We got to the clinic at 9 a.m. this morning and did a lot of waiting. It was 11:30 before they actually started the chemo. He had to have his blood drawn, weight taken, height measured, fluids given, etc… before they could start. Ronan has been a little trooper and causing a lot mischief since we’ve been here. Shooting the Dr.’s and nurses with his darts, and when I took him to the bathroom he grabbed a whole roll of toilet paper from above the toilet and threw it in the toilet as I turned my back to wash my hands. Oy vey! All I can do is laugh because it makes me so happy to see him being himself. Woody, Mimi, and I met with our stem cell transplant doctor, Dr. Adams for about 2 hours today. Once again, an overload of information and I am so amazed at my husband and the way he handles everything and asks 50 million brilliant questions. I sat, absorbed, cried, and just listened. The stem cell transplant is a BIG deal. Way worse than the chemo as they basically kill my baby and bring him back to life with his own cells. It’s a lot more complex than that, but it’s the best way I can think to describe it. His own cells will rescue his body. I felt really good about our doctor. You can tell she is extremely intelligent and passionate about what she is doing. She also apologized for leaving the fate of our son’s treatment in our hands. She said it’s because as doctor’s, they don’t know the exact formula for curing this. Woody asked her if kids that have this disease as badly as Ronan beat this. She says she see’s it all the time and watches many of them graduate from high school. She said she was looking forward to coming to Ronan’s high school graduation. That threw me over the edge, I started bawling just hearing those words come out of her mouth. As I sit here looking at my happy baby I am overcome with joy and hope. Ronan is different than most little boys. I’ve known this from the moment I laid eyes on him at the hospital after he was first-born.
Time to go home now. Yippee!