Special Delivery of a Red-Colored Slurpee! Because Love Should Not Come With a Label.

Ronan.

Today was a very busy, important day in this new—oh so strange—world without you. I dropped your brothers off at school. I came home, allowed myself to crawl back into bed for 15 minutes where I sobbed about you, got up, showered, and got ready for the day.

Becca had invited me to sit at her table at the We Stand Behind Planned Parenthood luncheon. You know how I feel about the whole luncheon thing… too many people… anxious feelings… not ready for the real world yet. But Becca asked me, and for her, I would do anything. Plus, I do stand behind Planned Parenthood, so I was actually looking forward to going. It was empowering to be there—standing up for such an important cause. Standing up for what they believe in, which just happens to be what I believe in, too.

I am proud to stand behind this organization. Please do not bombard my blog with your opinions on this subject. You won’t change my mind. Just because I talk about some things I stand behind on here, I don’t expect you all to agree with me. Agree to disagree. I’m totally okay with that. It’s what makes us all unique and different as human beings, and we each have a right to this freedom.

This is what Planned Parenthood believes in:

All individuals have the right to make informed, independent decisions about sex, sexual health, and whether and when to have a child.

Everyone has the right to safe, high-quality, affordable health care—including the full range of reproductive health care.

Everyone has the right to comprehensive, age-appropriate, medically accurate sex education.

Commonsense policies that promote women’s health, increase access to affordable birth control, and protect the health of young people.

U.S. foreign policy that improves the sexual health and well-being of individuals and families globally.

I support that. I support them. That’s the bottom line. I also get that some people do not support them—and all I have to say is: mind your own business.

I have a personal relationship with Planned Parenthood. When I was in college, when Woody and I were not trying to get pregnant with the twins, when I thought, “Oh shit, I think I’m pregnant!” just after we were newly married… I went to them for a pregnancy test. I was so young, scared, and they made me feel safe. And it was affordable. Plus, it was right down the street from our condo. I also always got my birth control from them. They had my back at that time, and I’m a very loyal girl. Enough said.

And please, spare me the sanctimonious bullshit about how “believing in abortion is a sin.” Because yes—I do believe in abortion. I believe in a woman’s right to make the most personal, private decision about her own body without interference from lawmakers, religious fanatics, or judgmental strangers who wouldn’t last a day in her shoes.

It is not a sin to choose yourself. It is not a sin to prioritize your mental health, your future, or your survival. What is a sin is trying to strip women of their humanity, dignity, and agency under the guise of morality. What is a sin is dragging us back to a time when we were expected to suffer in silence while men in power dictated the course of our lives.

I believe in Roe v. Wade. I believe in the generations of women who fought like hell to give us rights we should have never had to beg for in the first place. And I believe that we’re not done fighting—not by a long shot. We’re coming for every seat at every table, every law written without us in mind, and every attempt to control us.

So no—your opinion about what a woman “should” do with her body? Not welcome. Not relevant. Mind your own damn uterus.

Before the luncheon, Becca and I made an executive decision (because we’re so official now) to run down to the Capitol to show our support for Nicole Stanton’s press conference regarding SB 1462, the anti-bullying bill that would have protected the rights of all children in our Arizona schools. A bill that will protect all of our children one day very soon—I have no doubt about that.

From the little time I’ve spent with Nicole, I have no doubt she’ll get this bill passed and it will be placed in all of our schools, just as it should be. I cannot even begin to go into what I think about Cathi Herrod, the woman responsible for killing this bill. That would take up this entire blog to you, Ro, and I just don’t have it in me.

I don’t want to get started… but I can’t stop myself tonight. She pisses me off. She is clearly a pro-bullying, racist, homophobic, mean lady. I would really like to take her home and make her sit down and watch every single episode of Glee with us. I don’t even watch TV anymore, but I’d welcome her in for a little slumber party of sorts. We’d sit, eat popcorn, drink sodas, and watch every episode of Glee!

I might recruit Mandy Bee to dress up like a ninja and douche her with a red-colored Slurpee like the bullies do on the show to the kids who are “different.”

Crap.

But then that would be bullying, I guess. So let’s not do that.

But it is sort of fun to imagine.

It is soooo totally fun to imagine.

Can you get arrested for something like that? Like if you did it in a public place?? Just sayin…

Bucket list, Rita. Bucket list.

Cathi, honey, darling… I hate to break it to you, but the gays and lesbians of the world are not going anywhere. Nor are they hurting anyone. They’re people, just like you and me. So are the little cancer babes with bald heads, scars, some who are paralyzed now from this awful bully of unfairness called childhood cancer.

