Written by: Maya Thompson
Please pass this along to them. I found this about 2 months after Ronan was diagnosed and it became my bible. A group of parents put this together. I hope you all are well. We are alright here. Just trying to prepare for this Poppy baby a bit.
Love you all.
RoMama,
Hope you and PopStar are doing well.
Can’t wait for you to hold your princess Poppy 🙂
Thinking of you & Rockstar Ronan
Always RoLove
xo
We all love you too!!! Xoxoxoxoxo!!! I’m still voting. Lol.
Can’t wait for poppy! I am so glad that parents have you to help direct them, and it makes me so sad and mad that there isn’t a better system in place in the healthcare field to help guide parents. Parents should not be having to make these decisions alone!
I can’t wait to see pics of this cutie girl!!! Poppy fields forever!
Reblogged this on Blue jellybeans and commented:
If you know anyone dealing with Neuroblastoma
For those who are voting like mad on the blog (like me) – here are some tips I have found:
1. you don’t need to include the spaces between the words; 2. you don’t need to make cap letters – it accepts small case letters always; 3. it’s pretty forgiving, you can miss a letter once in a while and it still accepts it; and 4. if you get a word that’s very hard to read, to save time, just hit – VOTE and don’t even try it. You’ll get a new pair of words right away. It’s fun to have more than one person at a time voting – esp at night. VOTE FOR RO BABY!
Thank you for sharing, I did send to a friend who is helping a little girl with relapsed neuroblastoma. I saw on Facebook she is in ER today with fever, vomiting, very lethargic. I hope her parents can read, I read through a lot and can only imagine how helpful a resource like this is.
Poppy is going to be a rockstar like her big brother Ro!!!
Hi ro mama ,please keep us updated on how you are and poppy and the whole fam bam please and thanku & take care Rolove forever <3 =)
Very Nice. 🙂 I love this. God Bless you and your Fam ALWAAAYS. 🙂
Happy to report that I know no one dealing Neuroblastoma, but I know enough to know that I will always be looking over my shoulder. Thinking of you all the time- as if you’re a personal friend- so funny- very excited for you and can’t wait to see pictures- it’s amazing how much she looks like Ronan!! Love to you and the gang and hopefully a Happy St. Paddy’s… xxx
Take care of that baby! I hope I never have to share that manual with anyone:( Can’t wait to see you and your beautiful little girl. I hope she brings you new happiness. Always love.
Thank you for posting this link. My 4 year old son has stage 4 refractory neuroblastoma and is heading into stem cell transplant next Tuesday. I’m nervous, scared, a little confused, but hopeful. I read your words often and wish you all the best with your soon-to-be-here little girl!
Hi! I found this through Taylor’s song, I just wanted to say that I was sad to hear that Ronan passed because of neuroblastoma. I can feel some of the pain you’re feeling because my 3 year old baby cousin, Dante, passed away because of the same kind of cancer. It was about 4 years ago and everytime I hear Taylor’s song I remember him and of course I cry until I can’t anymore.. I’m soo so sorry for your lose and I appreciate how you can make something so sad into a something so much bigger because of this website and the foundation!
Excellent quote.
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