I’m writing today to you all because I have a lot of fuels in the fire. I know I am supposed to be enjoying my family beach time, but being busy is helpful to me as well. First of all, last night I had the chance to go and look at all of the pictures that the amazingly talented, Emily Carroll, took at Ronan’s Fundraiser, and posted to her Facebook page. The link is on my Facebook page as well. I cannot tell you what an out of body experience it was for me to see all of your beautiful faces, most of whom I didn’t know, supporting us. I cried the entire time I looked through them. It is was beyond hard for me, to know that all of you were there because of the love you have for our family and because our little boy is dead. Can you put yourself in my shoes for one minute? Just take one minute, close your eyes, and think of your child dying. In that one minute, allow yourself to experience the pain I feel, my family feels, every second of the day. Take this one minute of pain and know this is why you all have taken it upon yourselves to inject yourself into our lives, when most of you don’t even know us. Take a minute to think about what amazing human beings that makes you and be proud of who you are. You all know there is more to life then the superficial things that surround us. You all get the bigger picture and you all know you are about to help me change this world and the way most people live with their eyes closed and lack of passion. You all have made me beyond proud and honored to have your love and support.
Ronan lived everyday of his life as if it was his last, without ever knowing that he would only get to be on this earth for almost 4 short years. Maybe deep down, in his old little soul, he did know this, which is why he made everyday a party and gave us so much happiness. He lived his life to the fullest, the way everyone should. I can guarantee you, if Ronan would have grown into an adult, the way he should have, he would have changed the world in some way shape or form. He would have had such a huge impact, as it was what he was put on this earth to do. Look at how much he has done with his life in the short amount of time that he did get to be here. His life was taken away from him, but I still believe he was meant to change it. I will never stop believing in the power of my son and his big blue eyes. The connection that Ronan and I have was so beyond deep, that it is beyond this life. I know it is him who is pushing me to keep going with his mission, his life, and his soul. I know what he wants me of me and every idea that I have, I am going to fight for it. Every goal I want to reach, I am going to fight for it. Every breath that I have to take, when I don’t want to anymore, I will fight for it. He is surrounding me still and I cannot rest until things in this world start to change. Ronan wants to be the voice for childhood cancer, so someday, children will not have to suffer and lose their lives the way he did. Ronan wants all parents to know that you should never take a day for granted with your kids and that the little stuff, really does not matter. He wants to help make parents, better parents. He wants all children to be loved as much as he was, because he knows how precious life is and he would give anything to be back here with us, where he was loved every second of his life. I gave my whole heart, body, mind and soul, to Ronan from the time he was born. I think deep down, I knew that I wasn’t going to get to have him forever which is why our connection was so deep and so different. I gave him a lifetime of love in his almost 4 short years that he was here. I will forever be heartbroken and feel like we were robbed of the most amazing child, but that his fight has to continue on.
Back to my fuels in the fire. I have a lot of things to take care of in regards to Ronan’s Foundation when we get back to Arizona. I am going to pour my heart and soul into it. Some things that I want to see happen are the following:
I want to make The Brightest Star in the Sky a yearly event. I want to make it huge. The amazing women who put it on for us this year are completely invested in our cause and for that, I cannot say thank you enough. I cannot wait to be involved with you all and to work with you to make it spectacular. I cannot wait to watch how it evolves and grows into something that everyone knows about and I have all of you beautiful woman to thank for getting this started. This would have not happened without you and for that I will forever be grateful.
I want to find a big voice for Childhood Cancer. People worship the power of celebrities so much, and as much power as they have, why hasn’t anyone stepped up to the plate to start a movement for Childhood Cancer? I know a lot of celebrities support St. Judes, which is amazing, by why not just Childhood Cancer in general??
Also, Yoplait. They change all of their lid colors to pink in October, which is also amazing, so why not Yellow for the month of September for Childhood Cancer Awareness?? I don’t have their contact info yet, so if anyone knows of it, please email me at firstname.lastname@example.org
I think the more people they hear from, the more they would be willing to listen. A movement has to start and it has to start now. The sooner the better as we all know when you are dealing with Childhood Cancer, time is not on your side.