Go get angry about something that’s actually harming children—everywhere. All kids have a right to be protected. Childhood cancer is something to protest. Not a simple thing like people being who they are and being treated poorly for that. That is what’s wrong.

I think I’d like to meet with you, lady. I have a few bracelets and a little story you might need to read. It might make you change your mind about all the stupid shit you’re fighting for—which, in the reality of this hell I live in now, just doesn’t matter.

Fighting so hard against people’s sexual orientation is so fucking stupid, it angers me.

What a waste of time and energy to put into something that is nobody else’s business.

When will this world wake up and start fighting for things that actually matter?

I have a dead child.

I think I win.

Nothing else is worse.

I have a dead child because of lack of funding, passion, awareness, stupid fucking politicians with egos the size of China, who clearly do not care about dead babies who are killed by the number one disease killer in freaking America.

But they’re more concerned about my son sitting next to another boy in school who maybe likes to wear pink and sing show tunes?

PRETTY SURE I’D BE MORE PISSED THAT MY SON HAS A DEAD BROTHER BECAUSE OF CANCER, YOU FUCKING MORON.

I’m pretty sure I wouldn’t be pissed off that my son might make a really good friend—one who could teach him how to sing, dance, love, be true to who they are, who they should have the right to be, without being bullied for it.

It’s called love.

And that is a beautiful thing no matter what shape or form.

I would have been so proud if my child decided he loved boys. How lucky would I have been?

I wish Ronan had been given the chance to grow up and figure that out for himself—if he loved boys, or girls, or maybe both.

I wish he’d had the time to explore that part of himself, surrounded by nothing but love and acceptance.

Every child deserves that.

He should’ve had that, too.

I think I’d like to go line Cathi’s driveway with a bunch of fake, bloody, beaten up, bald, dead—not dead, but hooked up to chemo poles—babies and kids. I think I could make her change her mind. Own up to her stupidity. Apologize.

You should be ashamed of yourself, Cathi Freaking ASSHAT Herrod (new favorite word, thank you very much FAIRY RoMo). You pretty much make me sick. I don’t know how you freaking sleep at night, lady.

But I’ll bet it’s a very cold bed.

My bed is only cold because my sweet baby boy who used to sleep in it with me… is dead.

But thanks for keeping my twins safe at school by trying to keep everything so black and white. No coloring outside of the lines, right??

Thank Ro, I have the right to teach them how to color way the fuck outside the lines at home.

You can’t take that away from me.

Ro baby—sorry for all my political rants. I didn’t mean to take time away from you.

Ending that now. Back to you, to me, to us.

That was yesterday.

This is today.

That was yesterday. This is today.

I’ve had a whirlwind of a week. I’ve been so productive, so positive, so good at channeling this anger into motivation… I knew I was going to crack. I kept it up all week long. I helped others. I begged some very important people for change. I fought the good fight. I showed up for your brothers—I took them hiking, running, spent real, intentional time with them. I went to their field day at school. I picked up the phone more when old friends called. None of this was easy.

I held it together until about 2:00 today. That’s when the tears started, and I couldn’t stop them.

Your daddy came home tonight. He walked through the door and found me standing in your brothers’ closet, frozen, clutching a tiny hanger, my hands shaking as I tried to pretend I was still functioning. But he saw it. The sheer terror in my eyes. The kind that never really leaves, just hides in quiet moments like this. He didn’t say a word—just wrapped his arms around me as I came undone. Again.

Your brothers had a baseball game tonight. I couldn’t do it. Couldn’t sit in those stands, cheering like I used to, pretending the world is still spinning the way it once did. Not without you. The weight of your absence hit me like a freight train and I collapsed before I even made it out the door. Add it to the ever-growing pile of mom guilt I carry now—the guilt that clings to everything I do and everything I can’t. It’s endless. It’s exhausting. And it’s always there.

Want to know one of the most fucked-up conversations I’ve had since you left this world?

It happened last night. Your daddy had just come back from a Radiohead concert. I stayed behind, curled up next to your brothers. It was late—around 11. We were lying in bed, not talking. Just existing beside each other in the quiet. And out of nowhere, he said, “I would let you kill me if it would bring him back.”

I didn’t flinch. I didn’t gasp. I didn’t cry. I just looked at him and said, “I would.”

He nodded. “I know.”

