I forgot to pay the Cox Bill and I burnt the Fucking pre-made Cookies


Ronan. 3 days since I’ve written? How is that possible? I couldn’t possibly tell you what I’ve done. I only have words that fill my head. Conversations I remember. Thoughts that flow in and out of my mind. Visions. Of you. All bad. All sad. Nothing good. Your smile does not fill my heart. Only grief. Only pain. Only the ever flowing sadness of losing you, that consumes me. Everything is jumbled.

Cupcakes for a friend. A birthday. But not yours. Balloons. Not for you? But always for you. A play date for your brothers. With a 4-year old, but it wasn’t you? A storm. The first storm, without you to cuddle up to. A run instead? To avoid the pain. A run, after the storm at 8:30 p.m. in the dark, alone, from our house, very fast, all the way to PCH and back?? How did I end up there? 10 miles there and back from our house. I think. I couldn’t stop. I tried to find you but you weren’t there. Happy laughs from your brothers. Smiles so true. But how is that possible, without you? Bittersweet. Rage. Disbelief. Has everyone forgotten?

An email from school. A Fall Party. A Harvest Festival. Volunteers needed. Of course I sign up. Wait. A Fall Party? Don’t they mean, Halloween? No. They do not. It’s specific. Words printed right there in black and white. “Please keep in mind, the district does not want the focus of our party, to be Halloween.” What? Really? Who the fuck are the assholes who got, “Halloween,” kicked out of school?Because they must have worked really fucking hard, to make this happen. WOW. I wish schools would take Childhood Cancer, a little more seriously, than Halloween. I wish schools would be a little more offended, by their future kids, getting sick and or dying, from Cancer, than fucking Halloween. I wish the schools would take the time, to EDUCATE, kids on things like Childhood Cancer, instead of protecting them from Halloween. I bet our future generation, would grow up more compassionate, kind, loving, forgiving, helpful, smart, and all around, better people if they knew a little more, about Childhood Cancer. Instead of being sheltered from the world, by not being able to celebrate fucking Halloween at school. Really? We are really more offended by Halloween, than of Ronan dying? Than of all the sick little boys and girls, surviving, hurting, being scared, sad, ignored, tossed away, treated like LAB RATS and DYING? DID YOU HEAR WHAT I SAID?? DYING?? Who is making these rules? Who is wasting their time and energy of things that have such little importance or significance? Fucking idiots, that’s who.

Conversations that really happened. I could not make this shit up: Once again. Names have been altered, to protect the innocent. Except for mine of course. Slander my name. Throw me under the bus. I’ll survive. Worse things, could happen. Right? Yes. As we all know, much worse.

Number 1)

Silly Bug- “Mom, when Dad comes to our school to talk about his job, he’s going to say he’s a lawyer. If you come, you can say that your job is to take care of 2 boys all day long.”

Me- “Wait. What? 2 boys. No silly, bug. Not two boys. Three boys. You, Quinn and Ronan. Always Ronan.”

Number 2)

Silly Bug number 2-“But why, Mom. Why do you have to go see Dr. J today? Why do you have to leave us to go and talk to her.”

Me-“Because my son just died that’s why! My son, and your brother and I need someone to talk to! How do you not understand that?!”

Ummmm…. because they are 8, dumbass. Because you are so good at playing pretend, that mommy is going to be alright.

(insert guilty worst mom ever pressure internal monologue here) “Wait. Did I just snap at my kids? Did I really, just respond to them, with that answer, in that tone of voice? Was that even me? The calm, cool, I don’t yell rather I explain in depth, we talk it out, but now I’ve turned into the spawn of the Devil, Mom?? Yup. You did. And you’re not even going to apologize. Your going to roll with it. There is no going back and sugar-coating to the sweetest ever 8-year-old boys. You did it. You don’t ever do it. OWN IT. Life is tough. And sometimes, 8 year olds, need to be reminded of that because they are so resilient. It is amazing how resilient. I am thankful, for that resilience. The resilience that is so bittersweet. They won’t forget you. I know that. But sometimes I forget. And sometimes, it is hard to watch them, going on as if you were never here. As if you are still here, and never gone. It leaves me confused. Perplexed. Wandering about, in a state of mourning and grief, that only seems to be getting worse. Day by day. Minute by minute. The emotional anesthetics is slowly wearing off. I thought it had already worn off? Nope. You were tricked. You were fooled. It’s only getting more and more painful.

