We are home. Without you. I miss you.


Ronan. This trip was exactly what we needed. We are going back to AZ today and I think everyone is a little sad to leave. Your brothers are already planning their fall break and are both begging to come back to see your Nana/Papa/Bri/Derrick/Cindy and Tim. I think it sounds like a great idea. This place makes them happy. It was a great couple of weeks just letting them be boys and enjoy everything the Pacific Northwest has to offer. This place is so serene and peaceful for all of us. I am so thankful to your Nana and Papa for making our time her so special and taking such good care of us. They have always been this way though. Letting us take over their house and invade their entire world for a however long we want, makes them so happy. I know they miss us so much when we are away and the time to them with each other, is always so precious.

We spent the last couple of days just doing simple things. A lot of hide and go seek, baseball, and yesterday we went with some friends on their boat. I remember last year when my whole town came together and built this huge float for you for one of the parades in town during the holidays. They worked so hard on it and I don’t know if I ever even said thank you. I hate that. I hope I did, but if I didn’t I would like to now. A huge thank you to everyone who was involved last year with this massive project. The love from my hometown for you, Ro, has been incredible. I saw the float yesterday, or pieces of it rather. After the parade, the float had to be taken apart but my friend, Jen, could not just throw out of the wood decorated with all things Rockstar all over it. She saved it all and had her lovie and a friend take it out to a place where they fish and camp. They built a fishing shack out of the fort. She took me up to it yesterday to see it while we were on their boat. I was so overwhelmed with emotion and I kept it together pretty well until she gave me a big marker to sign it as everyone does who comes to their special spot. I wrote Maya & Ro with a big heart around our names. I lost it after that and ended up bawling. Jen saw my tears through my very well covered sunglasses eyes. She grabbed me and held on to me for a few minutes. I was flooded with thoughts of I can’t believe my baby is not here and his name is now all over a wall to I can’t believe how lucky I am to have such thoughtful caring people in my life who will never let you be forgotten. As always, it was bittersweet. Most things in this life are without you now. I spent the next couple of hours watching your brothers play, laugh and love. It was a good day as far as good days go now. It was a good day with my dear friend who I got to watch in her new life now. She is finally so happy and that makes my heart happy. She deserves it.

I have about 50 million things that I have been wanting to post/write/say on here, but I just haven’t taken the time. I really needed to take a little break from this cancer world that I still live, eat, and breathe in. I didn’t do much foundation work while I was here. I know how this world works and how easy it is to get burnt out. I can’t burn out as I have too much to do which is why I have to make myself take time outs even though I think I can keep going non-stop. It’s hard for me to take breaks in this world now. I feel like when I do, I’m not taking care of you. I have to have a lot of conversations in my head talking to myself about the importance of a break here and there. I have to constantly tell myself that you would not be mad at me for living and doing normal things that don’t always involve all things cancer related. Doing normal things still feels wrong to me. I have a hard time with normal everyday life, without you. I know I am hard on myself but I think it’s just my nature to be this way. I think I’ve always been this way but since losing you, I know I beat myself a lot more then I used to. I am aware of this. I just don’t know what to do about it.

I don’t even know where to start with what it is, I am about to say. LoRo. I’ll just start with LoRo. Her name is Lauren but the nickname, LoRo was made up for her due to her undying love for you. I’m not sure how or when she found out about you, but at some point we starting talking via email/text messages. She is 18, but not your average 18-year-old. She has been spending most of her teenaged years, in this cancer world, doing and helping other kids. At some point, she heard about you and fell in love with you and our story. She is constantly making me these amazing pictures on Photoshop of you and is always wanting to help with whatever I need. She is the one that made your Ronan’s Day of Love flyer. I’ll ask something of her and 2 minutes later, it is done. The 18-year-old girl who has been making this world a better place with her sweet heart, for a very long time. She has become someone who I love, even though we’ve never actually met. I had heard through her and from a few other people last week that she had to go to the hospital, for not feeling well. I didn’t know until yesterday, how serious it might be. They found a tumor in her stomach. Next week, August 8th, they are going in to remove one of her ovaries and from that point it will be biopsied to determine if it is cancer or not. I am literally sick to my stomach over every single part of this. I talked to her mom yesterday who is basically is complete and utter shock. I talked to LoRo as well who told me in her sweetest voice that she was not worried as she feels like you are watching over her. I told her I knew you were too and which is why I am not panicking. This cannot happen to a girl who has spent much of her life, helping kids with cancer, right? It just cannot. That would be the sickest of the sick, Ronan. I mean none of this world makes sense. No child deceives this. But LoRo? Not acceptable and as of now, I am holding my breath and biting my tongue. It has to be nothing. If all of you lovely little blog readers could just keep our LoRo in your thoughts, prayers, or whatever else you do, I would really appreciate it. Ronan. You know what I am asking of you. Thank you, baby.

I will keep you all updated on LoRo, but if you are on Twitter, and want to follow her, you can do so, here:

https://twitter.com/thelightholder

I started this a few days ago. We are home. I am doing my best. Your daddy worked so hard to make sure everything was perfect for us, to come home to. He even had our bed made (one of my pet peeves is an unmade bed) He is the sweetest. I didn’t even have to say it, he did. “Everything would be perfect, if Ronan were here.” He is right. That will forever be our truth.

I’m going to go now, babydoll. I love you. I miss you. I hope you are safe.

xoxo

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8 thoughts on “We are home. Without you. I miss you.

  1. marybeth sbrogna

    I am so sorry that you have to deal with this. Excuse my language, but it is bullshit. I will be praying for LoRo every night, as I continue to pray for you as well. I don’t know if you are talking about Jen Pruett in your post, but if so, I used to work with her and she is an absolutely amazing person, just like yourself. You guys are so inspirational. I hope to honor Ronan, Irelynn, and every other little angel’s name by taking more time out to enjoy the little things with my daughter that I might normally take for granted. I will be praying a whole lot. I have some good people up there and I know they are listening. You give your son’s name the biggest honor imaginable.

  2. phaedralbh

    I love Lauren like she’s my little sister… All I do is think she is going to be fine. There is absolutely no fucking way this could happen to her. No way.

  3. Jodi

    My family and I watched the holiday parade last year and saw Ronan’s float. It was beautiful! When your family was experiencing your terrible tragedy of being torn apart my daughter caught me reading one of your entries. I was crying and when she asked me why I explained that someone I had known in school was going through an extremely difficult time. She wanted to know more so I introduced her to Ronan through your stories and pictures of him. Together we read and learned about neuroblastoma. When she saw the float she recognized who it was for and was thrilled he was being remembered. I am happy that coming back to Washington was such a healing time for you and your boys. I hope you are all safe and keep you in my heart (especially your dear friend, LoRo).

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