Ronan. This break from Arizona, could not have come at a better time. I am seriously about to go blind from all the sunny sunshine that just does not match the way my insides feel anymore. I spent the weekend at home. Pretty much in bed. I was trying to rest up for New York and was not feeling well. I also was seriously hiding from the sun. As in, I think I may have a sun phobia. I didn’t step outside Saturday or Sunday. It was only after the sun dipped down on Sunday, that I decided to go out to the grocery store to stock up on food before my departure. Monday came and went. I kept myself busy, getting ready to leave for my flight to New York. I tackled all the laundry that I have been ignoring, paid bills and packed my suitcase. I picked up your brothers, we did homework, I made them a snack, and I took them to a birthday. It was a NFL birthday theme hence the Monday night party. I came home, talked to your daddy for a bit and drew myself a bath. Your daddy came in to check on me.
Hello NYC
11 responses to “Hello NYC”
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Maya – I read your posts and Cindy’s posts and it just reinforces me commitment to join in the fight against Pediatric Cancers. Every day my heart breaks thinking of what your kids have gone through – the sheer senselessness of it, the unfairness. FU Cancer. I hate what you do to these kids, to these families. We’re coming for you – raising awareness, raising $$$, improving treatment. It’s going to happen – brave momma’s like you and Cindy having the guts and the courage to tell us like it is. I can’t turn my back on what you all have gone through and I promise I am committed to this fight. I hope Ronan is safe too 🙂 Thinking of you alway little man – my little purple bracelet reminds me every day to do something towards this fight – not a day can go by without me trying to spread awareness or help raise $$. It’s too important a cause to ever let up.
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Every single blog entry gives me a little more perspective on life. Thank you for sharing everything with us. I have learned unbelievable things from what you have to say, from your struggles and your joys. Thank you for everything, my thoughts and prayers are with you always. Keep it up! x
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I’m glad your experience in New York was so good. I feel the same way about that magical city! I so admire your strength and perseverance, Maya, and I can’t wait to see what you and Ro will do 🙂
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I am new to your story and was introduced to it as I have a friend/acquaintance whose child has neuroblastoma. The child and Dad left for New York last night. I just thought it was ironic that you are there too today.
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I love that you’re sharing your trip with us. Thank you Maya, you really didn’t have to. It’s beyond fucked up that you guys have to be without your precious babies, my heart breaks for you. Keep doing what you’re doing, you’re one strong lady! Lots of love always xxx
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You have no idea how much these blogs are helping all sorts of families. I’m a mother of a 4 year old boy. I cry everything I read your blog. You have an amazing way of writing and make me want to do all I can to help families like yours. Although i know its minimal. my heart goes out to you snd your family. Thank you for opening my eyes to this aweful sickness that needs to be stopped! Somehow.
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Romazing RoMama! Can’t wait to hear of all the happenings in NY!
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Maya, I was surprised to hear you wanted to move, but then in a way I’m not. It’s hard to live everyday in those memories. They hurt now, but one day they may be joyous -or I would imagine they could be.
But also with the new baby and where their room will be? You dont want to pack up his room, but if you move then you arent packing it up for a new baby – its for a new house. Maybe thats part of it? If you were to move you could always do something with Ronan’s things to make him part of the everyday life. Maybe randomly place things around the house in special places, shadow box perhaps? Maybe a beautiful quilt made out of his favorite shirts/clothing…instead of sitting in a drawer or boxed away – why not turn them into something you can use everyday and it be part of Ronan? I cant pretend to know what you are going thru, however my heart tremendously aches and I too want his memory and name to never be forgotten! I think you will know what to do in all due time. You always do. It makes me angry that this is your path. This is your new journey. That it will never ever be the same again. Its hard to turn things into a positive turn when the hurt is so deep, raw and lasting. I can only hope I can help a little. I can’t wait to hear all about your plans to kicks cancers ass. -
Maya…I have to say I have been so worried since you hadn’t written. I figured you had been really busy…which to my relief was true :-). New York seems to bring out the little spark that’s left inside of you..you find your strength again…your focus..it is a magical place that I think brings you closer to Ro. You should by a snow globe to take home with you, so on those extra sunny days out in AZ you could feel the magic of NYC…just a thought. Sending big hugs to you always from Arkansas…and since I’ve never been to NYC snap a few pics and share some of your favorite places with us.
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Sometime when you are in New York, I fully recommend this delightful little French Restaurant: Sel et Poivre on Lexington near 64th St. I believe you would like the menu and setting. http://www.seletpoivrenyc.com
Kimball Arnold -
Hey my name is mckella, I’m a 15 year old girl in 9th grade. I started reading your blog a few days after Taylor swift performed her best song she’s ever wrote for Ro. You and your son Ronan have inspired me so much. This semester in English we had to make a bucket list and one of mine was to help find a cure for childhood cancer. Then after we did that we had to chose one thing off the list and write a paper,and get a pic of something that represents your paper. I wrote about finding a cure for childhood cancer. And Iv been so inspired that my pic was of Ronan and more than half of the paper was about you and Ronan. At first when I wore gold almost every day in September they thought I was trying to have some school spirt. So after awhile I put I ❤ rock star Ronan then under that make a difference and stop childhood cancer. Right now I'm trying sooo hard to start a club, to make people aware of how big of a messed up prob this is. I have to get at least 7 people to say they will join and iv got only 2 and can't seam to get anyone else to, it would mean a lot to me if you could help me. I know you are always getting bombarded so I'm going to end it here. I would NEVER beable to share all my pain on a blog.
Love
Mckella
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