Push away. Isolation but not really. Out in the world. So busy. So many tasks. A real smile exists every so often. By chance most times. When they happen, they are authentic and they make my heart feel light and breezy. The lady who tells me she used to only get French manicures, on her fingernails, but is loving her bright, crazy colors, like the Bubble Gum Hot pink she has plastered all over her fingers and toenails. I think it must be, because of you. The little girl. The brave little girl who goes in front of her ENTIRE school, to give a speech and says she thought of YOU the entire time. That was you. I know it was you. The applications that I read for the model search. About the little girl that cut off her hair, and gave it to her cousin, who has Cancer. The little girl, who had her Daddy drive all the way from Tuscon, to fill her’s out. The people who stop me, to tell me that they will fight for you, for the rest of you their lives and they didn’t even know you. The Busy Little Bees of mine, who come swarming in, no questions asked, when I need help. All whispers from you. “Mama. I’m still here. Mama. You have to be strong. Mama. I’ll never leave you. Mama. My spirit still exists. Mama. I love you.” I hear your little whispers, ever so faintly.

A session with Dr. J.

A session that I think I cried for almost the entire two hours. A session where she asked me to read my letter out loud to Dr. Kushner. She asked me. She pulled me. She didn’t push me. A letter that I did not think I could write. I almost couldn’t. But I did. My uncensored letter. The raw, uncut version which was titled, “Dear Dr. You Killed my Son, Kushner.” A letter that needed to be written. Words that needed to be said. Valid or not, they needed to be said. For you. And for me. Because all it would have taken was a simple, “I’m so sorry. I failed you. Your son, is dying. There is nothing I can do. I tried my hardest.” Instead I got no eye contact, and thrown out of that hospital, like we were yesterdays garbage. Never to be thought of again. Not acceptable in my book. So, I channeled my inner rage, pain, guilt, and sadness in that letter. I could have written 20 pages, but had to stop when I could physically take no more. The words are there, in black and white. They will be sent. Someday. In an edited version. With your obituary. Then an unedited version, will follow. Someday. For you. For I am your voice as shaky as it may be. Someday I will be able to read that letter out loud, to Dr. J while looking her in the eyes. I will read that letter out loud to her in strong and powerful voice. Not in the way I read it out loud to her a few nights ago. Crying. Tears spilling all over the paper. Stopping. Starting. So much pain. Too much pain. Is that even possible??

Number 3)

Me- “Are you o.k.? I’m so sorry. What do you need? What can I do.”

S- “I’m o.k. There is nothing you can do. You know what. I’m wrong. There is something you can do. You can keep being amazing. You can keep being the remarkable young woman that you are. Please don’t ever stop that. You are amazing. Promise?”

Me- Tears spilling. Face black. Forgot to wear my fucking waterproof mascara. “Yeah. O.k. I promise.”

Heart heavy. Filled with Hope. The nudge I needed when I need it most. Always. Always. One of the few reasons that I am still here. A smile exists. Truly exists. You know. I know you know, Ro. You’ve always known.

Number 4)

Little Bug number 1- “MOM!!! Can you cook those pre made cookies for us today, for when we get home from school? Please! They have spiders on them!!”

Me: “Of course I can, Buddy! Because I’m SUPERMOM!”

2:30 p.m. rolls around. Fuck. Pick kids up in T-30 minutes. Throw cookies in oven for 10 minutes. Forget to set timer. Go to bedroom. Sink in bed for 25 minutes. Don’t sleep. Sit. Quiet. Still. Cry. What’s that smell coming from the kitchen? It’s nothing. 2:55 rolls around. Time to get boys! Jump out of bed. Ummmm… I smell smoke. Where is that coming from? OH MY GOD YOU DUMBASS! You burnt the fucking cookies! The fucking pre made cookies that are impossible to mess up and destroy. Well mama, you destroyed those to a crisp today. Black. I scrubbed the cookie sheet. Threw the cookies outside in the garbage as to destroy the evidence. It didn’t work. 5 hours later and our house still smells like burnt cookies. Good thing 8 year olds are so forgiving.

Number 4)

W- goes to turn on the T.V. ::::::: Your cable service, has been disconnected. Please call 1800 blahblahblah to have it reinstalled.”
W- looks at me like I am the devil. ” Did you seriously not pay the cable bill?” I mean really? Babe. You know before you do all your other “stuff,” that the bills need to be paid, right??”

Inca- (my alter ego, sassy pants name) FIts of giggles. Laughter. “Wait. Your going to get that upset, over the Cable Bill? Do you think if I called up COX and told them that our son just died of Cancer, that they would give me a Hall Pass?? Because I think that should qualify. Can you tell them, that the woman who is in charge of paying the bills is now a BEREAVED mother, so everyone at COX can be put on HIGH ALERT and she can be cut a little slack?? Just a little??”

W- Did not think that was funny. Played the responsible, mature role as always.