Lastly, I wanted to tell you that last night I did dream of Ronan. I could cry just telling you about it. I was pushing him on a raft, he had hair, and he was laughing and happy. In my dream, he was alive, but I was also talking to people about his death. My childhood friends, Missy and Mandy were in it and we were on Missy’s farm with Ronan running around. My friend, Lisa, was in it and I was hugging her about Ronan dying. It was a dream where life and death both existed, but they were both beautiful. I am so thankful for my dream last night and I didn’t take my Ambien to go to sleep. I didn’t fall asleep until about 3 a.m. but at least I got to see my sweet baby boy. It was the best thing to happen to me in a long time.
That is all for today my friends. I have been getting a lot of emails also about getting bracelets to out of state peeps. Once I figure this out, I promise I will let you know. Just give me a few days:) Thanks for your support and love, always. Have a good day, my friends. Love you all.
That stupid pit is back in my stomach today. It is the worst feeling. Makes me not want to eat, not want to sleep…. it’s like a dull, empty pain that comes and goes. And when it is here, it is a constant reminder of what we are up against. Before all of this, I didn’t even know what an Oncologist was. Yup, I was that naive. I thought the last thing we were going to hear is your child has cancer. I still think this is some kind of a sick joke. But staring at my baby’s bald head, as he peacefully sleeps… I am reminded that it is not. And it is more painful than anything I’ve ever felt in my life. When I was driving back to PCH today, after running home to shower and take a power nap… I thought to myself, how in the world can I ever go back to a normal life? A life before all of this? In a weird and twisted way, I have come to love our new life. It is a new life full of getting Ronan well and keeping him alive. He is still here. He is still alive. He is still mine. I am so thankful for that. I remember at the beginning of all of this, when we were talking to one of the doctors here about treatment options…. he told us that if we wanted to take Ronan home, to let him be at peace and not do any of the treatments, that they wouldn’t fight us about it. His words still haunt me….how in the world could that have even been an option?? To give up on your baby and not do everything in your power to help him fight though this…I can’t even imagine. I am very thankful we caught this when we did. A month or two later… and it could have been too late. We are going to do everything we possibly can to get him well… I have no doubt that what we are doing will work.
Ronan has his chemo running through him for 72 hours straight. It is a little clear bag, full of some orange fluid. He is sleeping now, but seems to be tolerating it pretty well so far. My little fighter. Woody and I met with Dr. Eshun today to go over our plan with him for NYC. We are working getting all of the dates finalized and set. No matter what the case, my stomach always goes into knots when we have to meet with a doctor. Guess it just goes with the territory though and I need to learn to get used to it. This is not going away any time soon.
The little boy who we are sharing the room with is still alone. I hear him talking to his mom on the phone every once in a while. He just called her to ask if she was o.k…. he wants to know what she is watching on T.V. and wants to know if his dad is asleep. He sounds so happy just to even talk to his mom on the phone. I could just eat him up.We’ve been with him since yesterday around 4… and no parents have been here. Not even during the night. I cry for him. He is the sweetest little thing and he doesn’t make a peep. I want to bring him all sorts of toys and things to play with. He never asks for a thing… even after the dozen times that I have asked him if he needs anything. Sweet kid. Shitty situation. Life really is not fair sometimes.
Last night I slept about 3 hours. Better than nothing. I am paying for it tonight though… very tired. No matter how tired I am, I never sleep well here. Too many people coming in and out, too many beeping noises, too cold, etc….. It’s fine though… I could stare at Ronan all night long and never tire of it.
Before I try to get some rest I wanted to say a big thank you to The Academy House in my hometown for putting on a wonderful fundraiser in Ronan’s name. I am floored by all the people who showed up, all of the money raised, and the beautiful spirits of the young kids who worked so very hard to raise awareness for Ro’s cancer. Also, a big hug to Lisa for organizing everything and being the force behind it. The love and support from my hometown has been amazing and I am so thankful and proud to be a Longview/Kelso girl.
Sweet dreams to you all out there. Thank you for loving us, believing in us, and fighting for us. I’ve said it before, but I’ll say it again… I will never forget the love you all have shown us and I will forever be changed because of each and every one of you. G’nite<3<3<3
And P.S. Gay, I love you and your messages. Thank you for checking on me… sorry for not calling you back… will call you tomorrow. And you and your guys’ are NEVER too much for us. That was the best Halloween ever. Thank you for sharing it with us… we adore you all and are so lucky to have you in our lives.