I heard a great story today. A true story about a little boy who, at age five, was diagnosed with neuroblastoma — and today he is in fourth grade with a clean bill of health.
I also spoke with his mom, and I could tell just by hearing her voice that she is an amazing woman. She is a fighter and never gave up hope, even in the darkest of nights.
You can read Noah’s amazing story here:
http://www.noahnelson.blogs.com
It’s stories like this that I need to hear right now. Stories of survivors. Stories of people who have made it through something like this.
We are going to have a story like that someday. A beautiful story about a beautiful boy who beat all the odds.
I know in my heart of hearts that Ronan is going to get through this. This is just a bump in the road for our family.
Whoa, baby. Ronan was mad today. I have never seen him like this in my life. I’m not kidding when I say he spent a good five hours hiding underneath his blanket and growling at anyone who came near him — including me.
I think he may have learned that from our last roommate, Jose, who hissed and showed his “fangs” at anyone who approached him.
The nurses kept asking me if he had come out to pee yet. I just kept telling them he was hibernating.
My friend Niki came to visit today. It was so good to see her. She held me in the parking lot, and we cried together for a few minutes. It felt good to get that out and to look into her eyes and see the love pouring out. She loves Ro so much. He was so happy to see her, and she spoiled him with a bunch of gifts.
We are so lucky we moved into the neighborhood we did. Niki lives just a few houses down, and Ronan goes to school with her little girl. He really misses her and asks all the time if she can come over.
“Someday soon,” I tell him.
Trish came tonight and brought me dinner. We sat in the dark for about two hours and talked, laughed, and tried not to cry. We talked a little bit about our good friend Marisa, who is going stir-crazy that she can’t be here because she is pregnant.
She’s someone I met through Trish a few years ago, and we instantly became close. She is one of my dearest friends — someone I call on for anything and everything. I know it’s hard on her because she feels so helpless. It’s hard on me because I miss my friend.
But I also know we have a long road ahead of us, and there will be plenty of time for me to lean on her when I need her most. Right now, she needs to take care of herself and the baby boy growing inside her.
I saw the twins for about an hour today. They seem so big — like they’ve grown up so much since I’ve been away. I hate that I am missing out on everything with them.
The only thing saving my sanity right now is my wonderful mother- and father-in-law. Those two boys could not be in better hands.
Have I mentioned before that I am mostly writing this from my iPhone? So please excuse all the errors. I am so particular about that kind of stuff, so just bear with me. Ronan gets mad if I have my laptop in bed with him.
He is so bossy. 😉
Tonight I told one of my friends, Giangi, that I truly believe it is because of all the prayers and love that Ronan will be healed. I know there is only so much that medicine and doctors can do.
So please continue praying for our beautiful boy — and pass the word along to anyone and everyone you know.
Goodnight to all of our angels out there.
xoxo
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