Dear Lovely Little Blog Readers,
I’ve had the chance to meet Ava and her mom, Chrisie, a few times. I have looked this little girl in the eyes and I have seen the fire that exists. She has endured so much and continues to fight like a rockstar. Ava’s family needs help as they start a new treatment in Texas as they have been left with no other options. Please take the time to read the letter written by Ava’s Grandmother below. If there is anything you can do, no matter how big or small, it would help so much. Please keep this little girl in your thoughts, prayers, or whatever it is you choose to do. Please take the time, to remember how lucky you are to have your babies safe and healthy. Please stop and cherish every single second you have with them. I’ll be talking to Ro today and asking him to watch over Ava and help her in any way he can.
I love you all so much. Thank you for your endless love and support. Thank you for being grateful. Thank you for being the best version of yourself, that Ronan would give anything to be.
Dear Friends and Family,
I am writing this letter on behalf of my granddaughter, Ava Holder, who as many of you know is battling cancer. This February marks the 3rd anniversary of Ava’s diagnosis of Stage 4 High-Risk Neuroblastoma. Over the last 1,095 days Ava has had huge obstacles to overcome. Ava has never had a break in her treatment – it has been a constant for our family. It is remarkable that Ava has survived this disease and her treatments to this point. We were not sure Ava would make it to her 2nd birthday. Ava has relapsed in her brain 3 times and in her body several times. Ava is currently in the fight of her life with an inoperable brain tumor and a tumor on her pelvis.
Doctors have given Ava limited treatment options as she has had her maximum amount of radiation and 17 cycles of high dose chemo which has required 2 stem cell rescues, 5 tumors removed from her brain, and 1 major resection surgery in her abdomen. Despite all this Ava is a vibrant four and a half year old who loves to ride her bike, play dress up, and most of all loves her big brother Eli. Ava looks forward to the future and has dreams to one day become a doctor and help kids just like her.
Ava has never given up her fight and neither has her family. This February Ava with her family will travel to Houston, Texas where they will embark on an experimental trial that involves chemotherapy and a vaccine treatment. The year long trial consists of traveling to Houston every 2 weeks for the vaccine. The expense incurred over the next year will include airline travel, lodging, ground transportation, meals, and various medical expenses and copays plus any unforeseen costs. Total monthly costs are expected to exceed $2,000. These costs will be incurred every month for a year. Many of you have asked what you can do to help. Having a child with cancer is stressful. It takes it’s daily toll on you physically, emotionally and financially. Chrisie and Nick are so strong and have always handled the situation with such grace and dignity. They would never complain or ask for help themselves which is why I’m reaching out for them and my granddaughter.
The expenses of associated costs surrounding Ava’s treatments will add up quickly. We have seen our friends and family come together in the past to help Ava but continue to be asked what can be done to help now. So I ask you, our friends and family, to assist financially Ava’s family with current travel and medical expenses. Any contribution is welcomed, no amount is too small.
Thank you for your continued support and love. Please share this letter with others who have the ability to support Ava. Family updates can be viewed at:
All checks can be made payable to Ava’s parents. Chrisie and Nick have set up a savings account dedicated to Ava’s medical/travel expenses.
Nick and Chrisie Funari
18036 N 93rd Street
Scottsdale AZ 85255
With Great Love and Hope,
Bruce and Sharon Elliasen
Through CaringBridge, you can be a part of Ava’s health journey by reading updates, viewing photos and leaving messages of love, hope and compassion in the guestbook. Your support will mean the world to Ava.
10 thoughts on “Ava Holder”
I’ll be asking Ro to watch over Ava as well. I know he will!
Is she going to see Dr. Stanislaw Burzynski? He is in Houston Texas as well. Have you read about him, Maya? He sounds real promising and is trying to specialize in curing brain cancer and has had a lot of success stories. If there is something I am missing about this man I would like to know, but as of right now everything I read sounds very good. 🙂
Is there any way to donate online? I know Caring Bridge donations do not go to the patients… and I don’t have checks, never use them 😦 Please advise I want to donate!!
My dear Ava, and family. Once a week I get to see your beautiful face come into the lab at clinic and pick out stickers or a cute Girly prize for your bravery and strong efforts. Ava, I look forward to seeing you every week, but I wish a millin times not under these circumstances. My sweet girl and I have been down these long, tiring, stressful moments in our lives as well. I talk to my Irelynn quite often of a few sweet kids I know. You Ava, Ronan, Alexis, my Irelynn of corse, and more. Consider my contributes to you and your family!!!!!! I shall repost to my Facebook if the permission is accepted by you. I was only 25 when my sweet girl was diagnosed and I HAVE rock bottom. I will do my best to spread the word and get as much as I can together. With all my love Ava, Jenn from the clinic lab.
Gosh, little Ava, praying for her! Thanks for sharing her story.
Maya, this gave me chills when I read this today. I shared on my facebook, and of course will send a donation. Little Ava is heavy on my heart. Thank you for giving us all the opportunity to help!
Donated and shared! Keep on fighting precious Angel!!!!!!
Check is going in the mail tomorrow. Keep fighting sweet girl!!
you have a wonderful family and are in my prayers every day.
MY NAME IS AVA AND I HAVE AN OLDER BROTHER NAMED ELIJAH O_O. But yes, Ava, get better. You will survive this. I know it.