and win. You’re doing great and we are cheering for you all everyday. Rest. You both deserve it.

  8. jenna Avatar
    jenna

    Its so amazing how god seems to let us no what lies ahead but like u said and I also believe you guys will make it through this struggle and come out stronger in the end god bless and keep up the fight and I will keep praying

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