I heard a great story today. A true story about a little boy who at age 5; was diagnosed with Neuroblastoma. And today he is in the 4th grade with a clean bill of health. I also talked to his mom and I can tell just by hearing her voice, that she is an amazing woman. She is a fighter and never gave up hope; even in the darkest of nights. You can read Noah’s amazing story here:
It’s stories like this that I need to hear right now. Stories of survivors and people who have made it through things like this. We are going to have a story like this someday. A beautiful story about a beautiful boy who beat all the odds. I know in my heart of hearts that Ronan is going to get through this. This is just a bump in the road for our family.
Whoa baby! Ronan was so mad today. I have never seen him like this in my life. I’m not kidding you when I say he spent a good 5 hours of the day hiding underneath his blanket and growling at anyone that came near him; including me. I think he may have learned this from our last roommate, Jose, who hissed and showed his “fangs” to anyone who approached him. The nurses kept asking me if he had come out to pee yet. I just kept telling them that he was hibernating.
My friend, Niki, came to visit us today. It was so good to see her. She held me in the parking lot and we cried together for a few minutes. It felt good to get that out and to be able to look her in the eyes and see the love pouring out. She loves Ro so much. He was so happy to see her and she spoiled him with a bunch of gifts. We are so lucky we moved into the neighborhood we did because Niki lives only a few houses down and Ronan goes to school with her little girl. He really misses her and asks all the time if she can come over. Someday soon, I tell him.
Trish came tonight and brought me dinner and we sat in the dark for about 2 hours and talked, laughed, and tried not to cry. We talked a little bit about our good friend, Marisa, who is going a stir crazy that she can’t be here because she is pregnant. She is somebody I met through Tricia a few years ago and we instantly became friends. She is one of my dearest and someone who I call on for anything and everything. I know it’s hard on her because she feels so helpless. It’s hard on me because I miss my friend. I also know that we have a long road ahead of us, and there will be plenty of time for me to call on her when I need her most. Right now, she needs to take care of herself and the baby boy who is growing inside of her belly.
I saw the twins for about an hour today. They seem so big and like they have grown up so much since I have been away. I hate that I am missing out on everything with them. The only thing that is saving my sanity is my wonderful mother and father in-law. Those two boys could not be in better hands.
Have I mentioned before that I am mostly writing this from my iPhone? So please excuse all the errors, etc…. I am so anal about that kind of stuff…. so just bear with me. Ronan gets mad if I have my laptop in bed with him. He is so bossy;)
Tonight I told one of my friends, Giangi, that I truly belive it is because of all of of the prayers and love that Ronan will be healed. I know that there is only so much that medicine and doctors can do. So please, continue praying for our beautiful boy… and pass along the word to anyone and everyone you know.
Goodnight to all of our angels out there.