I had paid the bill, that day. I knew it was late. I was just hoping I had paid it on time, for it not to get shut off. I didn’t. Tragedy. I could care less if I never watch T.V. again as it irritants me like no other. Useless stagnate noise to fill the voids within ourselves. Pleasure? From T.V. Really? Or avoidance from the reality of all the beauty that surrounds us, but we choose to ignore. Or avoidance from our pain? Relaxing? Maybe. Not to a mom, whom has lost her son. T.V. is pure static. Pure torture. Unnecessary noise. Anxiety. Time that we always spent together, Ro. T.V. time. “Mickey Mouse Club House.” “Max and Ruby.” “Clone Wars.” “Glee.” Our favorites. Now the shows still play. I want to throw up every time Mickey Mouse Club House comes on the screen. You should be watching it on my lap, eating you eggies. Why are you not? Where are you? Can anyone, explain any of this to me? Do you still have your children? Oh, they are outside, playing. Oh, they are at soccer practice. Oh, they are picking you flowers.” Well, darn it then. You cannot explain it to me. You cannot tell me everything happens for a reason. You cannot tell me how I should or should not be grieving. You cannot fix this. No one can. Unless you can bring him back. Unless you can rewind time to before he died. If you can do that, than we can talk. I’d live in that world, the not sick, the sick, the cancer sick, the cancer not getting better; but not the he’s dying from cancer, world. I’d live in every one of those worlds, for the rest of my life, except that one. I don’t ever want to have to watch my son, die over and over again. Except I do. Because it replays in my head as if I am at a theatre, watching a movie. The same movie, over and over again.

Dear Faithful Followers of this Blog,

Are you still out there? Have you gone away? I hope I didn’t worry you too much. I hope I didn’t scare you with this jippity jumpity blog post. I know I was a little all over the place. I told Woody I had not written in 3 days. He asked how that made me feel. I told him anxious. Very anxious. I’ve had too many things going on in my head to keep them cooped up for that long. When I release them, it’s like a flood of words, feelings, thoughts, all discombobulated. All wild and free which is just where I need to be because , All good things are wild and free, right? I so believe this to the core of my soul. Of the core to Ronan’s soul. My other favorite quote, “Life’s no way to treat an animal.” Vonnegut knows it better than anyone. I so appreciate that. I so appreciate all you. Forgive my lack of communication as far as messages, emails, Facebook’s…… I’ve taken on a lot. Emotionally, Physically, Mentally…. I feel like I’m drowning again. Dr. J is going to print out little flyers for me that simply say, “FUCK OFF! MY KID JUST DIED! SO NO, I WON”T DO THAT!” Brilliant woman she is.

If you have not heard from me this week, it’s not because I’m ignoring you. It’s because I honestly have so many emails, that I am scared to open them all up. I am going designate a day, to do this and go through them all, properly. Thank you for sending them. I can’t wait to read them. I’m sure there is much amazingness to come from them. So THANKYOUTHANKYOUTHANKYOU!!!!

Less is more. Busy is o.k. but not busy the way I have been busy. Ronan. You should see our laundry room. The one that is always perfectly spotless as Im always caught up on the laundry. I have piles of clean clothes, everywhere back there. Spilling out of the baskets, the sink, on top of the dryer. Obviously you know I’ve been way too busy if this is happening. I’m a laundry freak and obsess over it. Not this week. Apparently this week the our little laundry fairy (me) decided not to show up. We will have to dock her pay!

YOWZWER RO! It’s a novel tonight! Time to say G’night my little Boo. I love you. Your Daddy loves you. Your brothers love you. We all miss you. We are all hurting over you. We will hurt over you for the rest of our lives. But lives that you are going to shape for us to live, so we can live with the most potential possible. Because to live any other way would be pointless and shameful.

I love you, RO. I love you to the moon and back. Just me and you, Baby. Twinkle Twinkle Little Star. I hope you are safe. You are so very loved.

xoxo

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35 thoughts on “I forgot to pay the Cox Bill and I burnt the Fucking pre-made Cookies

  1. Jaime H.

    Always here for you, so sorry for everything you are going through. Continue to think of you and pray for you daily. XOXO

  2. Emily

    Always here & always will be! Fuck the cookies and agree with S, keep being you, keep fighting the fight and keep being amazing!!!!

  3. charlotte

    We are still with you! All the way from Texas!! We are crying with you although in NO way can we know what you’re feeling! Know we cry as moms for you!! I sit here trying to think of something, anything to say to make you smile, to bring you just an ounce of comfort…but NOTHING! Everything would just sound pointless!! So…the one thing that seems to stick in my mind to say is FU CANCER!!! That seems to say it all…for taking Ronan, Layla Grace, my friend’s baby, Benjamin…and for all those that it has taken! FU CANCER.. For hurting these babies, for those suffering as I type this!! And FU to all that turn a blind eye to it all! Oh, and Kim Kardashian and your clan (and all superficial celebrities and their million $ purses, jewelry!)- YOU SUCK!
    That’s all that I can think to say that seems fitting!!
    Keep fighting Maya!
    Much love from Cypress, Texas!

