Ro…. Inquiring minds want to know. Nailpolish color is by Debroah Lippman, the color is Happy Birthday. You would have freaked over it as it is so sparkly!!! I think of you everytime I wear it!!

Ronan. Do you know that I wait all day for this time at night with you?? It has become so special to me, that it is now a major part of what keeps me going through out the day. I wait for our time together, when everyone is asleep and it is just the two of us. I wait all day so I can finally sit here at night and write to you, take care of you, cry with you, and nurture you the only way that I get to now. I do this for myself, as much as I do it for you. It’s my time with you, alone, to sit with my thoughts and share them with you. It comes so naturally to me now that I am convinced that you can hear the words that I am saying to you. I so need you to hear them. I so need my time with you at the end of the night. The silence is just too loud.

I wrote to you last night, only to have it disappear. I’m not sure what I even said. I know I filled you in on what we have been doing to keep busy. But as I sit here and try to recall what that is, my mind draws a blank. I can’t even remember the day of the week, let alone what now goes on in a day. I can sit and tell you about today though. Even if it seems like everything that happened, was so long ago. The days are still dragging on and time is still standing still. The stupid sun is still rising, every morning and just makes me angry. I’ll tell you about today, before I forget. I took your brothers to Laguna for the day. We needed to get off the island and I wanted to see my friend, Denise, before we went back to Phoenix. We left this morning around 10 and spent the day with her. We met her at her brother’s house, which is unlike anything I have ever seen. It is filled with exotic things everywhere. You would have loved it. We spent a big part of the day, exploring her brother’s house and his love for snakes, frogs, lizards, fish, fossils, butterflies, trees, plants…. it’s like a mini zoo. Liam and Quinn had the best time and Denise did such an amazing job of explaining what everything was to them. It was a very educational day to say the least. We walked into town and had lunch overlooking the ocean. We got ice cream afterwords and sat on the beach, just enjoying the simpleness of the day. We walked back after a few hours and had a little adventure by the ocean shore as we navigated our way down a cliff, through the water, over rocks and back up some stairs; to reality. We said our goodbyes and I drove off feeling so happy for the beautiful day we had just had, but also so sad that I didn’t have you physically there with us. My heart was heavy. On the way home, we got stuck in traffic. Not a surprise, but it ended up taking us twice as long to get home. I would have usually been annoyed by this, but not today. Do you know what I did for the 2 hours that we were stuck in traffic? I talked. I talked to your brothers for so long that I probably turned blue in the face. I don’t know who this person was in the car today as you know I tend to keep my thoughts to myself. I tend to be on the quieter side as I like to think before I speak and it is as if I am always processing and analyzing the things I say. Today, on the car ride home, I did none of that. I let my worlds fly out of my mouth, and I engaged with your brothers in a way that I haven’t done in a very long time. It felt really good. I talked a lot about my childhood and told them a lot of stories. I told them how I had a lot of hard things happen in my life, but how I never felt sorry for myself. I told them the importance of appreciating everything that they have and how lucky they are. I told them they are lucky, Ronan. I still feel this way even though you are gone. How is that even possible?? I really can’t explain it, except for I am so much more grateful for the little things in life that they have now. Even with you being gone. You were the most precious gift to us.

I ran on the beach tonight. I took Liz with me as I am trying my best to turn her into a runner. Olivia stayed with your brothers. I pushed Liz for her mile that I have been having her to run. Baby steps for her. I ran ahead of her and marked a line in the sand for when she reached her mile cutoff. I had her turn around while I ran a few more miles and met up with her back on the boardwalk by our condo. It felt good tonight, running on the beach, with Liz by my side. We both had our headphones on and it felt good to get out of my head for a bit. I need that break so much now. It feels good to spend time with Liz and Olivia. Olivia brings out the innocence of being a child that I feel like we have all been robbed of. Liz reminds me of my younger 21-year-old self, back when life was simple but so complicated. I sit back and watch her and the lessons she is learning from all of this. I know it will make her a better person, if that is even possible. I’m actually not sure it is. Both of those girls are unlike anyone one else on this planet. I feel so lucky to have them in our lives. You loved them so much too.

