We need a little luck

In an ironic twist of fate, here we are. Back at PCH, in the very hospital room where this all started. Ronan spiked a fever today, which immediately sends us back to PCH, to the ER, and now we are finally in a room on the second floor. I am trying not to freak out over this; we were supposed to leave Monday for New York but I am pretty sure that won’t be happening now. Dr. Eshin said he would like us to wait until Wednesday, just to make sure Ronan does not have an infection of any kind. Can you guess the word coming up? FUCK. Mr. W had his plane, staff, and everything all ready for us to go on Monday. Woody left him a long voice mail tonight explaining the situation. I really hope things will be resolved; I just feel bad because even though our circumstances are not in our  control; I hate being a pain in the butt. And I hate when a plan goes awry. A consistent plan, which rarely happens these days; is something that I thrive on. That’s out the window now. I know everything will work out; it has to. The most important thing is Ronan. His ANC is at 0. He has no immune system whatsoever so being back at PCH is what is best for him right now so he can get antibiotics and hopefully his counts will start to rise.

So, back to being in “the room.” I can remember it so clearly. It was the room that we were first admitted into, before we knew what was wrong with Ronan. We had an MRI done and our Opthamologist, Dr. Cassiday, came in at midnight to read it for us. I remember sitting in the room with Ronan, while Woody went out to go over the scan. I was panicking, but also very calm. Woody came back in the room with a look on his face that I will never forget. He grabbed me and told me that Ronan had something on his brain; but they didn’t know what. I still remained calm and went out to go over the MRI with Dr. Cassidy. He showed me the spot and I looked at him and said, “Ok. But he’s going to be o.k., right?” He looked at me and said, “Yes.” Little did he know what we were up against, but at that moment, that is exactly what I needed to hear. I remember feeling so strong in this room, and maybe that is why we are back here now; so I can gather my strength for New York. This is also the room where I went into the bathroom, locked the door and called my best friend, Susie, who lives in Colorado to tell her what was going on. In another ironic twist of fate; she just happens to be in town and is coming to see me here tomorrow. I just know this all means something; there are too many coincidences for it not to.

All in all it was a good day. I went to see “The Good Doctor,” this morning. We got everything sorted out as far as medication goes before I leave for New York. We got in a good little chat session too which I always enjoy. He is a smart man, that good doctor of mine;) I feel like I am in very good hands with him. After that, I ran some errands and headed home. I was hoping to go to Liam and Quinn’s basketball game, so Mimi and Papa came over to stay with Ro. Didn’t end up happening as that is when Ronan started to get his fever and did not want me to leave. I am so sad I missed their game; Woody said they did awesome and Quinn scored 8 points and Liam make a couple too. So proud of them. I get so sad about missing their things; breaks my heart. Add that to number 1,435 reasons of why I HATE CANCER. I also missed my annual Holiday Party with my best friends tonight. It’s been a tradition of ours for years now. Little things like that make me sad.

I’ve just realized that I am up way too late. Time to say g’nite to all of you beautiful souls out there. I love you.

xoxo

6 responses to “We need a little luck”

  1. The twins r playing BB again? It work out when it’s right to get to NYC.. Have a decent nights sleep.. Hug suz extra tight tomorrow and we missed u tonight!!! Goodnight Maya and Ro. Risa was on point. 🙂

  2. Sending Ronan lots of Love and Prayers, as you said things happen for a reason and this delay will only give him time to get stronger for his trip to New York.

  3. What you wrote this time brought back some memories that relate to what cancer does to a person..that is the cancer experience…the down side, which you know, it takes control of your time and plans, your freedom seems to go away. Remember God is in control, and building your faith, even if it doesn’t feel like it. He is showing you His glory, His handiwork…growing pains, if you will. This is only my opinion but I am writing this to help encourage you and I pray it does. This is my work, otherwise my cancer experience would be for nothing. You are living proof. You and your family are living proof to encourage others. Keep fighting. I am praying for your faith to build daily and for Ronan to look back on this as growing pains. He will be able to help others who have that need to be encouraged. Basically taking something negative, and using it for the positive.

  4. Jennifer Bennett Avatar
    Jennifer Bennett

    I do not have skype but will look into setting it up so the boys can talk. I was really wishing it would all go according to plan for you all, Dawson says tell Ronan hang in there the plane ride is COOL, we barely know you guys but we feel a friendship with you snd are truly hoping for the best. Dawsons surgery is in the morning, I am sure he will do just fine, as I am sure you guys will get to New York and everything will work out. My sons class would like to do a little project for Ronan can I send it to the address posted here on the website? I love reading your blog, you just tell it like it is and are completely and honest with your feelings, I am sure you need to be and to hell with people who have a problem with it. As a parent I understand that parents will do anything necessary to protect and save their children, I am amazed at how well you keep it together you are one strong lady and Ronan is all the better for it. Never give up. If Ronan is still in the hospital when Dawson is discharged we can try to stop by PCH to visit, can he have visitors?

  5. I agree…as much as a bummer as it is the timing will be just right and you will look back and think, aha, that’s why it happened this way (kinda like Thanksgiving.) Easy for me to say right? But really, you’ve come so far and this delay in the scheme of things will be just a little blip. And remember, you are not expected to do any of this in your own strength 🙂 xo michelle

  6. You don’t know me but someone introduced me to your blog and I have been reading off and on your comments. I was drawn in by your incredible transparency, your terrific writing style and the battle you are waging.

    I have been thinking about Ronan and praying for him and for you and for Woody and your other boys. I am a pastor here in the valley and asked a few of my prayer partners at our church to pray for Ronan this past Sunday. I hope that is cool

    Anyway, I wanted you to know that there are some people you have never met who have your back in this journey!

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