  4. Rita Dickinson

    Maya – We’re back in town. I’m looking for something to do. Let me know if you want me to pay bills, go to the grocery store, anything that is too tough. Wish I could take your pain away. Rita 602.616.4032

  5. Melissa Vendt

    Thinking of and praying (sorry if that pisses you off) for you and your family daily , Maya. Haven’t gone anywhere and always stop whatever is going on to read your posts…so we were the last can in line for drop off this morning. Speaking only for myself, I think/pray even more when it has been a few days because I assume those blogless days are the most grueling….and not a chance I am going away. Not til you say to AND even when/if that day comes, I can promise you that Ronan will always be remembered by even a stranger like me and the fight you are in NOW to raise AWARENESS, to WAKE people up, and find a CURE will burn brightly inside me until that cure is found and children are no longer dieing. And SUPERMOM..even us mommy’s who are not grieving the death of our child snap at our babies and say the wrong things despite our every effort to ALWAYS stay calm and say the perfectly right things. Ease up on yourself, mama!

  6. Annie

    My 3-year old came downstairs a couple of weeks after our lemonade stand and held a quarter out to me. He said that he found it and wanted to give it to ‘that boy’ (Ronan). My husband said I shouldn’t have told the boys about Ronan because it’s too sad. Fuck that–I want to raise my boys to CARE and MAKE A DIFFERENCE, not turn their heads because it’s sad or uncomfortable. Thank you for helping me be a better person.

  7. L

    Damn I missed those “fucks” for the past three days!! Glad you’re back! And I”ll be here ALWAYS and FOREVER!! ❤

  8. Paula

    I don’t have the words but I am here reading and wishing more than anything I could do something anything to give you back your baby, your happiness, your Ro x

  9. Amber tate

    Maya ,
    I been reading your post almost everyday and you and your son Ronan inspire me. I first hear your story through my sister in law and my heart ache for you . I lost my mom to cancer 9 years ago when I was 13. I now have a beautiful 1 year son and I wear F u Cancer bracelet everyday. I don’t take off, Because its remind to enjoy life and try everyday to make a difference in the world. The only thing is that it doesn’t fit me very well, so I have decide to get an purple star tattoo in honor of your son. I’m going to try to make a tshirt that says fuck you cancer. I just want you to know that you have change my life and I’m so inspire by you and Ronan. You made me a better mom, because whenever I get frustrated with my son I look at my bracelet and I get more patience with my son and I get this over whelming sense of peace. So thank you so much for sharing your life with the world. Sending my love to you and your family.

  10. Wendy Ledford

    Maya,
    Still here, reading your blog, never forgetting your precious RO and holding you close in my thoughts and prayers every single day. Love and Hugs- from Atlanta
    Wendy

  11. Shlomit Robbins Gruber

    Always here supporting you, Ronan and your entire family 100%. Your willingness to share and bear your soul, and RONAN’S TRUE SOUL, makes us all better people every day. And it’s why we’re all in this fight with you, forever. Couldn’t agree more re Halloween and a million other things. We need to get all these people who use NEEDLESS energy on these most ridiculous “issues” to channel it towards something so much more crucial — the fight to save children’s lives through awareness, research, CURES. No child, no mother, no FAMILY should have to go through this horror. I’m so sorry, Maya.

    Our ROCKSTAR RONAN Curesearch Team (for 2/12/12 race) will be up and running this weekend. I’ll forward and post details so we can open it up to participants.

  12. Maureen

    Are we still out there? Have we gone away? You can’t get rid of us that easy. 🙂 We’ve all been checking in and waiting to hear from you. All hoping you are smiling as you walk (or run) through your day.

    I have and will always pray for peace.

    Mo

  13. Lanie

    I have not forgotten Ronan. I wish that I could write to you that this is all a horrible nightmare but I know that is not possible. If there was some magic and I had found it I would share it with you. Sending hugs, peace and a breaved mother’s pass.

  14. Stefanie

    We missed you. Explained the situation to my 12 year old today with pediatric cancer research funding. He was appalled. I told him about the naughty bracelets and he is dying for one. He says if the other kids can wear the “I love boobies” ones then he should be able to wear that. He also requested an “F the government” bracelet for not providing more funding. He is so awesome. Hang in there.

  15. amourningmom

    I have not forgotten Ronan. I wish I had something magical to write. I wish I could write to you that this is all a horrible nightmare. I promise if I find a time machine or any kind of magic I will share it with you. Till then day by day, minute by minute or whatever it takes. Take care.

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