I’m waiting now. Waiting for this Ambien to do it’s work and force me to drift off into my black wall of sleep. I remember nothing about my nights now. No dreams, not even falling asleep. I try not to get too concerned about this and my therapist agrees. We talked about this Ambien thing the other day. She said if I weren’t processing things during the day and during the time that I write to you at night, that it may be a different story. We both agreed that as of now, I need a break from all of this reality in the form of sleep. I hate it though. Never in my life have I had trouble sleeping. I now have to fight off the demons that live inside of my head as the night slowly creeps in. Your brothers are both in bed with me. They look so peaceful and beautiful. But it is so painful to not have you in here with us too. I can just picture you snuggled up beside us. That image lasts about 10 seconds before my mind automatically goes to you, lying in your bed at the Ryan House, as you were preparing for your last breaths. I watched as your little body gave out and your heart stopped beating. How quickly your little body turned still and cold and your lips, a soft shade of blue. I think about how I gave you a bath after you died, everyday. I remember I was so mad that I couldn’t get the sharpie pen off of your body from your radiation treatment the previous day. I wanted you to be perfectly clean, but I could not get the black sharpie off of your hips. I wanted to take a picture of you so badly, but just could not bring myself to do it. I have my last picture with you before you died and it is awful. You didn’t even look like the same little boy. You weren’t a little boy anymore. Your body, your face, your eyes….. everything had evolved into a man who would have been in his 90’s. That’s why you were so wise beyond your years, that’s why you loved me so much. I sometimes think you were really an old man trapped in a child’s body. It’s the only way I can fucking justify this bullshit. I think your spirit was so much older than the physical you and your spirit was ready to go on and move on to other things as you felt like you had done your job here. Now, I feel like you are really here, still watching over us, and showing your presence in different ways. If we ever have something good happen in our life again, I know it will be you who has made it happen, Ronan. You will be the one that we thank because you are now taking care of us. I’m o.k. with this, but I’m also fucking pissed about this. I wanted to be the one taking care of you, for the rest of my life. That was my job and I totally failed. I didn’t fail in loving you because you know how deeply connected our love was. I failed because you died. I don’t care what anyone says to try to tell me otherwise. I let you down. I promised you we would get you all better, that your daddy would coach your basketball team, that you would play on a baseball team, all the places we would take you and things we would do. I broke all of my promises to you. I hate myself everyday for this, Ro. I’ll never forgive myself.

I’m sleepy now baby. Time to close my eyes. Yoga in the morning. I hope you are safe, warm, and peaceful. Sweet dreams my favorite not spicy monkey boy. I love you to the moon and back.

xoxo

My little reading crasher

I awoke this morning from an email from my friend, Diane, who lost her little boy, Jack, to Neuroblastoma, a few years ago. She and her husband, Ed, held our hands through this entire process and are still continuing to do so. Something that I know cannot be easy for them. The four of us unfortunately, share a very special bond, but there is no one I would rather share it with then two of them as they are an amazing family. Diane’s email was from late last night, and she was wanting to know if I was up. I didn’t see it until this morning but as soon as I read it, I called her right away. Every year, Di visits a “Medium,” and she started doing this a year after Jack passed away. I totally am into this sort of thing and I know when the time is right, I absolutely plan on finding the right person to go to. Di went a couple of weeks ago, after Ronan had passed away and she told me that Ronan totally crashed her reading. Her medium went on and on about this little boy who is now with her son, Jack, and has a large crowd of peeps surrounding him. She also told Di that Ronan knows I write to him and it makes him happy and he knows it is helping me process things. While I was listening to Diane tell me these things, I was sobbing hysterically. There is not much I believe in anymore at this point in my life, but I totally believe that Ronan can hear me still. Maybe that is why I cannot seem to stop writing to him, because this entire time, although I didn’t even think of it this way, he can hear me and knows what I am writing to him. I don’t know where my writing comes from. It is something that just pours out of me at night from my heart and soul. It is something I cannot seem to stop doing and maybe this is my way of really communicating with Ronan. It is our way of staying connected. Whenever I sit and write, I feel so connected to him. I sometimes feel like he is the one putting all the thoughts in my head. He is the one who gives me the strength to continue doing so. This is one of his many gifts to me. All I know is I can’t seem to stop and I don’t want to. It is cathartic to me and Ronan knows this, so he continues to inspire me and push me. As long as I feel like I have things to say, I will continue on. What I write may not always be easy to read, and I so appreciate all of you for staying with me and not judging me. What I speak is the truth, raw, and real. It is the way Ronan would want me to continue on with his story. He never held back a thing; something I would like to think he got from me. He wouldn’t have my writing any other way. So Ronan, my very special soul. Thank you. Thank you for crashing Di’s reading and letting her know you are o.k. I know you are because of all the love that still surrounds you. I know I will see you again someday, little man. But now, I have to work my ass off on what we set out to do from day one of your diagnoses, which is raise awareness. I will not stop until things in pediatric cancer have drastically changed. I will fight harder for you than ever because I have to make you proud and I promised you we would tackle this together until people listened. Even though you are gone, I know you will be working just as hard with me right by my side. Together, we can do anything.

So, Ro. After I got off the phone with Di, I woke up your Daddy and Quinny so we could get going on our day. I got Quinn all ready for Legoland and Mimi, Papa, and Liam came to pick him up and off they went for their little adventure of the day. They had a great time. Your daddy and I got ready to head out to meet Denise from your favorite clothing line, Fore, Axel&Hudson. We decided to meet her in Laguna and I was so quiet on the car ride there. I was feeling such a mixture of emotions. I was anxious, excited, happy, but also really, really, sad. I have talked with Denise for months now and one of the thing I always said to her was how I couldn’t wait for the day to come when she could meet you and see in person and see how adorable you looked in her clothes and hats. Nobody could pull off a Fedora like you, Ro. Having to meet her today, was devastating to me without you. On our drive there, as we had just gotten to Laguna and we were driving in town, the tears were streaming down my face. I was begging you to give me a sign that you were with me. I was staring out the window and on my right was a store called, Esther. I almost couldn’t believe my eyes. I mean, how often do you hear that name and just when I was wanting a sign, there it was. 2 minutes later, I looked to the left and there was a store called To the moon. I couldn’t ask for a bigger sign than that Ronan. You and Esther together in Laguna. How random is that? It was almost so amazing that for a slit second I thought I made it up in my head. But I didn’t. I can’t wait to tell Doriet about this. I know this will make her as happy as it did me. I know the two of you are together.