That was it. Nothing more needed to be said. And for something so wrong, so deeply disturbing, so fucking heavy—it was somehow… beautiful. In that twisted, grief-soaked moment, I felt the full force of his love for you. For me. He would give up his life if it meant ending my pain. And I would do the same for him without hesitation. Without question. That’s the depth of this agony. That’s the level of devastation we’re walking around with. The kind you can’t see from the outside, not when we’ve become so good at taping on smiles over our shattered hearts.

We miss you so fucking much. There are no words that will ever touch the ache of this. But if love could’ve saved you, you’d still be here. Whole. Ours. Forever.

Tomorrow is St. Paddy’s Day. A holiday I’ve always really loved. I don’t know if we’ll do anything for it, but I’m totally rocking one of my favorite tees. (Rude comments need not apply.) If you were alive, I’d have you in the kid-sized version. You would’ve killed it. I wore it the other day and some random dude told me I was too tall to be a leprechaun—but you, Ronan? You would’ve been the perfect size.

I love you. I’m going to try to settle my heart down tonight. Tricia came by and couldn’t even drag me out of bed to hike Camelback—and I never say no to that. But today? I did. I told her there was no way I could face the shiny, happy people of the world. Not today.

I know now when I need to tap out. I know when to take a day off from pretending I’m okay. I know when I need to give in to this pain. I can only do so much. And when the breakdown hits… I let it.

Your Margarita kept me laughing through the tears tonight. She always does. It’s not just surface-level laughing either—she really makes me laugh. Then she throws in some kind of jab, all ninja-like, that makes me feel halfway awesome. Or like a total jackass. Either way, she keeps me laughing through the grief. She’s a keeper. I think that R2-D2 you left in her yard was your way of saying that too. That was sweet of you, little dude. Thanks for that.

My eyes are burning. My heart is shredded.

I’m going to try and escape this world tonight with a movie—on this sad, stupid, fucking Friday night that I hate more than anything.

Because it’s another night without you.

I miss you. I love you. I hope you’re safe.

I’m so sorry.

xoxo

xoxo

This slideshow requires JavaScript.

Comments:

24 responses to “Special Delivery of a Red-Colored Slurpee! Because Love Should Not Come With a Label.”

  1. Glenda Avatar
    Glenda

    Sweet dreams Maya! Hope your lil spicy monkey comes in your dreams! Always Ro!
    Love your tee! 🙂
    Fucancer!!!

  2. Katie Avatar

    The conversation between you and your husband was painfully beautiful… It is so completely crystal clear how much you and your Woody love Ronan, and each other. If only it were that simple, almost feels as though it would kind of right a wrong… no child should leave this earth before their mommy or daddy. I’m so sorry. Sending love your way, Ronan is a part of my life, he is so worth the tears I (a complete stranger) shed for him on a consistent basis… he melts my heart… Maya even you in all your feisty glory melt my heart. XOXO

  3. Ali Barnes Avatar

    If I had one wish it would be that your family is whole again…not that either you or Woody would have to give up your lives for Ronan, because then you wouldn’t be complete either. All I want is for all of you; Woody, Maya, Quinn, Liam and Ronan, to be together on this earth as a family as it should be.
    Since I can’t make this happen, I’ll continue to spread the RoLove as best I can.

  4. KT Avatar
    KT

    MM, thinking of you always. I loved looking
    through the beautiful pictures of you and the
    boys. Big hugs and kisses to you and Woody.
    xoxoxoxo

  5. Jaime H. Avatar
    Jaime H.

    Your twins are so cute, I love the photo’s you posted at the end. As always, sending love and best your way! I’m glad you have Woody and Tricia and Rita, etc… I hope you have a nice weekend. XOXO

  6. Maggie Avatar
    Maggie

    U ROCK! That is all.

  7. patricemj Avatar

    I just found your blog from visiting Grim Reaper Girl and she said you were a rockstar…and you are. Love to you from not so far away…I know how your husband feels, it’s hard to believe but I felt that way about my brother when he lost his daughter to a brain tumor, just two years ago. I have worshipped him since we were little, guarded his heart so fiercely in my own…when Grace left I just couldn’t bear the sorrow he would need to pass through, he and his wife who I also love very much. If there is anything anything i can do or give to you take it…love is out here, it is in my heart, just take it and share it. I love radiohead.

    There are some posts on my blog you might relate to. I’ve never read any posts like them and a few people who have lived through horrible loss and struggled to make it to the other side, which I do believe I have done (my brother and I lost our parents when we were young), have appreciated them. Know that I have only referenced my blog to others just a couple times, I’m not here to self-promote, but it helps to know you aren’t alone. http://patricemj.wordpress.com/2011/10/13/oh-brother-where-art-thou/ . http://patricemj.wordpress.com/2012/02/05/invasion-of-the-statistical-deviants/

    Love to you and your family.
    patrice

  8. amourningmom Avatar

    Great t shirt & post. Sending you peace and hugs. Fuck you cancer!!

