Ronan. I did a lot of things today. It was a productive day, to say the least. I LOVE my productive days the best when they are fueled by you, you and you. Always by you. I didn’t sleep well last night due to just normal stuff that deal with a lot now. It was much easier in my Ambien is the Devil pill popping days, when I could just say fuck everything and go into a black coma for hours. I gave that up long ago and although I am so very glad, I can’t say that I sometimes don’t miss the convince of it. I know the after effects of that little pill are just not worth it for me though as they usually involve me wanting to slit my wrists. I’d rather just deal with the insomnia.
I sat with your Sparkly for a long time today. I was frustrated about some things. Sad about some things. I go to my best non judgmental friend, for the best advice. I spatted out the things that were wrong. Nothing major. But my feelings were hurt over something silly. I was feeling sad about you. Guilty about this baby. A little family trouble too. A invitation came my way. A maybe trip to New York. I sat and talked with him about all of these things. I’ll sum up for you, what I got told in a nutshell which went a little something like this.
“Please don’t lost sight of it what it is, you are doing and why you are doing it. I don’t think that you will, but promise me, you won’t. You know the reason you are doing all of this. The only reason you are doing all of this. Keep focused the way you have been. Do not let all of this attention, change anything.”
“They don’t know the real you. These people that you are letting your feelings get hurt by. They only know what they read and the few times they have met you. I know the real you. You are so smart. You are brave. You are kind. You are outgoing yet introverted. You are shy with certain situations. You are so strong. They don’t know your childhood and what you have been through, which I know is a big part of what makes you, you. People want to see you fail. It’s ugly human nature. What you are doing is unlike anything anyone has ever done before. I really think you are going to completely change this world, darling. You already have, and you are only getting started. Look at all you’ve done. Maya. Who else in this world can walk around with Fuck You Cancer bracelets on their wrists and get away with it?”
I just replied, “No one. But maybe that’s because they just haven’t tried.”
He just looked at me and said, “Exactly. That is exactly what makes you so different. You did that. You did that within weeks of Ronan being diagnosed. You turned that into your thing, which is a metaphor for everything you are doing. You did it without caring, you did it because that is what you felt, you did it with your head held high and now look where you are. You were handed the shittiest situation in life. You could have given up a long time ago, but you stayed true to being honest and vocal about everything you are going through. Nobody does that. That scares the shit out of people. As much as I wish this wasn’t the hand you were dealt, this is your calling. Whether it be by God or whoever else is out there, you were given this because you will change this in a way that nobody else has.”
Tears started welling up at this point in his eyes. “Now I’m going to start crying.” I looked down at the ground. “Why? I said. “Please don’t cry. Please.” I watched the tears form in his eyes.
“Why…. because I’m sad, for you but so proud as well. I wish this wasn’t your story, I wish this wasn’t Ro.”
“I know.” I said. “I know.”
I told him about my New York adventure. Secret side Maya mission. He told me to book my flight. I will. Another little gift, from you that just fell in my lap and since I am such a believer in signs and timing, I am going out to our favorite city to pursue what it is, that is maybe in the works. See you in a few weeks, NYC.
This week has flown by with so many things happening. We totally won 50k from the Chase Grant contest!!!! We entered it so late, but thanks to all of you supporting us by voting and telling everyone you know to vote, we won!!!! We are all so excited, proud and thankful. A special thanks to my dear friend, Melissa for taking the lead on this little last minute project for us. Without her, this would have never happened. I truly am surrounded by the greatest people. I am so lucky in that regard.
My friend Katie let me have a little trunk show at her store last night with my “Spicy Monkey,” bracelets. We had such a turn out and I was so happy to finally meet some of my very best Ro lovers out there. Your Poppy has had me wiped out, but I powered through last night and it was a huge success. Thank you to everyone who came out to see me. I loved listening to you talk about Ronan. It makes my heart a lot less sad to listen to your stories of how he has inspired and changed you. I am so lucky to be your mama, Ro baby. You are doing the most amazing things in this world still. I miss you so much.
Last night left me feeling like I had been run over by a truck today. I had a lot to do and got through some things, only to come home so sick and tired. I fell into bed for a few hours. I didn’t want to, but I knew today I didn’t have a choice. Guess where I spent this evening. At PCH with Quinn getting an MRI. You know, because of his headaches, I am still convinced he has a brain tumor. It is so mentally exhausting to live in this world. This world of being overly paranoid about anything and everything. We will know in the morning if anything showed up. Your favorite PCH lovie called me before the MRI. “I’ll be there in the morning and I’ll call you first thing. I promise you, there is nothing there.” I responded with, “You’re telling me that I can sleep tonight?” He said, “Yes. Please sleep tonight. I promise, everything is fine.” “O.k.” I said. “I’ll believe you.” I am sure he is fine, but as you know, I can’t live in a world where I’m not 100% sure. Between last night and today, I feel like I need a major vacation… from life. Do you know where I can go for that? I do. But that’s not my call.
I had an ultra sound this week as well. I think I sat and cried most of my appointment. My nurse asked how I was feeling. I respond with sick, tired, and really, really sad. This led to about a 30 minute conversation about you. She knew a little bit about our story, but not the details. I told her most of our story, as best I could without choking on my words. It’s still hard for me to talk about everything we went though. The scariness of it. The darkness. The blind hope being ripped from my arms in the form of losing you. How everything spiraled out of control so quickly. How I didn’t even realize you were dying because I was so convinced my love would save you. We talked about this new baby and I told her that I’m not excited yet. I saw Dr. Schwartz who I think might be one of the most amazing women on the planet. She talks about you a lot which means so much to me. She told me how excited she was to see my name on the schedule and that I was pregnant again. She said she thinks everyone is so excited about this baby. I do too. I know there will come a point where I am as well. But right now, I just miss you so much.
That was my week in a nutshell, Ro. I’m tired from being a PCH tonight. I couldn’t go back in the MRI room with Quinn due to being pregnant. The memories of you, being in there came flooding back. Within hours, our whole life turned into a nightmare. Please let everything be alright with Quinny. I could not survive something like this again. I’m going to try to get some sleep now. I miss you. I love you. I hope you are safe. Sweet dreams, baby doll.
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