When we got to Denise’s brothers place today, and I finally got to wrap my arms around her, everything just felt right. You would have loved her. She is one of the most real, pure, kind-hearted people I have ever met in my life. Everything she has done for you has been out of love for a little boy that she didn’t even know, but you captured her heart. Your daddy and I told her how happy all the clothes and hats she would send, made you. You were always so proud to wear them as you should have been because they are the so special and unique, just like you. We had a beautiful lunch and Denise wanted to know a bit about what we wanted to do with your foundation. We explained to her that research was our number one goal. I told her how I cannot get Gisele Sholler out of my head, even though I have never even met the woman, but she was the one who was going to help us in the end. I really want to meet her and I am really interested in the cutting edge things she is coming up with for Neuroblastoma. I also talked about Dr. Mosse at Chop. I believe in her and what she is doing as well. I believe in Dr. Kushner too, but my personal feelings are getting in the way of wanting to help him, although I know I should put these aside because he is a brilliant man. Like I said, when the time is right, we will know. I know you will help us make this decision. Funding research is our number one goal, but raising awareness is where my heart is truly at. Something has to be done to make people open their eyes. Baby steps, Ro. But we will get there, I promise my love. After talking to Denise about what we are considering, she had a proposal for us. She said she has talked with the two other owners of her company and they really want to get involved and make a difference. They have decided that they want to design a line of hats in your name and they want me to be involved in the design process. With a part of the proceeds going to your foundation. She had both your daddy and I all choked up at lunch over this. What an amazing thing to be a part of. We are so honored. The fact that one simple message from me, and this company jumped on the chance to help out by making you so happy with all the fancy clothes you used to love so much to wear, and they wanted nothing in return but your smiles. As of now, Neiman Marcus carries their line and The Garage in Scottsdale. They say certain people are put in your life for a reason, and it is clear that Denise is going to be a big part of our lives. I feel like I’ve known her forever and the connection that you have given us is such a blessing Ronan. We felt you all around us today as it was the most gorgeous day outside. I know it was you, smiling down at us. I know you were with us all day long. After a wonderful afternoon, it was time to get your daddy to the airport. He headed back to Phoenix today and it was hard to see him go especially after how emotional we both were today. I hate the fact that he is at our home, without us. But I know he is there with you and your ashes, so that makes me feel better. I hope they bring him comfort like they do me. I know you will take good care of him tonight and play with him in your dreams like you have been doing.

I came back to our condo and put on my running clothes for my nightly run. It was much needed after today. I only put in 4 miles again, and they were fast and easy. My running seems to come easily to me now because all I do is think of you. Time passes quickly that way. I didn’t do my nightly swim as I was wanting to get back to pick up your brothers from Mimi and Papa’s. They are both sound asleep, tired from their long day out. We all take turns sleeping with your blanket and Liam has it tonight. We treasure it so much.

Time to try to get some sleep, Ambian induced of course. I am convinced this is why I am not dreaming of you…. because it puts me into such a deep sleep. I am too scared to try to sleep without it now. Someday, but as of now, I’m not ready. I will know when I am ready to try to sleep like I used to. If I don’t take it, I stay awake all night and just sob about you. It’s too painful and I need the sleep to get me though the days. It takes a lot of energy to try to hold it together and being sleep deprived is something I don’t think I can mix into this madness now. I know you know this, but I miss you so much. I think about you every second of the day. You will always be a part of our family and we will never forget how you lived your life with such pride and dignity and you were never scared. Everyone could learn so much from you. You never felt sorry for yourself and you never stopped fighting; until I told you to. Thank you for listening to me for the first time in your life. As much as I wanted you to fight forever, I had to let you go to be free of your pain. Whispering those words to you was the hardest thing I’ve had to do in my life. But you loved me that much that you honored what I said to you. I am so thankful for that. I had to let you go and live your new life, the life you deserved to live here with us. I know you are free now and as sad as I am, I am happy for you. So go and play, baby. Go and cause all the trouble in the world and know that I will always be right by your side, loving you every second of my life. I will see you again, I promise you. I dream of that day, Ronan. I have a lot of work to do first and it starts with your daddy and brothers. I have to make sure they are going to be o.k. I worry for all of them and we have so much healing to do. Everyday that I see your brothers smile, it gives me hope. I am so lucky to have them and so were you. We all know this and treasure our time with you so much.

G’night my little man. Go spread your love around tonight and visit everyone who loves you so much. Twinkle Twinkle my baby star. I love you to the moon and back.

xoxo