  9. Bostonmom Avatar
    Bostonmom

    Maya, I have been following your blog for a couple of months. My daughter will be 5 on May 9. I can’t imagine the pain you are going through. You are just amazing and so honest about your feelings. I don’t think many people have the guts to share that with so many people. Thank you.

  10. rhp Avatar
    rhp

    Sorry, but with today’s blog I am officially “unsubscribing”. I will continue to support fighting pediatric cancer in any way I can, but not through you. How can you fight so hard for the lives of sick children but support Planned Parenthood and disregard the life of an unborn child? You’re a hypocrite. I’m sorry for the pain you live with every day and I will keep you and your family in my prayers.

    1. rockstarronan Avatar

      Thank you for unsubscribing. Please don’t pray for me. I will pray for you, and I don’t even pray. I guess back-alley abortions are the way to go?? Because they will happen. Every woman should have the right to choose. You don’t like abortions. Then don’t support them. But it is not your right to make someone else’s choice, for them. And I am a hypocrite? For what? You are sick. And a judgmental asshole.

      1. Katie R. Avatar
        Katie R.

        Maya – I agree with soooo much of what you said. Without legalized abortions, people will still do them and possibly die in the process b/c they don’t know how!!!! And to the A-hole that unsubscribed to your blog…..what about the girls out there that are raped and beaten and end up pregnant by some sick-o…I guess you want them to live in the hell of carring that child.

        Maya – we don’t even know each other but I had a dream about you the other night. I’m not surprised as I think about you and Ronan a lot!!

        Lots of love to you Maya and your family.

        Hugs from Katie R. in Dallas, TX

      2. Kendra Avatar
        Kendra

        I wish your blog had a “like” button for comments! 🙂 Well said, Maya!!!!!!!

    2. Ali Barnes Avatar

      Can i also add that planned parenthood is not just about abortion. It’s about teaching people about safe sex practices and also preventing unwanted pregnancies (therefore avoiding abortion) and also educates people about preventing the spread of STDs. It is an important service provided to people who have nowhere else to go. Asshat.

  11. livelovelaughwithme Avatar

    FUCK FUCK douche bag fuck!! Everyone who is reading this blog, who remotely judges Maya or her thoughts and beliefs should ALL unsubscribe! NOW!!!
    Go away, leave your nasty thoughts and comments to your self…..Maya never asked you to follow her, so leave her the fuck alone!

    Maya….you are right, I volunteered for years at a local birth control clinic….and back alley abortions and subsequent deaths will occur because of them. I have always said whether I would ever have or not have an abortion is my decisions no one else’s!

    Oh, Maya…..my love and support to you always,

    Leona~
    xoxo

  12. Charity Avatar

    That Woody hubby of yours … so good. That poignant moment will be in the previews for the blockbuster movie about Ro’s life and about your love/heartbreak/fight that will bring childhood cancer into the spotlight for all Americans-finally. You’ll be played by Sandra Bullock and Taylor Swift will do the soundtrack. They will both win Oscars. (Seriously, this is gonna happen).

  13. kazisharon Avatar

    Lots of RoLove and hugs your way, Maya. You are doing wonderful things and you have my support all the way…
    Sharon

  14. Christine Avatar
    Christine

    For so many reasons I love, love, love this post. You rock! Don’t ever stop ANYTHING you are doing. I really admire you and I really can’t stand judgmental assholes:-)

  15. Nicole Avatar

    I’ve been struggling with the fact that I’m so far away here in Boston and want so badly to help. I seriously am obsessed with making this a reality for you, Maya. There’s not a day that doesn’t go by where I stop talking about you and Ronan.

