Today was awful. Horrific. Something a mother and Mimi Kay should never have to experience. It’s those damn dressing changes for his broviac. You’d think in this day and age there would be an easier way. It took 4 of us to do it. Our nurse Sharon is amazing and he was handling it really well until she got to the side of his skin and started to peel the tape off and we could see that his skin was raw underneath. We would have never known as he has not complained one bit. It was so painful to hear him scream, yell, and cry for me and there was not a thing I could do. Sharon cleaned around the area and put a new dressing on. She moved it in a different spot as to not irritate the skin that is now bloody and raw. I can’t belive we have to do this once a week. I pray that there is some relief and his skin heals quickly. He was so brave. It took him about an hour to stop crying after. I put some neosporin cream on it and it seems to be helping. I wish I could take all of his pain and give it to myself. I would give my left arm for him not to feel or experience any of this. UGH. Worst day in a long time.
On a better note… I asked the doctor today if Ronan could go to the ASU game this Saturday in our suite. He gave me a big fat YES! So happy about that. All of Ronan’s counts look great and the doctors seemed really pleased. We will just take a ton of hand sanitizer with us and Mimi and Papa are contacting somebody at ASU who will give us a ride to top of the stadium. Who knows… maybe they can get Sparky to sneak in a quick visit too;)
P.S. If anyone knows Oprah personally can you please pass along the message that she needs to do a show on childhood cancer. I have been emailing her once a day with no response. It’s time to raise awareness on this subject. Far too many little ones are hurting. I thought that woman had covered everything. I am shocked nothing has been done on this. Do me proud, Big O. Before your show ends this season!