    I’ve been looking for the words to tell you how much you’ve inspired me and then I actually listened to the words of “Brighter than the Sun.” First, it’s a great summer song – bring it on – but most of all, I think it was written by one of Maya’s Mafia about your impact on our lives…This year at Christmas, I was rather uninspired and my ass kicking friend in WI introduced me to your blog. I’ve been addicted to RoLove ever since…THANK YOU! I only hope to repay you. I also hope you will repost this in some fashion because I think you will be surprised to see how many people agree with me – You popped out of nowhere to most of us. It fucking sucks that you had to, but you did. This IS how it starts and RoLightening has struck all our hearts…xoxo

    Here are the lyrics:

    Stop me on the corner
    I swear you hit me like a vision
    I, I, I wasn’t expecting
    But who am I to tell fate where it’s supposed to go with it
    Don’t you blink, you might miss it
    See we got a right to just love it or leave it
    You find it and keep it’
    Cause it ain’t every day you get the chance to say
    Oh, this is how it starts, lighting strikes the heart
    It goes off like a gun, brighter than the sun
    Oh, it could be the stars falling from the sky
    Shining how we want, brighter than the sun
    I never seen it, but I found this love, I’m gonna feed it
    You better believe I’m gonna treat it
    Better than anything I’ve ever had’
    Cause you’re so damn beautiful
    Read it, it’s signed and delivered, let’s seal it
    We go together like peanuts and Paydays
    Marley and reggae
    And everybody needs to get a chance to say
    Oh, this is how it starts, lighting strikes the heart
    It goes off like a gun, brighter than the sun
    Oh, it could be the stars, falling from the sky
    Shining how we want, brighter than the sun
    Everything is like a white out ’cause we shook-a-shook-a shine down
    Even when the, when the light’s out but I can see you blow
    Got my head up in the rafters, got me happy ever after
    Never felt this way before, ain’t felt this way before

    I swear you hit me like a vision
    I, I, I wasn’t expecting
    But who am I to tell fate
    Where it’s supposed to go
    Oh, this is how it starts, lighting strikes the heart
    It goes off like a gun, brighter than the sun
    Oh, it could be the stars, falling from the sky
    Shining how we want, brighter than the sun…

  16. Becky Avatar
    Becky

    To the people who misunderstand PP, maybe this will help: Their mission is NOT to promote abortion. Their overall mission is education and supplying medical care and CHOICES to those who are uninsured or under insured. They do not push girls to have abortions but rather counsel them on all of their choices and help them weigh the best one for them. They also supply birth contol at the cheapest possible rates, thus lowering unwanted pregnancies and abortions. Although an abortion may not be the right choice for you or even myself I would never want to hinder someone’s right to choose.

  17. Mandy Avatar
    Mandy

    Maya, Maya, Maya, I am so sad and disappointed by this post and even more so by your comment to “rhp”. You shouldn’t blog about things that are so controversial if you don’t want us to respond when we disagree. That’s not fair. Supporting Planned Parenthood is one thing. Aside from abortion, that’s great if they actually do all the things Becky says. And, I understand you don’t want your blog to blow up with people’s opinions on the subject. Clearly it hasn’t, but I think people are scared of pissing you off. I can’t help but laugh at some of the comments people post on here. There is a lot of smoke being blown up your ass. I am sorry; I can’t tell you how awesome I think you are…not today, not with this post. This is not a religious issue for me so please don’t dismiss me as a religious fanatical. How can you say on one hand that all kids have a right to be protected, but support a woman’s right to choose? I agree with her. It is hypocritical. I am all for women’s lib, but what about a man’s right to father his unborn child? He should have no right to accept responsibility? To have a say in it? A child’s right to live should always be an overriding factor, no?

  18. Jennifer Avatar
    Jennifer

    Maya, I think you rock! That’s all. Oh and to the idiot who called you a hypocrite she can fuck off.

  19. Kendra Avatar
    Kendra

    Maya, you are pure radness. That is all.

    Ok I lied … one more thing, I saw this quote today and loved it because it’s so applicable to things going on in my own life right now, but it totally made me think of you too and how you are kicking pediatric cancer’s ass:

    “Never give up on a dream just because of the time it will take to accomplish it. The time will pass anyway.”

    I know you’ll never give up on it. So this needs to be a reminder to everyone else, including all the politicians and everyone else that has any kind of influence, that the time will pass anyway, so make it count and get shit done!!!!

  20. Dana Hurst Avatar

    Maya, you are an amazing woman! This blog really got to me and made me cry. The love you and your husband share is truly a once in a lifetime love. Im so happy that you two can remain so loving and close to one another. So many marriages end when a child is lost and you two are able to lean on one another through this fucked up situation and not turn away from each other. My husband and I lost a baby girl and we grieved her loss seperately from one another and there was a week we didnt even speak to one another. I thought we were gonna end up going our seperate ways. I just want you to know that I support you in all that you are doing, and thankyou for being such an inspiration to me. (((HUGS)))

Leave a Reply to KendraCancel reply

Discover more from Rockstar Ronan

Subscribe now to keep reading and get access to the full archive.

Continue reading